Eleanor Fielding
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meownersclub.bsky.social
Eleanor Fielding
@meownersclub.bsky.social
7.2K followers 15K following 2.2K posts
‘We’re driving in the dark with our sunglasses on!”

Retired lecturer/therapist -CCCS Birmingham, Open University, feminism, politics, culture, disability, science, music, languages. Woke AF

#ME (1987) Maker of #FanningTheFlames
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meownersclub.bsky.social
Eleanor Fielding @meownersclub.bsky.social · 14h
#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@thelancet.com
@nhsengland.bsky.social
@georgemonbiot.bsky.social
@profstevegriffin.bsky.social
@davidjoffe64.bsky.social
The cartoon series is called - This Week in Disbelief The title says - Using Philosophical Dross to Build Yourself an Empire Two doctors are discussing #ME. First doctor “So it's really the idea of illness that's at work here then?” Second doctor “Yes, there's no evidence of real illness in this patient group and exercise needs to be encouraged to break the cycle of illness beliefs” Wise Cat is saying “40 years of disability and death resulted from this unverifiable psychobabble...” Goose replies “... and still no retraction or apology?? The author is leaving the page and saying “The infamous BPS Model that replaced biology with bigotry!” as she goes. The cartoon maker is #FanningTheFlames
Reposted by Eleanor Fielding
tomkindlon.bsky.social
Science for ME Fact Sheet 3: ME/CFS Information for Medical Professionals by Prof. Jonathan Edwards and members of the S4ME forum

www.s4me.info/docs/Health_...

Screenshot from Science for ME weekly update

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Science for ME Fact Sheet 3: ME/CFS Information for Medical Professionals by Prof. Jonathan Edwards and members of the S4ME forum. The seven page fact sheet covers definition, diagnosis, core and additional features, management, support, and the particular needs of people with severe and very severe ME/CFS. "... recognition of ME/CFS as a valid clinical/biological entity and committed interest from research scientists provide hope that progress in both biology and treatment will be made in the near future. In the meantime, ensuring general supportive care to make life more tolerable and minimise unnecessary harm is an essential need that is still seldom met."
December 16, 2025 at 1:48 AM
Reposted by Eleanor Fielding
meownersclub.bsky.social
#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@thelancet.com
@nhsengland.bsky.social
@georgemonbiot.bsky.social
@profstevegriffin.bsky.social
@davidjoffe64.bsky.social
The cartoon series is called - This Week in Disbelief The title says - Using Philosophical Dross to Build Yourself an Empire Two doctors are discussing #ME. First doctor “So it's really the idea of illness that's at work here then?” Second doctor “Yes, there's no evidence of real illness in this patient group and exercise needs to be encouraged to break the cycle of illness beliefs” Wise Cat is saying “40 years of disability and death resulted from this unverifiable psychobabble...” Goose replies “... and still no retraction or apology?? The author is leaving the page and saying “The infamous BPS Model that replaced biology with bigotry!” as she goes. The cartoon maker is #FanningTheFlames
December 15, 2025 at 1:47 PM
meownersclub.bsky.social
#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
@ashleydaltonmp.bsky.social
@decodemestudy.bsky.social
@thelancet.com
@nhsengland.bsky.social
@georgemonbiot.bsky.social
@profstevegriffin.bsky.social
@davidjoffe64.bsky.social
The cartoon series is called - This Week in Disbelief The title says - Using Philosophical Dross to Build Yourself an Empire Two doctors are discussing #ME. First doctor “So it's really the idea of illness that's at work here then?” Second doctor “Yes, there's no evidence of real illness in this patient group and exercise needs to be encouraged to break the cycle of illness beliefs” Wise Cat is saying “40 years of disability and death resulted from this unverifiable psychobabble...” Goose replies “... and still no retraction or apology?? The author is leaving the page and saying “The infamous BPS Model that replaced biology with bigotry!” as she goes. The cartoon maker is #FanningTheFlames
December 15, 2025 at 1:47 PM
Reposted by Eleanor Fielding
davidjoffe64.bsky.social
The costs of doing nothing are gargantuan 🔥🔥🤬‼️

I'm sure our political masters have a great plan to cover this "Urgency of Normal" 🤦🏻‍♂️

www.mdpi.com/2218-1989/15...
www.mdpi.com
December 15, 2025 at 12:42 PM
Reposted by Eleanor Fielding
davidjoffe64.bsky.social
For those up the back??

