Lightnews — Scholar-powered news

Julia Maués @itsnotpink.bsky.social · Jun 30

What an honor to join the Executive Board of @bigxresearch.bsky.social! As someone living w metastatic breast cancer & connected to many other patients, I’m excited to support research that reflects what truly matters to people dealing with this disease.
🔗 bigagainstbreastcancer.org/about-big/go...

Governance

BIG is dedicated to supporting all research stakeholders and facilitating ethically sound human research for breast cancer.

bigagainstbreastcancer.org

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Reposted by Julia Maués

International Cardio-Oncology Society @icosociety.bsky.social · May 19

On this episode of #HeartToHeart, we're joined by @itsnotpink.bsky.social ‬of @graspcancer.bsky.social.

Julia shares her treatment journey with IC-OS President @susandent.bsky.social and treating physician Ana Barac, MD.

Tune In: tinyurl.com/bpju4ec4

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Reposted by Julia Maués

Fumiko Ladd Chino, MD FASCO @fumikochino.bsky.social · May 19

🎙️It was my pleasure to speak with Dr. Erin Roesch & phenomenal patient advocate @itsnotpink.bsky.social about pregnancy associated cancer with a focus on #breastcancer, the most common cancer dx during pregnancy. #bcsm @ascocancer.bsky.social @oncoalert.bsky.social

ascopubs.org/do/pregnancy...

Pregnancy and Breast Cancer | Podcast | ASCO Publications

Dr. Chino talks with Dr. Erin Roesch and patient advocate Julia Maues about pregnancy associated cancer with a focus on breast cancer, the most common cancer diagnosed during pregnancy. This discussio...

ascopubs.org

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Reposted by Julia Maués

Fumiko Ladd Chino, MD FASCO @fumikochino.bsky.social · May 6

With ⬆️ outcomes, pts with #breastcancer have prolonged survivorship often lasting decades but may carry chronic toxicities; both ongoing tx of #MBC & long-term surveillance can add to the cumulative #financialtoxicity for #bcsm pts & families. @ascocancer.bsky.social
@oncoalert.bsky.social
#ASCO25 📖

Financial Toxicity and Breast Cancer: Why Does It Matter, Who Is at Risk, and How Do We Intervene?

Financial toxicity, or the financial burden patients experience because of medical costs, can lead to negative patient effects including lower quality of life, compromised clinical care, and worse hea...

ascopubs.org

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Julia Maués @itsnotpink.bsky.social · May 6

“I have tried to live in a world that does not see color but have only succeeded in living in a world that does not see me.”

www.statnews.com/2025/01/13/k...

‘My life’s purpose’: A neuroscientist wants to rewire mental illness treatment and remake the field he loves

Duke neuroscientist Kafui Dzirasa wants nothing less than to reengineer the brain’s electrical patterns to treat anxiety, depression, bipolar disorder, and schizophrenia.

www.statnews.com

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Our MBC Life @ourmbclife.bsky.social · May 5

Patient Advocate @itsnotpink.bsky.social discusses how @therightdose.bsky.social empowers patients in their treatment decision-making & how patients can use this information to communicate with their doctors.
🎧 Listen (all channels) or 🔗 buff.ly/1o6hJNe
#PCDI #MBC #dosing #CanSky #BCSM

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Julia Maués @itsnotpink.bsky.social · May 5

58 years of life with metastatic breast cancer in this photo—made possible by public investment in cancer research.

Now we’re tossing future progress down the drain with federal research cuts. 😢

#NBCCSummit #NBCConTheHill
#BecauseScience

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Reposted by Julia Maués

Darcy Burbage, DNP, RN, AOCN @darcyburbage.bsky.social · Apr 9

First session of #ONSCongress on antibody drug conjugates presented by #ResearchToPractice! #ONS50 #oncsky

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Reposted by Julia Maués

Liz Szabo @lizszabo.bsky.social · Apr 9

How FDA layoffs may impact food safety
www.wbur.org/hereandnow/2...

How FDA layoffs may impact food safety

Layoffs at the Food and Drug Administration are expected to reduce the FDA's workforce by 20%.

www.wbur.org

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Reposted by Julia Maués

Mike Thompson, MD, PhD, FASCO @mtmdphd.bsky.social · Apr 9

Continuing to Broaden Eligibility Criteria to Make #ClinicalTrials More Representative and Inclusive: ASCO–Friends of Cancer Research Joint Research Statement [Feb 9, 2021] @DrEdKim et al. @rschilsky @ASCO @CancerResrch @CCR_AACR ow.ly/jmPM50DvH0M #ctsm @FDAOncology

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Reposted by Julia Maués

NPR @npr.org · Apr 9

Amy Sherald, who painted former First Lady Michelle Obama's portrait in 2018, has a major survey of her work opening this week at the Whitney Museum of American Art in New York.

Painter Amy Sherald asks: What is American?

Amy Sherald, who painted former First Lady Michelle Obama's portrait in 2018, has a major survey of her work opening this week at the Whitney Museum of American Art in New York.

www.npr.org

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Julia Maués @itsnotpink.bsky.social · Apr 9

So great to finally meet in person!!

