The LEITH Lab
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leithlab.bsky.social
The LEITH Lab
@leithlab.bsky.social
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LEITH Lab strives for compassionate care and humanizing research in rare diseases among historically underrepresented communities
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Our mission at The LEITH Lab is a clear one: to continue a legacy of pushing for equitable healthcare for historically marginalized communities! #EndALS #AntiRacism #TheLEITHLab
This Hispanic Heritage Month, we celebrate Dr. Yomaira C. Figueroa-Vásquez, whose scholarship and organizing uplift Afro-Latinx voices and create space for Black feminist digital humanities.
#ALS #Research #HispanicHeritageMonth
Brad Lomax, a member of the Black Panther Party and leader in the disability rights movement, played a key role in the historic 504 Sit-ins. His work brought together Black liberation and disability justice, showing that true freedom must include access for all. #BradLomax #504SitIn
July is Disability Pride Month!

1 in 4 adults in the US has a disability that is over 70 million people! This month we want to spotlight just a couple of people who have been instrumental in the ongoing efforts for disability justice!
Today is World ALS Day! We want to continue to shine light on the communities who are so often overlooked in the ALS sphere!

#EndALS #WorldALSday
Today is Juneteenth! A day where we celebrate Black liberation and recommit to the ongoing fights for justice among all oppressed peoples!
#juneteenth #ENDALS
Happy Pride Month from the LEITH Lab to you! This month we are excited to highlight the experiences of and stories of our LGBTQ+ community members!

#PrideMonth #EndALS
ALS support groups can be a great way to connect with people who have similar experiences to you or learn new strategies of care! However finding the right support group for you isn’t always easy! We hope this post can help out!

All organizations are linked below!
linktr.ee/theleithlab
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Compassionate care & humanizing research in rare diseases
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On May 16th our PI, Dr. Chelsey R. Carter, will be speaking with the Les Turner ALS Foundation about what it means to build an equitable path toward making ALS a livable condition for everyone. Registration is linked below!

us02web.zoom.us/webinar/regi...
It’s ALS Awareness Month! Every Friday we will be sharing ALS topics with you all. We’re starting off by breaking down some key ALS terms to help make the connection between people living with ALS and their care teams a little clearer. #ENDALS #MayALSawareness
Reposted by The LEITH Lab
I brought the nice weather with me to New Haven to talk about my book ☀️☀️

I really enjoyed being in community with other anthros about my work. Ashley of the @leithlab.bsky.social was a great host and thanks to her diligent organizing, I had a wonderful visit!
Happy Birthday to the Amazing Dr. Leith Mullings!
Roberta Flack left us this February, but her legacy still echoes around the world. She lived with ALS, a truth often overlooked, and we’re proud to honor both her artistry and her journey. #ALS #RobertaFlack
Reposted by The LEITH Lab
It's from @uminnpress.bsky.social and features @audretaughtme.bsky.social, David McDermott Hughes, Stephanie Delise Jones, @ratnagiri77.bsky.social, Katy Overstreet, Michelle Parsons, Adair Rounthwaite, Damien M. Sojoyner and @eyatesd.bsky.social. Recommend it to your friends and family!
Reposted by The LEITH Lab
A friend drove two hours today for her breast cancer chemotherapy only to learn it was canceled due to NIH cuts. Clinical trial ended midstream. No treatment, no restart, no plan, no information. Her bro-in-law's chemo was also canceled.
Reposted by The LEITH Lab
“I am a Black Feminist. I mean I recognize that my power as well as my primary oppressions come as a result of my blackness as well as my womaness, and therefore my struggles on both of these fronts are inseparable.” – Audre Lorde ✊🏾🌸🌸
✨Women’s History Month✨
This month we want to spotlight Lisa Carlton! A mother, rare disease advocate, and rare disease biotech consultant!