🧵3/3:
Patient-reported evidence must drive policy. These findings give us the proof we need to demand better: improved symptom management, comprehensive rehab & healthcare that responds to MS reality.
🔗https://bit.ly/48CqsrR

#MultipleSclerosis #PatientEvidence
@emmadragon.bsky.social

🧵2/3: 17,000+ people with MS across 22 EU countries told us they experience avg. 14 symptoms. Fatigue, cognitive issues & mobility problems top the list. Yet many can't access personalised care—especially for invisible symptoms.

Science moves faster when we move together. These meetings proved just how powerful these partnerships can be when researchers and the MS community work side by side.

#MSResearch #PatientEngagement #EUHealth #HorizonEU

Our role at EMSP: ensuring the lived experience of people with MS stays at the heart of research. We're working with partners and national MS societies to make this science accessible, inclusive, and impactful.

The breadth of work is remarkable—from immunology and single-cell tech to predictive modeling, epidemiology, and community engagement. Watching these teams collaborate in real-time was inspiring.

Partners from across science, clinical care, data science, and patient advocacy came together with one goal: understand #EBV's role in #MS to advance prevention and better outcomes for people living with MS.

Hi @brunoamaral.eu This looks like a great tool- would love to learn more about it. Could you send us a DM so we can discuss how we might support your work?