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hmsacharity.bsky.social
hypermobility.org
@hmsacharity.bsky.social
200 followers 19 following 120 posts
We're a UK, patient-led charity supporting people with all kinds of symptomatic hypermobility to self-manage their condition where possible, educate professionals on how to support patients, and raise awareness generally. We like cake too hypermobility.org
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · 1d
The HMSA Journal 2025 has arrived for UK members who opted in for printed copies!
This edition covers sleep, Long COVID, lung pathophysiology, pain management, headache disorders, and more.
We’re so grateful to our team and contributors.
Digital version available in the patient members area.
Alt text: A person holds a newly printed copy of the “Hypermobility Syndromes Association – Journal 2025,” shown inside an open cardboard box. The cover features a photo of a child sleeping with a stuffed animal under a colorful blanket. Listed topics include sleep and hypermobility, Long COVID and HSD, lung pathophysiology, pain management priorities, headache disorders in EDS/HSD, associations between POTS, HSD, and MCAS in young patients, and neural links between joint hypermobility and anxiety.
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · 3d
🎤 Ask the Experts: Hypermobility Edition
🆓Event🗓️ 16 Oct⏰ 7pm BST📍 Zoom + ▶️
👩‍⚕️ @Jo Southall (Occupational Therapist) + Reema Chadha (Physio + Bollywood dancer!) share their tips on pacing, joint protection, mobility aids & more
🔗 hypermobility.org/events
#Hypermobility #AskTheExperts #JointWellness
🖼️ Image Description (Alt Text): A promotional graphic for an online event hosted by the Hypermobility Syndromes Association titled "Ask the Experts." The background features a vibrant gradient of purples and blues. At the top, the event title is written in bold white text. Below, two circular speaker portraits are displayed side by side: - Left: Reema Chadha, Clinical Lead Physiotherapist, smiling and wearing a dark top. A small microphone icon overlays the bottom of her photo. - Right: Jo Southall, Independent Occupational Therapist, smiling and wearing glasses, with a similar microphone icon. 🕖 Event Details: - Date: 16 October 2025 - Time: 7:00pm to 8:00pm (UK time) - Website: hypermobility.org/events (displayed at the bottom in white text) 🌳 Logo: In the bottom corner, the Hypermobility Syndromes Association logo features a stylized tree with multicolored leaves, symbolizing diversity and support.
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · 3d
🎤 Ask the Experts: Hypermobility & PT 🆓Event🗓️ 16 Oct⏰ 7pm BST📍 Zoom + ▶️👩‍⚕️

Jo Southall and Reema Chadha (Physio + Bollywood dancer!) share their tips on pacing, joint protection, mobility aids & more. Advance questions? @/DM us
🔗 hypermobility.org/events
#Hypermobility #AskTheExperts #JointWellness
🖼️ Image Description (Alt Text): A promotional graphic for an online event hosted by the Hypermobility Syndromes Association titled "Ask the Experts." The background features a vibrant gradient of purples and blues. At the top, the event title is written in bold white text. Below, two circular speaker portraits are displayed side by side: - Left: Reema Chadha, Clinical Lead Physiotherapist, smiling and wearing a dark top. A small microphone icon overlays the bottom of her photo. - Right: Jo Southall, Independent Occupational Therapist, smiling and wearing glasses, with a similar microphone icon. 🕖 Event Details: - Date: 16 October 2025 - Time: 7:00pm to 8:00pm (UK time) - Website: hypermobility.org/events (displayed at the bottom in white text) 🌳 Logo: In the bottom corner, the Hypermobility Syndromes Association logo features a stylized tree with multicolored leaves, symbolizing diversity and support.
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Reposted by hypermobility.org
csrosbak.bsky.social
Cheryl Rosbak @csrosbak.bsky.social · 9d
The combination of a firm mattress and a body pillow works best for me.
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · 10d
What kind of mattress works for a hypermobile body?
No simple answer, but we ask now and then because tech and trends evolve.

