Family Engagement in Research Training Program
@ferprogram.bsky.social
We train, mentor, and mobilize today’s advocates, champions, and leaders in family engagement.
🔗 - https://linktr.ee/familyengagementinresearch
👉 - What is the FER Course? https://tr.ee/lKU4zw
🚀 - Ready to apply for the FER Course? https://tr.ee/Z1Kj79
🔗 - https://linktr.ee/familyengagementinresearch
👉 - What is the FER Course? https://tr.ee/lKU4zw
🚀 - Ready to apply for the FER Course? https://tr.ee/Z1Kj79
🔹 Festive reflections on family engagement & the holiday season.
🔹 Opportunities for youth voice, training, research participation, and more.
📬 Dive into the full update here 👉 conta.cc/4pIX76l
Wishing you peace, rest, and connection as we head into 2026! ✨
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🔹 Opportunities for youth voice, training, research participation, and more.
📬 Dive into the full update here 👉 conta.cc/4pIX76l
Wishing you peace, rest, and connection as we head into 2026! ✨
/3
FER Community Update | December 2025
Email from CanChild Centre for Childhood Disability Research Happy Holidays! December, 2025 As we wrap up another meaningful year together, we want to extend our heartfelt gratitude to the families, r
conta.cc
December 17, 2025 at 7:26 PM
🔹 Festive reflections on family engagement & the holiday season.
🔹 Opportunities for youth voice, training, research participation, and more.
📬 Dive into the full update here 👉 conta.cc/4pIX76l
Wishing you peace, rest, and connection as we head into 2026! ✨
/3
🔹 Opportunities for youth voice, training, research participation, and more.
📬 Dive into the full update here 👉 conta.cc/4pIX76l
Wishing you peace, rest, and connection as we head into 2026! ✨
/3
🔹 A look back on what we accomplished together this year — from global growth to new course milestones.
🔹 Community highlights featuring recent learner publications and lived-experience leadership.
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🔹 Community highlights featuring recent learner publications and lived-experience leadership.
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FER Community Update | December 2025
Email from CanChild Centre for Childhood Disability Research Happy Holidays! December, 2025 As we wrap up another meaningful year together, we want to extend our heartfelt gratitude to the families, r
conta.cc
December 17, 2025 at 7:26 PM
🔹 A look back on what we accomplished together this year — from global growth to new course milestones.
🔹 Community highlights featuring recent learner publications and lived-experience leadership.
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🔹 Community highlights featuring recent learner publications and lived-experience leadership.
/2
✨ Our December FER Update is Here! 🎉
As 2025 winds down, we’re grateful for every family member, researcher, trainee, and partner who has helped make the Family Engagement in Research (FER) community vibrant, collaborative, and inspiring. 💛
In this month’s newsletter, you’ll find:
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As 2025 winds down, we’re grateful for every family member, researcher, trainee, and partner who has helped make the Family Engagement in Research (FER) community vibrant, collaborative, and inspiring. 💛
In this month’s newsletter, you’ll find:
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FER Community Update | December 2025
Email from CanChild Centre for Childhood Disability Research Happy Holidays! December, 2025 As we wrap up another meaningful year together, we want to extend our heartfelt gratitude to the families, r
conta.cc
December 17, 2025 at 7:26 PM
✨ Our December FER Update is Here! 🎉
As 2025 winds down, we’re grateful for every family member, researcher, trainee, and partner who has helped make the Family Engagement in Research (FER) community vibrant, collaborative, and inspiring. 💛
In this month’s newsletter, you’ll find:
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As 2025 winds down, we’re grateful for every family member, researcher, trainee, and partner who has helped make the Family Engagement in Research (FER) community vibrant, collaborative, and inspiring. 💛
In this month’s newsletter, you’ll find:
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Reposted by Family Engagement in Research Training Program
How can you lay the groundwork for successful patient partnership?
#PxP25 speakers shared practical strategies for building research teams where patient partners feel prepared and supported—no matter their experience or role.
🎥 Watch back: www.youtube.com/watch?v=EnJ6...
#PxP25 speakers shared practical strategies for building research teams where patient partners feel prepared and supported—no matter their experience or role.
🎥 Watch back: www.youtube.com/watch?v=EnJ6...
Laying the groundwork: setting up for success in patient partnership
YouTube video by PxP For Patients, By Patients
www.youtube.com
November 18, 2025 at 12:29 AM
How can you lay the groundwork for successful patient partnership?