Immune dysregulation is a considerable and unpleasant consequence of Cövid

doi.org/10.1016/j.cl...
December 15, 2025 at 12:36 PM
Reposted by Eleanor Fielding
meownersclub.bsky.social
A virus may kill you quickly, but post-viral illness can destroy your family, your career, your bank balance, your trust in doctors,and ultimately it can take your life.

#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
The cartoon series is called - This Week in Disbelief... Heading - Viral and post-viral illnesses can kill you There is a picture of a young woman dead in bed. And a voice from her phone on the floor is saying “Hello? Hello...?” The caption says ‘WEAR A MASK’ The cartoon maker is #FanningTheFlames
December 15, 2025 at 5:25 AM
Reposted by Eleanor Fielding
tinameyer.bsky.social
Interesting 👇

Yes, the need to tackle a root cause of the #MS worsening is still unmet ... As well as #remylination

FYI @itreallydoes.com

www.biospace.com/drug-develop...
Beyond BTK Inhibitors: Next Gen MS Treatments Could Transcend Symptom Management
While Bruton’s tyrosine kinase inhibitors are often hailed as the next big breakthrough in multiple sclerosis, Immunic Therapeutics and others are leveraging neuroprotective targets and remyelination ...
www.biospace.com
October 7, 2025 at 3:36 PM
Reposted by Eleanor Fielding
fbpech.bsky.social
Meanwhile, many towns including mine, are rising to the occasion to challenge this racism/fascism.
In my town there was an anti racism event at the weekend, in Chelmsford there’s this on Thursday
👇
(What other counter racist/fascist events are happening?
Is there anything in yr area?)
December 15, 2025 at 9:48 AM
Reposted by Eleanor Fielding
bakou924.bsky.social
December 14, 2025 at 8:07 AM
Reposted by Eleanor Fielding
stevesilberman.bsky.social
Happy Hanukkah to our friends who celebrate. Rachel Posner, a rabbi’s wife in Kiel, Germany, took this photograph in 1931 -- a potent reminder that fascism must be fought in every generation, even if it's wrapped in an American flag and a red hat.
A menorah in a window across the street from a building displaying a Nazi flag.
December 8, 2023 at 1:50 AM
Reposted by Eleanor Fielding
ericidle.bsky.social
Shocked by the awful death of Rob Reiner. I spoke with him for over an hour last night. We talked about his work and his plans for the future. I always enjoyed his company. We met at his Dad's in 1975. Last thing he said to me was "See you next year.." Such a terrible end. Such a sweet man.
December 15, 2025 at 6:26 AM
meownersclub.bsky.social
A virus may kill you quickly, but post-viral illness can destroy your family, your career, your bank balance, your trust in doctors,and ultimately it can take your life.

#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
The cartoon series is called - This Week in Disbelief... Heading - Viral and post-viral illnesses can kill you There is a picture of a young woman dead in bed. And a voice from her phone on the floor is saying “Hello? Hello...?” The caption says ‘WEAR A MASK’ The cartoon maker is #FanningTheFlames
December 15, 2025 at 5:25 AM
Reposted by Eleanor Fielding
muellershewrote.com
Omg no www.tmz.com/2025/12/14/r...
Rob Reiner, Wife Michele Found Dead in Their L.A. Home with Knife Wounds
Rob Reiner -- the legendary director -- and his wife Michele Singer Reiner have died ... TMZ has confirmed.
www.tmz.com
December 15, 2025 at 3:25 AM
Reposted by Eleanor Fielding
johnthejack.bsky.social
The headline is the absolute horror of the antisemitism attack #c4news
It was a genuinely heroic act. And he did not use the gun in revenge. He disarmed the terrorist, but did not fire himself.
December 14, 2025 at 7:12 PM
Reposted by Eleanor Fielding
rbreich.bsky.social
Poverty is a policy choice. Concentrated wealth is a policy choice. Inequality is a policy choice. None of it is natural or inevitable. Remember: We have the power to build a system that serves the many, not the powerful few.
December 14, 2025 at 7:12 PM
Reposted by Eleanor Fielding
tomkindlon.bsky.social
9-year anniversary of reanalysis paper on recovery in £5m #PACEtrial, with data the PACE team fought so hard to keep to themselves.

