Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI)
banner
amcsupport.bsky.social
Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI)
@amcsupport.bsky.social
Advancing awareness and support for Arthrogryposis Multiplex Congenita (AMC). Connecting families, professionals, and advocates worldwide.

🔗 amcsupport.org
As the year ends, we’re asking you to support a community often overlooked. AMC affects 1 in 3,000 children. AMCSI provides connection, resources, and hope for families who shouldn’t have to navigate this alone.

Your gift or company match truly helps.

Ways to give:
amcsupport.org/ways-to-give/
December 13, 2025 at 3:53 PM
We’re honored to have Dr. Harold J. P. van Bosse! 🎤

💙
A leading voice in pediatric orthopedics, his work focuses heavily on AMC & PWS across the globe.

Register: amcsupport.org/21st-annual-amcsi-conference
Speakers: amcsupport.org/professional-guest-speakers

#AMCOH26 #AMCstrong #Arthrogryposis
December 10, 2025 at 5:36 PM
🎉 Early Bird Registration is OPEN! 🎉


Give a gift that goes far beyond the holidays. AMCSI Conference registration is a life-changing experience!

Early Bird runs now – Mar 7, 2026.

Learn more & register: amcsupport.org/21st-annual-...

#AMCOH26 #AMCSI #Arthrogryposis #AMCStrong
December 10, 2025 at 3:42 PM
💙 Thank you to everyone who supported AMCSI this Giving Tuesday. Your generosity helps us provide grants, scholarships & medical support to individuals with AMC

Your support helps:
amcsupport.org/testimonials/

Continued support:
amcsupport.org/ways-to-give/

#AMCSI #GivingTuesday
December 5, 2025 at 5:43 PM
Welcome our 2026 Keynote Speaker, Todd Craighead! 🎤💙

Todd’s path spans wildlife conservation, 30 years hosting Outdoor Oklahoma & now living his childhood dream as a Ranger in Yellowstone.

Register: amcsupport.org/21st-annual-...


Speakers: amcsupport.org/professional...

#AMCOH26
December 4, 2025 at 3:28 PM
Today, we recognize the International Day of Persons with Disabilities, highlighting inclusion, rights, and well-being worldwide.

How has AMCSI supported you or your family? Share your experience here: amcsupport.org/testimonials/

#IDPD #AMCSI #Arthrogryposis #AMCawareness #AMCstrong
December 3, 2025 at 6:02 PM
✨ The December AMCSI Newsletter is here! ✨


Featuring Doug Moreau, Jalon Walker’s support for AMCSI, Giving Tuesday highlights, Early Bird Registration, research, community news & more!

💌 Join our mailing list: amcsupport.org/join-our-new...

#AMCSI #Arthrogryposis #AMCCommunity #AMCStrong
December 1, 2025 at 10:28 PM
🎉 Early-Bird Registration is OPEN 🎉


21st Annual AMCSI Conference

📍 Columbus, Ohio

📅 July 1–4, 2026

Give a gift this holiday season that truly matters. Early-Bird pricing runs Dec 1 to Mar 7.

Check your membership, then register: amcsupport.org/21st-annual-...

#AMCOH26 #EarlyBird #AMCstrong
December 1, 2025 at 6:11 PM
Happy Thanksgiving! 🦃💙

We at AMCSI are thankful to all our donors, sponsors, exhibitors & volunteers for helping make our vision possible: supporting our AMC families. We could not do this without you.💙

What are you thankful for? Tell us in the comments!

#HappyThanksgiving
November 27, 2025 at 2:40 PM
🎃💙 We’re down to the FINAL FOUR!


✨ How to vote:
1️⃣ (Voting ends Monday, Dec. 1!)
👉 forms.gle/UEDR9woGqXu4...

A huge thank-you to everyone who entered! 💙🎃

#AMCSIhalloween #AdaptiveCostumes #AMCcommunity #HalloweenSpirit #AMCstrong #CostumeContest #HappyHalloween
November 25, 2025 at 3:11 PM
Our very own Doug Moreau, the press box announcer for the New Orleans Saints, meets Jalon Walker ahead of tonight's game.

Jalon is sporting his blue cleats for the #MyCauseMyCleats initiative to raise awareness for #arthrogryposis💙

Donate :
mcmc.rayzeapp.com/jalonwalker

#AMCstrong
November 23, 2025 at 9:33 PM
This Sunday, Falcons LB Jalon Walker (@jalon_walker.3o) will honor his cousin Edwin & AMC on his #MyCauseMyCleats. 💙

Falcons vs Saints | 4:25 PM @ Caesars Superdome

Support AMC & donate: mcmc.rayzeapp.com/jalonwalker

#AMCAwareness #AMCSI #AMCstrong #NFL #AtlantaFalcons
November 22, 2025 at 5:12 PM
This Giving Tuesday, help AMC families feel supported, connected & never alone. Your gift to AMCSI provides scholarships, grants & resources that truly change lives.

