Juvenile Arthritis Research
@jarproject.bsky.social
Juvenile Arthritis Research UK charity no. 1091620
The only UK-wide charity focusing solely on Juvenile Idiopathic Arthritis, bringing hope to those with #JIA.
This account is not monitored. Please contact us via website.
Visit www.jarproject.org
The only UK-wide charity focusing solely on Juvenile Idiopathic Arthritis, bringing hope to those with #JIA.
This account is not monitored. Please contact us via website.
Visit www.jarproject.org
Pinned
Can you help ensure that no child has to face the fear and pain of JIA alone this #Christmas? Seven-year-old Martha was diagnosed with #JuvenileIdiopathicArthritis (#JIA) earlier this year after struggling with normal day-to-day activities. Read her story at
www.jarproject.org/christmas
#ThinkJIA
www.jarproject.org/christmas
#ThinkJIA
November 25, 2025 at 11:20 AM
Can you help ensure that no child has to face the fear and pain of JIA alone this #Christmas? Seven-year-old Martha was diagnosed with #JuvenileIdiopathicArthritis (#JIA) earlier this year after struggling with normal day-to-day activities. Read her story at
www.jarproject.org/christmas
#ThinkJIA
www.jarproject.org/christmas
#ThinkJIA
Our next Joint Voices Zoom session is happening on Tuesday 9th December at 7pm. Joint Voices is our young people's group for those with #JIA aged between 18 and 30.
Sign up now at www.jarproject.org/jointvoices and you will be sent the link shortly before the session.
#ThinkJIA
Sign up now at www.jarproject.org/jointvoices and you will be sent the link shortly before the session.
#ThinkJIA
November 24, 2025 at 10:47 AM
Our next Joint Voices Zoom session is happening on Tuesday 9th December at 7pm. Joint Voices is our young people's group for those with #JIA aged between 18 and 30.
Sign up now at www.jarproject.org/jointvoices and you will be sent the link shortly before the session.
#ThinkJIA
Sign up now at www.jarproject.org/jointvoices and you will be sent the link shortly before the session.
#ThinkJIA
"Their passion, openness, and lived experience brought an extra personal touch to our conversations with medical professionals at every stage of their careers."
Last month, our wonderful volunteers attended the Royal College of GPs Annual Conference.
Read more at www.jarproject.org/news/2025/rc...
Last month, our wonderful volunteers attended the Royal College of GPs Annual Conference.
Read more at www.jarproject.org/news/2025/rc...
November 22, 2025 at 9:00 AM
"Their passion, openness, and lived experience brought an extra personal touch to our conversations with medical professionals at every stage of their careers."
Last month, our wonderful volunteers attended the Royal College of GPs Annual Conference.
Read more at www.jarproject.org/news/2025/rc...
Last month, our wonderful volunteers attended the Royal College of GPs Annual Conference.
Read more at www.jarproject.org/news/2025/rc...
"I feel the level of support at Juvenile Arthritis Research - the resources and info is a different league to anywhere else." Parent attending ParentZoom session.
Please keep an eye out on our social channels and e-newsletter for details of our next ParentZoom in the new year.
#thinkJIA #JIA
Please keep an eye out on our social channels and e-newsletter for details of our next ParentZoom in the new year.
#thinkJIA #JIA
November 21, 2025 at 9:30 AM
"Running for Sharon: a Great South Run filled with love and purpose"
Rebecca has written a wonderful piece in memory of her dear friend Sharon which we have shared on our news page.
Read the piece at www.jarproject.org/news/2025/re...
#JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #ThinkJIA
Rebecca has written a wonderful piece in memory of her dear friend Sharon which we have shared on our news page.
Read the piece at www.jarproject.org/news/2025/re...
#JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #ThinkJIA
November 19, 2025 at 12:14 PM
"Running for Sharon: a Great South Run filled with love and purpose"
Rebecca has written a wonderful piece in memory of her dear friend Sharon which we have shared on our news page.
Read the piece at www.jarproject.org/news/2025/re...
#JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #ThinkJIA
Rebecca has written a wonderful piece in memory of her dear friend Sharon which we have shared on our news page.
Read the piece at www.jarproject.org/news/2025/re...
#JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #ThinkJIA
We were delighted to be invited to the @cypmentalhealth.bsky.social event yesterday.
The whole event had been co-produced with young people who shaped every part of the day and offered their insights in the panel discussions and sessions. Thank you for having us there.
#thinkJIA #JIA #CYPMHC
The whole event had been co-produced with young people who shaped every part of the day and offered their insights in the panel discussions and sessions. Thank you for having us there.
