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KStenhouse🇨🇦 @klstenhouse.bsky.social · Sep 4

WHY YOUR EXERCISE PROGRAM MAY NOT BE GETTING YOU RESULTS

🧠🧠 Did you know your brain controls everything you do in fitness and rehab? Your nervous system has …

(See alt. txt.)

www.facebook.com/share/v/1Ccd...

#FeedForMSFolk #neurorehab #neurorehabilitation #MultipleSclerosis #TheMSGym.

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KStenhouse🇨🇦 @klstenhouse.bsky.social · Jun 30

I agree that this is a strategic move. I also suspect it’s not permanently shelved - it can remain a strategic tool.

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KStenhouse🇨🇦 @klstenhouse.bsky.social · Jun 30

My theory is that he was leaving it as a bargaining chip. He wasn’t a fan either - it was from previous admin. Plus being shelved doesn’t suggest permanency.

KStenhouse🇨🇦 @klstenhouse.bsky.social · Jun 24

“…suggest COVID-19 is associated with selective structural and functional alterations in basal ganglia–limbic–cortical circuits, with stronger effects in severe cases … in line with symptoms … fatigue, memory impairment, attentional deficits, and insomnia.”
June 20, 2025 preprint
#Covid19

Multimodal MRI Reveals Consistent Basal Ganglia and Limbic System Alterations in COVID-19 Survivors

The long-term impact of COVID-19 on the brain is multifaceted, encompassing structural and functional disruptions. A cohesive theory of the underlying mechanisms of the Post-COVID Syndrome (PCS) remai...

www.medrxiv.org

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KStenhouse🇨🇦 @klstenhouse.bsky.social · May 17

Moved this beauty across the road to the stream she was heading for today. She was on the shoulder, right side right after a hill and easily could have been shmucked. Blandings turtles are threatened in Ontario and endangered in the Great Lakes/St. Lawrence area. #Blandings #threatened #endangered

Phot of a Blandings turtle after a rainstorm, making her carapace shiny and almost black - the yellow throat and jaw a stark contrast. She’s sitting on the shoulder with lots of fresh green foliage behind her, trying to cross the road.

Here she is just peeking her head out to look around and find the stream.

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KStenhouse🇨🇦 @klstenhouse.bsky.social · May 12

We had more white crowned sparrows pass through than we’ve ever seen before. It’s was crazy!

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KStenhouse🇨🇦 @klstenhouse.bsky.social · May 12

That’s very cool! I wonder how they were introduced …

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KStenhouse🇨🇦 @klstenhouse.bsky.social · May 10

Three FREE workshops coming up! HIGH PAYOFF DRILLS.

#TheMSGym

Please check the link to determine the best workshop for your mobility level!

Session 1: Sitting Strong, May 19th, 1 pm EST

Session 2: Standing Strong, May 21st, 1 pm EST

Session 3: Moving Strong, May 23rd, 1 pm EST, 11 am MTN

High Payoff Workshops

Workshops on High Payoff Drills

themsgym.mykajabi.com

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KStenhouse🇨🇦 @klstenhouse.bsky.social · May 10

Plus EBV is implicated in at least 6-7 other autoimmune diseases now, not to mention various head and neck cancers. Yes to a vaccine. Which I think could even help someone in my situation.

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KStenhouse🇨🇦 @klstenhouse.bsky.social · May 10

Doing better than I have since 2018. I’ve thrown everything at it (if scientifically factual!). Having been a research chemist, I have the background to deep dive. symptoms of MS are often caused by other things and too often, symptoms get swept under the MS rug when they are treatable/manageable.

KStenhouse🇨🇦 @klstenhouse.bsky.social · May 10

Looks like the adolescent risk is higher than childhood infection, but the risk is significantly increased for both. Mono (from EBV) as a young adult shows an insignificant increase.

So childhood exposure still not the best plan. I ended up with MS despite that. 🤷‍♀️

Printed version for both photos:

Infectious mononucleosis in childhood (hazard ratio [HR], 1.98; 95% CI, 1.21-3.23) and adolescence (HR, 3.00; 95% CI, 2.48-3.63) was associated with an increased risk of an MS diagnosis that remained significant after controlling for shared familial factors in stratified Cox proportional hazards regression (HRs, 2.87 [95% CI, 1.44-5.74] and 3.19 [95% CI, 2.29-4.46], respectively). Infectious mononucleosis in early adulthood was also associated with risk of a subsequent MS diagnosis (HR, 1.89; 95% CI, 1.18-3.05), but this risk was attenuated and was not significant after controlling for shared familial factors (HR, 1.51; 95% CI, 0.82-2.76).
Conclusions and Relevance
These findings suggest that IM in childhood and particularly adolescence is a risk factor associated with a diagnosis of MS, independent of shared familial factors.

