Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI)
@amcsupport.bsky.social
35 followers 15 following 250 posts
Advancing awareness and support for Arthrogryposis Multiplex Congenita (AMC). Connecting families, professionals, and advocates worldwide. 🔗 amcsupport.org
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We hope everyone had a safe trip home & thank you again for celebrating our 20th with us!

Be sure to send us your best photos to [email protected]. #AMCVA25

We cannot wait to see all the fun you had and are looking forward to Ohio in 2026 & 2027 #AMCOH26 & #AMCOH27
A huge thank you to all the riders of The Prairie – 253 For AMC! 🚴‍♂️💙

Mark took on 103 miles in one day to kick off this incredible fundraiser, a true journey of endurance & heart. Totally 367 miles by the end of the event!

Learn more: amcsupport.org/the-prairie/

#253ForAMC #ThePrairie253
A huge thank-you from AMCSI! 💙

With 65 donors, our 253 For AMC riders exceeded their goal. Watch Marshall’s Day 3 video from the trails in Carrabassett Valley to hear his gratitude!

To learn more, visit: amcsupport.org/253foramc/

#253ForAMC #AMCSI #ArthrogryposisAwareness #RideForACause
📚 Dive into the AMC Library!

Guides, stories & resources for families & friends learning about AMC.👉 amcsupport.org/amc-library/

💡 Wrote a book on Arthrogryposis? Share it with our community! 👉 amcsupport.org/amc-library

#AMCSI #AMCStrong #AMCSupport #AMC
📢 Research opportunity! Shriners Hospital–Canada is developing a GMFC-AMC Family Version & needs input from:


✅ Parents/caregivers of kids (2–21) w/ AMC

✅ Adults w/ AMC (18+)


Remote mtgs, flexible. Email ([email protected]) by Oct 17 to join!

#Arthrogryposis #AMCSupport #AMC #AMCstrong
🍂 The October AMCSI Newsletter is out!


✨ Featured AMCer: Camille Mitchell

🎃 Halloween Costume Contest

🍁 Ohio Fall Meet-Up

🎁 Holiday Fund 2025

📅 2026 & 2027 Conference Dates

Subscribe 👉 amcsupport.org/join-our-new...

#AMCSI #AMC #AMCstrong
Imagine hundreds of supporters giving $5 a month.

Together, we:

💙 Help families attend our annual conference

🏅 Fund adaptive sports and activities

🌍 Provide resources year-round

Join our Monthly Giving Circle
amcsupport.org/donate

#AMCSI #Arthrogryposis #SupportAMC #MonthlyGiving #AMCstrong
🌟 Saturday Spotlight: It’s all about YOU! 🌈

Share your AMC story:
💙 Lift others up
💬 Connect with the global AMC community
🌍 Raise awareness

Get featured:
1️⃣ Submit your story & headshot (<10MB)
2️⃣ Add your website (if you have one)

✨ Shine on our AMCers page: amcsupport.org/amc-websites/
💙 Our All About AMC: Learning Together packet helps kids, families & classmates understand Arthrogryposis in a simple, fun way, complete with illustrations & space to share your story. ✨

👉 amcsupport.org/all-about-am...

#Arthrogryposis #AMCSupport #AMCstrong
RMZ Creations is joining our Exhibitor family at the 21st Annual AMCSI Conference in Columbus, OH | July 1–4, 2026 🎉

✨ Stop by their table to explore unique handmade crafts (and take some home!) 💙

🔗 Learn more: amcsupport.org/21st-annual-...

#AMCSIConference #Arthrogryposis #AMCSupport
🌟 Advertise in the 21st Annual AMCSI Conference Program!

✅ Prime spots (inside/back cover – first come!)

✅ Seen by AMC families + 21.5K+ online audience

✅ Featured in program, socials & newsletter

⏰ Limited space—reserve now: amcsupport.org/21st-annual-...