Shows recovery rates in all trial arms were low, using the criteria the PIs promised in their own protocol

tandfonline.com/doi/full/10....

#MEcfs #CFS
Screenshot of abstract
December 14, 2025 at 1:54 PM
Reposted by Eleanor Fielding
kackbro.bsky.social
THIS 👇 HERE.
December 14, 2025 at 11:14 AM
Reposted by Eleanor Fielding
ottoenglish.bsky.social
Incredible bravery at Bondi beach as a witness wrestles a gun from one of the attackers.

youtu.be/SJtq75x_IWA?...
Video shows bystander tackling and disarming one of the shooters at Sydney’s Bondi Beach
YouTube video by Al Jazeera English
youtu.be
December 14, 2025 at 10:51 AM
Reposted by Eleanor Fielding
tendar.bsky.social
This guy disarming the terrorist at Bondi Beach, Australia, can only be described as hero.
December 14, 2025 at 9:32 AM
Reposted by Eleanor Fielding
meownersclub.bsky.social
A virus might kill you quickly, post-viral illnesses can destroy your family, your career, your income and your life. BUY SOME FFP2 or FFP3 masks.

#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
@ashleydaltonmp.bsky.social
The cartoon series is called - This Week in Disbelief... Heading - Viral and post-viral illnesses can kill you There is a picture of a young woman dead in bed. And a voice from her phone on the floor is saying “Hello? Hello...?” The caption says ‘WEAR A MASK’ The cartoon maker is #FanningTheFlames
December 14, 2025 at 11:18 AM
meownersclub.bsky.social
#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive
#MS #Lupus #Parkinsons #Cancers
@meassociation.org.uk
@longcovidsupport.bsky.social
#Justice4ME
@ashleydaltonmp.bsky.social
@georgemonbiot.bsky.social
@davidjoffe64.bsky.social
The cartoon series is called - This Week in Disbelief... Heading - Viral and post-viral illnesses can kill you There is a picture of a young woman dead in bed. And a voice from her phone on the floor is saying “Hello? Hello...?” The caption says ‘WEAR A MASK’ The cartoon maker is #FanningTheFlames
December 14, 2025 at 10:41 AM
Reposted by Eleanor Fielding
meownersclub.bsky.social
And remember - if you get the post-viral conditions #LongCovid, or god forbid #ME, this is what you’re in for - ON TOP OF THE DEBILITATING ILLNESS WHICH IS WORSE THAN END STAGE CANCER
This is a cartoon strip with seven images and a caption at the top. The title is - How the Psychiatric Model of #ME works... The caption says - “In 1992, the Wessely School gave directions that in ME/CFS, the first duty of the doctor is to avoid legitimisation of symptoms; in 1994, ME was described as merely "a belief"; in 1996 recommendations werd made that no investigations should be performed to confirm the diagnosis and in 1999 patients with ME/CFS were referred to as "the undeserving sick". Box 1 - You're told you don't deserve help Box 2 aYour experience is being denied Box 3 - Your support network is s denigrated Box 4 - You can't leave your house Box 5 - You cannot trust the people closest to you Box 6 - You're afraid of dying but can't access healthcare On the right the infamous Wise Cat is saying “Has anyone else noticed that the psychiatric model of #ME is really just a form of COERCIVE CONTROL?” The cartoon maker is #FanningTheFlames
December 13, 2025 at 9:33 AM
Reposted by Eleanor Fielding
andrewgiffordphoto.bsky.social
15 years ago yesterday I'd hiked the 30 mile horseshoe route to up Pen y Fan in Wales. I really really really miss being active.
Colour photo of white 30-odd male looking out into the distance like a budget catalogue model up a hill. We're under a blue winter sky, with vapour trails and a light peppering of cloud. Behind him the route up the hill is shrouded in fog. He's wearing a light blue waterproof jacket, grey hiking trousers and an expression that says 'this feels good' as, on this occassion, 'mild' ME/CFS hasn't stopped him pushing through the grog and doing the things he loves.
December 13, 2025 at 11:10 AM
Reposted by Eleanor Fielding
robinince.bsky.social
Very sad that I felt I had no choice but to resign from The Infinite Monkey Cage - a victory for the transphobes and other bigots - I did it because so much of the media has chosen to believe the kind and empathetic people are a fiction - they are real and so often unrepresented.