#PxP25 speakers shared practical strategies for building research teams where patient partners feel prepared and supported—no matter their experience or role.
🎥 Watch back: www.youtube.com/watch?v=EnJ6...
#PxP25 speakers shared practical strategies for building research teams where patient partners feel prepared and supported—no matter their experience or role.
🎥 Watch back: www.youtube.com/watch?v=EnJ6...
Reposted by Family Engagement in Research Training Program
I keep seeing, "I saw someone post about being hungry yesterday so I gave them groceries" posts.
Please don't post about keeping us fed for a pat on the back. We see those posts & it reminds us that people may help us & then ask friends for applause.
Please don't post about keeping us fed for a pat on the back. We see those posts & it reminds us that people may help us & then ask friends for applause.
October 31, 2025 at 4:25 PM
I keep seeing, "I saw someone post about being hungry yesterday so I gave them groceries" posts.
Please don't post about keeping us fed for a pat on the back. We see those posts & it reminds us that people may help us & then ask friends for applause.
Please don't post about keeping us fed for a pat on the back. We see those posts & it reminds us that people may help us & then ask friends for applause.
This piece reflects the power of collaboration and real-world experience.
We dive into how a name becomes more than a label; how it becomes a mission, a purpose, a movement.
👉 Read it now and let us know: What’s your leadership purpose?
Link: open.substack.com/pub/familyen... /2
We dive into how a name becomes more than a label; how it becomes a mission, a purpose, a movement.
👉 Read it now and let us know: What’s your leadership purpose?
Link: open.substack.com/pub/familyen... /2
From Name to Purpose: Tailoring Your Introduction
A shared collaboration by the FER Leadership Academy teaching team and leaders from our recent cohort.
open.substack.com
November 12, 2025 at 10:04 PM
This piece reflects the power of collaboration and real-world experience.
We dive into how a name becomes more than a label; how it becomes a mission, a purpose, a movement.
👉 Read it now and let us know: What’s your leadership purpose?
Link: open.substack.com/pub/familyen... /2
We dive into how a name becomes more than a label; how it becomes a mission, a purpose, a movement.
👉 Read it now and let us know: What’s your leadership purpose?
Link: open.substack.com/pub/familyen... /2
✨New Blog Alert!✨
We’re thrilled to share our latest post, “From Name to Purpose: Tailoring Your Leadership Journey,” co-written by the dedicated instructor team of the FER Leadership Academy and inspiring leaders from our current cohort.
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We’re thrilled to share our latest post, “From Name to Purpose: Tailoring Your Leadership Journey,” co-written by the dedicated instructor team of the FER Leadership Academy and inspiring leaders from our current cohort.
/1
November 12, 2025 at 10:04 PM
✨New Blog Alert!✨
We’re thrilled to share our latest post, “From Name to Purpose: Tailoring Your Leadership Journey,” co-written by the dedicated instructor team of the FER Leadership Academy and inspiring leaders from our current cohort.
/1
We’re thrilled to share our latest post, “From Name to Purpose: Tailoring Your Leadership Journey,” co-written by the dedicated instructor team of the FER Leadership Academy and inspiring leaders from our current cohort.
/1
💡 Swipe through our photo carousel for quick tips on showing up with purpose this conference season, and read the full October issue for updates, opportunities, and community highlights.
🔗 myemail.constantcontact.com/FER-Communit... /3
🔗 myemail.constantcontact.com/FER-Communit... /3
myemail.constantcontact.com
October 17, 2025 at 10:24 PM
💡 Swipe through our photo carousel for quick tips on showing up with purpose this conference season, and read the full October issue for updates, opportunities, and community highlights.
🔗 myemail.constantcontact.com/FER-Communit... /3
🔗 myemail.constantcontact.com/FER-Communit... /3
✨ Strategic Visibility: Do Less, But Do It Intentionally.
You don’t have to attend everything to make meaningful connections. Being strategically visible means choosing where, how, and with whom you show up, in ways that support your energy, your message, and your goals.
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You don’t have to attend everything to make meaningful connections. Being strategically visible means choosing where, how, and with whom you show up, in ways that support your energy, your message, and your goals.
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myemail.constantcontact.com
October 17, 2025 at 10:24 PM
✨ Strategic Visibility: Do Less, But Do It Intentionally.
