American Association on Health & Disability
@aahealthdisability.bsky.social
https://aahd.us/linktree/
AAHD is dedicated to ensuring health equity for children and adults with disabilities through policy, research, education and dissemination at the federal, state and community level.
AAHD is dedicated to ensuring health equity for children and adults with disabilities through policy, research, education and dissemination at the federal, state and community level.
“One of the things that really gives me joy is the fact that there are so many amazing, brilliant, creative disabled people out there. But part of my rage — and it’s a very real rage — is that most people don’t really know about them.” - Alice Wong: www.nytimes.com/2025/11/15/u...
Alice Wong, Writer and Relentless Advocate for Disability Rights, Dies at 51
www.nytimes.com
November 17, 2025 at 5:09 PM
“One of the things that really gives me joy is the fact that there are so many amazing, brilliant, creative disabled people out there. But part of my rage — and it’s a very real rage — is that most people don’t really know about them.” - Alice Wong: www.nytimes.com/2025/11/15/u...
Claiming a #disability is about accessing support, even though "fewer than 1 in 5 older adults had ever received an accommodation from their health care providers to which they are legally entitled under the #ADA."
Read this new piece in the @nytimes.com on disability and health politics:
Read this new piece in the @nytimes.com on disability and health politics:
#Disability is not a bad word & identifying as such isn't saying you can't do stuff - it's a starting place for understanding & can open doors for supports and accommodations to better access the environment, incl healthcare! Am quoted in NYT alongside others: www.nytimes.com/2025/11/15/h...
Wheelchair? Hearing Aids? Yes. ‘Disabled’? No Way.
www.nytimes.com
November 17, 2025 at 4:01 PM
Claiming a #disability is about accessing support, even though "fewer than 1 in 5 older adults had ever received an accommodation from their health care providers to which they are legally entitled under the #ADA."
Read this new piece in the @nytimes.com on disability and health politics:
Read this new piece in the @nytimes.com on disability and health politics:
Reposted by American Association on Health & Disability
Across the country, millions of #ACA marketplace enrollees are facing higher premiums as premium tax credit enhancements near expiration at the end of this year. See how premiums are rising in your district in our new interactive map. www.cbpp.org/research/hea...
November 13, 2025 at 10:15 PM
Across the country, millions of #ACA marketplace enrollees are facing higher premiums as premium tax credit enhancements near expiration at the end of this year. See how premiums are rising in your district in our new interactive map. www.cbpp.org/research/hea...
New research makes plain the limitations of existing #DisabilityData measures. #DisabilityHealth researchers can use their recommended limitation statements to explain how ACS6 and WGSS data may not capture all people with disabilities.
Read the study #OpenAccess: academic.oup.com/healthaffair...
Read the study #OpenAccess: academic.oup.com/healthaffair...
November 12, 2025 at 5:46 PM
New research makes plain the limitations of existing #DisabilityData measures. #DisabilityHealth researchers can use their recommended limitation statements to explain how ACS6 and WGSS data may not capture all people with disabilities.
Read the study #OpenAccess: academic.oup.com/healthaffair...
Read the study #OpenAccess: academic.oup.com/healthaffair...
With the start of #ACA #OpenEnrollment, healthcare #navigators and enrollment assisters can sign up for our NDNRC Newsletter for essential updates to support enrollees with disabilities: bit.ly/AAHD-Subscribe
View archives of the newsletter here: nationaldisabilitynavigator.org/category/new...
View archives of the newsletter here: nationaldisabilitynavigator.org/category/new...
November 10, 2025 at 4:53 PM
With the start of #ACA #OpenEnrollment, healthcare #navigators and enrollment assisters can sign up for our NDNRC Newsletter for essential updates to support enrollees with disabilities: bit.ly/AAHD-Subscribe
View archives of the newsletter here: nationaldisabilitynavigator.org/category/new...
View archives of the newsletter here: nationaldisabilitynavigator.org/category/new...
Now through 2028, the DeafYES! Center for Deaf Empowerment and Recovery at @umasschan.bsky.social is recruiting #Deaf, #DeafBlind, #DeafDisabled, and Hard of Hearing individuals across the U.S. for a research study on trauma and addiction. Email [email protected] to learn more.