See alt.txt below photo 1 cor image in print form

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KStenhouse🇨🇦 @klstenhouse.bsky.social · May 10

I had early exposure. But I also had a career that caused solvent bioaccumulation so perhaps the triggers add up. Every Covid infection triggered an EBV reactivation except for my last - given remdesivir. I just got better from Covid for the first time.
Without prophylactic VCV, MS progresses. 🙃

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KStenhouse🇨🇦 @klstenhouse.bsky.social · May 10

Supposedly it’s having an EBV-caused infection in childhood or adolescence vs older. I never *had* mono but had older siblings so likely had it under age 6 when it was simply a random childhood fever illness. 2018 testing showed both historical and current ab.

pmc.ncbi.nlm.nih.gov/articles/PMC...

Association of Infectious Mononucleosis in Childhood and Adolescence With Risk for a Subsequent Multiple Sclerosis Diagnosis Among Siblings

Is diagnosis of infectious mononucleosis (IM) in childhood or adolescence associated with subsequent development of multiple sclerosis (MS)? In this population–based cohort study of 2 492 980 individu...

pmc.ncbi.nlm.nih.gov

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KStenhouse🇨🇦 @klstenhouse.bsky.social · May 10

My goodness it was so good! I’ve searched old recipe book archives, googled until my eyes bled. Because she called it Busy Day Dessert, couldn’t ever find it. That’s a jello thing lol.

Now, I would probably find it way to sweet now - but I’m gong to try to adapt it. Glad someone else remembers!

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KStenhouse🇨🇦 @klstenhouse.bsky.social · May 10

I’ve been trying to avoid AI due to energy usage. But I’ve been searching out a recipe my mom used to make in the 70s to no avail. She’s almost 97 and doesn’t remember making it. Today chat.gpt and I may have figured it out - and made it gluten free. 😭❤️🙏🏼

AI generated recipe in alt.txt!

🔹 Caramel Syrup Base (Stovetop)
150 g brown sugar (light or dark)
45 g unsalted butter
200 mL boiling water
Optional: 1/4 tsp salt or 1/2 tsp vanilla extract (added after boiling)
Instructions:

In a saucepan over medium heat, melt the butter.
Stir in brown sugar and cook for 1–2 minutes until fully dissolved and bubbling.
Carefully add boiling water (it may sputter). Stir well and simmer another 30 seconds.
Remove from heat. Add vanilla or salt if using.
Pour this hot syrup into a greased 20–23 cm baking dish or deep pie dish. Set aside while you prepare the batter.
🔹 Cake Batter (Gluten-Free Sponge Layer)
125 g gluten-free all-purpose flour blend (with xanthan gum)
100 g granulated sugar
2 tsp baking powder
1/4 tsp salt
120 mL milk (dairy or unsweetened plant-based)
30 g melted butter (or neutral oil)
1 tsp vanilla extract
Instructions:

Preheat oven to 180°C (160°C fan).
In a bowl, whisk flour, sugar, baking powder, and salt.
Add milk, melted butter, and vanilla. Stir until smooth.
Gently spoon or pour the batter over the caramel layer in the dish — don’t stir or mix!
Bake for 30–40 minutes, or until golden and puffed on top. A toothpick inserted near the center (but not too deep) should come out with a few moist crumbs.
🔹 To Serve
Let cool for 10–15 minutes so the caramel thickens. Spoon into bowls while warm — the bottom should be rich and saucy, with a soft cake layer on top.

*** no guarantees! I haven’t tried it yet!

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Reposted by KStenhouse🇨🇦

TRAstonDrs @castltrastondrs.bsky.social · May 9

#Medsky🧪 #neurosky #publichealth This study shows how researchers are beginning to understand that sleep does more than just give our brains and bodies a respite from the rigours of the day @nature.com

www.nature.com/articles/d41...

Sleep is essential — researchers are trying to work out why

A typical person spends more than 20 years in a state of dreamy semi-consciousness. But surprisingly little is known about why we need this down time.

www.nature.com

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KStenhouse🇨🇦 @klstenhouse.bsky.social · May 9

WALKING BETTER DOWNSTAIRS
#MultipleSclerosis #NeuroRehab #neuroplasticity #rehab #FeedForMSFolk

www.facebook.com/share/v/1RSw...

