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Reposted by Janis McCulloch

UK Oncology Nursing Society @ukons.bsky.social · Jun 19

This week is #Myelomaawareness

Myeloma is often slower to diagnose due to vague symptoms.

This tool from Myeloma UK can help talk about symptoms. Share it with colleagues too to help raise awareness.

www.myeloma.org.uk/wp-content/u...

#myelomasware

@ukons.bsky.social
@myelomauk.bsky.social

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Janis McCulloch @justjanis1.bsky.social · Jun 18

I had constant chest infections. They’d clear up for a little while then return."⚠️

Carly's symptoms of constant infections and fatigue were shrugged off repeatedly.

Share this to raise awareness of the myeloma warning signs. ⚠️
#MyelomaAwarenessWeek #MyelomaWarningSigns youtu.be/Zqhb019gR9Y?...

Carly's story | Myeloma Awareness Week 2025

YouTube video by Myeloma UK

youtu.be

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Janis McCulloch @justjanis1.bsky.social · Jun 16

Many people living with myeloma experience symptoms for months or even years before receiving a diagnosis.
Fatigue that won’t go away, recurring infections and unexplained pain are just a few of the warning signs that are often overlooked. ⚠️ #MyelomaWarningSigns
www.youtube.com/watch?v=wV8y...

Myeloma Awareness Week 2025 - Why it's so important to know the warning signs of myeloma

YouTube video by Myeloma UK

www.youtube.com

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Janis McCulloch @justjanis1.bsky.social · Jun 13

I hope that you are keeping well. Seeing all these treatments getting approved gives me so much hope 🧡

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Janis McCulloch @justjanis1.bsky.social · Jun 13

It really is 🧡

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Janis McCulloch @justjanis1.bsky.social · Jun 13

Incredible news this morning that people with myeloma in England will be able to get this treatment. www.bbc.co.uk/news/article...

Cancer: World-first 'Trojan horse' therapy to be given on NHS

It sneaks toxic drugs inside cancer cells to hit them hard while minimising side-effects.

www.bbc.co.uk

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Janis McCulloch @justjanis1.bsky.social · Mar 21

This graphic... wow

Science Magazine @science.org · Mar 20

In a new Science study, cryo–electron tomography captures the in-cell architecture of the mitochondrial respiratory chain, illuminating how the coordinated action of molecular machines drives life’s fundamental energy conversion.

Learn more in this week's issue: scim.ag/3FA3Ygq

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Janis McCulloch @justjanis1.bsky.social · Mar 19

So proud to launch this video today that talks about the incredible work of @myelomauk.bsky.social and why we do what we do. Please do share. #myeloma youtu.be/1z5kc6PQndY?...

We Are Myeloma UK

YouTube video by Myeloma UK

youtu.be

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Janis McCulloch @justjanis1.bsky.social · Feb 24

Access to life-changing treatments should never be about the ability to pay. That's why @myelomauk.bsky.social have joined forces with our supporter Jason to call for CAR-T cell treatments to be available on the NHS for people with myeloma. www.bbc.co.uk/news/article...

Call for blood cancer treatment to be available on NHS

Clinical trial patient Jason Johnson is calling for a treatment that worked on him to be made available.

www.bbc.co.uk

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Reposted by Janis McCulloch

The Institute of Cancer Research @icr.ac.uk · Feb 19

Prof Martin Kaiser (@mymkaiser.bsky.social) who led the study, says: “We would like all myeloma patients to be able to access the newer diagnostic tests which enable clinicians to group individual patients based on their risk profile and provide treatment that is tailored to their needs.”

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Janis McCulloch @justjanis1.bsky.social · Feb 13

Today Myeloma UK joined 50+ cancer charities as #OneCancerVoice, calling on the UK Government to fully fund the National Cancer Plan and improve care for those affected by cancer. #myeloma

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Janis McCulloch @justjanis1.bsky.social · Feb 11

People should do what they want on their tour. Personally I loved seeing three hours of my favourite performer.

Janis McCulloch @justjanis1.bsky.social · Feb 10

🤣 depends what you are buying 😱

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Janis McCulloch @justjanis1.bsky.social · Feb 10

Is it weird that I think they are kind of cute? Poor Robots having to deal with Edinburgh's hills.

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Janis McCulloch @justjanis1.bsky.social · Feb 10

Going for a blood test, waiting for results and then trying to make sense of the results can be extremely worrying. Our latest Ask The Nurse blog looks at some of the questions we get about blood tests. #myeloma #myelomasky www.myeloma.org.uk/library/ask-...

Ask the Nurse: Blood tests in myeloma

www.myeloma.org.uk

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Reposted by Janis McCulloch

VJHemOnc @vjhemonc.bsky.social · Feb 6

At the Oxford Myeloma Workshop last week, Karthik Ramasamy provided insight into the RADAR trial investigating risk & response-adapted therapy following autoSCT in transplant-eligible pts with newly diagnosed #MultipleMyeloma.

Watch here:
👉 https://buff.ly/40OgEHv

#MMSM #Myeloma #BMTsm #CTSM

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Janis McCulloch @justjanis1.bsky.social · Feb 6

Myeloma UK was at #ASH2024 here's some of the things we learned and how it will impact our work going forward. www.myeloma.org.uk/news/ash2024... #myelomasky #myeloma #MGUS #SmoulderingMyeloma

ASH2024 reflections: Advancing myeloma research

www.myeloma.org.uk

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Janis McCulloch @justjanis1.bsky.social · Jan 31

Pretty

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Janis McCulloch @justjanis1.bsky.social · Jan 31

I'm old enough to remember repeated pledges by many parties to get rid of the council tax. Think we will see anyone pledging that in the 2026 manifestos?

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Janis McCulloch @justjanis1.bsky.social · Jan 31

At Myeloma UK we're often asked about treatments and clinical trials for new drugs in the UK.

A drug called selinexor (Nexpovio®) is one of the latest treatments to be approved.

In this month's blog, we tell you more about selinexor and how it works. #myeloma

www.myeloma.org.uk/library/ask-...

Ask the Nurse: Selinexor

Find out more about a new anti-myeloma drug called selinexor from our Myeloma Information Specialists in this month's Ask The Nurse blog.

www.myeloma.org.uk

Reposted by Janis McCulloch

Cancer Research UK City of London Centre @cruk-cityoflondon.bsky.social · Jan 28

Our session on cancer evolution is chaired by Dr Elise Rees and Prof @ciccarellilab.bsky.social. @kanefos.bsky.social has presented his work on the blood-cancer immunity cycle: learning from multiple-myeloma disease evolution.

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Janis McCulloch @justjanis1.bsky.social · Jan 7

I'm struggling to get through anything...need to get back into a good series I think.

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Janis McCulloch @justjanis1.bsky.social · Jan 6

Absolutely lovely first day back in the office chatting to @drscottarthurmp.bsky.social about his Private Members Bill for rarer cancers and all things early diagnosis and access to treatments. #myeloma

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Janis McCulloch @justjanis1.bsky.social · Dec 25

And to you ☺️

Janis McCulloch @justjanis1.bsky.social · Dec 24

Stunning sunrise this morning. Happy Christmas Eve.

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