November 6, 2025 at 6:02 PM
Now through 2028, the DeafYES! Center for Deaf Empowerment and Recovery at @umasschan.bsky.social is recruiting #Deaf, #DeafBlind, #DeafDisabled, and Hard of Hearing individuals across the U.S. for a research study on trauma and addiction. Email [email protected] to learn more.
Want to participate in health-related research studies relevant to you? AAHD is proud to announce the launch of our new #disability and health Research Listserv. Every month we’ll send out health studies seeking participants with disabilities. Start the sign-up process here: bit.ly/AAHD-Subscribe
November 4, 2025 at 4:53 PM
Want to participate in health-related research studies relevant to you? AAHD is proud to announce the launch of our new #disability and health Research Listserv. Every month we’ll send out health studies seeking participants with disabilities. Start the sign-up process here: bit.ly/AAHD-Subscribe
Essential #DisabilityEmployment supports are made possible with essential #DisabilityData! Check out how data is advancing #HealthEquity for people with disabilities at essentialdata.us. #NDEAM
America's Essential Data
Highlighting examples of how our essential public data serve the American people.
essentialdata.us
October 28, 2025 at 4:19 PM
Essential #DisabilityEmployment supports are made possible with essential #DisabilityData! Check out how data is advancing #HealthEquity for people with disabilities at essentialdata.us. #NDEAM
Reposted by American Association on Health & Disability
The public data that we all rely on is under attack, from economic statistics 📈 to weather data🌪️. So we are sharing stories every day about how essential public data is. Calling all data nerds to add your favorite dataset to the collection at essentialdata.us 🤓
America's Essential Data
Highlighting examples of how our essential public data serve the American people.
essentialdata.us
August 3, 2025 at 8:38 PM
The public data that we all rely on is under attack, from economic statistics 📈 to weather data🌪️. So we are sharing stories every day about how essential public data is. Calling all data nerds to add your favorite dataset to the collection at essentialdata.us 🤓
New @npr.org explainer on the threats to food access with SNAP cuts: "The vast majority (of recipients) are children, working people, older Americans, veterans and people with disabilities. If SNAP shuts down, we will have the most mass hunger since the Great Depression." www.npr.org/2025/10/24/n...
'Uncharted territory': Ongoing shutdown threatens food aid for 42 million people
SNAP, the country's largest anti-hunger program, dates back to the Great Depression and has never been disrupted this way. Most recipients are seniors, families with kids, and those with disabilities.
www.npr.org
October 28, 2025 at 2:07 PM
New @npr.org explainer on the threats to food access with SNAP cuts: "The vast majority (of recipients) are children, working people, older Americans, veterans and people with disabilities. If SNAP shuts down, we will have the most mass hunger since the Great Depression." www.npr.org/2025/10/24/n...
ACA #Marketplace #OpenEnrollment starts Nov. 1st. Please note: Health insurance premiums are expected to increase this year, unless Congress acts to extend the enhanced premium tax credits. Subscribe to our newsletters to follow these policy developments: aahd.us/linktree/
Photo: Disabled & Here
Photo: Disabled & Here
October 27, 2025 at 4:53 PM
ACA #Marketplace #OpenEnrollment starts Nov. 1st. Please note: Health insurance premiums are expected to increase this year, unless Congress acts to extend the enhanced premium tax credits. Subscribe to our newsletters to follow these policy developments: aahd.us/linktree/
Photo: Disabled & Here
Photo: Disabled & Here
Introducing our 2025 Frederick J. Krause #DisabilityHealth Scholars!
Dishita Agarwal @duke-university.bsky.social
Dana Fink – George Washington University
Rae Hartman Haight – @towsonu.bsky.social
Read more about their accomplishments and plans for the future: aahd.us/2025/10/2025...
#Disability
Dishita Agarwal @duke-university.bsky.social
Dana Fink – George Washington University
Rae Hartman Haight – @towsonu.bsky.social
Read more about their accomplishments and plans for the future: aahd.us/2025/10/2025...
#Disability
October 20, 2025 at 3:53 PM
Introducing our 2025 Frederick J. Krause #DisabilityHealth Scholars!
Dishita Agarwal @duke-university.bsky.social
Dana Fink – George Washington University
Rae Hartman Haight – @towsonu.bsky.social
Read more about their accomplishments and plans for the future: aahd.us/2025/10/2025...
