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David Tuller @davetuller1.bsky.social · 1d

Berkeley's crowdfunder has reached 5% of the goal after its first day, with 49 donors! This pace won't keep up, but it's a decent start. Thanks to all past, current and future supporters!
crowdfund.berkeley.edu/project/47768

David Tuller's Trial by Error Fall 2025

Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Fall 2025. Your gift will make a difference!

crowdfund.berkeley.edu

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David Tuller @davetuller1.bsky.social · 2d

Berkeley's fall crowdfunder for Trial By Error is now up!
crowdfund.berkeley.edu/project/47768

David Tuller's Trial by Error Fall 2025

Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Fall 2025. Your gift will make a difference!

crowdfund.berkeley.edu

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David Tuller @davetuller1.bsky.social · 8d

I spoke last week with Yale immunologist Akiko Iwasaki about her work on Long COVID. This interview has more than 1.3K views so far:
www.youtube.com/watch?v=nJTa...

Interview with Yale immunologist Akiko Iwasaki

YouTube video by David M Tuller

www.youtube.com

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David Tuller @davetuller1.bsky.social · 12d

Thanks to Yale's Akiko Iwasaki @virusesimmunity.bsky.social, a leading immunologist and Long COVID investigator, for talking with me yesterday about the recent Keystone Symposium, the
debate over viral persistence, and more. Here's our interview:
virology.ws/2025/09/26/t...

Trial By Error: Yale's Akiko Iwasaki on the Keystone Symposium, the Debate on Viral Persistence, and Related Issues | Virology Blog

By David Tuller, DrPH Akiko Iwasaki, a professor of immunobiology at the Yale School of Medicine, is a leading investigator into long Covid. She was el ...

virology.ws

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David Tuller @davetuller1.bsky.social · 13d

This piece for @thesicktimes.org about people with Long COVID receiving diagnoses of funcitonal neurological disorder...
thesicktimes.org/2025/09/26/l...

Long COVID is not FND, but some patients are getting diagnosed with it. Here’s what to do if it happens to you. - The Sick Times

Some people with Long COVID are receiving potentially unhelpful diagnoses of functional neurological disorder (FND), a condition in which people experience neurological symptoms that cannot be attribu...

thesicktimes.org

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Reposted by David Tuller

ME Centraal @mecentraal.bsky.social · 23d

On Thursday there will be a preliminary injunction against the hospital. Pls help by reading & sharing this 🙏 #SaveSanne

@georgemonbiot.bsky.social @swastrosarah.bsky.social @nelehelena.bsky.social @davetuller1.bsky.social @anilvanderzee.bsky.social @tomkindlon.bsky.social @janetdafoe.bsky.social

ME Centraal @mecentraal.bsky.social · 23d

We also made English posts for the Global Chronicle about the horrible situation Sanne from The Netherlands is in. She's being denied total parenteral nutrition (TPN) by the hospital & her weight is dropping rapidly.

meglobalchronicle.wordpress.com/2025/09/16/i...

www.facebook.com/groups/TheME...

Is Sanne going to be the Dutch Maeve Boothby-O’Neill?

ME patient Sanne (38) denied life-saving treatment ⚖️ Lawyers are taking action this week. Your help is also needed! 38-year-old Sanne van Enckevort from Hegelsom (Limburg, The Netherlands) is seri…

meglobalchronicle.wordpress.com

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David Tuller @davetuller1.bsky.social · 26d

Brian, they can't help themselves. It's such a deep-rooted instinct.

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David Tuller @davetuller1.bsky.social · 27d

Dr Ian Lipkin: "There's no question that threshold for triggering inflammation with ME/CFS is lower than the threshold in people who are healthy. So anything can set this off."

www.youtube.com/watch?v=-_ih...

Interview with Ian Lipkin

YouTube video by David M Tuller

www.youtube.com

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Reposted by David Tuller

sarah boothby @swastrosarah.bsky.social · Sep 9

Nowhere near discharge yet but having such a large meeting recognise the limited NHS resources available to clinicians & patients was a better starting point than yet a-n-other re-run of an argument lost in 2021, with PFD report and responses from 6 national bodies as evidence of the risks being run

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Reposted by David Tuller

sarah boothby @swastrosarah.bsky.social · Sep 9

#Savannah #vsME update. A good MDT which ran over to twice the length of time allocated. Dr Weir and I were both invited, spoke at length and were heard. The absence of NHS ME specialists _anywhere_ in the UK is the biggest probem for every ICB, including Lewisham and Greenwich.

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David Tuller @davetuller1.bsky.social · Sep 9

that's brilliant!!

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David Tuller @davetuller1.bsky.social · Sep 9

When an Australian ME/CFS study of an exercise intervention failed to find enough participants, the investigators decided to blame patient advicates instead of questioning their assumptions:
virology.ws/2025/09/08/t...

