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Janice Cowden @janicetnbcmets.bsky.social · Mar 16

Providing P2P support is advocating in my mind! Thank you for being there, Deb, we all need to be heard.

Janice Cowden @janicetnbcmets.bsky.social · Mar 16

One doesn’t have to be early stage to feel “imposter syndrome.” I’m amongst ~1-2% of people dx w/ stage 4 metastatic breast cancer (OligoMBC, tnbc) who’s NED & on no tx for 8.5 yrs. I’ve lost far too many friends over the yrs to stop advocating & sharing. It honors their life & legacy & offers hope.

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Reposted by Janice Cowden

METAvivor @metavivor.bsky.social · Feb 3

#METAvivor #MetastaticBreastCancer #Transparency #ThankYou #DonorPolicy

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Janice Cowden @janicetnbcmets.bsky.social · Jan 31

THIS‼️
🔺brain mets occur in 15 - 30% of MBC pts; ⬆️ in #TNBC & #HER2+
🔺delayed MRI=⬆️ adv disease, req. ⬆️WBR & ⬆️ dx LMD
🔺earlier det=earlier intervention = better outcomes for pts
”.. maybe we should be routinely performing brain MRIs in those patients”💡
#bcsm
#BCBM
www.medpagetoday.com/hematologyon...

Time to Reconsider MRI to Detect Asymptomatic Brain Mets in Breast Cancer?

Initial MRI showed asymptomatic brain lesions in 14% of patients, increasing to 25% at 6 months

www.medpagetoday.com

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Janice Cowden @janicetnbcmets.bsky.social · Jan 20

Spent the past 5 days with an incredible group of #advocates @ the 2025 Bag It Cancer #EscapeToThrive2025 leadership conference in Tucson, AZ. Miraval Resort & Spa was the ideal spot to #restore, #refresh, & #rejuvenate!

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Janice Cowden @janicetnbcmets.bsky.social · Jan 20

Honored to serve on this study with an incredible group of patient advocates & @ascocancer.bsky.social leaders!

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Reposted by Janice Cowden

Julie Gralow @jrgralow.bsky.social · Jan 18

Thanks to the patient advocates who serve on our @ascocancer.bsky.social CDK study advisory group and data safety monitoring committee. @janicetnbcmets.bsky.social @paspears88.bsky.social connection.asco.org/do/empowerin...

Empowering Patients: ASCO’s Inclusive Approach to Clinical Trials

ASCO's CDK4/6 Inhibitor Dosing Knowledge (CDK) Study prioritizes patient advocacy and engagement to improve outcomes and quality of life for individuals with cancer.

connection.asco.org

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Reposted by Janice Cowden

Wendy Woodward, MD, PhD @ibcradiation.bsky.social · Jan 14

www.nytimes.com/2025/01/08/p... Amazing story from a stage IV inflammatory breast cancer patient about finding love. #IBC #oncsky #cansky

Finding the Magic, Just in Time

Clare Cory was 59 years old and had been single almost her whole life. She thought her love story was over. Then everything changed.

www.nytimes.com

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Janice Cowden @janicetnbcmets.bsky.social · Jan 14

Happening tonight: Tuesday 1/14/25, 5 pm PT / 8 pm ET ~ #TumorBoardTuesday (#TBT) - HR+ #MBC! Join @zoezhang.bsky.social & @dr-rshatsky.bsky.social for this great educational session!
#bcsm
#PatientAdvocate

Xiaojie (Zoe) Zhang @zoezhang.bsky.social · Jan 10

So excited to begin my #Medsky journey by presenting with my amazing clinic mentor @dr-rshatsky.bsky.social at
#TBT on new developments in HR+ MBC! ! It will be on Tuesday the 14th at 5pm pacific, 8pm eastern!
#bcsm #OncSky #CanSky #MedSky #breastcancer #MBC

Dr. RShatsky @dr-rshatsky.bsky.social · Jan 9

Hello all, wanted to let you know about a fantastic interactive learning opportunity! This Tuesday the 14th my lovely fellow and I will be presenting Tumor board Tuesday #TBT about new developments in HR+ MBC! It will be 5pm pacific, 8pm eastern! #bcsm #OncSky #CanSky #MedSky #breastcancer #MBC

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Reposted by Janice Cowden

Dr. RShatsky @dr-rshatsky.bsky.social · Dec 5

#OncoSky #CanSky Listen up!! For those who used to enjoy Tumor Board Tuesday #TBT. We have been speaking to the wonderful Dr. P @mpishvaian.bsky.social and we will be starting some Tumor Board Tuesday “Sky Chats” over here soon! Stay tuned! #TBT is a wonderful learning/CME resource!!! #bcsm

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Janice Cowden @janicetnbcmets.bsky.social · Jan 9

That’s great! I know many of us are still using Twitter regularly! (Me included)

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Reposted by Janice Cowden

Dr. RShatsky @dr-rshatsky.bsky.social · Jan 9

Hello all, wanted to let you know about a fantastic interactive learning opportunity! This Tuesday the 14th my lovely fellow and I will be presenting Tumor board Tuesday #TBT about new developments in HR+ MBC! It will be 5pm pacific, 8pm eastern! #bcsm #OncSky #CanSky #MedSky #breastcancer #MBC

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Janice Cowden @janicetnbcmets.bsky.social · Jan 9

Thanks for the tag @dr-rshatsky.bsky.social, will share & try my best to be there!

