ELSIhub | CERA
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elsihub.bsky.social
ELSIhub | CERA
@elsihub.bsky.social
ELSIhub.org is an online hub supporting work in ELSI of genetics & genomics. ELSIhub is managed by the Center for ELSI Resources and Analysis (CERA). https://linktr.ee/elsihub
New podcast series from The Genetic Engineering and Society (GES) Center at NC State University @gescenter-ncstate.bsky.social created with NotebookLM with engaging, discussion-style overviews exploring the ethical, social, and policy dimensions of biotech.

Learn more: ges-publications.pinecast.co
GES Center Publications
The GES Center Publications podcast brings you clear, accessible overviews of articles by NC State University’s Genetic Engineering and Society faculty and students. Each episode is generated with Goo...
ges-publications.pinecast.co
November 25, 2025 at 2:34 PM
How should autism researchers re-think their studies to serve the needs of the autistic community?

Our last #ELSIFridayForum session, we examined longstanding tensions between autism research—especially genetics—and the priorities and lived experiences of Autistic people.
November 24, 2025 at 3:45 PM
Reposted by ELSIhub | CERA
We're hosting a webinar about applying grant from foundations!
Directors (inclu. @ishandasgupta.bsky.social) from two leading funders [email protected] @danafoundation.bsky.social will discuss funding opportunities and application process.

Registration: us06web.zoom.us/meeting/regi...
November 18, 2025 at 3:24 PM
UPenn’s Department of Medical Ethics & Health Policy just announced its Spring 2026 event lineup!
The Research Ethics & Policy Series (REPS) returns with timely conversations at the intersection of ethics, genetics, and emerging biomedical innovation.

🔗 ELSIhub Calendar: elsihub.org/news-and-eve...
November 21, 2025 at 2:16 PM
Important work on #ELSI of #geneticprivacy - After 23andMe’s bankruptcy, the genetic data of 15M users was sold to a nonprofit led by its former CEO—raising new alarms about weak U.S. privacy laws. A new Science article urges Congress to enact stronger federal protections
November 20, 2025 at 1:58 PM
#ELSI in the news: A Boston AI startup is putting up a ‘ChatGPT for DNA’ — combining genetic data, search-engine style queries and primary-care insights.

How much should we rely on AI in primary care settings?

Share your thoughts here: connect.elsihub.org/c/general-di...
November 19, 2025 at 9:25 PM
We're hosting a webinar about applying grant from foundations!
Directors (inclu. @ishandasgupta.bsky.social) from two leading funders [email protected] @danafoundation.bsky.social will discuss funding opportunities and application process.

Registration: us06web.zoom.us/meeting/regi...
November 18, 2025 at 3:24 PM
Lunchtime Lecture Series by The Working Group on Pediatric Gene Therapy & Medical Ethics (PGTME) at @nyumedpostdocs.bsky.social !

This week from 12-1:15pm ET daily, PGTME will host sessions on pressing topics in the gene therapy space.

Visit our ELSI calendar: elsihub.org/news-and-eve...
November 17, 2025 at 3:09 PM
Today! Join our discussion
Genomic and other Autism research raises hopes for improved health outcomes yet also raises concerns.

💡Join our upcoming #ELSIFridayForum to explore the responsibilities of Autism researchers towards the individuals and community they study.

Signup: cumc.co1.qualtrics.com/jfe/form/SV_...
November 14, 2025 at 1:41 PM
🧵Why self-reported race/ethnicity cannot represent ancestry?

In our last Journal Club, Author Mateus H. Gouveia shared important insight from the paper, "Subcontinental genetic variation in the All of Us Research Program". The ancestry data from All of Us program shows great variation
November 13, 2025 at 3:02 PM
This Friday! Sign up for a great opportunity to talk about researcher's commitment to the Autism community. cumc.co1.qualtrics.com/jfe/form/SV_...
How researchers talk about autism matters. 🧵

🔍In their 2022 paper, “Autism research is in crisis” (Frontiers in Psychology), Monique Botha and Eilidh Cage examine how autism researchers construct autistic people through their language and frameworks.
November 12, 2025 at 6:01 PM
ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff.

Our November 2025 set explores interventions to increase genetic testing for breast cancer and more.

Read: elsihub.org/news/elsi-re...
November 12, 2025 at 4:32 PM
National Human Genome Research Institute (NHGRI) is hiring a new Director, and we’re helping spread the word across the ELSI community.

This leadership role oversees NHGRI’s scientific vision, research portfolio, and its long-standing commitment to ELSI.

Due Nov 21.

hr.nih.gov/careers/open...
hr.nih.gov
November 11, 2025 at 9:53 PM
Reposted by ELSIhub | CERA
A new collaboration between The Hastings Center for Bioethics and Rockefeller University is working to expand global access to emerging medical technologies. 🌍🧬

🔗Learn more, https://bit.ly/4qTn4Be

#GlobalHealth #Bioethics #MedicalInnovation #HealthEquity
November 10, 2025 at 9:08 PM
Reposted by ELSIhub | CERA
👩‍🏫 💻 STEM educators: How can your students gain experience with real-world #genomics data?

