Les Turner ALS Foundation
@lesturnerals.bsky.social
The leader in comprehensive #ALS care in Chicagoland
11 charity spots left for Team Race for ALS at the 2026 Chicago Marathon. Turn your miles into impact.
Contact [email protected] to learn more.
Contact [email protected] to learn more.
December 12, 2025 at 6:01 PM
11 charity spots left for Team Race for ALS at the 2026 Chicago Marathon. Turn your miles into impact.
Contact [email protected] to learn more.
Contact [email protected] to learn more.
Learn how ALS financial burden research is evolving — and how it compares to oncology.
Join us Thursday, December 11 at 12:00 p.m. CT.
Register: us02web.zoom.us/webinar/regi...
Join us Thursday, December 11 at 12:00 p.m. CT.
Register: us02web.zoom.us/webinar/regi...
December 10, 2025 at 6:04 PM
Learn how ALS financial burden research is evolving — and how it compares to oncology.
Join us Thursday, December 11 at 12:00 p.m. CT.
Register: us02web.zoom.us/webinar/regi...
Join us Thursday, December 11 at 12:00 p.m. CT.
Register: us02web.zoom.us/webinar/regi...
Cecil and Grace’s story reflects the strength of so many families living with ALS. Grace shares a powerful saying in their video: “The heart does the giving—the fingers just let go.”
Your support fuels care coordination, support groups, and trusted guidance: lesturnerals.org/the-heart-do...
Your support fuels care coordination, support groups, and trusted guidance: lesturnerals.org/the-heart-do...
December 9, 2025 at 6:03 PM
Cecil and Grace’s story reflects the strength of so many families living with ALS. Grace shares a powerful saying in their video: “The heart does the giving—the fingers just let go.”
Your support fuels care coordination, support groups, and trusted guidance: lesturnerals.org/the-heart-do...
Your support fuels care coordination, support groups, and trusted guidance: lesturnerals.org/the-heart-do...
We were honored to host Dr. Ginny Sargent from MND Australia during her visit to Chicago last week.
Together, we discussed opportunities to strengthen global collaboration, exchange insights, and continue centering every person affected by ALS in our work.
Together, we discussed opportunities to strengthen global collaboration, exchange insights, and continue centering every person affected by ALS in our work.
December 8, 2025 at 9:01 PM
We were honored to host Dr. Ginny Sargent from MND Australia during her visit to Chicago last week.
Together, we discussed opportunities to strengthen global collaboration, exchange insights, and continue centering every person affected by ALS in our work.
Together, we discussed opportunities to strengthen global collaboration, exchange insights, and continue centering every person affected by ALS in our work.
Meet Dr. Astrid Grouls, palliative care physician & ALS researcher at Baylor College of Medicine. Join her Thursday, December 11 at 12:00 p.m. CT.
Register here: us02web.zoom.us/webinar/regi...
Register here: us02web.zoom.us/webinar/regi...
December 8, 2025 at 6:02 PM
Meet Dr. Astrid Grouls, palliative care physician & ALS researcher at Baylor College of Medicine. Join her Thursday, December 11 at 12:00 p.m. CT.
Register here: us02web.zoom.us/webinar/regi...
Register here: us02web.zoom.us/webinar/regi...
Robert Kalb, MD, director of the Les Turner ALS Center, shares how his lab is studying genetic targets and mutations like SOD1, TDP-43, and C9ORF72 to inform future ALS and FTD treatments.
Read more: www.neurologylive.com/view/explori...
Read more: www.neurologylive.com/view/explori...
December 5, 2025 at 9:02 PM
Robert Kalb, MD, director of the Les Turner ALS Center, shares how his lab is studying genetic targets and mutations like SOD1, TDP-43, and C9ORF72 to inform future ALS and FTD treatments.
Read more: www.neurologylive.com/view/explori...
Read more: www.neurologylive.com/view/explori...
Join us Thursday, December 11 at 12:00 p.m. CT for a live webinar on the financial burden of ALS and how research compares to other diseases.
Register: us02web.zoom.us/webinar/regi...
Register: us02web.zoom.us/webinar/regi...
December 5, 2025 at 6:03 PM
Join us Thursday, December 11 at 12:00 p.m. CT for a live webinar on the financial burden of ALS and how research compares to other diseases.
Register: us02web.zoom.us/webinar/regi...
Register: us02web.zoom.us/webinar/regi...
ALS carries a heavy financial toll on families and caregivers. Look out for our December ALS Learning Series, where we explore the cost of ALS and where research stands today.
December 4, 2025 at 9:02 PM
ALS carries a heavy financial toll on families and caregivers. Look out for our December ALS Learning Series, where we explore the cost of ALS and where research stands today.
