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Dopamine Warriors @dopaminewarriorsbc.bsky.social · Jun 9

A huge thank you to the European Federation of Neurological Associations (EFNA) and EAN for this opportunity. See you in Helsinki!

Dopamine Warriors @dopaminewarriorsbc.bsky.social · Jun 9

It's an absolute privilege to share my experience and shed light on my diagnosis—one that could have taken much longer had I not been proactive with my #HealthLiteracy. I’m looking forward to discussing how we can refine these processes and ensure better access to vital information for all.

Dopamine Warriors @dopaminewarriorsbc.bsky.social · Jun 9

🗓 Date: 22 June 2025
🧠 Session: EFNA – Health literacy for patient and clinician communication
🎤 Presentation: Misdiagnosis and delays in diagnosis

Dopamine Warriors @dopaminewarriorsbc.bsky.social · Jun 9

It's an absolute privilege to share my experience and shed light on my diagnosis—one that could have taken much longer had I not been proactive with my #HealthLiteracy. I’m looking forward to discussing how we can refine these processes and ensure better access to vital information for all.

Dopamine Warriors @dopaminewarriorsbc.bsky.social · Jun 9

🗓 Date: 22 June 2025
🧠 Session: EFNA – Health literacy for patient and clinician communication
🎤 Presentation: Misdiagnosis and delays in diagnosis

Dopamine Warriors @dopaminewarriorsbc.bsky.social · Jun 9

Four years since my diagnosis this June, and here I am—speaking at the annual #EAN2025! What an incredible journey. Even more exciting, my MDS will also be presenting at the same conference.
#ean2025 #neurology #HomeOfNeurology #[email protected] @parkinsonseurope.bsky.social

Dopamine Warriors @dopaminewarriorsbc.bsky.social · Jun 9

🗓 Date: 22 June 2025
🧠 Session: EFNA – Health literacy for patient and clinician communication
🎤 Presentation: Misdiagnosis and delays in diagnosis

Dopamine Warriors @dopaminewarriorsbc.bsky.social · Jun 9

Four years since my diagnosis this June, and here I am—speaking at the annual #EAN2025! What an incredible journey. Even more exciting, my MDS will also be presenting at the same conference.
#ean2025 #neurology #HomeOfNeurology #[email protected] @parkinsonseurope.bsky.social

Dopamine Warriors @dopaminewarriorsbc.bsky.social · Jun 9

Four years since my diagnosis this June, and here I am—speaking at the annual #EAN2025! What an incredible journey. Even more exciting, my MDS will also be presenting at the same conference.
#ean2025 #neurology #HomeOfNeurology #[email protected] @parkinsonseurope.bsky.social

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Dopamine Warriors @dopaminewarriorsbc.bsky.social · Jun 6

Video 2: Part 2: Health Secretary Wes Streeting & The Baker🥊 @worldpdcongress.bsky.social @parkinsons.org.uk @parkinsonseurope.bsky.social #Parkinsonsawareness in

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Dopamine Warriors @dopaminewarriorsbc.bsky.social · Jun 6

Was great to have Health Secretary Wes Streeting not just turn up but joined in - spoke to fellow Parkies wasn't rushed at all thank you🥊 also thank you to Gillian ( Movers & Shakers) & Gaynor Edwards (Spotlight YOPD) turn up and join in🥊 @worldpdcongress.bsky.social @parkinsons.org.uk

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Dopamine Warriors @dopaminewarriorsbc.bsky.social · May 26

Age of the AI - maybe this is the way forward? interesting paper on ML & DL and the possibilities @parkinsons.org.uk @parkinsonseurope.bsky.social @worldpdcongress.bsky.social eurjmedres.biomedcentral.com/counter/pdf/...

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Dopamine Warriors @dopaminewarriorsbc.bsky.social · May 25

@parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social @basbloemink.bsky.social #ParkinsonsAwreness

Dopamine Warriors @dopaminewarriorsbc.bsky.social · May 25

Effectiveness of the Roy adaptation model-based nursing intervention in improving physiological, psychological, and social outcomes in patients with PD: This recent paper shows the importance of a holistic approach lead by the Nurse specialist:

bmcneurol.biomedcentral.com/articles/10.....