#Disability
Dishita Agarwal @duke-university.bsky.social
Dana Fink – George Washington University
Rae Hartman Haight – @towsonu.bsky.social
Read more about their accomplishments and plans for the future: aahd.us/2025/10/2025...
#Disability
Thank you to @stonybrooku.bsky.social School of Social Welfare, NY Law School, and all the people who powered the #DisabilitySqueeze Symposium! Read more about cost-of-living crisis facing the #disability community and the policy work ahead in our recap blog: aahd.us/2025/10/disa...
October 6, 2025 at 5:46 PM
Thank you to @stonybrooku.bsky.social School of Social Welfare, NY Law School, and all the people who powered the #DisabilitySqueeze Symposium! Read more about cost-of-living crisis facing the #disability community and the policy work ahead in our recap blog: aahd.us/2025/10/disa...
ATTN - NIH Directors fired, impacting health disparities research: "Some of the removed directors say they may have been targeted because their institutes funded studies touching on #DEI and HIV research, which administration officials had begun to cancel." www.science.org/content/arti...
After months in limbo, four NIH institute directors fired
Two leaders removed by Trump administration had hoped to stay at agency as in-house investigators
www.science.org
October 3, 2025 at 3:01 PM
ATTN - NIH Directors fired, impacting health disparities research: "Some of the removed directors say they may have been targeted because their institutes funded studies touching on #DEI and HIV research, which administration officials had begun to cancel." www.science.org/content/arti...
Healthcare is at the center of negotiations to avert a shutdown: "Senate Democrats have refused to back the spending bill...to force Republicans to negotiate on federal health care subsidies. They are pushing for an extension of ACA subsidies that are set to expire."
www.npr.org/2025/09/30/g...
www.npr.org/2025/09/30/g...
Government to shut down after midnight barring last-minute breakthrough in Congress
Democrats and Republicans have been unable to resolve an impasse over federal health care spending. The government will shut down at the end of the day Tuesday barring a last-minute breakthrough.
www.npr.org
September 30, 2025 at 3:05 PM
Healthcare is at the center of negotiations to avert a shutdown: "Senate Democrats have refused to back the spending bill...to force Republicans to negotiate on federal health care subsidies. They are pushing for an extension of ACA subsidies that are set to expire."
www.npr.org/2025/09/30/g...
www.npr.org/2025/09/30/g...
Disability Research funded by NIDILRR improves community living and participation, health and function, and employment for people with disabilities. Full funding for NIDILRR is needed to improve health for all: aahd.us/2025/09/disa... #DisabilitySky #Disability #NIDILRR #ACL #DisabilityResearch
Disability Research - AAHD
High-quality disability research helps make important advances in policy, technology, and daily living to support people with disabilities. Good research requires comprehensive and accurate data, and…
aahd.us
September 29, 2025 at 5:44 PM
Disability Research funded by NIDILRR improves community living and participation, health and function, and employment for people with disabilities. Full funding for NIDILRR is needed to improve health for all: aahd.us/2025/09/disa... #DisabilitySky #Disability #NIDILRR #ACL #DisabilityResearch
Reposted by American Association on Health & Disability
Monday’s press conference with President Trump, RFK, and other members of HHS leadership contained false and harmful information about autism, acetaminophen, and vaccines. Read our full statement in formal language and plain language here: autisticadvocacy.org/2025/09/asan...
ASAN Condemns Administration's Rampant Misinformation about Autism, Acetaminophen, and Vaccines; Calls for Respectful, Fact-Based Approach - Autistic Self Advocacy Network
On September 22nd, President Trump, RFK, and other members of the Department of Health and Human Services (HHS) leadership held a press conference that contained false and harmful information about…
autisticadvocacy.org
September 24, 2025 at 3:06 PM
Monday’s press conference with President Trump, RFK, and other members of HHS leadership contained false and harmful information about autism, acetaminophen, and vaccines. Read our full statement in formal language and plain language here: autisticadvocacy.org/2025/09/asan...
Reposted by American Association on Health & Disability
What is the #DisabilitySqueeze, and what can we do to drive policy change to reduce it? Check out the Disability Squeeze Symposium this Friday, and tune in to their podcast that dives deep into how costs of living are higher for our community at disabilitysqueeze.org. youtu.be/gzvrKxOYs40?...