Chef Kate Milashus spent 15 years in Chicago’s kitchens before ALS changed her life. Her creativity remains—guiding Sean through recipes and staying connected through assistive tech supported by the Les Turner ALS Foundation.
Read more: lesturnerals.org/a-chefs-touc...
Read more: lesturnerals.org/a-chefs-touc...
December 4, 2025 at 6:30 PM
Chef Kate Milashus spent 15 years in Chicago’s kitchens before ALS changed her life. Her creativity remains—guiding Sean through recipes and staying connected through assistive tech supported by the Les Turner ALS Foundation.
Read more: lesturnerals.org/a-chefs-touc...
Read more: lesturnerals.org/a-chefs-touc...
Nat’l ALS Registry data can be used to help scientists understand common symptoms. The most frequently reported symptoms were cramps (56.7%), twitching (56.3%), and speech problems (33.0%). This data is made public to advance ALS research: tandfonline.com/doi/full/10.1080/21678421.2019.1612435
December 3, 2025 at 9:02 PM
Nat’l ALS Registry data can be used to help scientists understand common symptoms. The most frequently reported symptoms were cramps (56.7%), twitching (56.3%), and speech problems (33.0%). This data is made public to advance ALS research: tandfonline.com/doi/full/10.1080/21678421.2019.1612435
Dr. Ryan Donaghy from our Lois Insolia ALS Clinic at Northwestern Medicine explains how biomarkers, genetics, and modern trial networks are reshaping ALS research.
Read: www.neurologylive.com/view/buildin...
Read: www.neurologylive.com/view/buildin...
December 2, 2025 at 10:00 PM
Dr. Ryan Donaghy from our Lois Insolia ALS Clinic at Northwestern Medicine explains how biomarkers, genetics, and modern trial networks are reshaping ALS research.
Read: www.neurologylive.com/view/buildin...
Read: www.neurologylive.com/view/buildin...
Every day, families like Cecil and Grace show us what true strength looks like. Their short video reminds us why your support matters for people facing ALS.
Please watch their story—and consider making a gift: lesturnerals.org/the-heart-do...
Please watch their story—and consider making a gift: lesturnerals.org/the-heart-do...
December 2, 2025 at 8:00 PM
Every day, families like Cecil and Grace show us what true strength looks like. Their short video reminds us why your support matters for people facing ALS.
Please watch their story—and consider making a gift: lesturnerals.org/the-heart-do...
Please watch their story—and consider making a gift: lesturnerals.org/the-heart-do...
Missed the Les Turner Symposium on ALS? The full session videos are now on YouTube: www.youtube.com/watch?v=W7zb...
We are grateful to Mitsubishi Tanabe Pharma America for supporting this year’s program.
We are grateful to Mitsubishi Tanabe Pharma America for supporting this year’s program.
December 1, 2025 at 6:03 PM
Missed the Les Turner Symposium on ALS? The full session videos are now on YouTube: www.youtube.com/watch?v=W7zb...
We are grateful to Mitsubishi Tanabe Pharma America for supporting this year’s program.
We are grateful to Mitsubishi Tanabe Pharma America for supporting this year’s program.
“I’d do it all over again just to have those moments back.” — Tina Cascio
Tina cared for her mom through ALS and now gives back as part of our Support Services Committee and Board of Directors.
#NationalFamilyCaregiversMonth
Tina cared for her mom through ALS and now gives back as part of our Support Services Committee and Board of Directors.
#NationalFamilyCaregiversMonth
November 26, 2025 at 6:04 PM
“I’d do it all over again just to have those moments back.” — Tina Cascio
Tina cared for her mom through ALS and now gives back as part of our Support Services Committee and Board of Directors.
#NationalFamilyCaregiversMonth
Tina cared for her mom through ALS and now gives back as part of our Support Services Committee and Board of Directors.
#NationalFamilyCaregiversMonth
Young people feel the impact of ALS more than we often realize. Our ALS & Children/Youth Guide helps families support children and teens who take on caregiving roles or navigate life with a loved one living with ALS.
Read the guide: lesturnerals.org/als-children...
#NationalFamilyCaregiversMonth
Read the guide: lesturnerals.org/als-children...
#NationalFamilyCaregiversMonth
November 24, 2025 at 7:01 PM
Young people feel the impact of ALS more than we often realize. Our ALS & Children/Youth Guide helps families support children and teens who take on caregiving roles or navigate life with a loved one living with ALS.
Read the guide: lesturnerals.org/als-children...
#NationalFamilyCaregiversMonth
Read the guide: lesturnerals.org/als-children...