Memory foam, hybrid, futon, smart-bed, or a stack of layers like the princess & the pea?
Share your wins, fails, and top tips.
#BendyBeds #Hypermobility
Promotional graphic for the Hypermobility Syndromes Association. A central photo shows a showroom with various beds and mattresses. Above the photo, the text reads “Hypermobility Syndromes Association” with a colourful tree logo to the right. The top right corner features the hashtag “#BendyBeds.” At the bottom centre, the website “Hypermobility.org” is displayed. The background is purple with white abstract shapes and lines.
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · 17d
ICYMI, Thursday's 'Ask the OT' session is up for replay on the site. We're prepping tonight's session with @stickmancomms on communicating hidden symptoms and disabilities. We face many, which are your most frequently encountered, most annoying and/or most difficult to resolve?
Two people use a toy-style string telephone made from plastic cups. The woman on the left shouts dramatically into her cup, while the man on the right looks shocked, holding his cup to his ear and his cheek in disbelief. Their exaggerated expressions highlight the chaos of miscommunication. Plain grey background.
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · 24d
"My partner listened to the webinar, it really helped him understand.”

Communicating the reality of dynamic chronic illness is tough when others don’t see the shifts.
Join us Wed 24 Sept, 7pm BST to learn how to bridge that gap with clarity and compassion.

Register at: hypermobility.org/events
Image description: Creating understanding of hidden symptoms and disabilities WEBINAR. 3 panel cartoon: panel 1. Stickman 2 saying "Push yourself, you can do it!" Stickman 1 "But..." Stickman 2 "No buts!". Panel 2: Stickman 1 is exhausted and silent, with spinning, crossed eyes. Stickman 2 with much enthusiasm "See, you did it, you can do more than you thought". Panel 3: Stickman 2 has almost exited the frame - stickman 1 gently keels over into an exhausted heap. Text: Tips and strategies for communicating about our disabilities and symptoms,for people who live with pain and/or fatigue.Webinar by Hannah Ensor, 19:00 24th September 2025
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · 24d
"My partner listened to the webinar, it really helped him understand.”

Communicating the reality of dynamic chronic illness is tough when others don’t see the shifts.

Join us Wed 24 Sept, 7pm BST to learn how to bridge that gap with clarity and compassion.

Register at: hypermobility.org/events
Image description: Creating understanding of hidden symptoms and disabilities WEBINAR. 3 panel cartoon: panel 1. Stickman 2 saying "Push yourself, you can do it!" Stickman 1 "But..." Stickman 2 "No buts!". Panel 2: Stickman 1 is exhausted and silent, with spinning, crossed eyes. Stickman 2 with much enthusiasm "See, you did it, you can do more than you thought". Panel 3: Stickman 2 has almost exited the frame - stickman 1 gently keels over into an exhausted heap. Text: Tips and strategies for communicating about our disabilities and symptoms,for people who live with pain and/or fatigue. Webinar by Hannah Ensor, 19:00 24th September 2025
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · 26d
It's September, the wind's howling, fluffy socks and cosy blankets call. On Thursday we'll be live with Jo Southall at 7pm. It's a free show (register oneve nts page), and recorded, so if you've an Occupational Therapyquestion, just let us know! We can't promise to answer them all, but we'll try!
Promotional flyer for a free hypermobility webinar. The flyer features Jo Southall, a smiling person with long red hair and red-tinted glasses, holding a blue mug that reads "KEEP CALM AND CALL AN O.T." Jo is identified as an Occupational Therapist. The flyer includes a colorful logo in the top left corner and text that reads: “Join us for a free webinar with our resident bendy Occupational Therapist Jo Southall. The third Thursday of each month at 19:00 (BST) over on Zoom. REGISTER TODAY – hypermobility.org/events.” Topics listed include planning, pacing, joint protection, mobility aids, and self-management, with a note that advance questions are welcome.
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · Sep 8
"How do I make them understand?"
It’s one of the top questions we hear — and Hannah’s running a workshop to help you tackle it.
Whether you’re new or just need a refresher, it’s packed with practical insight.
🎟️ Free for members (just log in!)
📹 Yes, it’s recorded
👉 hypermobility.org/events
Presentation slide titled “Creating understanding of hidden symptoms and disabilities” by Hannah Ensor, Founder of Stickman Communications, dated 24th September 2025. The background is green with diagonal stripes. Top left corner features the Hypermobility.org logo—a stylized purple figure with multicolored leaves forming a tree canopy—along with the URL “hypermobility.org” below it. Top right corner displays the Stickman Communications® logo in white on a black background. Bottom right shows a hand-drawn stickman with spiral eyes and a wavy mouth, expressing concern. Text at the bottom reads: “Book your place at hypermobility.org/events.”
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · Aug 26
Cat is helping me pick which of my WIPs comes to tomorrow evening’s members’ drop-in craft and chat social, anybody want to share a sneak peek of what they’re working on?

