Cystic Fibrosis Research Institute
@cfricurecf.bsky.social
CFRI funds research, provides educational and personal support, and spreads awareness to #curecf. For more, visit cfri.org
🚨 ACTION ALERT 🚨The #MCED passed the Senate & now heads to the House for a final vote Feb 3rd. This bill would expand coverage for multi-cancer early detection tests, critical for people w/CF & millions of Medicare recipients. YEShttps://ujoin.co/campaigns/3710/actions/public?action_id=6268
February 3, 2026 at 3:28 AM
🚨 ACTION ALERT 🚨The #MCED passed the Senate & now heads to the House for a final vote Feb 3rd. This bill would expand coverage for multi-cancer early detection tests, critical for people w/CF & millions of Medicare recipients. YEShttps://ujoin.co/campaigns/3710/actions/public?action_id=6268
Participants Needed: ACT with CF Self-Help Toolkit
Researchers at Thomas Jefferson University Hospital are studying a self-guided ACT toolkit for adults with CF to help reduce anxiety & depression and build psychological flexibility.
6 weekly sessions.
Interested? Email [email protected]
Researchers at Thomas Jefferson University Hospital are studying a self-guided ACT toolkit for adults with CF to help reduce anxiety & depression and build psychological flexibility.
6 weekly sessions.
Interested? Email [email protected]
January 31, 2026 at 3:38 AM
Participants Needed: ACT with CF Self-Help Toolkit
Researchers at Thomas Jefferson University Hospital are studying a self-guided ACT toolkit for adults with CF to help reduce anxiety & depression and build psychological flexibility.
6 weekly sessions.
Interested? Email [email protected]
Researchers at Thomas Jefferson University Hospital are studying a self-guided ACT toolkit for adults with CF to help reduce anxiety & depression and build psychological flexibility.
6 weekly sessions.
Interested? Email [email protected]
It's that time of the year to Dance Like a Fool to support CFRI's CF Wellness Programs. Dance for 3 minutes or 3 hours – we want to see you! Friday February 20th @ 6pm PT. Not a dancer? You can make a donation in support of a participant.
Sign Up / Donate: givebutter.com/DanceLikeaFo...
Sign Up / Donate: givebutter.com/DanceLikeaFo...
January 29, 2026 at 5:12 AM
It's that time of the year to Dance Like a Fool to support CFRI's CF Wellness Programs. Dance for 3 minutes or 3 hours – we want to see you! Friday February 20th @ 6pm PT. Not a dancer? You can make a donation in support of a participant.
Sign Up / Donate: givebutter.com/DanceLikeaFo...
Sign Up / Donate: givebutter.com/DanceLikeaFo...
4DMT enrolling participants for Phase 2 gene therapy clinical trial of their experimental treatment 4D-710. Adults with CF 18 years+ who do not qualify for or are unable to tolerate treatment with a CFTR modulator are encouraged to apply. Apply: www.clinicaltrials.gov/study/NCT052...
January 26, 2026 at 5:28 AM
4DMT enrolling participants for Phase 2 gene therapy clinical trial of their experimental treatment 4D-710. Adults with CF 18 years+ who do not qualify for or are unable to tolerate treatment with a CFTR modulator are encouraged to apply. Apply: www.clinicaltrials.gov/study/NCT052...
#Earlydetection saves lives. This is a pivotal moment for cancer patients and families across the country. Passing the #MCEDAct would redefine cancer detection. Let’s get this over the finish line now! @RepDavidValadao @repraulruizmd.bsky.social @repbarragan.bsky.social @SenAdamSchif
January 21, 2026 at 1:50 AM
#Earlydetection saves lives. This is a pivotal moment for cancer patients and families across the country. Passing the #MCEDAct would redefine cancer detection. Let’s get this over the finish line now! @RepDavidValadao @repraulruizmd.bsky.social @repbarragan.bsky.social @SenAdamSchif
Dr. Martin Luther King Jr. said that justice must reach every part of society including health care. Yet today, people of color are still more likely to experience late diagnoses & barriers to care within the CF community & beyond. Today, we honor his vision with action toward health equity for all.
January 20, 2026 at 4:39 AM
Dr. Martin Luther King Jr. said that justice must reach every part of society including health care. Yet today, people of color are still more likely to experience late diagnoses & barriers to care within the CF community & beyond. Today, we honor his vision with action toward health equity for all.
New blog: Skydiving with Purpose, Grief & Fearlessness. For Devanshi Dubey, living with #CysticFibrosis once made skydiving feel impossible. After a late diagnosis & proper care, that changed—along with her view of what’s possible. A story about choosing to live fully. www.cfri.org/skydiving-fo...
