Lightnews — Scholar-powered news

Claire Saxton @clarinetsax.bsky.social · 7h

@crisbergerot.bsky.social
@fumikochino.bsky.social
@nicolefleege.bsky.social
@ryannipp.bsky.social
@lungoncdoc.bsky.social

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Claire Saxton @clarinetsax.bsky.social · 7h

The implications: metastatic pts want more emotional & relational support, while non-metastatic prioritize mobility assistance & daily tasks.

Top across-the-board need: help coping with uncertainty & managing fatigue.

What drives support needs at your institution?

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Claire Saxton @clarinetsax.bsky.social · 7h

For #NSCLC patients, socio-demographics better predict distress levels than metastatic status—challenging common assumptions in psych-oncology.

#ASCOQLTY25 #LungCancer #PsychosocialSupport
www.CancerSupportCommunity.org

Poster:
www.cancersupportcommunity.org/sites/defaul...

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Reposted by Claire Saxton

Ruth Ann Crystal @drruth.bsky.social · Mar 22

RCT shows that young children (age 28 days to 4 years of age) with Upper Respiratory Tract Infection (URTI) given probiotics (B breve, B lactis, and L rhamnosus) had 2 days less of fever than those on placebo. buff.ly/LeYbEeY

#medsky #pedsky

Probiotics and Fever Duration in Children With Upper Respiratory Tract Infections

This randomized clinical trial evaluates the efficacy and safety of a probiotic mixture containing Bifidobacterium breve M-16V, Bifidobacterium lactis HN019, and Lactobacillus rhamnosus HN001 in reduc...

buff.ly

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Claire Saxton @clarinetsax.bsky.social · Mar 10

Your voice matters! With crucial Congressional decisions ahead, tell your Congressperson to protect patient access to #healthcare, especially pediatric and adult cancer patients who access care through #Medicaid.

bit.ly/3Fk6mHZ

#CallCongress #CancerTreatment
#BudgetCuts
#ThisIsNotFraudOrWaste

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Claire Saxton @clarinetsax.bsky.social · Mar 4

The Bear Fund provides navigation resource services and supports families affected by pediatric cancer. We know you will inspire others to make a difference in the lives of those impacted by a cancer diagnosis.

cancersupportcommunity.salsalabs.org/2025timtagga...

Tim Taggart's Half Marathon Supporting The Bear Fund

cancersupportcommunity.salsalabs.org

Claire Saxton @clarinetsax.bsky.social · Mar 4

www.CancerSupportCommunity.org congratulates Tim Taggart for successfully completing the Livermore Valley Half Marathon!🏅 Thank you for running with purpose for pediatric cancer and raising over $8,000 for The Bear Fund-

#FightCancerLikeABear #childhoodcancer

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Claire Saxton @clarinetsax.bsky.social · Feb 24

Make a difference in the lives of people facing cancer! Join
www.cancersupportcommunity.org. We're #hiring 3 key roles:
* VP, Helpline, Education, & Outreach: bit.ly/3XgHDtY
* Manager, Program & #HealthEquity bit.ly/4bhTHksData
* Manager, Research: bit.ly/3DeOcXe

Vice President, Helpline, Education and Outreach

Vice President, Helpline, Education and Outreach Full-time The Cancer Support Community (CSC), an international nonprofit organization headquartered in Washington, D.C., is seeking an ambitious ...

bit.ly

Reposted by Claire Saxton

Tatiana Prowell, MD @tmprowell.bsky.social · Jan 5

#MedSky #IDSky #PublicHealth
There is a widespread outbreak of #norovirus, a GI virus that causes projectile vomiting & profuse diarrhea usually lasting 24-48 hrs. Wastewater levels nationwide in 🇺🇸 are high. It’s miserable & incredibly contagious. So many friends are texting SOS, so here’s a 🧵. /1

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Claire Saxton @clarinetsax.bsky.social · Jan 4

So proud of my college student, Luke, who has found interesting things to do with what he is learning in class!

www.linkedin.com/posts/lukesa...

iustudentgovernment.indiana.edu/executive/su...

Luke Saxton-Stivers on LinkedIn: I am thrilled to reveal the culmination of a semester of work: Indiana…

I am thrilled to reveal the culmination of a semester of work: Indiana University Student Government's first ever Student Body Survey Report! Building not…

www.linkedin.com

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Reposted by Claire Saxton

Gabriel Bosslet @gbosslet.bsky.social · Dec 31

@melodyschreiber.com wrote about my recent wrangling with #PriorAuthorization in @theguardian.com

It has been super frustrating

HELLody SchreiBOO @melodyschreiber.com · Dec 31

“Prior authorization is the number one frustrating thing of practicing outpatient medicine right now, far and away,” @gbosslet.bsky.social told me: www.theguardian.com/us-news/2024...

Lawmakers take on prior authorization reform as health insurance frustrations mount

Nearly one in four doctors say the practice of prior authorization has led to serious issues for patients

www.theguardian.com

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Reposted by Claire Saxton

TommyD @tommyd54.bsky.social · Dec 19

The USA trails developed countries in healthcare costs and outcomes for 5 key reasons:

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Claire Saxton @clarinetsax.bsky.social · Dec 18

The importance of vaccines!

www.nytimes.com/2024/12/18/h...

