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Jenny Rowbory

@jennyrowbory.bsky.social

65 followers 37 following 49 posts

39. Writer. Acutely ill & bedbound for 20years (EDS, severe ME, AAI & CCI). Love fantasy & sci-fi. Known as @Stroopwaffle on twitter. Fundraising for urgent surgery: https://gofundme.com/savejenny My website: https://jkrowbory.co.uk/updates

gofundme.com

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Jenny Rowbory @jennyrowbory.bsky.social · Nov 18

My Life With A Twist (and how to save it):

youtu.be/j09KuknjrXY?...

- a day in my life

I explain why it’s becoming more urgent to get the neurosurgery that I need in New York

My Life With A Twist (and how to save it)

YouTube video by Jenny Rowbory

youtu.be

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Jenny Rowbory @jennyrowbory.bsky.social · 6h

Orangetober Day 9: if only this cone were full of ice cream. Photo taken by Mum. Join in with Orangetober: whenever you see something orange this October, take a photo of it and post it online, asking people to consider donating to my lifesaving neurosurgeries gofundme.com/savejenny
Thank you 🧡🧡🧡

Orange and white traffic cone in some grass

Jenny Rowbory @jennyrowbory.bsky.social · 1d

Orangetober Day 8: photo taken by Mum. Join in with Orangetober: whenever you see something orange this October, take a photo of it and post it online, asking people to consider donating to my lifesaving neurosurgeries gofundme.com/savejenny & sharing this video: youtu.be/4XbNiqMCMns
Thank you 🧡🧡🧡

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Jenny Rowbory @jennyrowbory.bsky.social · 2d

Orangetober Day 7: a couple of my childhood books
Join in with Orangetober: whenever you see something orange this October, take a photo of it & post it online, asking people to consider donating to my lifesaving neurosurgeries: gofundme.com/savejenny & sharing this video: youtu.be/4XbNiqMCMns
🧡🧡🧡

Jenny Rowbory @jennyrowbory.bsky.social · 3d

Orangetober Day 6: photo taken by Mum.
Join in with Orangetober: whenever you see something orange this October, take a photo of it and post it online, asking people to consider donating to my lifesaving neurosurgeries: gofundme.com/savejenny & sharing this video: youtu.be/4XbNiqMCMns
Thank you 🧡🧡

Photo of an orange gas canister in an alleyway of orange brick, leading to a back door

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Jenny Rowbory @jennyrowbory.bsky.social · 4d

Orangetober Day 5: These photos are from my younger brother, Keith. Join in with Orangetober: whenever you see something orange this October, take a photo of it and post it online, asking people to consider donating to my lifesaving neurosurgeries gofundme.com/savejenny
Thank you 🧡🧡🧡

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Jenny Rowbory @jennyrowbory.bsky.social · 5d

Orangetober Day 4: I finished ‘The Impossible Fortune’ by Richard Osman (the book cover has orange on it). Watch as I try to figure out whodunnit as I listen along to the audiobook here: youtu.be/ArCzPTPYfsE
Find out more about Orangetober here: www.jkrowbory.co.uk/2025/10/oran...
🧡🧡🧡

Jenny Rowbory @jennyrowbory.bsky.social · 6d

Orangetober Day 3: An old favourite from my teenage years is still on my bookshelves and, happily, it’s orange! Join in with Orangetober: whenever you see something orange this October, take a photo of it, put it online & ask people to consider donating to my neurosurgeries gofundme.com/savejenny 🧡

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Jenny Rowbory @jennyrowbory.bsky.social · 7d

Orangetober Day 2: I still have the same orange backpack in my room (photo on the left) that I had when I was 13! Join in with Orangetober: whenever you see something orange this October, take a photo of it & ask people to consider donating to my lifesaving neurosurgeries gofundme.com/savejenny 🧡

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Jenny Rowbory @jennyrowbory.bsky.social · 8d

I’ve been reliably informed that once you start looking for it, you begin to see orange everywhere! Orangetober has raised £998 today already and it’s only day one. Very grateful. More info on Orangetober (my October fundraiser) is here if you want to join in: www.jkrowbory.co.uk/2025/10/oran...
🧡🧡🧡

Orangetober - Jenny Rowbory

Take part in Orangetober!

www.jkrowbory.co.uk

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Jenny Rowbory @jennyrowbory.bsky.social · 8d

New blog post: Orangetober
www.jkrowbory.co.uk/2025/10/oran...
Would love for you to join in!