Skydiving with purpose, grief, and fearlessness
CFRI's mission is to be a global resource for the cystic fibrosis community while pursuing a cure through research, education, advocacy, and support. Our vision is to find a cure for cystic fibrosis w...
www.cfri.org
January 18, 2026 at 10:48 PM
New blog: Skydiving with Purpose, Grief & Fearlessness. For Devanshi Dubey, living with #CysticFibrosis once made skydiving feel impossible. After a late diagnosis & proper care, that changed—along with her view of what’s possible. A story about choosing to live fully. www.cfri.org/skydiving-fo...
The SOAR Act remains active. CFRI joined multiple orgs in co-signing a letter to the house committee, seeking support for this bipartisan, vital legislation. Many people in our community on Medicare, including those under 65, have limited access to portable oxygen, harming health & quality of life.
January 18, 2026 at 2:17 AM
The SOAR Act remains active. CFRI joined multiple orgs in co-signing a letter to the house committee, seeking support for this bipartisan, vital legislation. Many people in our community on Medicare, including those under 65, have limited access to portable oxygen, harming health & quality of life.
January is Cervical Cancer Awareness Month! Females w/CF especially those post-transplant face an elevated risk of cervical cancer. In this podcast, Dr. Thornton discusses risk factors, research & strategies for prevention & early diagnosis. Sponsored by Viatris!
www.youtube.com/watch?v=MvX1...
www.youtube.com/watch?v=MvX1...
Human Papillomavirus and Cervical Cancer in People with Cystic Fibrosis — Christina Thornton, MD
YouTube video by Cystic Fibrosis Research Institute
www.youtube.com
January 15, 2026 at 6:45 AM
January is Cervical Cancer Awareness Month! Females w/CF especially those post-transplant face an elevated risk of cervical cancer. In this podcast, Dr. Thornton discusses risk factors, research & strategies for prevention & early diagnosis. Sponsored by Viatris!
www.youtube.com/watch?v=MvX1...
www.youtube.com/watch?v=MvX1...
Start the year grounded and renewed! Join us Sat, Jan 17 @ 9:00 am PT for a gentle Qigong wellness class led by Julie Desch, MD—a moving meditation designed to support relaxation, flow & mindful breathing. Sponsored to date by Viatris and private donors.
Sign Up: curecf.cfri.org/Wellness26
Sign Up: curecf.cfri.org/Wellness26
January 14, 2026 at 6:15 AM
Start the year grounded and renewed! Join us Sat, Jan 17 @ 9:00 am PT for a gentle Qigong wellness class led by Julie Desch, MD—a moving meditation designed to support relaxation, flow & mindful breathing. Sponsored to date by Viatris and private donors.
Sign Up: curecf.cfri.org/Wellness26
Sign Up: curecf.cfri.org/Wellness26
Visítanos en Conocimiento y Conexión, la comunidad virtual en español de FQ de CFRI! Para adultos con #fibrosisquística y padres/personas que cuidan. 14 de enero @ 5pm PT.
PARA REGISTRARSE, enviar un correo electrónico a Hannah ([email protected]).
PARA REGISTRARSE, enviar un correo electrónico a Hannah ([email protected]).
January 14, 2026 at 6:13 AM
Visítanos en Conocimiento y Conexión, la comunidad virtual en español de FQ de CFRI! Para adultos con #fibrosisquística y padres/personas que cuidan. 14 de enero @ 5pm PT.
PARA REGISTRARSE, enviar un correo electrónico a Hannah ([email protected]).
PARA REGISTRARSE, enviar un correo electrónico a Hannah ([email protected]).
Polar plunge for CF & Cancer Research. Jan 1st led by Steve Freedman MD, PhD 30+ people braved snow & freezing temps to plunge into the Atlantic Ocean. Hosted by Changing Futures the event raised $16K. Dr. Freedman’s groundbreaking work has led to major progress for CF GI cancers.
January 11, 2026 at 4:13 AM
Polar plunge for CF & Cancer Research. Jan 1st led by Steve Freedman MD, PhD 30+ people braved snow & freezing temps to plunge into the Atlantic Ocean. Hosted by Changing Futures the event raised $16K. Dr. Freedman’s groundbreaking work has led to major progress for CF GI cancers.
CF Senior Saturday Meet & Greet 40+ & Aging with CF.