#AMCOH26 #AMCSI #AMCSIConference
🌟 Showcase your work at the 21st Annual AMCSI Conference! 🌟

✅ Connect w/ 600 AMC families
✅ Social media, website & newsletter feature
✅ Prime exhibitor space + table & chairs
✅ Included in program

💙 Apply today: amcsupport.org/21st-annual-...

#AMCOH26#AMCAwareness #ExhibitorOpportunity
🌟 Partner with AMCSI Sponsorship! 🌟

21st Annual Conference | July 1–4, 2026 | Columbus, OH

Perks:
✅21.5K+ social reach
✅Logo on site & emails
✅On-site table & recognition

👉 Apply: amcsupport.org/21st-annual-...

#AMCOH26 #AMCSI #Inclusion #AccessibilityMatters
🕊️ To every person impacted by 9/11, you are in our hearts. 🕊️

Today, we honor the lives lost, the survivors & the heroes who gave everything. 💙

As we reflect, may we also remember the day after, when people came together in unity, strength & compassion. 🕊️💙

#NeverForget #September11 #AMCstrong
🐻💙 Happy #NationalTeddyBearDay! 💙🐻

If you made a bear at the Norfolk Teddy Bear Clinic, share a pic, we’d love to see it!

#AMCSI #TeddyBearLove #AMCstrong
🚨 The September AMCSI Newsletter is here!

✨ Featured AMCer: Daniel E. Gonzalez

💙 Fundraisers: The Prairie 253 for AMC

🕊️ Tribute to Ward Foley

📬 Not subscribed yet? Don’t miss out!

👉 amcsupport.org/join-our-new...

#AMCStrong #BeeTheFirstToKnow 🐝💙 #AMCstrong
🌍💙 Happy #WorldPTDay!

PTs play a vital role in the AMC community, helping build strength, mobility & independence.

We’re so thankful for our PT specialists—share a photo with your favorite PT today! 💪

#Arthrogryposis #AMCSupport
Mark found freedom on a recumbent trike in 2023 🚴‍♂️💙

Now he’s riding up to 253 miles with his team to raise awareness for Arthrogryposis & support AMCSI.

Every mile matters. Every donation helps.

👉 givebutter.com/ThePrairie

#ThePrairie253 #AMCsupport #EveryMileMatters
📚💙 Back to School is here!

Wishing everyone a year of learning, growth & confidence.

Share your 1st day pics with us, we’d love to see them! 💙

#BackToSchool #AMCSI #AMCAwareness
🌿 September is NICU Awareness Month 🌿

💜 To the tiniest fighters, the strongest families, and the teams who bring hope—this month is for you.

If the NICU has touched your life, share your story. Your words may be the hope someone else needs. 🌈

👉 amcsupport.org/new-diagnosis/

#NICUAwareness #AMCSI
Happy Labor Day from AMCSI! 💙

Today, we celebrate hard work, resilience & the AMC Community’s strength. May your day be filled with rest, reflection & connection. 🌍💙

#LaborDay #AMCSI #AMCawareness #InclusivityMatters #AMCstrong
💙 Thank you to the University of Delaware research team for joining our 20th Annual AMCSI Conference in Norfolk, VA.

Your work on adults with Arthrogryposis advances knowledge, strengthens collaboration, and supports the future of AMC care.

#AMCVA25 #ArthrogryposisResearch #AMCSI #AMCstrong
💙 Huge THANK YOU to TRAILS Adaptive Sports for being part of our 20th Annual AMCSI Conference in Norfolk, VA!

Your dedication to inclusive recreation brought energy, resources & connection to families in the AMC community. 🌟

#AMCVA25 #AMCFamily #AMCStrong #AdaptiveSports
💙 Thank you Lorelai Looms for joining us at our 20th Annual AMCSI Conference in Norfolk, VA!

Your handmade bracelets & crafts brought creativity, connection & joy to our AMC community. We’re so grateful for your support!

#AMCVA25 #ThankYouLorelaiLooms #AMCFamily #AMCSI #AMCStrong