Can’t wait to see what our members are all working on!

hypermobility.org/so/eaPZcyK_b...
Cat stirring the Tea - A white polka-dotted tabletop holds stainless steel containers — a teapot, sugar bowl, and canister — arranged neatly. - A white ceramic cup filled with a light brown beverage (likely tea or coffee with milk) sits in the foreground. - A cat reaches up with its paw, touching or holding the cup’s handle, adding a playful and whimsical touch. - The scene blends domestic coziness with a dash of feline mischief Crochet Project in Progress - A purple-handled crochet hook is actively inserted into variegated yarn that shifts through shades of blue and purple. - Beneath the work lies a printed instruction sheet with detailed crochet directions, adding a layer of technical insight. - The visible pattern text includes stitch counts and chaining instructions, hinting at a moderately complex design. - This image beautifully captures the intersection of creativity and precision in crochet Multicolored Yarn Ball with Label - A hand holds a vibrant ball of yarn, showcasing a rich mix of green, blue, purple, and yellow. - In the background, other skeins are visible, one clearly labeled “CYGNET BOHO,” suggesting a specific brand or collection. - The yarn appears soft and slightly fuzzy, ideal for cozy knitting or crochet projects.
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · Aug 21
We return to our usual schedule this evening with a
@JBOccyTherapy
live Q&A on all things hypermobility, register at hypermobility.org/events and we'll see you later on, and send you the replay too. Questions by message or e-mail titled 'AskJo'.
The left side features a cream background with dark grey text reading: "Join us for a free webinar" "With our resident bendy Occupational Therapist Jo Southall." Below this is a purple button labeled "REGISTER TODAY" and a web address: Hypermobility.org/events. 📅 At the top right, smaller text states: "The third Thursday of each month at 19:00 (BST) over on Zoom." 🧍‍♀️ The right side of the image shows a photo of Jo Southall, a smiling woman with long red hair and red-tinted glasses, holding a blue mug that says "KEEP CALM AND CALL AN O.T." She is framed within a stylized tablet screen with a turquoise border. 📝 At the bottom, additional text reads: "Planning, pacing, joint protection, mobility aids, and self-management – advance questions welcome :)" 🌈 The top left corner features a colorful logo resembling a tree with multicolored leaves and a central figure with raised arms.
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · Jul 30
We spent the muggy afternoon catching up on last week's heatwave masterclass session in preparation for tomorrow's event with @jboccytherapy, while failing to nap.

There's still time to register, you'll get a catch up link and we'll see you at 7pm (BST). ☺️
hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · Jul 23
Big Angry Sky Ball PSA: You have 24 hours to register for this Heatwave Management course with @JBOccyTherapy it starts tomorrow. If you're busy, register anyway, they'll be recorded, and we'll send the replay link when they go up. www.hypermobility.org/event-detail... (Free to members)!
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · Jul 16
You can also message the team using the Zoom chat function, we'll do our best to get to them all! Sessions are recorded so if you're busy register and we'll send the replay link when it's up on the website. hypermobility.org/events
Events | The Hypermobility Syndromes Association
Upcoming events for professionals and patients run by the Hypermobility Syndromes Association
hypermobility.org
hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · Jul 16
We've some leftover questions from last month's big weekend to cover, so Jo will be joined this Thursday by Dr Philip Bull. You can drop questions in the comments, message us here or e-mail info at hypermobility dot org and we'll see our LinkFairy gets them across...
Alt text: A promotional flyer for a live webinar hosted by the Hypermobility Syndromes Association. The event is titled “Ask the Experts’ Session” and features two speakers: Dr. Philip Bull, Rheumatologist, and Jo Southall, Occupational Therapist. It is scheduled for 17 July, from 19:00 to 20:00. The flyer includes the website link www.hypermobility.org for more information.
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · Jul 14
Example with more info and links >>

