Cystic Fibrosis Research Institute
@cfricurecf.bsky.social
CFRI funds research, provides educational and personal support, and spreads awareness to #curecf. For more, visit cfri.org
SAVE THE DATE: CFRI’S Spring Retreat for Adults with #CysticFibrosis.
📅 April 6th – 10th, 2026
📍 El Retiro Center Los Altos, CA
New season, same heart, same community, same amazing retreat experience.
Sponsored to date by Vertex Pharmaceuticals & family bequests.
📅 April 6th – 10th, 2026
📍 El Retiro Center Los Altos, CA
New season, same heart, same community, same amazing retreat experience.
Sponsored to date by Vertex Pharmaceuticals & family bequests.
December 29, 2025 at 1:41 AM
SAVE THE DATE: CFRI’S Spring Retreat for Adults with #CysticFibrosis.
📅 April 6th – 10th, 2026
📍 El Retiro Center Los Altos, CA
New season, same heart, same community, same amazing retreat experience.
Sponsored to date by Vertex Pharmaceuticals & family bequests.
📅 April 6th – 10th, 2026
📍 El Retiro Center Los Altos, CA
New season, same heart, same community, same amazing retreat experience.
Sponsored to date by Vertex Pharmaceuticals & family bequests.
⏳ YEAR-END MATCH: Every gift for #CysticFibrosis research is MATCHED dollar for dollar up to $25K! There’s still no cure for cystic fibrosis—help us turn $25K into $50K and fund critical research. Donate to our 2025 Research Challenge Campaign today. givebutter.com/gFRLf3
December 28, 2025 at 6:17 AM
⏳ YEAR-END MATCH: Every gift for #CysticFibrosis research is MATCHED dollar for dollar up to $25K! There’s still no cure for cystic fibrosis—help us turn $25K into $50K and fund critical research. Donate to our 2025 Research Challenge Campaign today. givebutter.com/gFRLf3
Happy Holidays from your friends at CFRI ❄️ The Board of Directors and staff of CFRI thank you for the support you share with CFRI and CF community 💜 We wish you and your loved ones a safe, joyous and healthy holiday season!
December 24, 2025 at 3:29 AM
Happy Holidays from your friends at CFRI ❄️ The Board of Directors and staff of CFRI thank you for the support you share with CFRI and CF community 💜 We wish you and your loved ones a safe, joyous and healthy holiday season!
CFRI’s survey of CF care team members identifies gaps in resources & illuminates ideas for new offerings, including addressing medication & pulmonary treatment explanations, mental health offerings, nutrition & emerging therapies. Many thanks to those who completed the survey!
December 23, 2025 at 6:31 AM
CFRI’s survey of CF care team members identifies gaps in resources & illuminates ideas for new offerings, including addressing medication & pulmonary treatment explanations, mental health offerings, nutrition & emerging therapies. Many thanks to those who completed the survey!
Year-End Countdown: Your Gift Can Go TWICE as Far!
There’s still no cure for #cysticfibrosis— but your donation today can double its impact and fund critical research. Help us reach $50K. Donate now 💜 Every gift matters.
Donate now: givebutter.com/gFRLf3
There’s still no cure for #cysticfibrosis— but your donation today can double its impact and fund critical research. Help us reach $50K. Donate now 💜 Every gift matters.
Donate now: givebutter.com/gFRLf3
December 22, 2025 at 7:16 AM
Year-End Countdown: Your Gift Can Go TWICE as Far!
There’s still no cure for #cysticfibrosis— but your donation today can double its impact and fund critical research. Help us reach $50K. Donate now 💜 Every gift matters.
Donate now: givebutter.com/gFRLf3
There’s still no cure for #cysticfibrosis— but your donation today can double its impact and fund critical research. Help us reach $50K. Donate now 💜 Every gift matters.
Donate now: givebutter.com/gFRLf3
New advocacy film 🎬 CF in the South Asian Community. #CysticFibrosis impacts people of every race & ethnicity but misperceptions delay diagnosis & limit access to new treatments. Hear powerful personal stories from South Asians living with CF.