You don’t have to attend everything to make meaningful connections. Being strategically visible means choosing where, how, and with whom you show up, in ways that support your energy, your message, and your goals.
/2
You don’t have to attend everything to make meaningful connections. Being strategically visible means choosing where, how, and with whom you show up, in ways that support your energy, your message, and your goals.
/2
📣 New FER Community Update is here!
As conference season approaches, our latest newsletter opens with an important reminder for researchers, healthcare professionals, and advocates alike:
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October 17, 2025 at 10:24 PM
📣 New FER Community Update is here!
As conference season approaches, our latest newsletter opens with an important reminder for researchers, healthcare professionals, and advocates alike:
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Continued from above:
Building skills in science literacy is a positive byproduct of partnering in research.
Building skills in science literacy is a positive byproduct of partnering in research.
October 12, 2025 at 2:01 AM
Continued from above:
Building skills in science literacy is a positive byproduct of partnering in research.
Building skills in science literacy is a positive byproduct of partnering in research.
This #ScienceLiteracyWeek, we’re celebrating how learning flows both ways.
When people with lived experience partner in research, they gain new skills in science literacy, and studies grow stronger for it.
Together, we build understanding, community, and knowledge that moves where it’s needed most.
When people with lived experience partner in research, they gain new skills in science literacy, and studies grow stronger for it.
Together, we build understanding, community, and knowledge that moves where it’s needed most.
October 12, 2025 at 2:01 AM
This #ScienceLiteracyWeek, we’re celebrating how learning flows both ways.
When people with lived experience partner in research, they gain new skills in science literacy, and studies grow stronger for it.
Together, we build understanding, community, and knowledge that moves where it’s needed most.
When people with lived experience partner in research, they gain new skills in science literacy, and studies grow stronger for it.
Together, we build understanding, community, and knowledge that moves where it’s needed most.
Podcast, funding news, courses, jobs, events… it’s all in the newsletter.
Let's make space together—check it out!
myemail.constantcontact.com/FER-Communit...
Let's make space together—check it out!
myemail.constantcontact.com/FER-Communit...
FER Community Update | August 2025
Email from Making Space. 🌿🍃 Getting Ready for Fall. 🍂🍁 August, 2025 Happy August everyone! Making Space Is More Than Just Having A Seat At The Table So, you’ve invited a person with lived experien
myemail.constantcontact.com
August 18, 2025 at 6:25 PM
Podcast, funding news, courses, jobs, events… it’s all in the newsletter.
Let's make space together—check it out!
myemail.constantcontact.com/FER-Communit...
Let's make space together—check it out!
myemail.constantcontact.com/FER-Communit...
Apply by Aug 27: Family Engagement Leadership Academy — earn a McMaster University Certificate (10–week program starting Sept 17; only 12 spots!)
New book alert: by Maude Champagne
Big News: U Calgary researchers awarded $2.5 M SSHRC grant supporting neurodivergent individuals and their families/2
New book alert: by Maude Champagne
Big News: U Calgary researchers awarded $2.5 M SSHRC grant supporting neurodivergent individuals and their families/2
August 18, 2025 at 6:25 PM
Apply by Aug 27: Family Engagement Leadership Academy — earn a McMaster University Certificate (10–week program starting Sept 17; only 12 spots!)
New book alert: by Maude Champagne
Big News: U Calgary researchers awarded $2.5 M SSHRC grant supporting neurodivergent individuals and their families/2
New book alert: by Maude Champagne
Big News: U Calgary researchers awarded $2.5 M SSHRC grant supporting neurodivergent individuals and their families/2
Making Space Takes More Than a Seat
This August, we're diving into "making space"—not just inviting family & lived-experience partners to the table, but empowering their voices to be heard and respected (and acted upon!). Plus:
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This August, we're diving into "making space"—not just inviting family & lived-experience partners to the table, but empowering their voices to be heard and respected (and acted upon!). Plus:
/1
August 18, 2025 at 6:25 PM
Making Space Takes More Than a Seat
This August, we're diving into "making space"—not just inviting family & lived-experience partners to the table, but empowering their voices to be heard and respected (and acted upon!). Plus:
/1
This August, we're diving into "making space"—not just inviting family & lived-experience partners to the table, but empowering their voices to be heard and respected (and acted upon!). Plus:
/1
Real impact starts with real voices. Hear from a FER graduate about the power of meaningful collaboration.