September 23, 2025 at 3:53 PM
What is the #DisabilitySqueeze, and what can we do to drive policy change to reduce it? Check out the Disability Squeeze Symposium this Friday, and tune in to their podcast that dives deep into how costs of living are higher for our community at disabilitysqueeze.org. youtu.be/gzvrKxOYs40?...
On #WorldPatientSafetyDay, we participated in a Project PIVOT workshop hosted by @pfps-us.bsky.social where the Office of Inspector General launched a report on the need to improve patient safety in health care. Read the newest report in their series: oig.hhs.gov/reports/feat...
September 23, 2025 at 3:37 PM
On #WorldPatientSafetyDay, we participated in a Project PIVOT workshop hosted by @pfps-us.bsky.social where the Office of Inspector General launched a report on the need to improve patient safety in health care. Read the newest report in their series: oig.hhs.gov/reports/feat...
We are proud to announce the public launch of our first Strategy Roadmap! This past year we went deep into visioning where we can lead in the collective work of advancing #DisabilityJustice and #HealthEquity. Read our Strategic Plan Summary + the full roadmap: aahd.us/about/strate... #Disability
September 22, 2025 at 2:30 PM
We are proud to announce the public launch of our first Strategy Roadmap! This past year we went deep into visioning where we can lead in the collective work of advancing #DisabilityJustice and #HealthEquity. Read our Strategic Plan Summary + the full roadmap: aahd.us/about/strate... #Disability
Join the Disability Squeeze Symposium (NYC + Zoom) on September 26th (11 AM – 3 PM ET)! Learn about the extra costs of disability and hear from leading advocates and policymakers. Register: DisabilitySqueeze.org #DisabilityResearch #DisabilityHealth #Disability
September 18, 2025 at 3:06 PM
Join the Disability Squeeze Symposium (NYC + Zoom) on September 26th (11 AM – 3 PM ET)! Learn about the extra costs of disability and hear from leading advocates and policymakers. Register: DisabilitySqueeze.org #DisabilityResearch #DisabilityHealth #Disability
"Living Independently, Participating Fully" is a new report detailing the current threats to the #disability community, including the proposed elimination of the Administration for Community Living and cuts to #Medicaid: lnkd.in/gmkKMY6z
#disabilitysky #IndependentLiving #Care #DirectCare #HCBS
#disabilitysky #IndependentLiving #Care #DirectCare #HCBS
September 3, 2025 at 8:37 PM
"Living Independently, Participating Fully" is a new report detailing the current threats to the #disability community, including the proposed elimination of the Administration for Community Living and cuts to #Medicaid: lnkd.in/gmkKMY6z
#disabilitysky #IndependentLiving #Care #DirectCare #HCBS
#disabilitysky #IndependentLiving #Care #DirectCare #HCBS
Self-Direction in care has become possible thanks in large part to #Medicaid HCBS. With cuts on the horizon, these programs will need additional support and advocacy to continue. Learn more: aahd.us/2025/08/poli... #disability #DisabilitySky
Self-Direction in Care - AAHD
The movement towards self-direction in essential programs for independent living is an important advancement for the civil rights of people with disabilities. Not only should disabled people have the…
aahd.us
August 20, 2025 at 2:15 PM
Self-Direction in care has become possible thanks in large part to #Medicaid HCBS. With cuts on the horizon, these programs will need additional support and advocacy to continue. Learn more: aahd.us/2025/08/poli... #disability #DisabilitySky
AUG 27 - The Portraits + Portals Project premieres! This virtual art show highlights the intersection of disability, race + disaster. Original works from 9 collaborations of disabled artists + disaster/ crisis survivors of color: tinyurl.com/portraitspor...
Hosted by @disasterstrat.bsky.social
Hosted by @disasterstrat.bsky.social
August 14, 2025 at 5:06 PM
AUG 27 - The Portraits + Portals Project premieres! This virtual art show highlights the intersection of disability, race + disaster. Original works from 9 collaborations of disabled artists + disaster/ crisis survivors of color: tinyurl.com/portraitspor...
Hosted by @disasterstrat.bsky.social
Hosted by @disasterstrat.bsky.social