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pluckybrewster.bsky.social
Pixie
@pluckybrewster.bsky.social
220 followers 150 following 200 posts
46, married, #queer, #witchy, #gothish, #vegetarian for 23 yrs. #actuallyautistic, #ehlersdanlos #plantmom #progressive. Always learning. Trying. Professional goober. Easily startled. Social justice worrier. I like puns & helping people.
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pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Dec 20
Hello! you can call me Pixie. This is first & foremost a personal account but I will rant about politics, share my cat pics & anything else I want. I'm queer. Disabled. I have ehlers danlos & a lot of coexisting conditions. I cozy game. I read manwhas & watch kdramas. I like crafts & goth music!
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Reposted by Pixie
lballant.bsky.social
Lindsay Ballant @lballant.bsky.social · Sep 13
We’ve been living through 72 nonstop hours of this exact tweet
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Reposted by Pixie
karenho.bsky.social
Karen K. Ho @karenho.bsky.social · Sep 13
I have written and deleted a lot of posts but I keep thinking about how the brutal assassination of Minnesota State senator Melissa Hortman, her husband Mark, and their beloved dog Gilbert in June did not prompt this same level of calls for empathy, sympathy, and flags at half-mast.
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pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Sep 13
Rhetoric isn't the same thing as opinions and we should be allowed to freely express our opinions about anything we want.

Opinions don't hurt anyone, only the actions of a few individuals that hurt people and those individuals would have snapped in some capacity or another regardless of "Rhetoric"
Reposted by Pixie
pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Mar 28
#help does anyone #disabledaf like me know any resources for #raredisease assistance or grants for relocation or treatment or travel etc. I am in a bad situation with no resources and my treatment options are not good where I live.

I am desperately seeking resources
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pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Apr 13
No longer allowed food. Now on a full liquid diet. Love having more and more of my life restricted and taken from me.
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Reposted by Pixie
erictopol.bsky.social
Eric Topol @erictopol.bsky.social · Apr 2
"The COVID-conscious people have not abandoned science, It’s the opposite: They’ve come to think that science has abandoned them."
People who are taking precautions, some of whom are immunocompromised, should not be mocked or discriminated against
www.theatlantic.com/health/archi...
The Evermaskers
The isolation of people who take precautions against COVID has only gotten more intense.
www.theatlantic.com
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pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Mar 28
#help does anyone #disabledaf like me know any resources for #raredisease assistance or grants for relocation or treatment or travel etc. I am in a bad situation with no resources and my treatment options are not good where I live.

I am desperately seeking resources
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Reposted by Pixie
chronicillness.bsky.social
Chronic Illness Humor @chronicillness.bsky.social · Mar 3
www.etsy.com/shop/AntiTru...
Oregon Trail Bull and Wagon and it says 'you have died of believing RFK Jr' https://www.etsy.com/shop/AntiTrumpResistance
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pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Mar 28
The eternal cycle of balancing being woowoo and sicky at the same time
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Reposted by Pixie
chronicillness.bsky.social
Chronic Illness Humor @chronicillness.bsky.social · Mar 28
Venn diagram blue circle says people trying to help me with crystals yellow circle says sisyphus center green part says pushing that rock
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Reposted by Pixie
kaiao.fi
Saara Reiman @kaiao.fi · Mar 23
Welp, I don't think I'm the only #ActuallyAutistic who hard relates with this...
drshannak.bsky.social Shanna Katz Kattari, PhD 🍉🏳️‍⚧️🏳️‍🌈♿️ @drshannak.bsky.social · Jan 29
Welp. I’m in this picture and I don’t like it.
ID: FB post from Stacey Bias. Reads “Check in on your queer friends with ADHD/AuDHD right now cuz their Justice Sensitivity combined with their Rejection Sensitive Dysphoria means that they are both acutely aware of how f*cked up things are *and* also feel personally responsible for fixing it *while* dealing with the helplessness inherent in the reality that individual action is not gonna do it this time. This means that their brains/bodies are going into overdrive and also that they are feeling guilty for any kind of self-care or joy in their lives because their brain weasels are telling them that resting or being happy while others cannot/are not is selfish. It’s an exhausting state and we’re not OK.”
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pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Mar 27
I don't know what to do and I am so so so scared #Ehlers-Danlos #smas #actuallyautistic #aneurysm #noresources #malnutrition #mutualaid #wheredoiturn #whatdoido 🤷‍♀️
pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Mar 27
I am terrified I am going to die while I sit around trying to fight to figure out how to live. I am on waiting lists with geneticist etc.