👉Learn more: tr.ee/lKU4zw
@canchild.bsky.social @kidsbrainhealth.bsky.social
#FERCourse #FamilyEngagement
👉Learn more: tr.ee/lKU4zw
@canchild.bsky.social @kidsbrainhealth.bsky.social
#FERCourse #FamilyEngagement
July 18, 2025 at 2:52 PM
Real impact starts with real voices. Hear from a FER graduate about the power of meaningful collaboration.
👉Learn more: tr.ee/lKU4zw
@canchild.bsky.social @kidsbrainhealth.bsky.social
#FERCourse #FamilyEngagement
👉Learn more: tr.ee/lKU4zw
@canchild.bsky.social @kidsbrainhealth.bsky.social
#FERCourse #FamilyEngagement
📰 Our July 2025 FER Community Update is live! Catch up on what’s new & what’s next in family engagement in research.
📖 Read: tinyurl.com/FERJuly2025
💬 What helped you feel more ready to engage in meaningful ways? Comment below—we’d love to hear!
#FERProgram #FamilyEngagement
📖 Read: tinyurl.com/FERJuly2025
💬 What helped you feel more ready to engage in meaningful ways? Comment below—we’d love to hear!
#FERProgram #FamilyEngagement
July 15, 2025 at 7:45 PM
📰 Our July 2025 FER Community Update is live! Catch up on what’s new & what’s next in family engagement in research.
📖 Read: tinyurl.com/FERJuly2025
💬 What helped you feel more ready to engage in meaningful ways? Comment below—we’d love to hear!
#FERProgram #FamilyEngagement
📖 Read: tinyurl.com/FERJuly2025
💬 What helped you feel more ready to engage in meaningful ways? Comment below—we’d love to hear!
#FERProgram #FamilyEngagement
🇩🇪 FER in Germany! So proud to see FER grads at #EACD2025 sharing how family voices shape care + research. From parenting to systems change, they’re leading the way. Want to join them? ➡️ ferprogram.ca #FERProgram #MedicalParent #DisabilityResearch #HealthEquity
July 14, 2025 at 1:39 PM
🇩🇪 FER in Germany! So proud to see FER grads at #EACD2025 sharing how family voices shape care + research. From parenting to systems change, they’re leading the way. Want to join them? ➡️ ferprogram.ca #FERProgram #MedicalParent #DisabilityResearch #HealthEquity
📣 Last day to apply!
Are you a parent or caregiver of a child with a disability or health condition? Join the 10-week FER Course to build research skills & connect with families & researchers.
🌍 Open to all
🔗 tr.ee/Z1Kj79
#momlife #Parenting
Are you a parent or caregiver of a child with a disability or health condition? Join the 10-week FER Course to build research skills & connect with families & researchers.
🌍 Open to all
🔗 tr.ee/Z1Kj79
#momlife #Parenting
July 11, 2025 at 3:17 PM
📣 Last day to apply!
Are you a parent or caregiver of a child with a disability or health condition? Join the 10-week FER Course to build research skills & connect with families & researchers.
🌍 Open to all
🔗 tr.ee/Z1Kj79
#momlife #Parenting
Are you a parent or caregiver of a child with a disability or health condition? Join the 10-week FER Course to build research skills & connect with families & researchers.
🌍 Open to all
🔗 tr.ee/Z1Kj79
#momlife #Parenting
👉Learn more: tr.ee/lKU4zw
🔗Apply now: tr.ee/Z1Kj79
@canchild.bsky.social @kidsbrainhealth.bsky.social /2
#specialneeds #medicalmom #disability #parenting #momlife
🔗Apply now: tr.ee/Z1Kj79
@canchild.bsky.social @kidsbrainhealth.bsky.social /2
#specialneeds #medicalmom #disability #parenting #momlife
Amazingly Simple Graphic Design Software – Canva
Amazingly Simple Graphic Design Software – Canva
tr.ee
July 9, 2025 at 8:38 PM
👉Learn more: tr.ee/lKU4zw
🔗Apply now: tr.ee/Z1Kj79
@canchild.bsky.social @kidsbrainhealth.bsky.social /2
#specialneeds #medicalmom #disability #parenting #momlife
🔗Apply now: tr.ee/Z1Kj79
@canchild.bsky.social @kidsbrainhealth.bsky.social /2
#specialneeds #medicalmom #disability #parenting #momlife
3 Things Parents Might Not Know About Partnering in Research
You can shape research, not just join it.
