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Reposted by Eleanor Fielding

George Monbiot @georgemonbiot.bsky.social · 15m

Why is microbial protein not OK, while this, which it aims to replace, is?

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Reposted by Eleanor Fielding

sarah boothby @swastrosarah.bsky.social · 12h

🙏 @vladvexler.bsky.social this describes exactly the point being made by Justice4ME.uk.
7 days left to Judicial Review of (England and Wales) UK government Final Delivery Plan for ME. @ashleydaltonmp.bsky.social we want to help you get this.
www.youtube.com/watch?v=_6KS...

When symptoms scarily escalate in ME and Long Covid

YouTube video by Vlad Vexler ME Diary

www.youtube.com

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Reposted by Eleanor Fielding

Thémis @themis2023.bsky.social · 10h

But it turns out that they were inspired by misinformation that had already been circulating since 2020 against NPIs, including lockdowns (I am writing an article documenting all this).
2/

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Eleanor Fielding @meownersclub.bsky.social · 8h

Look forward to reading that - publicise it widely! 👍

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Eleanor Fielding @meownersclub.bsky.social · 13h

And all grades of hospital staff who can no longer work because of Long Covid, most of whom have just been dismissed into the misery of the benefit system with King Wessely determining in advance that they’re illness-fakers
As though anyone would CHOOSE illness and poverty 😤.

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Eleanor Fielding @meownersclub.bsky.social · 13h

Bishops Stortford is far enough thank you.
(Actually never been there but don’t let that get in the way of a good joke)

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Eleanor Fielding @meownersclub.bsky.social · 13h

Or ‘club them’ together?

a man in a suit and tie is holding his hand to his chest .

Alt: a man in a suit and tie is shuddering

media.tenor.com

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Eleanor Fielding @meownersclub.bsky.social · 13h

Truly truly appalling
The lies+elisions of politicians should be grounds for criminal negligence trials for causing disability, +manslaughter charges for preventable deaths
Politicians would pay attention if their equivocating was actually punished and not rewarded by million $ speaking tours

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Eleanor Fielding @meownersclub.bsky.social · 13h

Yes. And then to be told you’re imagining it/making it up/should try harder, is just adding insult to injury.

No wonder #pwME (who have the worst quality of life of any illness) have secondary emotional distress - it’s a reasonable response to appalling treatment.

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Eleanor Fielding @meownersclub.bsky.social · 17h

Personally I think the worst symptom is PEM aka not being able to move without exhaustion - but what do I know, I’m not a man.

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Reposted by Eleanor Fielding

Wrambbit @wrambbit.bsky.social · 17h

Please consider gift links

Those with Long Covid who rely on disability payments can barely afford healthy food-nevermind subscriptions to MSM

In🇨🇦we were told nothing about Covid would be paywalled.Another Covid lie🤷🏻‍♀️

Paywalls are yet another cruel barrier to the disabled’s access to care😔

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Eleanor Fielding @meownersclub.bsky.social · 15h

If post-polio has been influenced by the punitive/political psychiatric model (and which post-infectious diseases process hasn’t?) then the likelihood is that the virus
IS there, ISBidentifiable by its ongoing catastrophic autoimmune effects+researchers just haven’t looked in the right places Grrrr

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Eleanor Fielding @meownersclub.bsky.social · 15h

Good survey - I’ve just completed it.

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Reposted by Eleanor Fielding

Eleanor Fielding @meownersclub.bsky.social · 17h

#ME #Disability #PEM #FanningTheFlames
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME #Plan4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@thelancet.com
@nhsengland.bsky.social
@georgemonbiot.bsky.social
@davidjoffe64.bsky.social
@drjoepajak.bsky.social

This is a cartoon pretending to be a shop coupon.

There is an image of a cat wearing glasses and reading books. Round the cat’s neck is a pendant with the words “Wise Cat”

The title says - “Do you suffer from outdated prejudices about #ME and #Long Covid?”

Wise Cat is saying “Stuff those prejudices down and see if you can squeeze a thought into the gap - here’s a link”.

The link is - https://meassociation.org.uk

Round the outside of the cartoon is a dotted line with scissors on it and the words ‘cut out and keep for those annoying relatives/friends/doctors’

The cartoon maker is #FanningTheFlames

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Reposted by Eleanor Fielding

Action for ME @actionforme.bsky.social · 1d

Our 2025 Big Survey is now open! 🎉

For more information, our FAQs, and to take part, head to our web page: www.actionforme.org.uk/research-campaigns/our-research-work/big-survey/

Thank you for supporting our research💙

🤝in collaboration with
@durhamimh.bsky.social @kacheston.bsky.social

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Eleanor Fielding @meownersclub.bsky.social · 15h

Gavin Williamson’s failures begin when he thinks he’s the smartest in the room and will only end when he’s cast into Dante’s 3rd Circle of Hell.

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Eleanor Fielding @meownersclub.bsky.social · 15h

Hmmm - do you think it’s one of those ‘let’s say something outrageous and then drop back to the place we really planned to be?’
In any case - I fear most British born tradesmen would not pass that test: are they lesser citizens?

Eleanor Fielding @meownersclub.bsky.social · 15h

How about adding some sarcasm into your response? Why shouldn’t we laugh at their appallingly ignorant behaviour?

#ME #MEcfs #PEM #MCAS #POTS #ChronicIllnessHumour

There is an image of a cat wearing glasses and reading books. Round the cat’s neck is a pendant with the words “Wise Cat”

The title says - “Do you suffer from outdated prejudices about #ME and #Long Covid?”

Wise Cat is saying “Stuff those prejudices down and see if you can squeeze a thought into the gap - here’s a link”.

The link is - https://meassociation.org.uk

Round the outside of the cartoon is a dotted line with scissors on it and the words ‘cut out and keep for those annoying relatives/friends/doctors’

The cartoon maker is #FanningTheFlames

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Reposted by Eleanor Fielding

Didier @medidier.bsky.social · 16h

Honestly ask, it is so difficult to implement these points?
More 'expensive' than the alternative of do nothing?
More ethical or humane than to abandon citizens to their own health struggles?

The whole thread is absolutely spot on.

Long Covid Advocacy @longcovidadvoc.com · 16h

CALLS TO ACTION
1. Acknowledge airborne transmission
2. Implement national clean air standards
3. Restore infection monitoring
4. Mandate school risk assessments
5. Provide quality teacher training on infection prevention, Long Covid & ME
6. End punitive attendance policies
/11

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Reposted by Eleanor Fielding

Long Covid Advocacy @longcovidadvoc.com · 16h

Absolutely 💯

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Reposted by Eleanor Fielding

hengymraes6.bsky.social @hengymraes6.bsky.social · 16h

Including towards teachers who also contracted Long Covid, with devastating impacts on their careers and little recognition or support from the education and health sectors.

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Eleanor Fielding @meownersclub.bsky.social · 16h

Thank you 😊

Eleanor Fielding @meownersclub.bsky.social · 17h

#ME #Disability #PEM #FanningTheFlames
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME #Plan4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@thelancet.com
@nhsengland.bsky.social
@georgemonbiot.bsky.social
@davidjoffe64.bsky.social
@drjoepajak.bsky.social

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Eleanor Fielding @meownersclub.bsky.social · 17h

Personally I think the worst symptom is PEM aka not being able to move without exhaustion - but what do I know, I’m not a man.

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Reposted by Eleanor Fielding

sarah boothby @swastrosarah.bsky.social · 18h

I just donated, again. One week to go before Judicial Review deadline. Please support these brave families www.crowdjustice.com/case/justice...

NHS care for ME now

Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.

www.crowdjustice.com

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