You’re invited - 2nd Saturdays monthly on Zoom, hosted by Halite Solutions Group. Connect, learn & share with peers. Each month explores age-focused topics, guest speakers & practical insights!
www.halitesolutionsgroup.org/cfss
You’re invited - 2nd Saturdays monthly on Zoom, hosted by Halite Solutions Group. Connect, learn & share with peers. Each month explores age-focused topics, guest speakers & practical insights!
www.halitesolutionsgroup.org/cfss
January 9, 2026 at 4:50 AM
CF Senior Saturday Meet & Greet 40+ & Aging with CF.
You’re invited - 2nd Saturdays monthly on Zoom, hosted by Halite Solutions Group. Connect, learn & share with peers. Each month explores age-focused topics, guest speakers & practical insights!
www.halitesolutionsgroup.org/cfss
You’re invited - 2nd Saturdays monthly on Zoom, hosted by Halite Solutions Group. Connect, learn & share with peers. Each month explores age-focused topics, guest speakers & practical insights!
www.halitesolutionsgroup.org/cfss
Females with CF ages 40–65: researchers at the University of Illinois Chicago want to learn how menopause affects CF symptoms and quality of life. Participation includes surveys and a Zoom interview. Learn more: www.redcap.ihrp.uic.edu/surveys/?s=L...
January 7, 2026 at 8:57 PM
Females with CF ages 40–65: researchers at the University of Illinois Chicago want to learn how menopause affects CF symptoms and quality of life. Participation includes surveys and a Zoom interview. Learn more: www.redcap.ihrp.uic.edu/surveys/?s=L...
Start the year supported. A new year brings fresh beginnings & you don’t have to navigate it alone. CFRI’s monthly online Support Groups offer peer-to-peer connection. Join a space where you’re understood & make connection part of your 2026 goals.
Sign Up: www.cfri.org/education-su...
Sign Up: www.cfri.org/education-su...
January 6, 2026 at 3:53 AM
Start the year supported. A new year brings fresh beginnings & you don’t have to navigate it alone. CFRI’s monthly online Support Groups offer peer-to-peer connection. Join a space where you’re understood & make connection part of your 2026 goals.
Sign Up: www.cfri.org/education-su...
Sign Up: www.cfri.org/education-su...
✨ Cheers to a New Year ✨ As one chapter closes & another begins, we’re thankful for your continued support. A new year brings fresh hope, renewed purpose & the determination to keep progress moving forward. Wishing you and your loved ones health, happiness & meaningful moments in the year to come.
January 1, 2026 at 1:16 AM
✨ Cheers to a New Year ✨ As one chapter closes & another begins, we’re thankful for your continued support. A new year brings fresh hope, renewed purpose & the determination to keep progress moving forward. Wishing you and your loved ones health, happiness & meaningful moments in the year to come.
⏰ LAST 24 HOURS! Every gift to CF research is MATCHED dollar for dollar up to $25K—but it ENDS SOON. There’s still no cure. Help us turn $25K into $50K before time runs out. Please give now & help us find a cure. 💜
givebutter.com/gFRLf3
givebutter.com/gFRLf3
December 31, 2025 at 12:48 AM
⏰ LAST 24 HOURS! Every gift to CF research is MATCHED dollar for dollar up to $25K—but it ENDS SOON. There’s still no cure. Help us turn $25K into $50K before time runs out. Please give now & help us find a cure. 💜
givebutter.com/gFRLf3
givebutter.com/gFRLf3
SAVE THE DATE: CFRI’S Spring Retreat for Adults with #CysticFibrosis.
📅 April 6th – 10th, 2026
📍 El Retiro Center Los Altos, CA
New season, same heart, same community, same amazing retreat experience.
Sponsored to date by Vertex Pharmaceuticals & family bequests.
📅 April 6th – 10th, 2026
📍 El Retiro Center Los Altos, CA
New season, same heart, same community, same amazing retreat experience.
Sponsored to date by Vertex Pharmaceuticals & family bequests.
December 29, 2025 at 1:41 AM
SAVE THE DATE: CFRI’S Spring Retreat for Adults with #CysticFibrosis.
📅 April 6th – 10th, 2026
📍 El Retiro Center Los Altos, CA
New season, same heart, same community, same amazing retreat experience.
Sponsored to date by Vertex Pharmaceuticals & family bequests.
📅 April 6th – 10th, 2026
📍 El Retiro Center Los Altos, CA
New season, same heart, same community, same amazing retreat experience.
Sponsored to date by Vertex Pharmaceuticals & family bequests.