#thinkJIA #JIA #CYPMHC
November 18, 2025 at 10:35 AM
We were delighted to be invited to the @cypmentalhealth.bsky.social event yesterday.
The whole event had been co-produced with young people who shaped every part of the day and offered their insights in the panel discussions and sessions. Thank you for having us there.
#thinkJIA #JIA #CYPMHC
The whole event had been co-produced with young people who shaped every part of the day and offered their insights in the panel discussions and sessions. Thank you for having us there.
#thinkJIA #JIA #CYPMHC
Baroness Merron speaking at @cypmentalhealth.bsky.social and sharing her vision for "a joined up system of support - compassionate and proactive"
November 17, 2025 at 12:42 PM
Baroness Merron speaking at @cypmentalhealth.bsky.social and sharing her vision for "a joined up system of support - compassionate and proactive"
Time for the young people power hour at @cypmentalhealth.bsky.social
November 17, 2025 at 12:01 PM
Time for the young people power hour at @cypmentalhealth.bsky.social
"Awareness [of mental health] can only do so much." Need services, support and prevention too. @natashadevon.bsky.social speaking at @cypmentalhealth.bsky.social
November 17, 2025 at 10:54 AM
"Awareness [of mental health] can only do so much." Need services, support and prevention too. @natashadevon.bsky.social speaking at @cypmentalhealth.bsky.social
Kadra Abdinasir speaking at @cypmentalhealth.bsky.social helping to ensure that "policy is driven by real data not guesswork."
November 17, 2025 at 10:53 AM
Kadra Abdinasir speaking at @cypmentalhealth.bsky.social helping to ensure that "policy is driven by real data not guesswork."
"We all know the crisis we have been in for mental health over the past decades in the UK... There are gaps and deficiencies that must be addressed." Cai from @dlapiper.bsky.social @cypmentalhealth.bsky.social
November 17, 2025 at 10:47 AM
"We all know the crisis we have been in for mental health over the past decades in the UK... There are gaps and deficiencies that must be addressed." Cai from @dlapiper.bsky.social @cypmentalhealth.bsky.social
Amy, Sami and Fatima opening today's event at @cypmentalhealth.bsky.social - a room full of people here to help improve the mental health of babies, children and young people- and a further 55 people connected online too.
November 17, 2025 at 10:44 AM
Amy, Sami and Fatima opening today's event at @cypmentalhealth.bsky.social - a room full of people here to help improve the mental health of babies, children and young people- and a further 55 people connected online too.
Promises to be a good day thinking about improving children and young people's mental health @cypmentalhealth.bsky.social
November 17, 2025 at 10:29 AM
Promises to be a good day thinking about improving children and young people's mental health @cypmentalhealth.bsky.social
Our Parent Zoom sign-up form will be closing soon, so if you would like to join us on Wednesday 19th November at 7pm to meet other parents and carers affected by Juvenile Idiopathic Arthritis, please sign up now at www.jarproject.org/join
The Zoom link will be sent out shortly before the session.
The Zoom link will be sent out shortly before the session.
November 15, 2025 at 9:01 AM
Our Parent Zoom sign-up form will be closing soon, so if you would like to join us on Wednesday 19th November at 7pm to meet other parents and carers affected by Juvenile Idiopathic Arthritis, please sign up now at www.jarproject.org/join
The Zoom link will be sent out shortly before the session.
The Zoom link will be sent out shortly before the session.
LAST CHANCE TO SIGN UP: We look forward to seeing those of you who have already signed up for our next in-person event on Monday 24th November in Hertfordshire.
We'll be closing the sign-up form soon to allow for time to prepare for the event, so please sign up at www.jarproject.org/event
#JIA
We'll be closing the sign-up form soon to allow for time to prepare for the event, so please sign up at www.jarproject.org/event
#JIA
November 14, 2025 at 9:01 AM
LAST CHANCE TO SIGN UP: We look forward to seeing those of you who have already signed up for our next in-person event on Monday 24th November in Hertfordshire.
We'll be closing the sign-up form soon to allow for time to prepare for the event, so please sign up at www.jarproject.org/event
#JIA
We'll be closing the sign-up form soon to allow for time to prepare for the event, so please sign up at www.jarproject.org/event
#JIA
"the charity I am supporting not only does amazing work for the kids... they also work so hard to get the message out there about #JIA, so that more people are aware of it, and that one day management becomes cure."
You can read more at www.justgiving.com/page/anne-li...