Effectiveness of the Roy adaptation model-based nursing intervention in improving physiological, psychological, and social outcomes in patients with Parkinson’s disease - BMC Neurology

Objective This study aimed to evaluate the effectiveness of a comprehensive nursing intervention based on Roy’s Adaptation Model (RAM) in improving quality of life, psychological adaptation, and socia...

bmcneurol.biomedcentral.com

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Dopamine Warriors @dopaminewarriorsbc.bsky.social · May 25

Effectiveness of the Roy adaptation model-based nursing intervention in improving physiological, psychological, and social outcomes in patients with PD: This recent paper shows the importance of a holistic approach lead by the Nurse specialist:

bmcneurol.biomedcentral.com/articles/10.....

Effectiveness of the Roy adaptation model-based nursing intervention in improving physiological, psychological, and social outcomes in patients with Parkinson’s disease - BMC Neurology

Objective This study aimed to evaluate the effectiveness of a comprehensive nursing intervention based on Roy’s Adaptation Model (RAM) in improving quality of life, psychological adaptation, and socia...

bmcneurol.biomedcentral.com

Dopamine Warriors @dopaminewarriorsbc.bsky.social · May 8

What we eat is just as important as Exercise Long-Term Consumption of UPS Foods and Prodromal Features of Parkinson Disease | Neurology @parkinsons.org.uk @parkinsonseurope.bsky.social @worldpdcongress.bsky.social
www.neurology.org/doi/10.1212/...

Long-Term Consumption of Ultraprocessed Foods and Prodromal Features of Parkinson Disease | Neurology

Background and ObjectivesConsumption of ultraprocessed foods (UPFs) has been associated with a higher risk of various chronic diseases, but its relation to prodromal Parkinson disease (PD) remains unc...

www.neurology.org

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Dopamine Warriors @dopaminewarriorsbc.bsky.social · May 5

This paper shows the importance and difference it makes for #Parkinsons people if a interdisciplinary gastrointestinal care is in place: @worldpdcongress.bsky.social @parkinsons.org.uk @parkinsonseurope.bsky.social @efna.net journals.sagepub.com/doi/epub/10....

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Dopamine Warriors @dopaminewarriorsbc.bsky.social · May 1

Today the government of UK will be debating on #parkinsons in www.parliamentlive.tv/Commons @parkinsons.org.uk @parkinsonseurope.bsky.social @efna.net @worldpdcongress.bsky.social

Parliamentlive.tv - Commons

www.parliamentlive.tv

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Dopamine Warriors @dopaminewarriorsbc.bsky.social · Apr 11

What a great session today on #WorldParkinsonsDay @parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social #Parkinsons

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Dopamine Warriors @dopaminewarriorsbc.bsky.social · Apr 11

#parkinsonsawareness
#parkinsons
@parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social @efna.net

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Reposted by Dopamine Warriors

The European Federation of Neurological Associations (EFNA) @efna.net · Apr 9

EFNA's 2025 #StrongerConnected workshop is taking place in Brussels today, where representatives of our member organisations, our Community Advisory Board, patient and caregiver advocates, and industry partners have gathered to discuss the topic of #healthliteracy.

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Dopamine Warriors @dopaminewarriorsbc.bsky.social · Apr 5

Just waiting for my friend Neil Russell on his epic 100mile run from Oxford to Cambridge in one go 😳, will join him just under halfway mark🥊
@parkinsons.org.uk @parkinsonseurope.bsky.social
@worldpdcongress.bsky.social
Do show your support:
www.neilstillcan.run

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Dopamine Warriors @dopaminewarriorsbc.bsky.social · Apr 3

Delighted to be invited to the special screening’Worlds Toughest Drive’ by retd Col Guy Deacon - www.guydeacon.co.uk #Parkinsonsawareness @worldpdcongress.bsky.social @parkinsonseurope.bsky.social @parkinsons.org.uk

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Reposted by Dopamine Warriors

Parkinson's Europe @parkinsonseurope.bsky.social · Mar 26

Thank you to The Parliament for bringing us all together for such an inspiring session. 🙌

#Parkinsons #Parkinson #EUParliament 3/3

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Dopamine Warriors @dopaminewarriorsbc.bsky.social · Mar 26

@worldpdcongress.bsky.social @parkinsonseurope.bsky.social @parkinsons.org.uk @efna.net #parkinsons

Dopamine Warriors @dopaminewarriorsbc.bsky.social · Mar 26

www.prd-journal.com/article/S135...