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Estelamari Rodríguez @latinamd.bsky.social · Apr 8

Florida @ASCO Delegation at Capitol Hill this morning for #ASCOAdvocacySummit @RManochakian @atperez_md @DevikaDasMD @Sonampuri

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Reposted by Julia Maués

Stephanie L. Graff, MD FACP FASCO @drsgraff.bsky.social · Apr 8

I am joining over 150 oncologists this week at the #ASCOAdvocacySummit in Washington, D.C. to urge Congress to help address existing #drugshortages and prevent future shortages of lifesaving and life-prolonging cancer drugs. @ascocancer.bsky.social

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Julie Gralow @jrgralow.bsky.social · Apr 8

Great @ascocancer.bsky.social Day on the Hill today - advocating for funding for cancer care and research. Favorite meeting was with Bad Bunny, Lucy, and @repemilyrandall.bsky.social from Washington State - great supporter of access to health care for all!

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Stephanie L. Graff, MD FACP FASCO @drsgraff.bsky.social · Apr 8

An honor to meet w/ #RepGabeAmo this AM w/Drs. Mega & Strenger to discuss key #ASCOAdvocacySummit asks including consistent funding for the NIH, NCI, and ARPA-H; the Improving Seniors' Timely Access to Care Act; partnering on a
Comprehensive Solution to End Drug Shortages. @ascocancer.bsky.social

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Stephanie L. Graff, MD FACP FASCO @drsgraff.bsky.social · Apr 8

Want to join us in our efforts? Visit asco.org/actnetwork to contact your Members of Congress about the issues that matter most to you! Advocates are also on the Hill to fix #PriorAuth and protect #CancerResearch funding. #ASCOAdvocacy @ascocancer.bsky.social

Engage in ASCO's Advocacy Efforts

Write a letter to your lawmaker today!

asco.org

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Reposted by Julia Maués

Stephanie L. Graff, MD FACP FASCO @drsgraff.bsky.social · Apr 8

An honor to meet w/Rep.Magaziner staff, Raisa Majid with Drs. Mega & Strenger to discuss key #ASCOAdvocacySummit asks including consistent funding for the NIH, NCI, and ARPA-H; the Improving Seniors' Timely Access to Care Act; partnering on a Solution to End Drug
Shortages. @ascocancer.bsky.social

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Reposted by Julia Maués

Fumiko Ladd Chino, MD FASCO @fumikochino.bsky.social · Apr 8

🇺🇸 #ASCOAdvocacySummit with my @ascocancer.bsky.social Leadership Development Program friend Dr Shilpa Gupta. We spoke to our elected officials about issues that directly impact patients: research funding, #priorAuth, & drug shortages.

Join today w/ the ACT Network:
asco.quorum.us/action_center/

Two woman in front of the capital on a windy day

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@doublewhammied @doublewhammied.bsky.social · Apr 7

"Why would a #metastatic #cancer patient need any more stress? Why slow down the research when cancer rates are on the rise, particularly with young people under 50?” 🤦

Great questions!
#CanSky #MedSky #ScienceSky #crcsm #colorectalcancer

www.washingtonpost.com/science/2025...

NIH scientists have a cancer breakthrough. Layoffs are delaying it.

A big step forward in cancer therapy has been slowed by layoffs and new restrictions at the National Institutes of Health, where it was developed.

www.washingtonpost.com

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Reposted by Julia Maués

Roberta Lombardi - Infinite Strength @infinitembc.bsky.social · Apr 3

"Metastatic breast cancer is the worst club with the best people." is truly a saying that resonates for so many. Watch the full video, plus all of the other presentations from our 2025 MBC Conference here: www.infinitestrength.org/blog/metasta...

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Reposted by Julia Maués

Wendy Woodward, MD, PhD @ibcradiation.bsky.social · Apr 3

www.wired.com/story/doctor...

Doctor Behind Award-Winning Parkinson’s Research Among Scientists Purged From NIH

Leading scientists at the National Institutes of Health, the US’s leading medical research agency, were swept up Tuesday in the Trump administration’s latest firing blitz.

www.wired.com

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Julia Maués @itsnotpink.bsky.social · Apr 3

“In 2023, Healio reported results of a systematic review that showed abstracts of randomized phase 3 clinical trials in gastrointestinal oncology frequently use subjective minimizing language to characterize serious toxicities.”

Martha Carlson @marthacarlson.bsky.social · Apr 3

Once at cancer mtg where a drug was called “tolerable” from the stage w/high low-grade SE % & at least 1 grade 5, which a more experienced patient told me meant death. Also fwiw, pls partner with patients themselves, who are not mentioned as sources of knowledge here #cansky #language #patients

Article quote about the serious consequences on quality of life of continuous low-grade side effects

A list of possible collaborators for improving adherence to guidelines of treatment toxicity reporting, which does not specifically name patients themselves nor their nonprofit representatives

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Reposted by Julia Maués

Martha Carlson @marthacarlson.bsky.social · Apr 3

Once at cancer mtg where a drug was called “tolerable” from the stage w/high low-grade SE % & at least 1 grade 5, which a more experienced patient told me meant death. Also fwiw, pls partner with patients themselves, who are not mentioned as sources of knowledge here #cansky #language #patients

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Reposted by Julia Maués

Dana-Farber’s Breast Oncology Center @dfcibreastonc.bsky.social · Apr 3

Watch recordings from the 2024 Breast Cancer in Young Adults Forum! 🎥

💬 Young & Strong Panel: 5 young adults share their journeys.
🎙️ Keynote: Prof. Dame Lesley Fallowfield on better doctor-patient communication.

Watch here ⬇️ youtube.com/playlist?lis...

#YoungAdultCancerAwarenessWeek

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