hypermobility.org/so/2e… for the last e-news - which contains links to upcoming events. Or, you can go hypermobility.org/event��� and see everything we're up to!
https://hypermobility.org/so/2e…
hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · Jul 14
Tonight: MellowMonday Relaxation with Kim for members! Thursday: Jo & Dr Bull host a live, free, public Q&AWant to make sure you never miss a session? Make sure you're subscribed to our e-news - it's easy, just scroll to the bottom of any page on the website and add your email address to the box!
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · Jul 14
Tonight: MellowMonday Relaxation with Kim for members! Thursday: Jo & Dr Bull host a live, free, public Q&AWant to make sure you never miss a session? Make sure you're subscribed to our e-news - it's easy, just scroll to the bottom of any page on the website and add your email address to the box! >
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · Jun 28
You can message us, or on any of our socials, e-mail [email protected] or ask in session. :)

We have overflow questions so we'll add to the pile if too late for a live, Jos next couple of regular sessions will be expert cohosted Q&As to cover those we couldn't get to in the time allocated.
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · Jun 28
the material and information required. Links and chat highlights will be in the video descriptions and the blog about the various events, but it please nnote, it might take us a little time, and a LOT of coffee!
hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · Jun 28
Our National Lottery Communuity Funded Big Weekend is well underway. Thanks so much to everyone who has volunteered, or registered for these events, it's fantastic to have such enthusiastic interest. Sessions will be available for replay on the website once our team has processed and collated all...
Poster for Hypermobility Awareness Weekend hosted by the Hypermobility Syndromes Association. The top features a bold purple banner with a white calendar icon marking 28 and 29 June. Below, text invites viewers to join free educational webinars throughout June, with a purple arrow pointing right toward the website link: hypermobility.org/events. The arrow and link are positioned on the lower right. In the bottom left corner, the Community Fund’s logo appears — a black smiling hand with crossed fingers. Next to it is the black-and-pink "COMMUNITY FUND" label. Just below the URL, the text "Socials: @HMSACharity" is displayed.
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · Jun 25
Blog with full listing of all this weekend's free sessions (register if you're not free, all info sessions are recorded and we'll send the replay link when it's up) here: www.hypermobility.org/post/book-yo...
Direct link to register for this session: www.hypermobility.org/event-detail...
Alt text: A promotional image for the Hypermobility Syndromes Association's Hypermobility Awareness Weekend. The design features a June calendar with the 28th and 29th highlighted in purple. Bold text above reads “HYPERMOBILITY AWARENESS WEEKEND!” and below the calendar, it says “Join us this June for our FREE awareness educational webinars.” At the bottom, a purple arrow points to the URL “Hypermobility.org/events.” The background has a soft pastel gradient for a calm, inviting feel.
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · Jun 25
What's for dinner?

Struggle with what you can/can't/should/shouldn't eat/prepare? Register for Saturday's free 2pm session with Lorna Ryan, Registered Clinical Nutritionist; her advice is always calm, practical, and based on her extensive expertise. Send/bring all your general nutrition questions!
Alt text: Promotional flyer for a webinar titled “Hypermobility & Nutrition” hosted by the Hypermobility Syndromes Association (HMSA), featuring Lorna Ryan, Clinical Nutritionist. The flyer includes the HMSA's colorful logo, a light background with green leaves for a fresh and clean look, and text detailing the webinar’s theme and speaker.
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hmsacharity.bsky.social
hypermobility.org @hmsacharity.bsky.social · Jun 24
Direct Link to session www.hypermobility.org/event-detail...
Hypermobility 101 | The HMSA
We are so pleased to announce that Jo and Kim will be running their brand new session which they are devising specifically for our awareness weekend. The session will be great for people new to hyper...
www.hypermobility.org
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