The Database Tutorials module provides guidance for using #BLAST, #cBioPortal, #PolyPhen-2 and #UniProt in classrooms or independent projects: www.jax.org/education-an...

#Dataskyence #EduSky
Database Tutorials
Explore how to use BLAST, cBioPortal, PolyPhen-2, and UniProt - perfect for both classroom learning and independent projects.
www.jax.org
November 11, 2025 at 1:19 PM
An exciting hybrid event in our ELSI Orbit:

"15th Annual Ethics Conference: Research Ethics & Novel Biotechnologies: When Tech is On You, In You, Over You, and More"
Keynote: "The Ethics and Futures of Wearable Self-Surveillance".

More info: elsihub.org/event/15th-a...
November 11, 2025 at 4:02 PM
How researchers talk about autism matters. 🧵

🔍In their 2022 paper, “Autism research is in crisis” (Frontiers in Psychology), Monique Botha and Eilidh Cage examine how autism researchers construct autistic people through their language and frameworks.
November 7, 2025 at 3:18 PM
A great webinar on the ELSI of embryo testing - don't miss it!
🧬 Interested in the ethics of #genetictesting of embryos? Join us on December 3, 2025, for “Testing Embryos: How Far Should We Go?” — the first webinar in our new series, Frontiers in the Ethics of Human Reproduction.

FREE event: https://bit.ly/4qSclXV
November 5, 2025 at 2:30 PM
🗓️Save the date - ELSI Congress 2026
The 2026 ELSI Congress will be held June 22-24, at the Friday Conference Center in Chapel Hill, NC.

The organizing committee wants to hear your thoughts on the theme(s)!

Join our discussion on ELSIconnect here: connect.elsihub.org/c/announceme...
November 4, 2025 at 2:23 PM
Genomic and other Autism research raises hopes for improved health outcomes yet also raises concerns.

💡Join our upcoming #ELSIFridayForum to explore the responsibilities of Autism researchers towards the individuals and community they study.

Signup: cumc.co1.qualtrics.com/jfe/form/SV_...
November 3, 2025 at 7:45 PM
Reposted by ELSIhub | CERA
As part of the CERA partnership with @gimjournal.bsky.social , an official journal of @theacmg.bsky.social , CERA invites ELSI-related proposals for review or commentary manuscripts for potential publication in GiM or @gimopenjournal.bsky.social .

Learn more: elsihub.org/news/call-ma...
Call for Manuscript Proposals: Genetics in Medicine or Genetics in Medicine Open
As part of the CERA partnership with Genetics in Medicine (GiM), an official journal of the American College of Medical Genetics (ACMG), CERA is now accepting proposals for review and commentary manus...
elsihub.org
October 27, 2025 at 7:08 PM
Reposted by ELSIhub | CERA
This Friday! Join our Journal Club to discuss the implications of subcontinental genetic variation.
📖 Join us for the next ELSI Journal Club session!
Subcontinental genetic variation in the All of Us Research Program: Implications for biomedical research
Published on @ajhgnews.bsky.social
🗓 October 31, 2025 | 🕛 12–1 p.m. ET
📍 Online via Zoom
🔗 Register here: us06web.zoom.us/meeting/regi...
October 29, 2025 at 2:02 PM
Reposted by ELSIhub | CERA
Check out the latest episode of GenePod, the podcast of
@gimjournal.bsky.social

Dr. Katharine Press Callahan discusses parents’ perceptions of the utility of genetic testing in the NICU.

The episode was created as part of the CERA collaboration with GIM.

www.gimjournal.org/audio-do/spe...
Special ELSI Club Episode: Parental perspectives in the NICU
Studies that have been conducted on the perspective of parents in the neonatal intensive care unit, or NICU, on the utility of genetic testing have generally reported favorable findings. But Katharine...
www.gimjournal.org
October 16, 2025 at 3:04 PM
This Friday! Join our Journal Club to discuss the implications of subcontinental genetic variation.
📖 Join us for the next ELSI Journal Club session!
Subcontinental genetic variation in the All of Us Research Program: Implications for biomedical research
Published on @ajhgnews.bsky.social
🗓 October 31, 2025 | 🕛 12–1 p.m. ET
📍 Online via Zoom
🔗 Register here: us06web.zoom.us/meeting/regi...
October 29, 2025 at 2:02 PM
As part of the CERA partnership with @gimjournal.bsky.social , an official journal of @theacmg.bsky.social , CERA invites ELSI-related proposals for review or commentary manuscripts for potential publication in GiM or @gimopenjournal.bsky.social .

Learn more: elsihub.org/news/call-ma...
Call for Manuscript Proposals: Genetics in Medicine or Genetics in Medicine Open
As part of the CERA partnership with Genetics in Medicine (GiM), an official journal of the American College of Medical Genetics (ACMG), CERA is now accepting proposals for review and commentary manus...
elsihub.org
October 27, 2025 at 7:08 PM