Les Turner ALS Foundation
@lesturnerals.bsky.social
The leader in comprehensive #ALS care in Chicagoland
We are now accepting runners for our Team Race for ALS waitlist.
Be part of our team at the 2026 Bank of America Chicago Marathon on October 11 in Grant Park, Chicago.
Details on runner benefits and fundraising commitments available here: lesturnerals.org/events/team-...
Be part of our team at the 2026 Bank of America Chicago Marathon on October 11 in Grant Park, Chicago.
Details on runner benefits and fundraising commitments available here: lesturnerals.org/events/team-...
January 9, 2026 at 6:02 PM
We are now accepting runners for our Team Race for ALS waitlist.
Be part of our team at the 2026 Bank of America Chicago Marathon on October 11 in Grant Park, Chicago.
Details on runner benefits and fundraising commitments available here: lesturnerals.org/events/team-...
Be part of our team at the 2026 Bank of America Chicago Marathon on October 11 in Grant Park, Chicago.
Details on runner benefits and fundraising commitments available here: lesturnerals.org/events/team-...
ALS can change how we communicate - but technology offers options.
Learn more in our ALS & Communication Guide: lesturnerals.org/als-communic...
Learn more in our ALS & Communication Guide: lesturnerals.org/als-communic...
January 8, 2026 at 6:04 PM
ALS can change how we communicate - but technology offers options.
Learn more in our ALS & Communication Guide: lesturnerals.org/als-communic...
Learn more in our ALS & Communication Guide: lesturnerals.org/als-communic...
Persons living with ALS today, and those who will live with it tomorrow, seek answers to the unknowns of the disease. Research is the way forward. Learn more at cdc.gov/als
#ALS
#ALS
January 5, 2026 at 6:02 PM
Persons living with ALS today, and those who will live with it tomorrow, seek answers to the unknowns of the disease. Research is the way forward. Learn more at cdc.gov/als
#ALS
#ALS
Memories shared by loved ones help keep legacies alive. Submit a Celebration of Life to honor someone special.
Celebration of Life form: lesturnerals.org/get-involved...
Celebration of Life form: lesturnerals.org/get-involved...
December 31, 2025 at 6:02 PM
Memories shared by loved ones help keep legacies alive. Submit a Celebration of Life to honor someone special.
Celebration of Life form: lesturnerals.org/get-involved...
Celebration of Life form: lesturnerals.org/get-involved...
Small changes can help make daily life easier. Our ALS & Activities of Daily Living guide offers practical support you can use now—or later.
Learn more: lesturnerals.org/als-activiti...
Learn more: lesturnerals.org/als-activiti...
December 29, 2025 at 6:03 PM
Small changes can help make daily life easier. Our ALS & Activities of Daily Living guide offers practical support you can use now—or later.
Learn more: lesturnerals.org/als-activiti...
Learn more: lesturnerals.org/als-activiti...
As the year comes to a close, your support helps families affected by ALS access care, guidance, and connection.
Please consider a year-end donation by Dec. 31: lesturnerals.org/the-heart-do...
Please consider a year-end donation by Dec. 31: lesturnerals.org/the-heart-do...
December 25, 2025 at 6:02 PM
As the year comes to a close, your support helps families affected by ALS access care, guidance, and connection.
Please consider a year-end donation by Dec. 31: lesturnerals.org/the-heart-do...
Please consider a year-end donation by Dec. 31: lesturnerals.org/the-heart-do...
New ALS research reveals a breakdown in the cell’s RNA quality control system—offering fresh insight into disease mechanisms and potential treatments.
Read the full article: lesturnerals.org/rna-quality-...
Read the full article: lesturnerals.org/rna-quality-...
December 23, 2025 at 6:04 PM
New ALS research reveals a breakdown in the cell’s RNA quality control system—offering fresh insight into disease mechanisms and potential treatments.
Read the full article: lesturnerals.org/rna-quality-...
Read the full article: lesturnerals.org/rna-quality-...
Looking for thoughtful, last-minute gift ideas this season? Explore our Holiday Gift Guide for meaningful options.
View the full guide on our website: lesturnerals.org/2025-gift-gu...
View the full guide on our website: lesturnerals.org/2025-gift-gu...
December 22, 2025 at 6:03 PM
Looking for thoughtful, last-minute gift ideas this season? Explore our Holiday Gift Guide for meaningful options.
View the full guide on our website: lesturnerals.org/2025-gift-gu...
View the full guide on our website: lesturnerals.org/2025-gift-gu...
As the year ends, your support helps ensure families affected by ALS receive care, guidance, and resources when they need them most.
Please consider a year-end gift by Dec. 31: lesturnerals.org/the-heart-do...
Please consider a year-end gift by Dec. 31: lesturnerals.org/the-heart-do...