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Reposted by Janice Cowden

DSP💙#🟦🎗️✡️ @drawstickpeople.bsky.social · Jan 5

Especially important for our #oncosky community due to weakened immunity to infections.

Please read this excellent educational public health tgread by @tmprowell.bsky.social

Tatiana Prowell, MD @tmprowell.bsky.social · Jan 5

#MedSky #IDSky #PublicHealth
There is a widespread outbreak of #norovirus, a GI virus that causes projectile vomiting & profuse diarrhea usually lasting 24-48 hrs. Wastewater levels nationwide in 🇺🇸 are high. It’s miserable & incredibly contagious. So many friends are texting SOS, so here’s a 🧵. /1

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Janice Cowden @janicetnbcmets.bsky.social · Jan 5

📑 benefits of P2P online support, “..most reported was being better informed…a predominant aspect of group participation is the exchange of info, the sharing of knowledge related to the disease, tx methods, or rec.”https://link.springer.com/content/pdf/10.1007/s00520-024-09119-5.pdf
#bcsm
#cancer

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Janice Cowden @janicetnbcmets.bsky.social · Jan 4

Tried hard to stay off SoMe during family time/holidays, & missed seeing the X post on 1/3, found it this a.m., & admittedly reeling a bit. Didn’t expect this, so damn 💔‼️ Hate MBC so, SO much 😢

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Reposted by Janice Cowden

Martha Carlson @marthacarlson.bsky.social · Jan 4

Lori Carey lived long on Enhertu. She was a wealth of knowledge about getting thru its rough start and the photographer of some of the most beautiful landscapes I’ve seen. I hope she got to say goodbye to those she loved and that Rebel was by her side too💔 #cansky #cancer #Stage4NeedsMore

A_Research_Guru @aresearchguru.bsky.social · Jan 4

Our friend Lori Carrey has journeyed on. I’m not sure if the details but saw a post on x from her friend.
#cansky
Our community will not be the same without her.

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Reposted by Janice Cowden

The OncoAlert Network 🚨 @oncoalert.bsky.social · Jan 1

Happy New Year from OncoAlert

@doublewhammied.bsky.social
@janicetnbcmets.bsky.social
@kjankovic.bsky.social
@seanmmcbride.bsky.social
@icromeattini.bsky.social
@jdmunter.bsky.social
@achoud72.bsky.social
@jesusanampa.bsky.social
@weoncologists.bsky.social

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Janice Cowden @janicetnbcmets.bsky.social · Dec 31

Reg for METAvivor Ground Swell is open. Share your story/exp, educate lawmakers who serve you in DC, make an impact, 👊 change advocating for policies that benefit all dx w/ & impacted by #metastaticbreastcancer, & 📣 need to ⬆️ 💲for MBC #research!
#bcsm
donate.metavivor.org/event/2025-g...

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Janice Cowden @janicetnbcmets.bsky.social · Dec 23

Taking a SoMe break for the holidays, spending time with family! Wishing everyone a holiday season filled with love, light, joy, & cherished moments with those you hold dear. See you in 2025!
Thankful for the #bcsm community!
#HappyHolidays
#Gratitude

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Reposted by Janice Cowden

Patricia Stoop @patriciastoop.bsky.social · Dec 19

#2SLGBTQIA young adult #cancer study in Canada #oncosky #cansky

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Janice Cowden @janicetnbcmets.bsky.social · Dec 18

It’s a privilege to be part of this meaningful work!
The ASCO CDK Dosing Study has the potential to reshape clinical practice for older adults w/ #metastaticbreastcancer. Thnx to PCORI for funding this impactful project.
@therightdose.bsky.social
@oncoalert.bsky.social
#bcsm
#DoseOptimization
#QoL

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Janice Cowden @janicetnbcmets.bsky.social · Dec 14

I’m in the US, haven’t heard of him or his podcast, but will check it out. Thanks for sharing!

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Reposted by Janice Cowden

Matt Sikora @mjsikora.bsky.social · Dec 10

Loving tumor heterogeneity session at #SABCS24! Talk by Nick Navin w/ cool implications for #lobular BrCa tumorigenesis.

In healthy breast cells, 16q/CDH1 loss common (~8% of cells from 49 patients), led to luminal clonal outgrowth... earliest precursors of ILC???

pubmed.ncbi.nlm.nih.gov/39567687/

Normal breast tissues harbour rare populations of aneuploid epithelial cells - PubMed

Aneuploid epithelial cells are common in breast cancer<sup>1,2</sup>; however, their presence in normal breast tissues is not well understood. To address this question, we applied single-cell DNA sequ...

pubmed.ncbi.nlm.nih.gov

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Janice Cowden @janicetnbcmets.bsky.social · Dec 10

Kicking off #SABCS24 w/ imp topics, communicating a MBC dx with pts, disease progression & prognosis, about #clinicaltrials. The Do’s & Don’ts.
#metastaticbreastcancer
#AdvancedBC
#bcsm
@sabcs.bsky.social
@mbcalliance
@ABCGlobalAll

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