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Reposted by Cat Fraser

George Monbiot @georgemonbiot.bsky.social · 7d

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...

Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome

Research could offer hope for ME patients – but some experts urge caution and say more studies needed

www.theguardian.com

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Cat Fraser @catsocialintel.bsky.social · Jul 29

Pleased to see my @bylinetimes.bsky.social article from last year on #LongCovid #CleanAir #pwME being shared again.

Thanks @thewhn.bsky.social 🤩

World Health Network @thewhn.bsky.social · Jul 11

"We learnt from researchers, scientists and doctors with lived experience, how in a wellbeing economy, we would choose prevention including clean indoor air and rolling out HEPA filters in every school, hospital, office, shop, restaurant and home to reduce COVID sickness by over 80%."

A group of masked people holds a banner in front of the National COVID Memorial Wall. The banner reads:
“LONG COVID – LIVES RUINED. we need answers”
Smaller signs say things like “LISTEN, LEARN, ANSWERS” and “GET PIMS KNOWN: AWARENESS, PROMPT TREATMENT = BETTER OUTCOMES.”

Text on image:
We need to talk about Long COVID.
Cat Fraser, who has lived with the chronic illness for years, says it’s time to get Long Covid on the agenda and give its many victims the support they need.

Black background with bold white text.

Text on image:
Millions are living with Long COVID. Yet many act like the pandemic is over.
We’re still here. Still sick. Still being ignored.

Link:
whn.global/we-need-to-talk-about-long-covid

Black background with bold white text.

Text on image:
"I carried on as normal – until my body finally forced me to stop for two years."
Too often, those with ME or Long COVID are pushed beyond their limits by systems that refuse to believe them.

Link:
whn.global/we-need-to-talk-about-long-covid

Black background with bold white text.

Text on image:
"Last year, George Monbiot warned that ‘we are all playing COVID roulette’ as 10–20% of infections can result in new health conditions and long term disability."
The risks don’t end with infection. Long COVID can reshape your entire life—and it’s happening far more often than most people realize.

Link:
whn.global/we-need-to-talk-about-long-covid

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Reposted by Cat Fraser

Peter Holbrook @peterholbrook.bsky.social · May 15

Lovely to meet you today. Very thought provoking conversation!
Catch up soon.

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Cat Fraser @catsocialintel.bsky.social · May 15

Thank you! Look forwards to planning next steps together

Cat Fraser @catsocialintel.bsky.social · May 15

🔥🔥

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Cat Fraser @catsocialintel.bsky.social · May 15

@longcovidadvoc.com
@kirsties.bsky.social

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Cat Fraser @catsocialintel.bsky.social · May 15

@smartairuk.bsky.social @plumskyjam.bsky.social @salwitcher.bsky.social @1goodtern.bsky.social @ruthbrooker.bsky.social @catinthehat.bsky.social

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Cat Fraser @catsocialintel.bsky.social · May 15

Helping to protect our human biosystems, workplaces, communities, schools, hospitals with indoor #cleanair and #biomed futures funding is just smart business 🤓

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Cat Fraser @catsocialintel.bsky.social · May 15

Great to chat to @peterholbrook.bsky.social @socialenterpriseuk.bsky.social today on the ongoing pandemic impacts to SMEs and livelihoods, and an urgent need to mobilise social ent finance….

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Reposted by Cat Fraser

Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · May 12

We sombrely mark #MEAwarenessDay #WorldMEDay 2025 with an extract from our latest article:

WE ARE WORKING TO SAVE THE PLANET, WHILST LETTING HUMAN BIOSYSTEMS & ENERGY COLLAPSE AROUND US

Time for a new approach.

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Cat Fraser @catsocialintel.bsky.social · May 9

We’ll be launching a comprehensive design lab to design what it all looks like in practice, built as digital for community + shared revenue model

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Cat Fraser @catsocialintel.bsky.social · May 9

Plan is to start with social impact/ small biz/ b corps and build out from there…

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Reposted by Cat Fraser

Brian Hughes @bmhughes.bsky.social · May 9

This is excellent:

"Enough is enough" - Marit Stafseth addresses the Oslo Chronic Fatigue Consortium

"...they ignore all facts that do not support their theory..."

"...It's as if the conclusion was written in advance..."

#MECFS #LongCovid @meforeningen.bsky.social

To the Oslo Chronic Fatigue Consortium: Enough is enough

DEBATE: I question what the actual purpose of this research is.

www.sciencenorway.no

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Cat Fraser @catsocialintel.bsky.social · May 9

@exceedhergrasp1.bsky.social would love your thoughts on this new direction! 🤓

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Cat Fraser @catsocialintel.bsky.social · May 9

8/ Here’s step one on how we do this👇👇

bsky.app/profile/labo...

Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · May 9

1/ 🔥 When human energy becomes a measurable sustainability metric, everything changes! 🚀

Today we’re introducing the #HumanBiosystemsPyramid as a new strategic framework to mobilise business and finance 🚀

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Cat Fraser @catsocialintel.bsky.social · May 9

7/ We have to build a new finance system that invests in protecting human health and longevity

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Cat Fraser @catsocialintel.bsky.social · May 9

6/ We have to transform how we think about human energy and sustainability at a fundamental societal level

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Cat Fraser @catsocialintel.bsky.social · May 9

5/ But traditional advocacy routes require a functional government and healthcare systems - which doesn’t exist anymore

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Cat Fraser @catsocialintel.bsky.social · May 9

4/ Each week I witness the devastating impact of policy decisions that treat those whose bodies are in biosystems and energy collapse as disposable.

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Cat Fraser @catsocialintel.bsky.social · May 9

3/ The urgency is growing every day.

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Cat Fraser @catsocialintel.bsky.social · May 9

2/ I’ve come to the conclusion we have to build something entirely diffferent.

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Cat Fraser @catsocialintel.bsky.social · May 9

1/ As an innovation systems analyst/ designer, I’ve spent years talking to leaders across business, health and society and months deconstructing all the barriers that those in the disease, disability, clean indoor air and biomedicine advocacy world are facing…

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Cat Fraser @catsocialintel.bsky.social · May 2

This is a slide from my @laboflivedexp.bsky.social
investor deck I’m working on…

Does everyone know this??

Have you signed the petition to help protect us in UK healthcare?

petition.parliament.uk/petitions/7003… #CleanAirNowo#LongCovidi#Healtht#mede#disabilityt#Healthyh#longevityt#futurere

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Cat Fraser @catsocialintel.bsky.social · Apr 30

🚨This model should worry every economist, business leader and policymaker🚨

Today we are averaging 3.7 infections each (known or unknown).

👉 For full analysis:
laboflivedexperience.substack.com/p/data-scien...

👉 Stop the spread in UK health settings:
petition.parliament.uk/petitions/70...

Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · Apr 30

1/ “Our Immune Systems Were Definitely NOT Designed For Multiple Hits of an Airborne SARS Virus….

————-

Repeated infections model by
@davidsteadson.bsky.social

Canada study: www150.statcan.gc.ca/n1/pub/75-00...

Long Covid in Children: ONS, March 23

(Video clip recorded for @DS_x_HE Sep 24)

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Cat Fraser @catsocialintel.bsky.social · Apr 17

👀 What else should be on this list that we are missing??

Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · Apr 17

Across The Future Of Health Landscape, Multiple Visions Are Taking Shape…

Lab OLE can be a bridge to connect us into the other ecosystems that are capturing attention + investment….

#redesignhealth