👀 Youtube: curecf.cfri.org/CFSAComm
👀 Youtube: curecf.cfri.org/CFSAComm
December 18, 2025 at 11:06 PM
New advocacy film 🎬 CF in the South Asian Community. #CysticFibrosis impacts people of every race & ethnicity but misperceptions delay diagnosis & limit access to new treatments. Hear powerful personal stories from South Asians living with CF.
👀 Youtube: curecf.cfri.org/CFSAComm
👀 Youtube: curecf.cfri.org/CFSAComm
Big news 📣 the Elizabeth and Patrick Nash Foundation, the former Elizabeth Nash Foundation is expanding its impact. CFRI is honored to collaborate in programs such as the Patrick Nash Fellows Training Program focused on aging-related CF complications.
www.elizabethandpatricknashfoundation.org
www.elizabethandpatricknashfoundation.org
December 17, 2025 at 6:23 AM
Big news 📣 the Elizabeth and Patrick Nash Foundation, the former Elizabeth Nash Foundation is expanding its impact. CFRI is honored to collaborate in programs such as the Patrick Nash Fellows Training Program focused on aging-related CF complications.
www.elizabethandpatricknashfoundation.org
www.elizabethandpatricknashfoundation.org
Safety Concerns Halt Biomx BX004 Phage Therapy Trial for P. Aeruginosa Infections in #cysticfibrosis. They will instead focus on BX011, a phage cocktail targeting Staphylococcus aureus infections associated with diabetic foot infections.
👉🏽 Read More: www.globenewswire.com/news-release...
👉🏽 Read More: www.globenewswire.com/news-release...
December 13, 2025 at 7:26 AM
Safety Concerns Halt Biomx BX004 Phage Therapy Trial for P. Aeruginosa Infections in #cysticfibrosis. They will instead focus on BX011, a phage cocktail targeting Staphylococcus aureus infections associated with diabetic foot infections.
👉🏽 Read More: www.globenewswire.com/news-release...
👉🏽 Read More: www.globenewswire.com/news-release...
Year End Countdown: All gifts for CF Research will be matched dollar for dollar before the New Year, until we hit $25K💜 We still have work to do to improve the lives of our CF community – we still have no cure! #SupportCFRI
Donate Today! givebutter.com/gFRLf3
Donate Today! givebutter.com/gFRLf3
2025 Year-End CF Research Challenge
cystic fibrosis CF research
givebutter.com
December 11, 2025 at 9:48 PM
Year End Countdown: All gifts for CF Research will be matched dollar for dollar before the New Year, until we hit $25K💜 We still have work to do to improve the lives of our CF community – we still have no cure! #SupportCFRI
Donate Today! givebutter.com/gFRLf3
Donate Today! givebutter.com/gFRLf3
Everyone deserves the chance to imagine a future!
We’re excited to share @EmilysEntourage premiere of “Dear Future Me,” Dec 9 @ 10:30 AM ET - a powerful call for hope for the 10% of people with #cysticfibrosis still waiting for effective therapies.
👉 Watch & Share: www.youtube.com/watch?v=nNzg...
We’re excited to share @EmilysEntourage premiere of “Dear Future Me,” Dec 9 @ 10:30 AM ET - a powerful call for hope for the 10% of people with #cysticfibrosis still waiting for effective therapies.
👉 Watch & Share: www.youtube.com/watch?v=nNzg...
Emily's Entourage | Dear Future Me
YouTube video by EmilysEntourage
www.youtube.com
December 8, 2025 at 9:08 PM
Everyone deserves the chance to imagine a future!
We’re excited to share @EmilysEntourage premiere of “Dear Future Me,” Dec 9 @ 10:30 AM ET - a powerful call for hope for the 10% of people with #cysticfibrosis still waiting for effective therapies.
👉 Watch & Share: www.youtube.com/watch?v=nNzg...
We’re excited to share @EmilysEntourage premiere of “Dear Future Me,” Dec 9 @ 10:30 AM ET - a powerful call for hope for the 10% of people with #cysticfibrosis still waiting for effective therapies.
👉 Watch & Share: www.youtube.com/watch?v=nNzg...