Tell Your Story with AMCSI:
amcsupport.org/testimonials/
Ways To Give:
amcsupport.org/ways-to-give/

#AMCSI #GivingTuesday #AMCstrong
November 20, 2025 at 6:53 PM
📣 AMC Research

Seeking research and lived-experience insights across genetics, rehab, obstetrics, orthopedics, mental health, advocacy, adaptive equipment, and more.

Deadline: Feb 28, 2026
🔗 onlinelibrary.wiley.com/page/journal...
November 19, 2025 at 5:46 PM
Spread cheer this season by sending & receiving cards with AMC families worldwide. 🌍💙

🗓️ Sign up by Dec 1

🎄 Connect. Share. Celebrate.
👉 amcsupport.org/holiday-card-exchange

#AMCSI #HolidayCardExchange #AMCstrong #SpreadTheLove #HolidaySeason 💙
November 17, 2025 at 7:24 PM
💌✨ The AMCSI Holiday Card Exchange is back! ✨💌

Spread cheer this season by sending & receiving cards with AMC families worldwide. 🌍💙

🗓️ Sign up by Dec 1

🎄 Connect. Share. Celebrate.
👉 amcsupport.org/holiday-card-exchange

#AMCSI #HolidayCardExchange #AMCstrong #SpreadTheLove #HolidaySeason 💙
November 8, 2025 at 4:24 PM
💙 November is #NationalFamilyCaregiversMonth

Thank you for your strength, love & endless support. You are the heart of the AMC Community & so many others. 💙

Tag or share a photo of a caregiver who makes a difference every day!

#FamilyCaregivers #Arthrogryposis #AMCStrong #AMCFamily #AMCSI
November 3, 2025 at 7:32 PM
💙 The November AMCSI Newsletter is here! 💙


Catch up on AMC community news:
🌟 Alyson Virgel
🎁 AMC Holiday Fund
🚴 253 for AMC
🎶 Brandon in NYC
📅 2026–27 Conferences + more!

👉 Subscribe: amcsupport.org/join-our-newsletter

#AMCSI #AMCFamily #AMCStrong
November 3, 2025 at 3:51 PM
🎃 Show us your spooky, silly & creative Halloween looks!


📸 Email your costume pic to [email protected] by Nov. 7 for a shot at a FREE June 30th, 2026 T-shirt! 👕

Let’s see those boo-tiful costumes! 🧡🖤

#AMCSIhalloween #AdaptiveCostumes #AMCcommunity #Halloween #CostumeContest
October 31, 2025 at 2:40 PM
💙 Today we celebrate #WorldOTDay!

For the AMC community, occupational therapy empowers independence, creativity & confidence every day.

Thank you to all OT specialists for helping our AMC community thrive! 🌍🙌

#OccupationalTherapy #Arthrogryposis #AMCSI #AMCstrong
October 27, 2025 at 7:03 PM
We’re excited to welcome Partners In Medicine to the 21st Annual AMCSI Conference in Columbus, OH | July 1–4, 2026! 💙

👉 Learn more: partnersinmed.com
👉 Exhibit or attend: amcsupport.org/21st-annual-amcsi-conference

#AMCOH26 #AMCSI #ArthrogryposisAwareness #MobilityMatters #AMCstrong
October 22, 2025 at 7:24 PM
A huge thank you to all the riders of The Prairie – 253 For AMC! 🚴‍♂️💙

Mark took on 103 miles in one day to kick off this incredible fundraiser, a true journey of endurance & heart. Totally 367 miles by the end of the event!

Learn more: amcsupport.org/the-prairie/

#253ForAMC #ThePrairie253
October 15, 2025 at 3:55 PM
A huge thank-you from AMCSI! 💙

With 65 donors, our 253 For AMC riders exceeded their goal. Watch Marshall’s Day 3 video from the trails in Carrabassett Valley to hear his gratitude!

To learn more, visit: amcsupport.org/253foramc/

#253ForAMC #AMCSI #ArthrogryposisAwareness #RideForACause
October 15, 2025 at 3:13 PM
📚 Dive into the AMC Library!

Guides, stories & resources for families & friends learning about AMC.👉 amcsupport.org/amc-library/

💡 Wrote a book on Arthrogryposis? Share it with our community! 👉 amcsupport.org/amc-library

#AMCSI #AMCStrong #AMCSupport #AMC
October 5, 2025 at 2:08 PM
📢 Research opportunity! Shriners Hospital–Canada is developing a GMFC-AMC Family Version & needs input from:


✅ Parents/caregivers of kids (2–21) w/ AMC

✅ Adults w/ AMC (18+)


Remote mtgs, flexible. Email ([email protected]) by Oct 17 to join!

#Arthrogryposis #AMCSupport #AMC #AMCstrong
October 3, 2025 at 5:53 PM