I get iv fluids. I see a nutritionist. I am still dying from this stuff. Everything i do is just a bandaid on a stabwound. I need real treatment. Surgery. Help.
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pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Mar 27
To further complicate it, I was disowned by my family for being liberal & lgbtq and I have noone to rely on for help. Its just me and my husband. My son is autistic and on ssi so he can't assist me. I am truly without resources yet my community is deadly to me.

What do I do?
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pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Mar 27
Idk what we are going to do. We live paycheck to paycheck and I have rarer severe complications of Ehlers-Danlos Syndrome such as heart failure, aortic aneurysm and superior mesenteric artery syndrome. I am VERY sick. I also live hundreds of miles away from adequate care for my conditions.
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pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Mar 27
I had to hide in a corner while hooked up to iv fluids bc my grandfather who disowned me got a shot in the same room. The nurses all knew my situation & were protecting me by keeping him from seeing me while he got his shot, they are kind to me & I am thankful. This is my #queer #disabled reality.
If you get an infusion and don't photo it, did it even happen? This is a photo of a white woman in a checker sweater in a scarf with glasses getting intravenous fluids. She is smiling.
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pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Mar 24
Not as flattering lol
Tea party featuring a goth woman in a polkadot dress with glasses Tea party featuring a goth woman in a polkadot dress with glasses Tea party featuring a goth woman in a polkadot dress with glasses
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pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Mar 24
Had tea with my son and we dressed up even though we did it at home and made it ourselves. We had fun. Here is my #ootd #goth #witchy
Polkadot dress wearing, tea cup sipping, glasses having, white woman sipping on tea Polkadot dress wearing, tea cup sipping, glasses having, white woman thinking bout things Polkadot dress wearing, tea cup sipping, glasses having, white woman you can call me mommy Polkadot dress wearing, glasses having, white woman rocking the whimsical witch look
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pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Mar 21
I can't drink water to fix my problems but if you can hydrate yourself adequately the way nature intended trust me you don't wanna suffer w severe electrolyte issues. I've been hospitalized more than once. You can have heart problems or seizures etc bc of electrolytes. Take that shiz serious y'all!
pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Mar 21
I can stand long enough to cook and shop. And other tasks I took for granted before I became so chronically dehydrated that I need 4 bags of fluids plus medicine to help me retain sodium.

If you have ever heard the expression "hydrate or diedrate" take that dumbass meme seriously lol
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pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Mar 21
My electrolytes have been bad for a long time but the past few years I've been horribly dehydrated & it has wrecked havoc on my health. Standing in the kitchen to cook meals w/out passing out is a BIG WIN!

It can be hard having health woes all the time so all wins are worth celebrating!
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pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Mar 21
Made this yesterday. Didn't have to sit down while cooking for the 1st time in ages. You all would not believe how impactful the right treatment can be when you're sick. My adrenals have been low and now that I'm on medicine my life/energy/appetite/brain etc have dramatically improved.
Bún chả giò chay with nước chấm
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pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Mar 12
I love that one of my top genres on spotify is my online nickname and that was an accidental coincidence. Guess I just have a pixie personality.
Spotify daylight called "yearning chai Tuesday evening" with the description: since I've been listening to dreamy, ethereal, pixie. The top three songs arw Andromeda by weyes blood. cherry-coloured funk by cocteau twins anxiety roseblood by mazzy star.
pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Mar 7
Meme that says "caffeine panic attacks:fuxk fuck I'm never gonna get this done on time fuck shit. Weed panic attacks: rotating a 3d model of a spider in my mind I think my friends are mad at me. Then another user has reblogged and hashtagged that adhd is botg lf these at the same time constantly while sober
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pluckybrewster.bsky.social
Pixie @pluckybrewster.bsky.social · Mar 2
We had to put my cat down a few days ago. She was 16 yrs old & lived a very regal and posh spoiled princess life. She was well cared for & loved even to her end when she got sick. I cared for her day & night to try & see if she'd get better. 🥲

I would have done anything for this beautiful angel💔
Beautiful black tuxedo cat. So fluffy. The sweetest most loving cat in the whole world. Very long whiskers. Beautiful black tuxedo cat. So fluffy. The sweetest most loving cat in the whole world. Very long whiskers. Pawing at mom's arm for attention. Beautiful black tuxedo cat. So fluffy. The sweetest most loving cat in the whole world. Very long whiskers shining in the sun. Beautiful black tuxedo cat. So fluffy. The sweetest most loving cat in the whole world. Very long whiskers.
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