#ThinkJIA #Arthritis
You can read more at www.justgiving.com/page/anne-li...
#ThinkJIA #Arthritis
November 13, 2025 at 9:01 AM
"the charity I am supporting not only does amazing work for the kids... they also work so hard to get the message out there about #JIA, so that more people are aware of it, and that one day management becomes cure."
You can read more at www.justgiving.com/page/anne-li...
#ThinkJIA #Arthritis
You can read more at www.justgiving.com/page/anne-li...
#ThinkJIA #Arthritis
Make your lived experience count — join the JIA Champions Forum!
The #JIA Champions Forum is a national group of patient and family representatives and they have a few spaces available for more people to join. More info on FB/IG/LinkedIn.
Apply now to become a JIA Champion at bit.ly/JIAchampions
The #JIA Champions Forum is a national group of patient and family representatives and they have a few spaces available for more people to join. More info on FB/IG/LinkedIn.
Apply now to become a JIA Champion at bit.ly/JIAchampions
November 11, 2025 at 9:02 AM
Make your lived experience count — join the JIA Champions Forum!
The #JIA Champions Forum is a national group of patient and family representatives and they have a few spaces available for more people to join. More info on FB/IG/LinkedIn.
Apply now to become a JIA Champion at bit.ly/JIAchampions
The #JIA Champions Forum is a national group of patient and family representatives and they have a few spaces available for more people to join. More info on FB/IG/LinkedIn.
Apply now to become a JIA Champion at bit.ly/JIAchampions
Zoe Birkett was recently interviewed on the Jeremy Vine show talking about her experience of having a hip replacement at a younger age.
Zoe so brilliantly used the opportunity to raise awareness that children and young people can get arthritis in the interview. Thank you Zoe!
#thinkJIA #JIA
Zoe so brilliantly used the opportunity to raise awareness that children and young people can get arthritis in the interview. Thank you Zoe!
#thinkJIA #JIA
November 10, 2025 at 9:54 AM
Our next in-person event is happening at Inflata City in Ware, Hertfordshire after school on Monday 24 November 2025 at 16:30.
Sign up is now open at www.jarproject.org/event
If you have any questions about this event, please contact our volunteer Selma by emailing [email protected]
Sign up is now open at www.jarproject.org/event
If you have any questions about this event, please contact our volunteer Selma by emailing [email protected]
November 7, 2025 at 9:00 AM
Our next in-person event is happening at Inflata City in Ware, Hertfordshire after school on Monday 24 November 2025 at 16:30.
Sign up is now open at www.jarproject.org/event
If you have any questions about this event, please contact our volunteer Selma by emailing [email protected]
Sign up is now open at www.jarproject.org/event
If you have any questions about this event, please contact our volunteer Selma by emailing [email protected]
Our next ParentZoom is happening on Wednesday 19 November 2025, starting at 7pm.
Juvenile Arthritis Research holds Zoom calls for parents and carers of children with Juvenile Idiopathic Arthritis (#JIA) in the UK, as a safe place to chat and share with others.
Sign up is at www.jarproject.org/join
Juvenile Arthritis Research holds Zoom calls for parents and carers of children with Juvenile Idiopathic Arthritis (#JIA) in the UK, as a safe place to chat and share with others.
Sign up is at www.jarproject.org/join
November 5, 2025 at 2:33 PM
Our next ParentZoom is happening on Wednesday 19 November 2025, starting at 7pm.
Juvenile Arthritis Research holds Zoom calls for parents and carers of children with Juvenile Idiopathic Arthritis (#JIA) in the UK, as a safe place to chat and share with others.
Sign up is at www.jarproject.org/join
Juvenile Arthritis Research holds Zoom calls for parents and carers of children with Juvenile Idiopathic Arthritis (#JIA) in the UK, as a safe place to chat and share with others.
Sign up is at www.jarproject.org/join
He did it!
On Sunday, Stefan ran the East Coast 10K in less-than-perfect weather conditions. Stefan told us "The race started cold, wet, and windy! It dried up about 50% of the way through." Stefan has raised an incredible £600 towards our vital work. Thank you Stefan!
#ThinkJIA #JIA #arthritis
On Sunday, Stefan ran the East Coast 10K in less-than-perfect weather conditions. Stefan told us "The race started cold, wet, and windy! It dried up about 50% of the way through." Stefan has raised an incredible £600 towards our vital work. Thank you Stefan!
#ThinkJIA #JIA #arthritis
November 4, 2025 at 1:18 PM
He did it!