December 19, 2025 at 6:01 PM
As the year ends, your support helps ensure families affected by ALS receive care, guidance, and resources when they need them most.
Please consider a year-end gift by Dec. 31: lesturnerals.org/the-heart-do...
Please consider a year-end gift by Dec. 31: lesturnerals.org/the-heart-do...
Grief can feel isolating, but you don’t have to carry it alone. This space offers connection, understanding, and shared reflection with others who have experienced loss.
RSVP via email to join.
RSVP via email to join.
December 17, 2025 at 6:03 PM
Grief can feel isolating, but you don’t have to carry it alone. This space offers connection, understanding, and shared reflection with others who have experienced loss.
RSVP via email to join.
RSVP via email to join.
When you join the National ALS Registry, you can also join the National ALS Biorepository. Joining is a meaningful way for people with ALS to help in the search for answers. For more information visit cdc.gov/als
#ALSRegistry #ALSBiorepository #ALS
#ALSRegistry #ALSBiorepository #ALS
December 15, 2025 at 6:03 PM
When you join the National ALS Registry, you can also join the National ALS Biorepository. Joining is a meaningful way for people with ALS to help in the search for answers. For more information visit cdc.gov/als
#ALSRegistry #ALSBiorepository #ALS
#ALSRegistry #ALSBiorepository #ALS
11 charity spots left for Team Race for ALS at the 2026 Chicago Marathon. Turn your miles into impact.
Contact [email protected] to learn more.
Contact [email protected] to learn more.
December 12, 2025 at 6:01 PM
11 charity spots left for Team Race for ALS at the 2026 Chicago Marathon. Turn your miles into impact.
Contact [email protected] to learn more.
Contact [email protected] to learn more.
Learn how ALS financial burden research is evolving — and how it compares to oncology.
Join us Thursday, December 11 at 12:00 p.m. CT.
Register: us02web.zoom.us/webinar/regi...
Join us Thursday, December 11 at 12:00 p.m. CT.
Register: us02web.zoom.us/webinar/regi...
December 10, 2025 at 6:04 PM
Learn how ALS financial burden research is evolving — and how it compares to oncology.
Join us Thursday, December 11 at 12:00 p.m. CT.
Register: us02web.zoom.us/webinar/regi...
Join us Thursday, December 11 at 12:00 p.m. CT.
Register: us02web.zoom.us/webinar/regi...
Cecil and Grace’s story reflects the strength of so many families living with ALS. Grace shares a powerful saying in their video: “The heart does the giving—the fingers just let go.”
Your support fuels care coordination, support groups, and trusted guidance: lesturnerals.org/the-heart-do...
Your support fuels care coordination, support groups, and trusted guidance: lesturnerals.org/the-heart-do...
December 9, 2025 at 6:03 PM
Cecil and Grace’s story reflects the strength of so many families living with ALS. Grace shares a powerful saying in their video: “The heart does the giving—the fingers just let go.”
Your support fuels care coordination, support groups, and trusted guidance: lesturnerals.org/the-heart-do...
Your support fuels care coordination, support groups, and trusted guidance: lesturnerals.org/the-heart-do...
We were honored to host Dr. Ginny Sargent from MND Australia during her visit to Chicago last week.
Together, we discussed opportunities to strengthen global collaboration, exchange insights, and continue centering every person affected by ALS in our work.
Together, we discussed opportunities to strengthen global collaboration, exchange insights, and continue centering every person affected by ALS in our work.
December 8, 2025 at 9:01 PM
We were honored to host Dr. Ginny Sargent from MND Australia during her visit to Chicago last week.
Together, we discussed opportunities to strengthen global collaboration, exchange insights, and continue centering every person affected by ALS in our work.
Together, we discussed opportunities to strengthen global collaboration, exchange insights, and continue centering every person affected by ALS in our work.
Meet Dr. Astrid Grouls, palliative care physician & ALS researcher at Baylor College of Medicine. Join her Thursday, December 11 at 12:00 p.m. CT.
Register here: us02web.zoom.us/webinar/regi...
Register here: us02web.zoom.us/webinar/regi...
December 8, 2025 at 6:02 PM
Meet Dr. Astrid Grouls, palliative care physician & ALS researcher at Baylor College of Medicine. Join her Thursday, December 11 at 12:00 p.m. CT.
Register here: us02web.zoom.us/webinar/regi...
Register here: us02web.zoom.us/webinar/regi...
Robert Kalb, MD, director of the Les Turner ALS Center, shares how his lab is studying genetic targets and mutations like SOD1, TDP-43, and C9ORF72 to inform future ALS and FTD treatments.
Read more: www.neurologylive.com/view/explori...
Read more: www.neurologylive.com/view/explori...
December 5, 2025 at 9:02 PM
Robert Kalb, MD, director of the Les Turner ALS Center, shares how his lab is studying genetic targets and mutations like SOD1, TDP-43, and C9ORF72 to inform future ALS and FTD treatments.