I had to start with a single magazine! 🙃🤣

See Alt-Txt for full description.

Worth the work and the time! #MS

WALKING BETTER DOWN STAIRS

If you struggle with climbing and descending stairs, you are not alone.

Many many people affected with a neurological condition find stairs super challenging.

In this video, we are going to work on going down stairs.

Descending stairs requires four big things:
1. Ankle / Knee mobility
2. Leg strength
3. Core stability
4. Healthy vestibular function

However, trying to slowly lower your body 7.5 inches (18 cm) when you lack any one of the
four key elements above can make going down stairs extremely frustrating.

Instead of “force feeding” that movement into your brain, which likely doesn’t have that
range of motion available, we can progressively improve your joint mobility, muscular
strength, core stability, and vestibular (balance) function in smaller steps… literally.

You can master the “down stairs” movement using 1 inch (2.5 cm) platforms to build up to
a standard step height. This progressive approach will encourage your body to move and
train in a way that will not stress out your brain and cause more symptoms.

They KEYS to mastering this movement:
1. Use the appropriate level of balance support (wall, walker, countertop, railing).
2. Drop SLOWLY into the movement paying attention to RELAXING your body.
3. Pause at the bottom of the movement and find your balance.
4. Push your body back onto the top of the platform using your quads, glutes, and core.

Once you can perform 10-15 reps on BOTH LEGS with less dependence on your assistive
device or surface, INCREASE THE HEIGHT of your platform by 1 inch (2.54 cm).

If you can aim to improve an inch every two weeks, it is possible that you will be able to
walk up and down stair with more ease and confidence within 12-16 weeks.

That would be HUGE!

#multiplesclerosis #movementismedicine #neurologicconditions #chronicillness #neurologicaldisorder #disabledtiktok #fyp #foryoupage #mssucks

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KStenhouse🇨🇦 @klstenhouse.bsky.social · May 7

mscanada.ca/ms-research/...

pmc.ncbi.nlm.nih.gov/articles/PMC...

Researchers link the “clock” hormone melatonin to seasonal MS relapses

Background Multiple sclerosis (MS) relapse activity follows the seasons; MS attacks are generally more frequent in the spring and summer and quiet down in the fall and winter. Although the reason for ...

mscanada.ca

KStenhouse🇨🇦 @klstenhouse.bsky.social · May 7

Look at the research for seasonal relapse.

The thought is that it involves circadian rhythms.

Back before DMTs I pretty consistently relapsed spring and August.

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Reposted by KStenhouse🇨🇦

Jessica Grahn @neurobeats.bsky.social · May 6

Any of my colleagues want to come to Canada? uwo.ca/research/cer... [One priority area is Neuroscience and Brain Health. We have awesome facilities and people]. @westernuwin.bsky.social

Canada Excellence Research Chair Positions

Western University, in vibrant London, Ontario, delivers an academic and student experience second to none.

uwo.ca

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Reposted by KStenhouse🇨🇦

Danielle Beckman @daniellebeckman.bsky.social · May 6

My presentation with @davidjoffe64.bsky.social on COVID's impacts on the brain is already the most watched video on the @thewhn.bsky.social platform 🤯! Thank you to everyone who supports our research! We are now writing a physician's guide for #NeuroCovid #LongCovid 🤓
www.youtube.com/watch?v=soJX...

How COVID Impacts the Brain: Danielle Beckman and David Joffe

YouTube video by World Health Network

www.youtube.com

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KStenhouse🇨🇦 @klstenhouse.bsky.social · May 5

I would love to hear the strategies. Anything coming from doctors or government would not affect the folks I know. 🤷‍♀️ are there websites?

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KStenhouse🇨🇦 @klstenhouse.bsky.social · May 5

There is no effective way to fight the a anti-vax narrative. I know many folks. Public health training would do nothing. They should all watch the Pitt. Which wouldn’t really help all of them if the parents respond like the pair in Texas.

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KStenhouse🇨🇦 @klstenhouse.bsky.social · May 2

Hair loss? Could happen with Mavenclad as well. I didn’t lose hair with either but have lost due to B vitamin deficiency and thyroid issues. So keep an eye on thyroid and a good methylated B complex is your friend. Make sure you join the Mavenclad group!

KStenhouse🇨🇦 @klstenhouse.bsky.social · May 2

What @italoromeno.bsky.social said lol.

I can’t say outright it treats MS. It treats the thing I don’t know I had when progressing without lesions in 2018. I showed an immune system actively responding to EBV - zero EBV symptoms, all MS progression (supposedly). Valayclovir turned me around.