On Sunday, Stefan ran the East Coast 10K in less-than-perfect weather conditions. Stefan told us "The race started cold, wet, and windy! It dried up about 50% of the way through." Stefan has raised an incredible £600 towards our vital work. Thank you Stefan!
#ThinkJIA #JIA #arthritis
On Sunday, Stefan ran the East Coast 10K in less-than-perfect weather conditions. Stefan told us "The race started cold, wet, and windy! It dried up about 50% of the way through." Stefan has raised an incredible £600 towards our vital work. Thank you Stefan!
#ThinkJIA #JIA #arthritis
We'd like to wish Stefan lots of luck for this weekend as he runs in the East Coast 10k on 2nd November.
We hope all goes really well and thank you for supporting our vital work.
You can read more of Stefan's story on his Just Giving page at www.justgiving.com/page/stefan-...
We hope all goes really well and thank you for supporting our vital work.
You can read more of Stefan's story on his Just Giving page at www.justgiving.com/page/stefan-...
October 31, 2025 at 9:02 AM
We'd like to wish Stefan lots of luck for this weekend as he runs in the East Coast 10k on 2nd November.
We hope all goes really well and thank you for supporting our vital work.
You can read more of Stefan's story on his Just Giving page at www.justgiving.com/page/stefan-...
We hope all goes really well and thank you for supporting our vital work.
You can read more of Stefan's story on his Just Giving page at www.justgiving.com/page/stefan-...
Wishing Daniella the best of luck for the final race weekend of the season for the BRSCC Fiesta Junior Championship.
Daniella has been busy raising awareness of JIA in recent weeks with lots of press and media coverage.
You can read more about Daniella at www.jarproject.org/news
Daniella has been busy raising awareness of JIA in recent weeks with lots of press and media coverage.
You can read more about Daniella at www.jarproject.org/news
October 23, 2025 at 8:02 AM
Wishing Daniella the best of luck for the final race weekend of the season for the BRSCC Fiesta Junior Championship.
Daniella has been busy raising awareness of JIA in recent weeks with lots of press and media coverage.
You can read more about Daniella at www.jarproject.org/news
Daniella has been busy raising awareness of JIA in recent weeks with lots of press and media coverage.
You can read more about Daniella at www.jarproject.org/news
A huge WELL DONE to Zach who completed the AJ Bell Junior Great South Run on Saturday.
Zach was diagnosed with #SystemicJIA / #Stillsdisease at the end of last year at the age of 9. He wanted to do something to raise awareness and funds for Juvenile #Arthritis Research and has raised over £500!
Zach was diagnosed with #SystemicJIA / #Stillsdisease at the end of last year at the age of 9. He wanted to do something to raise awareness and funds for Juvenile #Arthritis Research and has raised over £500!
October 20, 2025 at 9:32 AM
A huge WELL DONE to Zach who completed the AJ Bell Junior Great South Run on Saturday.
Zach was diagnosed with #SystemicJIA / #Stillsdisease at the end of last year at the age of 9. He wanted to do something to raise awareness and funds for Juvenile #Arthritis Research and has raised over £500!
Zach was diagnosed with #SystemicJIA / #Stillsdisease at the end of last year at the age of 9. He wanted to do something to raise awareness and funds for Juvenile #Arthritis Research and has raised over £500!
Good luck for this weekend Zachary and Rebecca for the Great South Run.
Zach's story on his Just Giving page at www.justgiving.com/page/zachary...
Rebecca's story on her Just Giving page at www.justgiving.com/page/rebecca...
#JIA #ThinkJIA #GreatSouthRun #JuniorGreatSouthRun #arthritis #running
Zach's story on his Just Giving page at www.justgiving.com/page/zachary...
Rebecca's story on her Just Giving page at www.justgiving.com/page/rebecca...
#JIA #ThinkJIA #GreatSouthRun #JuniorGreatSouthRun #arthritis #running
October 17, 2025 at 1:31 PM
Good luck for this weekend Zachary and Rebecca for the Great South Run.
Zach's story on his Just Giving page at www.justgiving.com/page/zachary...
Rebecca's story on her Just Giving page at www.justgiving.com/page/rebecca...
#JIA #ThinkJIA #GreatSouthRun #JuniorGreatSouthRun #arthritis #running
Zach's story on his Just Giving page at www.justgiving.com/page/zachary...
Rebecca's story on her Just Giving page at www.justgiving.com/page/rebecca...
#JIA #ThinkJIA #GreatSouthRun #JuniorGreatSouthRun #arthritis #running