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European MS Platform @emspofficial.bsky.social · 6d

MS diagnosis changes entire families—not just patient's. Yet across Europe, caregivers remain unseen & unsupported.
Only 15 countries consult MS communities on policy. Just 16/35 support child MS caregivers.
It's time to close the gaps.
#EurocarersDay

European MS Platform @emspofficial.bsky.social · 11d

🌟 Major news for the #MS community!
The EU is committing to 500 MORE clinical trials annually + faster trial starts through ACT EU initiative.

What this means: More treatment options, better access, less waiting for MS patients across Europe. Learn more: www.ema.europa.eu/en/news/new-...

New targets for clinical trials in Europe | European Medicines Agency (EMA)

500 authorised multinational clinical trials to be added over five years

www.ema.europa.eu

European MS Platform @emspofficial.bsky.social · 23d

Incredible session with Dr. Stephanie Woschek
& Guillaume Lodini on staying active with #MultipleSclerosis
Missed our "Movement with MS" webinar?

Watch the recording now: bit.ly/47L7y3f

Expert advice on exercising as a person with Multiple Sclerosis

Adopting a fitness routine with multiple sclerosis presents unique challenges. While research clearly shows exercise's positive impact on brain health, developing a workout plan that fits your specific needs and energy levels can be daunting. In our webinar "Movement with MS," experts Dr. Stephanie Woschek, and fitness coach, Guillaume Lodini, share practical strategies to help you embrace an active lifestyle without letting MS hold you back.

bit.ly

European MS Platform @emspofficial.bsky.social · 26d

FINAL REMINDER: Movement with MS starts in 6 HOURS!
🕐 17:00-18:15 CEST
Join our experts to learn: ✅Safe movement strategies for MS ✅ Exercise tips from specialists
✅ Real success stories
Register- bit.ly/4moU297

European MS Platform @emspofficial.bsky.social · Sep 10

Webinar- Movement with MS: Strategies for Staying Active
📅 Registration closes Friday!

Whether you live with MS or just love fitness, this webinar is packed with tips to keep you moving.

🎟️ Limited spots—register now: bit.ly/4mdXHqi

#MSAwareness #FitnessForAll

European MS Platform @emspofficial.bsky.social · Sep 9

🎙️New on Let’s Talk MS:

Meet Aida Fuentes Picazo—a young mother navigating life with Neuromyelitis Optica (NMO). Diagnosed after giving birth, her story is one of resilience, adaptation, and invisible strength.

🎧Listen now: bit.ly/3HNCFkg
#RareDisease #PatientVoices

S01E08 | Aida's Story: Strength, Positivity, Challenges and NMOSD

Welcome to Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). After introducing NMOSD and MOGAD in our previous episode, today we take a more personal approach. We&rs...

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European MS Platform @emspofficial.bsky.social · Sep 8

💙 September is Pain Awareness Month
Did you know?
73% of people with #MS experience pain, yet only 5% have access to pain specialists.

Pain is real, overlooked, and deserves better care! #PainAwarenessMonth

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European MS Platform @emspofficial.bsky.social · Aug 12

Living with MS doesn't mean slowing down
Join our FREE webinar: Movement with MS: Strategies for Staying Active and discover how to make movement your powerful ally.
📅 Sept 16, 5-6:15 PM
🎯 For everyone - MS warriors, supporters & healthcare pros
🔗 Register: bit.ly/4os3daV
@braincouncil.eu @efna.net

European MS Platform @emspofficial.bsky.social · Aug 12

Hi @brunoamaral.eu This looks like a great tool- would love to learn more about it. Could you send us a DM so we can discuss how we might support your work?

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European MS Platform @emspofficial.bsky.social · Aug 12

45% of Europeans worry about health data privacy, yet only 8% understand how their data is used.

Take the More Europa training 📚
7 bite-sized modules on how your real-world data improves treatments.

Because Knowledge = Power 💪
🔗 bit.ly/4mcolR3

European MS Platform @emspofficial.bsky.social · Aug 8

Living with #MS? Your active lifestyle doesn't have to stop!

Join our webinar "Movement with MS: Strategies for Staying Active".
Learn:
✅ Exercise tips for every fitness level
✅ Safe training for sporting events
✅ Expert guidance from fitness coaches

Register- bit.ly/4os3daV

European MS Platform @emspofficial.bsky.social · Jul 23

Join us at the @ECTRIMS Patient Community Day
Sept 26, 2025 | Barcelona + Online

Designed for people with MS, related neurological diseases & caregivers. #ECTRIMS4me
✅ Get latest treatment breakthroughs
✅ Connect with community
✅ Expert knowledge from leading researchers

European MS Platform @emspofficial.bsky.social · Jul 18

Still figuring summer plans?
Make it matter! 🏃‍♀️
Join inspiring MS warriors like Eline-Sofie at EMSP's MS Awareness Run - November 2nd. Push your limits while fundraising for MS
Register: emsp.org/events/msrun...
#MSRun #RunForACause #MSAwareness #EMSP #FitnessGoals

European MS Platform @emspofficial.bsky.social · Jul 10

NMO and MOGAD are rare conditions, often misdiagnosed as MS, leading to wrong treatments and delayed care.