Read more: www.neurologylive.com/view/explori...
Read more: www.neurologylive.com/view/explori...
Join us Thursday, December 11 at 12:00 p.m. CT for a live webinar on the financial burden of ALS and how research compares to other diseases.
Register: us02web.zoom.us/webinar/regi...
Register: us02web.zoom.us/webinar/regi...
December 5, 2025 at 6:03 PM
Join us Thursday, December 11 at 12:00 p.m. CT for a live webinar on the financial burden of ALS and how research compares to other diseases.
Register: us02web.zoom.us/webinar/regi...
Register: us02web.zoom.us/webinar/regi...
ALS carries a heavy financial toll on families and caregivers. Look out for our December ALS Learning Series, where we explore the cost of ALS and where research stands today.
December 4, 2025 at 9:02 PM
ALS carries a heavy financial toll on families and caregivers. Look out for our December ALS Learning Series, where we explore the cost of ALS and where research stands today.
Chef Kate Milashus spent 15 years in Chicago’s kitchens before ALS changed her life. Her creativity remains—guiding Sean through recipes and staying connected through assistive tech supported by the Les Turner ALS Foundation.
Read more: lesturnerals.org/a-chefs-touc...
Read more: lesturnerals.org/a-chefs-touc...
December 4, 2025 at 6:30 PM
Chef Kate Milashus spent 15 years in Chicago’s kitchens before ALS changed her life. Her creativity remains—guiding Sean through recipes and staying connected through assistive tech supported by the Les Turner ALS Foundation.
Read more: lesturnerals.org/a-chefs-touc...
Read more: lesturnerals.org/a-chefs-touc...
Nat’l ALS Registry data can be used to help scientists understand common symptoms. The most frequently reported symptoms were cramps (56.7%), twitching (56.3%), and speech problems (33.0%). This data is made public to advance ALS research: tandfonline.com/doi/full/10.1080/21678421.2019.1612435
December 3, 2025 at 9:02 PM
Nat’l ALS Registry data can be used to help scientists understand common symptoms. The most frequently reported symptoms were cramps (56.7%), twitching (56.3%), and speech problems (33.0%). This data is made public to advance ALS research: tandfonline.com/doi/full/10.1080/21678421.2019.1612435
Dr. Ryan Donaghy from our Lois Insolia ALS Clinic at Northwestern Medicine explains how biomarkers, genetics, and modern trial networks are reshaping ALS research.
Read: www.neurologylive.com/view/buildin...
Read: www.neurologylive.com/view/buildin...
December 2, 2025 at 10:00 PM
Dr. Ryan Donaghy from our Lois Insolia ALS Clinic at Northwestern Medicine explains how biomarkers, genetics, and modern trial networks are reshaping ALS research.
Read: www.neurologylive.com/view/buildin...
Read: www.neurologylive.com/view/buildin...
Every day, families like Cecil and Grace show us what true strength looks like. Their short video reminds us why your support matters for people facing ALS.
Please watch their story—and consider making a gift: lesturnerals.org/the-heart-do...
Please watch their story—and consider making a gift: lesturnerals.org/the-heart-do...
December 2, 2025 at 8:00 PM
Every day, families like Cecil and Grace show us what true strength looks like. Their short video reminds us why your support matters for people facing ALS.
Please watch their story—and consider making a gift: lesturnerals.org/the-heart-do...
Please watch their story—and consider making a gift: lesturnerals.org/the-heart-do...
Missed the Les Turner Symposium on ALS? The full session videos are now on YouTube: www.youtube.com/watch?v=W7zb...
We are grateful to Mitsubishi Tanabe Pharma America for supporting this year’s program.
We are grateful to Mitsubishi Tanabe Pharma America for supporting this year’s program.
December 1, 2025 at 6:03 PM
Missed the Les Turner Symposium on ALS? The full session videos are now on YouTube: www.youtube.com/watch?v=W7zb...
We are grateful to Mitsubishi Tanabe Pharma America for supporting this year’s program.
We are grateful to Mitsubishi Tanabe Pharma America for supporting this year’s program.
“I’d do it all over again just to have those moments back.” — Tina Cascio
Tina cared for her mom through ALS and now gives back as part of our Support Services Committee and Board of Directors.
#NationalFamilyCaregiversMonth
Tina cared for her mom through ALS and now gives back as part of our Support Services Committee and Board of Directors.
#NationalFamilyCaregiversMonth
November 26, 2025 at 6:04 PM
“I’d do it all over again just to have those moments back.” — Tina Cascio
Tina cared for her mom through ALS and now gives back as part of our Support Services Committee and Board of Directors.
#NationalFamilyCaregiversMonth
Tina cared for her mom through ALS and now gives back as part of our Support Services Committee and Board of Directors.
#NationalFamilyCaregiversMonth