Visítanos en Conocimiento y Conexión, la comunidad virtual en español de FQ de CFRI! Para adultos con #fibrosisquística y padres / personas que cuidan. 10 de diciembre @ 5pm PT.
PARA REGISTRARSE, enviar un correo electrónico a Hannah ([email protected]).
PARA REGISTRARSE, enviar un correo electrónico a Hannah ([email protected]).
December 8, 2025 at 2:08 AM
Visítanos en Conocimiento y Conexión, la comunidad virtual en español de FQ de CFRI! Para adultos con #fibrosisquística y padres / personas que cuidan. 10 de diciembre @ 5pm PT.
PARA REGISTRARSE, enviar un correo electrónico a Hannah ([email protected]).
PARA REGISTRARSE, enviar un correo electrónico a Hannah ([email protected]).
The holidays can be busy—your well-being matters too 💚
Join CFRI for our upcoming Mindfulness to Find Peace and Joy workshop, designed to support emotional wellness for those living with #cysticfibrosis.
📅 Tuesday, Dec 9 @ 5 pm PT
💜 Register: curecf.cfri.org/PeaceJoy
Join CFRI for our upcoming Mindfulness to Find Peace and Joy workshop, designed to support emotional wellness for those living with #cysticfibrosis.
📅 Tuesday, Dec 9 @ 5 pm PT
💜 Register: curecf.cfri.org/PeaceJoy
December 7, 2025 at 1:54 AM
The holidays can be busy—your well-being matters too 💚
Join CFRI for our upcoming Mindfulness to Find Peace and Joy workshop, designed to support emotional wellness for those living with #cysticfibrosis.
📅 Tuesday, Dec 9 @ 5 pm PT
💜 Register: curecf.cfri.org/PeaceJoy
Join CFRI for our upcoming Mindfulness to Find Peace and Joy workshop, designed to support emotional wellness for those living with #cysticfibrosis.
📅 Tuesday, Dec 9 @ 5 pm PT
💜 Register: curecf.cfri.org/PeaceJoy
Today is #GivingTuesday — a day to turn hope into action.
Your gift to CFRI will be matched $1:$1 up to $20,000 for CF research.
Help fuel the breakthroughs our community needs.
👉 Donate: cfri.app.neoncrm.com/forms/38 💜
Your gift to CFRI will be matched $1:$1 up to $20,000 for CF research.
Help fuel the breakthroughs our community needs.
👉 Donate: cfri.app.neoncrm.com/forms/38 💜
December 2, 2025 at 8:06 PM
Today is #GivingTuesday — a day to turn hope into action.
Your gift to CFRI will be matched $1:$1 up to $20,000 for CF research.
Help fuel the breakthroughs our community needs.
👉 Donate: cfri.app.neoncrm.com/forms/38 💜
Your gift to CFRI will be matched $1:$1 up to $20,000 for CF research.
Help fuel the breakthroughs our community needs.
👉 Donate: cfri.app.neoncrm.com/forms/38 💜
A team of researchers in France found that people with #cysticfibrosis who have certain lung structure abnormalities are more likely to see improvements in lung function after starting Trikafta. Read More: www.sciencedirect.com/science/arti...
November 26, 2025 at 9:25 PM
A team of researchers in France found that people with #cysticfibrosis who have certain lung structure abnormalities are more likely to see improvements in lung function after starting Trikafta. Read More: www.sciencedirect.com/science/arti...
🌿Mindfulness Workshop to Find Peace & Joy —part of our quarterly series supporting emotional well-being for those living with #CysticFibrosis.
Tues, Dec 9th @ 5 pm PT
💜 Register: curecf.cfri.org/PeaceJoy
Sponsored by Viatris, Vertex Pharmaceuticals, Genentech & private donors.
Tues, Dec 9th @ 5 pm PT
💜 Register: curecf.cfri.org/PeaceJoy
Sponsored by Viatris, Vertex Pharmaceuticals, Genentech & private donors.
November 26, 2025 at 1:54 AM
🌿Mindfulness Workshop to Find Peace & Joy —part of our quarterly series supporting emotional well-being for those living with #CysticFibrosis.
