Fran H
@franhaddock.bsky.social
Severe ME | Activism from bed | Small joys
She/her
She/her
Reposted by Fran H
The same post exists on FB, Twitter, Instagram, B$ky, and TikTok, so please consider boosting there so we can get out of the echo chamber! All hands on deck! #pwME
www.gofundme.com/f/save-nevra
www.gofundme.com/f/save-nevra
August 28, 2025 at 5:48 PM
The same post exists on FB, Twitter, Instagram, B$ky, and TikTok, so please consider boosting there so we can get out of the echo chamber! All hands on deck! #pwME
www.gofundme.com/f/save-nevra
www.gofundme.com/f/save-nevra
Reposted by Fran H
Thank you @natashadevon.bsky.social for hosting another excellent segment on #MECFS π
And thank you to @swastrosarah.bsky.social , @franhaddock.bsky.social & the other contributors for getting our stories out there.
#MyalgicEncephalomyelitis is a serious disease that can happen to anyone.
And thank you to @swastrosarah.bsky.social , @franhaddock.bsky.social & the other contributors for getting our stories out there.
#MyalgicEncephalomyelitis is a serious disease that can happen to anyone.
Natasha Devonβs LBC phone-in on #MECFS (38 mins).
Callers discuss their experience, including stigma and medical gaslighting, as well as their thoughts on the largest genetic study to date. @natashadevon.bsky.social
youtu.be/-2XxcsUXRJs?...
Callers discuss their experience, including stigma and medical gaslighting, as well as their thoughts on the largest genetic study to date. @natashadevon.bsky.social
youtu.be/-2XxcsUXRJs?...
LBC - Natasha Devon Phone In - DecodeME Results
YouTube video by Broken Battery
youtu.be
August 10, 2025 at 11:54 AM
Thank you @natashadevon.bsky.social for hosting another excellent segment on #MECFS π
And thank you to @swastrosarah.bsky.social , @franhaddock.bsky.social & the other contributors for getting our stories out there.
#MyalgicEncephalomyelitis is a serious disease that can happen to anyone.
And thank you to @swastrosarah.bsky.social , @franhaddock.bsky.social & the other contributors for getting our stories out there.
#MyalgicEncephalomyelitis is a serious disease that can happen to anyone.
Community video for Severe ME awareness day, please share and tag politicians and public figures who need to see this!
All participants IG handles tagged at the end ππ
#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
All participants IG handles tagged at the end ππ
#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
August 8, 2025 at 10:15 AM
Community video for Severe ME awareness day, please share and tag politicians and public figures who need to see this!
All participants IG handles tagged at the end ππ
#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
All participants IG handles tagged at the end ππ
#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
Reposted by Fran H
π¨ I have 10 days before August rent is due, I need 832.33Β£ or $1,131.18
This is an emergency, so few people have donated recently, Iβm at risk of homelessness, I could not survive that
Please boost/engage with this! π¨
Rent PayPal: www.paypal.com/paypalme/Sav...
GFM: www.gofundme.com/f/save-nevra
This is an emergency, so few people have donated recently, Iβm at risk of homelessness, I could not survive that
Please boost/engage with this! π¨
Rent PayPal: www.paypal.com/paypalme/Sav...
GFM: www.gofundme.com/f/save-nevra
July 21, 2025 at 4:22 PM
π¨ I have 10 days before August rent is due, I need 832.33Β£ or $1,131.18
This is an emergency, so few people have donated recently, Iβm at risk of homelessness, I could not survive that
Please boost/engage with this! π¨
Rent PayPal: www.paypal.com/paypalme/Sav...
GFM: www.gofundme.com/f/save-nevra
This is an emergency, so few people have donated recently, Iβm at risk of homelessness, I could not survive that
Please boost/engage with this! π¨
Rent PayPal: www.paypal.com/paypalme/Sav...
GFM: www.gofundme.com/f/save-nevra
Please support my friend Esam
These are my three children who need your donations to stay alive. Please do something to help me or I promise to publish if you can't help.
π
www.paypal.com/paypalme/Esa...
gofund.me/e2edd02f
π
www.paypal.com/paypalme/Esa...
gofund.me/e2edd02f
April 18, 2025 at 3:04 PM
Please support my friend Esam
Reposted by Fran H
βIn 2025, long Covid is the public health crisis no one wants to talk about, taking a wrecking ball to peopleβs lives, the economy and NHS while those with power pretend thereβs nothing to see.β
5 years on, I wrote about long Covid and national denial. www.theguardian.com/commentisfre...
5 years on, I wrote about long Covid and national denial. www.theguardian.com/commentisfre...