This is the saddest day of my professional life. Today is not only the final recording of the latest series of The Infinite Monkey Cage, it is my last ever Monkey Cage. I never thought that I would have to leave the show. I always imagined going on until | dropped dead under the studio lights due to a brain aneurysm caused by my final attempt to understand notions of quantum gravity or the shock of being told about fly maggot infestations in the sacks of macaque monkeys. I resigned in September, after sixteen years of dedication to the show, A show that I named and helped develop over all those years. Unfortunately, my opinions outside the BBC have been considered problematic for sometime, whether it has been voicing support for the trans community, criticism of Donald Trump, numerous other outlandish opinions, including once gently criticising Stephen Fry. These things were considered to conflict with being a freelance BBC science presenter In a recent meeting where BBC Studio executives again voiced problems with me, I realised my choices. Obedience and being quieter to remain making Monkey Cage, or 'Resign and have the freedom to speak out against what I believe are injustices'. • I chose the latter. It broke my heart. I love this show and I love the audience, and it is because of the audience in particular, that this decision was so difficult to make. I kept thinking about all the extremist voices promoting hate and division. They are being given so many platforms, while voices that represent kindness, open mindedness, empathy seem to be scarcer and scarcer. I felt I couldn't pamper myself with the luxury of silence. One of my many privileges is that I am able to resign and I can speak out even if it is to the detriment of my career. I have thought a lot about my heroes, Sinead O Connor, James Baldwin, Audre Lorde, and so many more. I think of Sinead's words, "the job of an artist is to be themselves at any cost". James Baldwin said prejudice was really just a word for cowardice. Audre Lorde, viewing her life, wrote that her only regrets were her silences. I think of my father as I resign, he brought me up to believe in fairness , justice and kindness. Though my heart is broken, it is also full of fire. I apologise to our incredible listeners for my departure, your love of the show means a great deal. I am so sorry to let you down. I hope that you can understand my reasoning. I have to accept that I am not what the current BBC expects of their freelance presenters. Despite this I should add that I have always worked far more than my contracted hours to try and ensure the show was always the best it could be, as well as making myself accessible and responsive to the audience wherever and whenever I met them. Every night, we have recorded, I have been filled with determination to make the best show possible. This was not "just a job" I hope that with my departure I can be a better ally to the LGBTQ community, to the neurodivergent community, to activists fighting against those who aim to brutalise society, to those currently in prison on hunger strike, and to all those who fight for a more inclusive world. From many conversations, I know there are many Monkey Cage listeners who support these communities and activists too. The strawberry is dead. Long live the strawberry. B
December 13, 2025 at 12:02 AM
Reposted by Eleanor Fielding
deeruddock.bsky.social
I *think* this is 5pm UK time 🇬🇧 if anyone my side of the pond is interested:
exceedhergrasp1.bsky.social It's ME(Jaime) @exceedhergrasp1.bsky.social · 3d
I'm giving a talk next week and you're invited!

✨Improving Quality of Life in ME/CFS and Infection-Associated Chronic Conditions✨

The talk is donate-as-you're-able, and 20% will support #MEAction.

You can sign up to attend here: us06web.zoom.us/meeting/regi...
A winter scene flyer with my pic at the bottom. It reads: Please join us for a talk on: Improving Quality of Life in ME/CFS talk - questions - suggestions December 17 2025 12pm ET, 9am PT, 11am CT Sliding Scale Donations 20% of proceeds to MEAction Talk followed by Q&A Hosted by Jaime Seltzer Scientific Director, MEAction @exceedhergrasp1
December 13, 2025 at 2:48 PM