Your lived experience is expertise.
Research with parents hits closer to home for real families.
Applications are still open for the Family Engagement in Research Course! /1
You can shape research, not just join it.
Your lived experience is expertise.
Research with parents hits closer to home for real families.
Applications are still open for the Family Engagement in Research Course! /1
July 9, 2025 at 8:38 PM
3 Things Parents Might Not Know About Partnering in Research
You can shape research, not just join it.
Your lived experience is expertise.
Research with parents hits closer to home for real families.
Applications are still open for the Family Engagement in Research Course! /1
You can shape research, not just join it.
Your lived experience is expertise.
Research with parents hits closer to home for real families.
Applications are still open for the Family Engagement in Research Course! /1
If you are in the field of neurodevelopmental disability research, consider giving Kids Brain Health Network a follow!
Are you working on an evidence-based solution for children with NDDs?Whether you’re in research, healthcare, or a nonprofit, KBHN's upcoming funding call may be for you.
📅 Info Session: July 17 | 11 AM MT
🎯 Learn how to qualify
👥 Lived/living experience is required on your team!
buff.ly/4wKmkuz
📅 Info Session: July 17 | 11 AM MT
🎯 Learn how to qualify
👥 Lived/living experience is required on your team!
buff.ly/4wKmkuz
July 9, 2025 at 8:32 PM
If you are in the field of neurodevelopmental disability research, consider giving Kids Brain Health Network a follow!
Co-learning in the Family Engagement in Research course strengthens partnerships and builds real-world skills in family engagement.
🔍 Learn more: tr.ee/lKU4zw
📝 Apply now: tr.ee/Z1Kj79
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#specialneeds #medicalmom #disability #parenting #momlife
@canchild.bsky.social
🔍 Learn more: tr.ee/lKU4zw
📝 Apply now: tr.ee/Z1Kj79
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#specialneeds #medicalmom #disability #parenting #momlife
@canchild.bsky.social
Amazingly Simple Graphic Design Software – Canva
Amazingly Simple Graphic Design Software – Canva
tr.ee
July 3, 2025 at 5:23 PM
Co-learning in the Family Engagement in Research course strengthens partnerships and builds real-world skills in family engagement.
🔍 Learn more: tr.ee/lKU4zw
📝 Apply now: tr.ee/Z1Kj79
/3
#specialneeds #medicalmom #disability #parenting #momlife
@canchild.bsky.social
🔍 Learn more: tr.ee/lKU4zw
📝 Apply now: tr.ee/Z1Kj79
/3
#specialneeds #medicalmom #disability #parenting #momlife
@canchild.bsky.social
When we take the time to listen, learn, and truly see their stories, we build a world that respects and includes every voice.
Whether you're a parent, a researcher, a clinician, or a community member, your role in that story matters too.
Let’s partner in research that reflects real lives.
/2
Whether you're a parent, a researcher, a clinician, or a community member, your role in that story matters too.
Let’s partner in research that reflects real lives.
/2
Amazingly Simple Graphic Design Software – Canva
Amazingly Simple Graphic Design Software – Canva
tr.ee
July 3, 2025 at 5:23 PM
When we take the time to listen, learn, and truly see their stories, we build a world that respects and includes every voice.
Whether you're a parent, a researcher, a clinician, or a community member, your role in that story matters too.
Let’s partner in research that reflects real lives.
/2
Whether you're a parent, a researcher, a clinician, or a community member, your role in that story matters too.
Let’s partner in research that reflects real lives.
/2
Good news! The deadline to apply for the next Family Engagement in Research (FER) Course has been extended!
Behind every child is a story that matters…
Every child’s journey is unique, shaped by their dreams, challenges, and the people who walk beside them. /1
#patientengagement
Behind every child is a story that matters…
Every child’s journey is unique, shaped by their dreams, challenges, and the people who walk beside them. /1
#patientengagement
July 3, 2025 at 5:23 PM
Good news! The deadline to apply for the next Family Engagement in Research (FER) Course has been extended!
Behind every child is a story that matters…
Every child’s journey is unique, shaped by their dreams, challenges, and the people who walk beside them. /1
#patientengagement
Behind every child is a story that matters…
Every child’s journey is unique, shaped by their dreams, challenges, and the people who walk beside them. /1
#patientengagement