Trial By Error: Australian Investigators Blame ME/CFS Patient Advocates for Poor Recruitment in "Active Video Gaming" Trial | Virology Blog

By David Tuller, DrPH In a new paper, a team of investigators from the University of South Australia in Adelaide, Australia, describes a “pilot feasibility” ...

virology.ws

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Reposted by David Tuller

George Monbiot @georgemonbiot.bsky.social · Sep 7

If Farage wins the next election, it will be down to one person. His name is Keir Starmer.
This thread explains why.
1. Destroying faith in democracy. The UK decisively voted out the Tories, only for Starmer to give us a Continuity Tory government, shamefully beholden to economic power.
🧵

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David Tuller @davetuller1.bsky.social · Sep 2

A Belgian with ME/CFS sent me the following satirical "field guide to conducting biopsychsocial research in CFS/ME":
virology.ws/2025/09/02/t...

Trial By Error: A (Satirical) Field Guide to Conducting Biopsychosocial Research in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) | Virology Blog

By David Tuller, DrPH A reader from Belgium sent me the following (satirical) paper she'd written for the "Journal of Entrenched Paradigms." ...

virology.ws

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David Tuller @davetuller1.bsky.social · Aug 28

Here's a post highlighting recent blogs worth reading from
@julierehmeyer.bsky.social on Beth Mazur's death, @whitneydafoe.bsky.social on "real life," and @drelke.bsky.social on society's exercise obsession

virology.ws/2025/08/28/t...

Trial By Error: Three Blogs--Julie Rehmeyer on Beth Mazur's Death; Whitney Dafoe on Real Life; Elke Hausmann on Exercise and "The Salt Path" | Virology Blog

By David Tuller, DrPH Two years ago, Beth Mazur, who co-founded #MEAction and spent years advocating for better care and more research, committed suicide du ...

virology.ws

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David Tuller @davetuller1.bsky.social · Aug 28

They mention PEM in the discussion or limitations section, but it's irrelevant in the context of the trials in the meta-analysis, which are all over the place in defining their populations but did not generally seem to be identifying people with PEM.

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David Tuller @davetuller1.bsky.social · Aug 27

A major journal, eClinicalMedicine, published a meta-analysis claiming "high-certainty" evidence for exercise for Long COVID--even though the paper also acknowledged that most of the data used was of poor quality. Hm. I sent a letter to the journal.
virology.ws/2025/08/27/t...

Trial By Error: Letter to eClinicalMedicine about Exercise Recommendations in Flawed Meta-Analysis of Long COVID Interventions | Virology Blog

By David Tuller, DrPH A journal under the Lancet umbrella, eClinicalMedicine, recently published a study from China called “Effects of therapeutic intervent ...

virology.ws

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David Tuller @davetuller1.bsky.social · Aug 26

Thanks for helping me do it!!!

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David Tuller @davetuller1.bsky.social · Aug 22

I really enjoyed our two-step show that day!!! It happened just as Trump was starting to dismantle the research enterprise in the U.S.

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David Tuller @davetuller1.bsky.social · Aug 21

News bits: Update on Keystone gathering from
@thesicktimes.org; Severe ME Day video from
@anilvanderzee.bsky.social; Medscape article from @miriametucker.bsky.social on fractured care for postinfectious illness. virology.ws/2025/08/21/t...

Trial By Error: Keystone Gathering Update; Anil's Severe ME Day Video; Fractured Care for Post-Infectious Illness | Virology Blog

By David Tuller, DrPH Keystone gathering round-up from Sick Times Many prominent Long COVID researchers gathered in Santa Fe, New Mexico, last week to discu ...

virology.ws

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David Tuller @davetuller1.bsky.social · Aug 20

well, thanks--I did what I could.

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David Tuller @davetuller1.bsky.social · Aug 16

In a meta-analysis of Long COVID interventions, most RCTs included were at high risk of bias and the quality of evidence for outcomes measured was overwhelmingly of low or very-low quality. Yet authors claim "high-certainty" evidence for exercise interventions. Huh??
virology.ws/2025/08/16/t...

Trial By Error: Lancet Paper Claims "Exercise" Should be "Prioritized" in Long COVID Rehabilitation | Virology Blog

By David Tuller, DrPH Added: On X, @mecfsskeptic has posted a very useful thread explaining how loosely the investigators applied the meaning of "Long ...

virology.ws

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David Tuller @davetuller1.bsky.social · Aug 16

thanks. I'll check that out.

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David Tuller @davetuller1.bsky.social · Aug 16

Apparently Paul Glasziou has blocked me because I pointed out he was promoting a meta-analysis in which the vast majority of clinical trials were at high risk of bias and 84% of the outcomes were of low or very low quality. Here's my take on the study hyped by Glasziou: virology.ws/2025/08/16/t...

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David Tuller @davetuller1.bsky.social · Aug 16

Paul, you mean most of these randomized trials that are at high risk of bias (per Cochrane risk of bias tool) with outcomes whose quality is overwhelmingly of low or very low quality (per GRADE)? Got it! In Australia, I guess it's typical to take guidance from poorly designed research??

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