Long Covid is the pandemicβs dark shadow. Why does no one in power in Britain want to talk about it? | Frances Ryan
Five years after the first lockdown, millions of lives are still being ruined by this debilitating disease. You wouldnβt know it, says Guardian columnist Frances Ryan
www.theguardian.com
March 17, 2025 at 10:25 AM
βIn 2025, long Covid is the public health crisis no one wants to talk about, taking a wrecking ball to peopleβs lives, the economy and NHS while those with power pretend thereβs nothing to see.β
5 years on, I wrote about long Covid and national denial. www.theguardian.com/commentisfre...
5 years on, I wrote about long Covid and national denial. www.theguardian.com/commentisfre...
#IsItOk for @alastaircampbell2.bsky.social to complain about how many disabled people are not working on #TheLastLeg without questioning why? Have you heard of #LongCovid Alastair? And the pandemic which is an ongoing mass disabled event? And that thereβs no cure and virtually zero support?
March 14, 2025 at 10:54 PM
#IsItOk for @alastaircampbell2.bsky.social to complain about how many disabled people are not working on #TheLastLeg without questioning why? Have you heard of #LongCovid Alastair? And the pandemic which is an ongoing mass disabled event? And that thereβs no cure and virtually zero support?
A few days ago we heard the UKβs government delivery plan for ME will contain NO additional funding. How will this make a meaningful difference to #pwME?
So @wesstreeting.bsky.social and @ashleydaltonmp.bsky.social , please listen our lived experiences, and #FundThePlan
@thereforme.bsky.social
So @wesstreeting.bsky.social and @ashleydaltonmp.bsky.social , please listen our lived experiences, and #FundThePlan
@thereforme.bsky.social
February 21, 2025 at 2:51 PM
A few days ago we heard the UKβs government delivery plan for ME will contain NO additional funding. How will this make a meaningful difference to #pwME?
So @wesstreeting.bsky.social and @ashleydaltonmp.bsky.social , please listen our lived experiences, and #FundThePlan
@thereforme.bsky.social
So @wesstreeting.bsky.social and @ashleydaltonmp.bsky.social , please listen our lived experiences, and #FundThePlan
@thereforme.bsky.social
Reposted by Fran H
Highlights from yesterday's ITV News Calendar segment on #LongCovid on the 5 year anniversary of the first case of Covid in the UK. Fran Haddock talks about how her life has been "decimated" by the condition.
February 1, 2025 at 8:59 AM
Highlights from yesterday's ITV News Calendar segment on #LongCovid on the 5 year anniversary of the first case of Covid in the UK. Fran Haddock talks about how her life has been "decimated" by the condition.
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January 29, 2025 at 4:26 PM
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Will a day come when my friends arenβt so unbearably, unimaginably sick?
January 28, 2025 at 4:55 PM
Will a day come when my friends arenβt so unbearably, unimaginably sick?
My friends, they are so strong. Not in the way you see on TV. In the way it takes to survive every day with severe ME. With grit, resilience, humour, hope, acceptance, despair. Why should we have to be strong like this. Is each other all we have? Or are there others who can share the weight?
January 28, 2025 at 4:55 PM
My friends, they are so strong. Not in the way you see on TV. In the way it takes to survive every day with severe ME. With grit, resilience, humour, hope, acceptance, despair. Why should we have to be strong like this. Is each other all we have? Or are there others who can share the weight?
I wish we could meet for cake, watch a film under the covers or dance under the trees. Instead we exchange messages of advice and support, or rambling rants, sometimes memories or photos, sometimes gifts carefully chosen with sacrificed energy, sometimes just a word.
January 28, 2025 at 4:54 PM
I wish we could meet for cake, watch a film under the covers or dance under the trees. Instead we exchange messages of advice and support, or rambling rants, sometimes memories or photos, sometimes gifts carefully chosen with sacrificed energy, sometimes just a word.
Promised things will get better but the reality is often so different. Those who do get better often want nothing to do with those still in the darkest depths, too traumatised by the memories or poisoned by ableist narratives.
January 28, 2025 at 4:53 PM
Promised things will get better but the reality is often so different. Those who do get better often want nothing to do with those still in the darkest depths, too traumatised by the memories or poisoned by ableist narratives.
You never get used to it. Maybe it gets normalised to some extent because weβve all been living like this for a good while now.
Alone and together. Missing and forgotten.
Alone and together. Missing and forgotten.
January 28, 2025 at 4:53 PM
You never get used to it. Maybe it gets normalised to some extent because weβve all been living like this for a good while now.
Alone and together. Missing and forgotten.
Alone and together. Missing and forgotten.
They live inside my phone. But they are real, scattered around the word in their own homes, living in bed just like me.
Some donβt have the care they need to get through the day. Some of them are actively harmed rather than βjustβ neglected.
Some of them arenβt sure how they can continue.
Some donβt have the care they need to get through the day. Some of them are actively harmed rather than βjustβ neglected.
Some of them arenβt sure how they can continue.