#MedSky

Tiny Coffins: Measles Is Killing Thousands of Children in Congo (Gift Article)

Problems with getting vaccines to families have left many children unvaccinated and in danger of contracting the virus.

www.nytimes.com

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Claire Saxton @clarinetsax.bsky.social · Dec 13

Top reasons #BreastCancer patients gave CancerSupportCommunity.org for not following their treatment plan 👇👇👇

Erica Fortune, PhD, presented findings about treatment tolerability & adherence at #SABCS24.

Full poster: bit.ly/3VwuXyq

#bcsm #GRASP #SABCS #cansky #oncsky

Reasons for not adhering to treatment plan:

80% To avoid side effects of treatment
67% Treatment interfered with work or daily activities
62% Treatment interfered with personal life

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Reposted by Claire Saxton

United Farm Workers @ufw.bsky.social · Dec 8

Rosa has worked in the apple harvest near Merced CA for the last 6 years. She says her shoulders and hands ache at the end of the day from the repetive motion of using the long handled shears to do her job. #WeFeedYou

A worker in an apple orchard where she is pruning the tree

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Reposted by Claire Saxton

Dana-Farber News @danafarbernews.bsky.social · Dec 12

Patients with low-risk DCIS had comparable physical, emotional and psychological outcomes to patients who received standard treatment, according to results of the phase 3 COMET trial presented by @danafarber.bsky.social’s Ann Partridge, MD, MPH, at #SABCS24. @dfcibreastonc.bsky.social bit.ly/3ZLSgXI

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Reposted by Claire Saxton

Fumiko Ladd Chino, MD FASCO @fumikochino.bsky.social · Dec 12

#SABCS24: 957 pts w low risk #DCIS randomized to receive “guideline-concordant care” vs active monitoring
🗝️ points @2 yrs:

1️⃣Non inferior for dx invasive #breastCancer (!!!)
2️⃣"Lived Experience” similar, QOL/anxiety not worse
3️⃣Most got ET but only 55% in GCC got surg

jamanetwork.com/journals/jam...

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Reposted by Claire Saxton

Ryan Marino, MD @ryanmarino.bsky.social · Dec 12

The American Medical Association surveyed doctors about insurance “prior authorizations” and found:

41 prior auths per doctor per week

13 hours spent per week on prior auths

24% reported hospitalizations due to delays from prior auths

8% reported disability/deaths due to delays from prior auths

Infographic summarizing negative outcomes documented from prior authorization

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Claire Saxton @clarinetsax.bsky.social · Dec 12

Thanks to everyone at @beigene.bsky.social for allowing me to talk about the advancements that have been made in #BreastCancer since I started in patient advocacy in 1998 as well as the many advancements that are still so needed!

ow.ly/NEUA50UnQBX

#CanSky #OncSky #BCSM #MedSky #Cancer #Oncology

Do We Still Need To Invest in Breast Cancer Research? Part I

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

ow.ly

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Reposted by Claire Saxton

Kelly Shanahan @stage4kelly.bsky.social · Dec 10

The FDA Oncology’s Project
Optimus aims to address dose optimization and was at least partly prompted by patients via PCDI #sabcs24

sabcs24

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Reposted by Claire Saxton

Christine Hodgdon @christeeny513.bsky.social · Dec 10

Really proud of my work wife (@itsnotpink.bsky.social) filling the shoes of the late Anne Loeser - the driving force & founder of @therightdose.bsky.social. She leaves a legacy that improves the lives of MBC patients who are on treatment indefinitely through drug dose optimization.

#SABCS2024 #bcsm

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Reposted by Claire Saxton

Alvaro Alvarez Soto(he/him/his) @alvarezsoto.bsky.social · Dec 8

Some results from our poster using the SEER database looking into outcomes disparities by race and socioeconomic status. Low socioeconomic status (SEE) means lower survival. When we stratify by race, Low SES means higher hazard risk of death in White and Hispanics but not in Black patients. #ASH

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Claire Saxton @clarinetsax.bsky.social · Dec 11

Thanks for being my rep & supporting this! Please also look at telehealth & tele-mental health service be able to be provided across state lines. That would help cancer patients to be able to see specialists and make it easier for everyone to navigate mental heath provider shortages.

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Reposted by Claire Saxton

Senator Chris Van Hollen @vanhollen.senate.gov · Dec 11

Medicare coverage for telehealth is set to expire on 12/31 — increasing barriers to care for those who depend on telehealth, including seniors, people with disabilities and underserved communities.

We're fighting to extend this coverage so no one loses access to the care they need.

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Claire Saxton @clarinetsax.bsky.social · Dec 9

What are top barriers to care & psychosocial / practical needs of CAR T patients & caregivers in CancerSupportCommunity.org’s Proactive Navigation program?

Read more: https://bit.ly/49oimmC

Or watch our lead author:
https://postercast.com/view_postercast.php?&sess=r6e1e3_Wj9E&posterfor=209343

Top reasons for contacting the helpline:
• CAR T Cell Therapy Education/Information
• Financial Concerns
• Need for Emotional Support
• Lodging & Transportation