Tues, Dec 9th @ 5 pm PT
💜 Register: curecf.cfri.org/PeaceJoy
Sponsored by Viatris, Vertex Pharmaceuticals, Genentech & private donors.
Tues, Dec 9th @ 5 pm PT
💜 Register: curecf.cfri.org/PeaceJoy
Sponsored by Viatris, Vertex Pharmaceuticals, Genentech & private donors.
Tolka AI Therapeutics is building a biobank to push forward personalized phage therapy for MABC.
MABC in your respiratory cultures? Live in the US, Australia, UK, or Canada?
You may qualify to contribute—2 simple sputum samples from home.
Learn More: tolka.ai/work/biobank...
MABC in your respiratory cultures? Live in the US, Australia, UK, or Canada?
You may qualify to contribute—2 simple sputum samples from home.
Learn More: tolka.ai/work/biobank...
November 23, 2025 at 3:49 AM
Tolka AI Therapeutics is building a biobank to push forward personalized phage therapy for MABC.
MABC in your respiratory cultures? Live in the US, Australia, UK, or Canada?
You may qualify to contribute—2 simple sputum samples from home.
Learn More: tolka.ai/work/biobank...
MABC in your respiratory cultures? Live in the US, Australia, UK, or Canada?
You may qualify to contribute—2 simple sputum samples from home.
Learn More: tolka.ai/work/biobank...
#GivingTuesday is coming up on Dec 2! 💜
Your gift to CFRI will be matched dollar for dollar up to $20,000—fueling critical CF research nationwide.
Why wait? You can donate today and make double the impact.
🔗 Donate now: cfri.app.neoncrm.com/forms/38
Your gift to CFRI will be matched dollar for dollar up to $20,000—fueling critical CF research nationwide.
Why wait? You can donate today and make double the impact.
🔗 Donate now: cfri.app.neoncrm.com/forms/38
November 21, 2025 at 6:02 AM
#GivingTuesday is coming up on Dec 2! 💜
Your gift to CFRI will be matched dollar for dollar up to $20,000—fueling critical CF research nationwide.
Why wait? You can donate today and make double the impact.
🔗 Donate now: cfri.app.neoncrm.com/forms/38
Your gift to CFRI will be matched dollar for dollar up to $20,000—fueling critical CF research nationwide.
Why wait? You can donate today and make double the impact.
🔗 Donate now: cfri.app.neoncrm.com/forms/38
Our friends @ #NORD are hosting a must-attend webinar for rare disease families! Learn how to navigate open enrollment and choose the plan that keeps you covered. Replay will be shared to those who register!
📅 WED Nov. 19, 2025 - 2PM ET
rarediseases.zoom.us/webinar/regi...
📅 WED Nov. 19, 2025 - 2PM ET
rarediseases.zoom.us/webinar/regi...
November 19, 2025 at 12:01 AM
Our friends @ #NORD are hosting a must-attend webinar for rare disease families! Learn how to navigate open enrollment and choose the plan that keeps you covered. Replay will be shared to those who register!
📅 WED Nov. 19, 2025 - 2PM ET
rarediseases.zoom.us/webinar/regi...
📅 WED Nov. 19, 2025 - 2PM ET
rarediseases.zoom.us/webinar/regi...
CF + CFRD = a lot to manage.
On #WorldDiabetesDay, we honor those with CF who are balancing treatments, meals & blood sugars every day.
You’re not alone 💙
On #WorldDiabetesDay, we honor those with CF who are balancing treatments, meals & blood sugars every day.
You’re not alone 💙
November 15, 2025 at 2:54 AM
CF + CFRD = a lot to manage.
On #WorldDiabetesDay, we honor those with CF who are balancing treatments, meals & blood sugars every day.
You’re not alone 💙
On #WorldDiabetesDay, we honor those with CF who are balancing treatments, meals & blood sugars every day.
You’re not alone 💙
Workshop: Mindfulness to Find Peace and Joy Tues, Dec 9th @ 5pm PT. CFRI is hosting quarterly workshops focused on aspects of mindfulness for those living with #cysticfibrosis. Led by Julie Desch, MD. curecf.cfri.org/PeaceJoy
Sponsored by Viatris, Vertex Pharmaceuticals, Genentech & private donors.