Orangetober - Jenny Rowbory

I’m taking part in Orangetober. Whenever I see something orange this October, I’m taking a photo of it, and asking you to consider donating to Jenny Rowbory’s

www.jkrowbory.co.uk

Jenny Rowbory @jennyrowbory.bsky.social · 8d

Orangetober: whenever you see something orange, photograph it & post it online, with a caption like this: I’m taking part in Orangetober. Whenever I see something orange this October, I’m taking a photo of it & asking you to consider donating to Jenny’s urgent neurosurgeries gofundme.com/savejenny

Jenny Rowbory @jennyrowbory.bsky.social · 17d

After listening to the Millennium trilogy by Stieg Larsson, I have some questions about Swedish culture. Can anyone help me out with the answers?!

youtu.be/XfxTRpp16BE

Review of the Millennium book series by Stieg Larsson and questions that I now have about Sweden!

YouTube video by Jenny Rowbory

youtu.be

Jenny Rowbory @jennyrowbory.bsky.social · 29d

In PMQs today, @joshnewburymp.bsky.social asked about EDS patients with neck instabilities who have to crowdfund surgeries abroad because there’s no help on the NHS for us. Mum has sent an email to him on my behalf to see if he can help. More info on my blog: www.jkrowbory.co.uk/2025/09/a-qu...

A question raised in parliament about EDS patients with neck instabilities who have to crowdfund for treatment overseas because there’s no help available on the NHS - Jenny Rowbory

Mum has immediately sent off an email to the MP that asked the question to tell him about me and to ask him to keep us up-to-date on any developments or if

www.jkrowbory.co.uk

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Jenny Rowbory @jennyrowbory.bsky.social · Jul 29

What I’m currently listening to: youtu.be/2X_s6adM0GA?...

(Re-listening to the Mistborn audiobooks, also listening to the Swimming World Championships on Radio 5 Sports Extra)

What I’m currently listening to: the Mistborn trilogy audiobooks & the Swimming World Championships

YouTube video by Jenny Rowbory

youtu.be

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Jenny Rowbory @jennyrowbory.bsky.social · Jul 27

Favourite quote of the match from Radio 5 Live “she’s had a Toblerone of a tournament - up, down, up, down”. I’m pretty sure I didn’t mishear…

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Jenny Rowbory @jennyrowbory.bsky.social · Jul 27

WHOOP!
#penalties

Jenny Rowbory @jennyrowbory.bsky.social · Jul 27

As is right and proper.

Jenny Rowbory @jennyrowbory.bsky.social · Jul 27

My restraint has been rewarded 😇

Jenny Rowbory @jennyrowbory.bsky.social · Jul 27

So very nearly pressed ‘like’ on that one. Was tempted but I’ll be good and not cause any more woe for England.

Jenny Rowbory @jennyrowbory.bsky.social · Jul 27

Oh dear. That was my fault. I pressed like on your reply, then Spain scored. My apologies to the England team 😉

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Jenny Rowbory @jennyrowbory.bsky.social · Jul 27

I’m listening on Radio 5 Live

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Jenny Rowbory @jennyrowbory.bsky.social · Jul 25

Sound on for the video below! Challenge: can you do this? I’d love to see videos of your attempts 😆

5years today since we set up the GoFundMe page for the neurosurgery. Doing really well but a way to go. Still hopeful. It’s a long time to be in a crisis situation though. gofundme.com/savejenny

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Jenny Rowbory @jennyrowbory.bsky.social · Jul 23

Thanks, Paul!

Jenny Rowbory @jennyrowbory.bsky.social · Jul 18

‘A Summer Night of Poetry’ with me tonight: www.jkrowbory.co.uk/2025/07/a-su...
The video will be available if you can’t make it at 7pm. All to fundraise for my neurosurgery. Please share!

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Jenny Rowbory @jennyrowbory.bsky.social · Jul 18

Even if you don’t usually like poetry, I think that you might find something here to enjoy. Plus it’s raising money for urgently needed surgery. Win win!

Jenny Rowbory @jennyrowbory.bsky.social · Jul 18

Join me for ‘A Summer Night’s Dream of Poetry’ tonight, 7pm on Friday 18th July (though the video will be available afterwards if you can’t make it): www.jkrowbory.co.uk/2025/07/a-su...

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