Debate on the role of genetic profiling in DBS candidacy assessment in Parkinson’s disease.

Supporters argue genetic profiles predict cognitive decline risk and inform patient decisions.

Convention vs. Innovation II: Genetic profiles should be a standard consideration in the assessment for deep brain stimulation candidacy for people with Parkinson’s disease (PSG Debate 2024)

The 10th Annual Symposium on “Shaping the Management of Parkinson’s Disease” in 2024, hosted by the Parkinson Study Group (PSG) and the Cleveland Clinic, brought together leading experts to discuss co...

www.prd-journal.com

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Dopamine Warriors @dopaminewarriorsbc.bsky.social · Mar 26

www.prd-journal.com/article/S135...

Debate on the role of genetic profiling in DBS candidacy assessment in Parkinson’s disease.

Supporters argue genetic profiles predict cognitive decline risk and inform patient decisions.

Convention vs. Innovation II: Genetic profiles should be a standard consideration in the assessment for deep brain stimulation candidacy for people with Parkinson’s disease (PSG Debate 2024)

The 10th Annual Symposium on “Shaping the Management of Parkinson’s Disease” in 2024, hosted by the Parkinson Study Group (PSG) and the Cleveland Clinic, brought together leading experts to discuss co...

www.prd-journal.com

Dopamine Warriors @dopaminewarriorsbc.bsky.social · Mar 20

AI tech improves #parkinsons diagnosis @worldpdcongress.bsky.social @parkinsonseurope.bsky.social @parkinsons.org.uk @michaelokun.bsky.social
www.sciencedaily.com/releases/202...

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Dopamine Warriors @dopaminewarriorsbc.bsky.social · Mar 17

@worldpdcongress.bsky.social @parkinsonseurope.bsky.social #parkinsons

Dopamine Warriors @dopaminewarriorsbc.bsky.social · Mar 17

Parkinsonism & Related Disorders:

Conclusions
Our observations suggest that aerobic-based combined exercise and exercise sessions lasting 60 minutes or longer may be associated with greater improvements in motor symptoms in patients with PD.

www.prd-journal.com/article/S135...
@parkinsons.org.uk

Moderators of Aerobic Exercise Effects on Motor Symptoms in Patients with Parkinson's Disease: A Systematic Review and Meta-analysis

Although growing evidence suggests that aerobic exercise has beneficial effects on motor symptoms in patients with Parkinson’s disease (PD), it remains unclear which specific aerobic exercise regimen ...

www.prd-journal.com

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Dopamine Warriors @dopaminewarriorsbc.bsky.social · Mar 17

Parkinsonism & Related Disorders:

Conclusions
Our observations suggest that aerobic-based combined exercise and exercise sessions lasting 60 minutes or longer may be associated with greater improvements in motor symptoms in patients with PD.

www.prd-journal.com/article/S135...
@parkinsons.org.uk

Moderators of Aerobic Exercise Effects on Motor Symptoms in Patients with Parkinson's Disease: A Systematic Review and Meta-analysis

Although growing evidence suggests that aerobic exercise has beneficial effects on motor symptoms in patients with Parkinson’s disease (PD), it remains unclear which specific aerobic exercise regimen ...

www.prd-journal.com

Dopamine Warriors @dopaminewarriorsbc.bsky.social · Mar 16

Has your ability to work or maintain employment been affected by a neurological condition? Share your experience in the comments. @parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social

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Dopamine Warriors @dopaminewarriorsbc.bsky.social · Mar 16

According to a recent survey, 71% of people with a #neurologicalcondition have had to adjust their role or work schedule because of their condition, of which only 35% report that their employer was accommodating of this change. #BrainAwarenessWeek #BAW2025 #invisibleillness #neurology @efna.net

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