Sponsored by Viatris, Vertex Pharmaceuticals, Genentech & private donors.
November 12, 2025 at 3:29 AM
Workshop: Mindfulness to Find Peace and Joy Tues, Dec 9th @ 5pm PT. CFRI is hosting quarterly workshops focused on aspects of mindfulness for those living with #cysticfibrosis. Led by Julie Desch, MD. curecf.cfri.org/PeaceJoy
Sponsored by Viatris, Vertex Pharmaceuticals, Genentech & private donors.
Sponsored by Viatris, Vertex Pharmaceuticals, Genentech & private donors.
💜 Living with #CysticFibrosis but can’t use CFTR modulators? You’re not alone. Join our monthly online Support Group — 4th Thursdays, 5PM PT / 8PM ET. Facilitated by Sonya Haggett, LCSW, a social worker living with CF.
Register: curecf.cfri.org/SupGrpMod
Register: curecf.cfri.org/SupGrpMod
November 6, 2025 at 11:31 PM
💜 Living with #CysticFibrosis but can’t use CFTR modulators? You’re not alone. Join our monthly online Support Group — 4th Thursdays, 5PM PT / 8PM ET. Facilitated by Sonya Haggett, LCSW, a social worker living with CF.
Register: curecf.cfri.org/SupGrpMod
Register: curecf.cfri.org/SupGrpMod
Ready to recharge before the holidays?Join CFRI’s free virtual #wellnessclasses designed for the CF community & their loved ones. No experience needed—just show up & move! www.cfri.org/wellness-cla...
Made possible with support from Viatris, Vertex Pharmaceuticals, and private donors.
Made possible with support from Viatris, Vertex Pharmaceuticals, and private donors.
November 6, 2025 at 12:35 AM
Ready to recharge before the holidays?Join CFRI’s free virtual #wellnessclasses designed for the CF community & their loved ones. No experience needed—just show up & move! www.cfri.org/wellness-cla...
Made possible with support from Viatris, Vertex Pharmaceuticals, and private donors.
Made possible with support from Viatris, Vertex Pharmaceuticals, and private donors.
We want to hear your story! CFRI is creating a video about diversity in the #cysticfibrosis community & we’re looking for people w/CF of non-European descent and/or not modulator eligible due to mutation to share their experiences by Nov 10th!
Email [email protected] if interested
Email [email protected] if interested
November 4, 2025 at 9:39 PM
We want to hear your story! CFRI is creating a video about diversity in the #cysticfibrosis community & we’re looking for people w/CF of non-European descent and/or not modulator eligible due to mutation to share their experiences by Nov 10th!
Email [email protected] if interested
Email [email protected] if interested
📣 Calling #CysticFibrosis social workers, physicians, nurses, respiratory therapists & dietitians. Share your wisdom about providing care to people with CF to help us expand our offerings of services for CF patients of diverse backgrounds. Take the short survey by Nov 12th cfri.tiny.us/2xa7y2m8
November 4, 2025 at 9:39 PM
📣 Calling #CysticFibrosis social workers, physicians, nurses, respiratory therapists & dietitians. Share your wisdom about providing care to people with CF to help us expand our offerings of services for CF patients of diverse backgrounds. Take the short survey by Nov 12th cfri.tiny.us/2xa7y2m8
🍁This season of thanks is also a season for self-care 🍂This month, give yourself the space to share, reflect, and recharge in CFRI’s Monthly Support Groups. Register: www.cfri.org/education-su...
Thank you to Viatris & private donors for sponsoring our 2025 support groups! #cysticfibrosis
Thank you to Viatris & private donors for sponsoring our 2025 support groups! #cysticfibrosis
November 3, 2025 at 8:21 PM
🍁This season of thanks is also a season for self-care 🍂This month, give yourself the space to share, reflect, and recharge in CFRI’s Monthly Support Groups. Register: www.cfri.org/education-su...
Thank you to Viatris & private donors for sponsoring our 2025 support groups! #cysticfibrosis
Thank you to Viatris & private donors for sponsoring our 2025 support groups! #cysticfibrosis