⏳ YEAR-END MATCH: Every gift for #CysticFibrosis research is MATCHED dollar for dollar up to $25K! There’s still no cure for cystic fibrosis—help us turn $25K into $50K and fund critical research. Donate to our 2025 Research Challenge Campaign today. givebutter.com/gFRLf3
December 28, 2025 at 6:17 AM
⏳ YEAR-END MATCH: Every gift for #CysticFibrosis research is MATCHED dollar for dollar up to $25K! There’s still no cure for cystic fibrosis—help us turn $25K into $50K and fund critical research. Donate to our 2025 Research Challenge Campaign today. givebutter.com/gFRLf3
Happy Holidays from your friends at CFRI ❄️ The Board of Directors and staff of CFRI thank you for the support you share with CFRI and CF community 💜 We wish you and your loved ones a safe, joyous and healthy holiday season!
December 24, 2025 at 3:29 AM
Happy Holidays from your friends at CFRI ❄️ The Board of Directors and staff of CFRI thank you for the support you share with CFRI and CF community 💜 We wish you and your loved ones a safe, joyous and healthy holiday season!
CFRI’s survey of CF care team members identifies gaps in resources & illuminates ideas for new offerings, including addressing medication & pulmonary treatment explanations, mental health offerings, nutrition & emerging therapies. Many thanks to those who completed the survey!
December 23, 2025 at 6:31 AM
CFRI’s survey of CF care team members identifies gaps in resources & illuminates ideas for new offerings, including addressing medication & pulmonary treatment explanations, mental health offerings, nutrition & emerging therapies. Many thanks to those who completed the survey!
Year-End Countdown: Your Gift Can Go TWICE as Far!
There’s still no cure for #cysticfibrosis— but your donation today can double its impact and fund critical research. Help us reach $50K. Donate now 💜 Every gift matters.
Donate now: givebutter.com/gFRLf3
There’s still no cure for #cysticfibrosis— but your donation today can double its impact and fund critical research. Help us reach $50K. Donate now 💜 Every gift matters.
Donate now: givebutter.com/gFRLf3
December 22, 2025 at 7:16 AM
Year-End Countdown: Your Gift Can Go TWICE as Far!
There’s still no cure for #cysticfibrosis— but your donation today can double its impact and fund critical research. Help us reach $50K. Donate now 💜 Every gift matters.
Donate now: givebutter.com/gFRLf3
There’s still no cure for #cysticfibrosis— but your donation today can double its impact and fund critical research. Help us reach $50K. Donate now 💜 Every gift matters.
Donate now: givebutter.com/gFRLf3
New advocacy film 🎬 CF in the South Asian Community. #CysticFibrosis impacts people of every race & ethnicity but misperceptions delay diagnosis & limit access to new treatments. Hear powerful personal stories from South Asians living with CF.
👀 Youtube: curecf.cfri.org/CFSAComm
👀 Youtube: curecf.cfri.org/CFSAComm
December 18, 2025 at 11:06 PM
New advocacy film 🎬 CF in the South Asian Community. #CysticFibrosis impacts people of every race & ethnicity but misperceptions delay diagnosis & limit access to new treatments. Hear powerful personal stories from South Asians living with CF.
👀 Youtube: curecf.cfri.org/CFSAComm
👀 Youtube: curecf.cfri.org/CFSAComm
Big news 📣 the Elizabeth and Patrick Nash Foundation, the former Elizabeth Nash Foundation is expanding its impact. CFRI is honored to collaborate in programs such as the Patrick Nash Fellows Training Program focused on aging-related CF complications.
www.elizabethandpatricknashfoundation.org
www.elizabethandpatricknashfoundation.org
December 17, 2025 at 6:23 AM
Big news 📣 the Elizabeth and Patrick Nash Foundation, the former Elizabeth Nash Foundation is expanding its impact. CFRI is honored to collaborate in programs such as the Patrick Nash Fellows Training Program focused on aging-related CF complications.
www.elizabethandpatricknashfoundation.org
www.elizabethandpatricknashfoundation.org
Safety Concerns Halt Biomx BX004 Phage Therapy Trial for P. Aeruginosa Infections in #cysticfibrosis. They will instead focus on BX011, a phage cocktail targeting Staphylococcus aureus infections associated with diabetic foot infections.
👉🏽 Read More: www.globenewswire.com/news-release...
👉🏽 Read More: www.globenewswire.com/news-release...
December 13, 2025 at 7:26 AM
Safety Concerns Halt Biomx BX004 Phage Therapy Trial for P. Aeruginosa Infections in #cysticfibrosis. They will instead focus on BX011, a phage cocktail targeting Staphylococcus aureus infections associated with diabetic foot infections.
👉🏽 Read More: www.globenewswire.com/news-release...
👉🏽 Read More: www.globenewswire.com/news-release...