January 28, 2025 at 4:52 PM
They live inside my phone. But they are real, scattered around the word in their own homes, living in bed just like me.
Some donβt have the care they need to get through the day. Some of them are actively harmed rather than βjustβ neglected.
Some of them arenβt sure how they can continue.
Some donβt have the care they need to get through the day. Some of them are actively harmed rather than βjustβ neglected.
Some of them arenβt sure how they can continue.
Every day I wake up, unrested and heavy, and open up my messages.
My friends, they are so sick.
Theyβre crashing, in pain, some of them canβt eat, some of them canβt see their phone, canβt stand, canβt think. So much suffering. Day after day after day.
My friends, they are so sick.
Theyβre crashing, in pain, some of them canβt eat, some of them canβt see their phone, canβt stand, canβt think. So much suffering. Day after day after day.
January 28, 2025 at 4:51 PM
Every day I wake up, unrested and heavy, and open up my messages.
My friends, they are so sick.
Theyβre crashing, in pain, some of them canβt eat, some of them canβt see their phone, canβt stand, canβt think. So much suffering. Day after day after day.
My friends, they are so sick.
Theyβre crashing, in pain, some of them canβt eat, some of them canβt see their phone, canβt stand, canβt think. So much suffering. Day after day after day.
I donβt want my friends to keep getting sicker
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Words on existing in the severe ME community, TW severe illness β¬οΈ
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Words on existing in the severe ME community, TW severe illness β¬οΈ
January 28, 2025 at 4:50 PM
I donβt want my friends to keep getting sicker
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Words on existing in the severe ME community, TW severe illness β¬οΈ
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Words on existing in the severe ME community, TW severe illness β¬οΈ
Thank you!! π¦π¦π¦ββ¬
January 27, 2025 at 7:10 PM
Thank you!! π¦π¦π¦ββ¬
A few photos from our @rspb.bsky.social Big Garden Birdwatch yesterday. Before I had severe ME I was an avid environmentalist and nature enthusiast. The prior 2 years Iβve been too sick to look out of the window, or sit up, or look through binoculars, or open the curtain. So this was a joy
January 27, 2025 at 4:36 PM
A few photos from our @rspb.bsky.social Big Garden Birdwatch yesterday. Before I had severe ME I was an avid environmentalist and nature enthusiast. The prior 2 years Iβve been too sick to look out of the window, or sit up, or look through binoculars, or open the curtain. So this was a joy
Please sign and share this petition for Line in Denmark, who is being threatened with involuntary psychiatric hospitalization if she doesnβt push through her very severe ME. Absolutely barbaric and could be life threatening www.change.org/p/prevent-fo... #SaveLine #SevereME
Sign the Petition
Prevent forced psychiatric hospitalisation of Very Severe ME patient in Denmark
www.change.org
January 20, 2025 at 8:26 PM
Please sign and share this petition for Line in Denmark, who is being threatened with involuntary psychiatric hospitalization if she doesnβt push through her very severe ME. Absolutely barbaric and could be life threatening www.change.org/p/prevent-fo... #SaveLine #SevereME
Covid precaution wise- the visitors (my mum, sister and nephew) did a pooled pluslife test for covid, & had no symptoms of anything, we had 2 air filters & windows open & all wore FFP3 auras except Lachlan. Everyone hand sanβd with hypochlorous acid, and I kept my mask on a while after theyβd left
January 19, 2025 at 10:23 AM
Covid precaution wise- the visitors (my mum, sister and nephew) did a pooled pluslife test for covid, & had no symptoms of anything, we had 2 air filters & windows open & all wore FFP3 auras except Lachlan. Everyone hand sanβd with hypochlorous acid, and I kept my mask on a while after theyβd left
I was so worried because Iβm really not used to kids and obviously my body doesnβt let me be very loud or enthusiastic. But he didnβt mind. He also didnβt mind the masks at all. Gives me hope that was can build a good relationship despite my health and covid boundaries and him living so far away
January 19, 2025 at 10:21 AM
I was so worried because Iβm really not used to kids and obviously my body doesnβt let me be very loud or enthusiastic. But he didnβt mind. He also didnβt mind the masks at all. Gives me hope that was can build a good relationship despite my health and covid boundaries and him living so far away
knew who we were (from FaceTime too), he was obsessed with Salem (the cat). And let me pick him up (which my arms also somehow let me do!!?) and look after him a little tiny bit. We managed to find loads of things he was interested in just in my bedroom (helped by my large collection of plushies π)
January 19, 2025 at 10:19 AM
knew who we were (from FaceTime too), he was obsessed with Salem (the cat). And let me pick him up (which my arms also somehow let me do!!?) and look after him a little tiny bit. We managed to find loads of things he was interested in just in my bedroom (helped by my large collection of plushies π)