Our latest #LetsTalkMS episode dives into:
What NMOSD & MOGAD really are
Why is it misdiagnosised
How patient communities drive change

Tune in now: bit.ly/4eI8HtS

S01E07 | Facing NMOSD and MOGAD: More than a diagnosis

Welcome to Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode, we explore what it truly means to live with NMOSD and MOGAD, explaining what these cond...

lets-talk-ms.castos.com

European MS Platform @emspofficial.bsky.social · Jul 3

Invisible ≠ insignificant
MS fatigue isn't "just tired" — it's crushing exhaustion that steals independence & quality of life. Brain fog, pain, depression... all real, all unseen.
We must recognise #InvisibleSymptoms & support ALL aspects of #MS
How has invisible illness impacted you?
#IMSS

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European MS Platform @emspofficial.bsky.social · Jun 27

Our JUNE newsletter is HERE!
✨ EMSP 2025 Conference highlights
🎙️New podcast episodes on mental health & stigma
🏃‍♀️MS Awareness Run registration open
🌍 World MS Day celebrations worldwide

Plus new courses, research updates
Read: bit.ly/46ihro9

Newsletter: Innovative MS initiatives from across Europe, RWD training launch, EU Pharma Package hot take & more

bit.ly

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European MS Platform @emspofficial.bsky.social · Jun 23

Family Planning & Pregnancy webinar for MS healthcare professionals!

Join us:
🗓️July 4th 🕑 15:00 CEST

Learn:
✅Evidence-based strategies
✅Care coordination tips
✅Person-centered approaches

Speaker:
Laetitia della Faille, NMSC Melbroek
Register: bit.ly/3FZTbwz
#MSCare

European MS Platform @emspofficial.bsky.social · Jun 19

65% of people with #MS experience bladder control issues—ranking among the top 5 most debilitating symptoms.
For 23%, these invisible symptoms cause severe daily limitations.
Time to break the silence. Invisible ≠ insignificant.
#WorldContinenceWeek #MultipleSclerosis @MS International Federation

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European MS Platform @emspofficial.bsky.social · Jun 13

📍 @ECTRIMS 2025, Barcelona 🗓️ 24 September

Session on cutting-edge research on EBV & #MS development + therapeutic interventions

🔗 Register: bit.ly/4kIda1U

Visit EMSP booth #11 at #ECTRIMS2025 to learn more about our projects.

ECTRIMS 2025 - HOME

ECTRIMS 2025 is the premier meeting place to collaborate on the next life-changing research and treatment options for people with MS and related diseases.

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European MS Platform @emspofficial.bsky.social · Jun 13

The 11th Congress of the EANeurology is coming to Helsinki
📅 June 21-24, 2025 📍 Helsinki, Finland + Online
Theme: "Neurology within Society"
Latest advances in neurological care & research—including key developments for the #MS community.
Register: bit.ly/4mZmSyj

11th Congress of the European Academy of Neurology - Helsinki 2025

The 11th European Academy of Neurology congress will be on 21-24 June 2025, in Helsinki, Finland

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European MS Platform @emspofficial.bsky.social · Jun 6

🚨 Only 52% of people with #MultipleSclerosis are satisfied with symptom management despite using 6+ treatments. 99% experience symptoms (avg. 14 at once!).
We can do better. Learn more🔽
emsp.org/projects/imp...

#MSAwareness #Healthcare

European MS Platform @emspofficial.bsky.social · May 30

3 years!
That's how long people wait on an average for a #MultipleSclerosis diagnosis.

3 years of uncertainty without the right treatment.

On #WorldMSDay, we are focusing on Navigating Diagnosis. Early diagnosis = better outcomes.

Learn more about #IMSS Findings

🔗 bit.ly/3HbJawy

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European MS Platform @emspofficial.bsky.social · May 30

3 years.
That's how long people wait on average for a #MultipleSclerosis diagnosis.

3 years of uncertainty without the right treatment.

On #WorldMSDay, we're focusing on Navigating Diagnosis. Early diagnosis = better outcomes.
#IMSS

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European MS Platform @emspofficial.bsky.social · May 13

JUST 2 DAYS TO GO! #EMSP2025 kicks off THIS FRIDAY in Prague
This year's focus: prevention with people living with MS at the center of every discussion.
Can't attend? Join our LIVESTREAM: bit.ly/4gXrVLL
Read our "Nothing About Us Without Us" blog: bit.ly/3EQLcRZ

EMSP2025

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European MS Platform @emspofficial.bsky.social · May 9

Living with Multiple Sclerosis doesn't mean giving up motherhood dreams
✅MS doesn't affect fertility
✅Most MS medications have pregnancy planning protocols

Planning a family with MS? Talk to your healthcare team.
Check our Essential Guide on Pregnancy with MS👇
#MothersDay

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