#NationalFamilyCaregiversMonth
By joining the National ALS Registry and taking the risk factor surveys, individuals living with ALS can help provide a better picture of who gets ALS and the risk factors associated with this disease. Join today! cdc.gov/als
#ALSRegistry #ALS
#ALSRegistry #ALS
November 22, 2025 at 6:03 PM
By joining the National ALS Registry and taking the risk factor surveys, individuals living with ALS can help provide a better picture of who gets ALS and the risk factors associated with this disease. Join today! cdc.gov/als
#ALSRegistry #ALS
#ALSRegistry #ALS
“It is ok to cross the rainbow,” Michael Margelewski-Hall told their mother, Pam. “She had more than earned her wings.”
A moment of strength and love in their ALS journey.
#NationalFamilyCaregiversMonth
A moment of strength and love in their ALS journey.
#NationalFamilyCaregiversMonth
November 20, 2025 at 6:02 PM
“It is ok to cross the rainbow,” Michael Margelewski-Hall told their mother, Pam. “She had more than earned her wings.”
A moment of strength and love in their ALS journey.
#NationalFamilyCaregiversMonth
A moment of strength and love in their ALS journey.
#NationalFamilyCaregiversMonth
Catch every moment from the Les Turner Symposium on ALS — now live on YouTube.
Thank you, to Mitsubishi Tanabe Pharma America, Biogen and Numotion for supporting this event.
Watch now: www.youtube.com/watch?v=W7zb...
Thank you, to Mitsubishi Tanabe Pharma America, Biogen and Numotion for supporting this event.
Watch now: www.youtube.com/watch?v=W7zb...
November 19, 2025 at 9:30 PM
Catch every moment from the Les Turner Symposium on ALS — now live on YouTube.
Thank you, to Mitsubishi Tanabe Pharma America, Biogen and Numotion for supporting this event.
Watch now: www.youtube.com/watch?v=W7zb...
Thank you, to Mitsubishi Tanabe Pharma America, Biogen and Numotion for supporting this event.
Watch now: www.youtube.com/watch?v=W7zb...
Our no-cost webinar on Thursday, November 20 at 12 pm CT will provide you with expert tips and strategies to navigate ALS and digestive health challenges. Whether it's fiber, hydration, or daily wellness routines, we’ve got you covered!
Register now: us02web.zoom.us/webinar/regi...
Register now: us02web.zoom.us/webinar/regi...
November 19, 2025 at 6:03 PM
Our no-cost webinar on Thursday, November 20 at 12 pm CT will provide you with expert tips and strategies to navigate ALS and digestive health challenges. Whether it's fiber, hydration, or daily wellness routines, we’ve got you covered!
Register now: us02web.zoom.us/webinar/regi...
Register now: us02web.zoom.us/webinar/regi...
This National Family Caregivers Month, we honor the strength and heart of ALS caregivers like Jenny Hernandez.
“Caregiving is a lot to balance, and every day can bring it's challenges... Being a caregiver for my dad will forever be the greatest accomplishment for me.”
“Caregiving is a lot to balance, and every day can bring it's challenges... Being a caregiver for my dad will forever be the greatest accomplishment for me.”
November 18, 2025 at 6:03 PM
This National Family Caregivers Month, we honor the strength and heart of ALS caregivers like Jenny Hernandez.
“Caregiving is a lot to balance, and every day can bring it's challenges... Being a caregiver for my dad will forever be the greatest accomplishment for me.”
“Caregiving is a lot to balance, and every day can bring it's challenges... Being a caregiver for my dad will forever be the greatest accomplishment for me.”
Meet Dominique Kosk, Advanced Dietitian at Northwestern Memorial Hospital and the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine. She has been supporting people living with ALS since 2016.
Register for her webinar on November 20: us02web.zoom.us/webinar/regi...
Register for her webinar on November 20: us02web.zoom.us/webinar/regi...
November 17, 2025 at 6:02 PM
Meet Dominique Kosk, Advanced Dietitian at Northwestern Memorial Hospital and the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine. She has been supporting people living with ALS since 2016.
Register for her webinar on November 20: us02web.zoom.us/webinar/regi...
Register for her webinar on November 20: us02web.zoom.us/webinar/regi...
Meet Brittany M. Hitson, an Advanced Dietitian at Northwestern Memorial Hospital and Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine. She’s been supporting people living with ALS since 2020.
Register for her webinar on November 20: us02web.zoom.us/webinar/regi...
Register for her webinar on November 20: us02web.zoom.us/webinar/regi...
November 15, 2025 at 6:02 PM
Meet Brittany M. Hitson, an Advanced Dietitian at Northwestern Memorial Hospital and Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine. She’s been supporting people living with ALS since 2020.
Register for her webinar on November 20: us02web.zoom.us/webinar/regi...
Register for her webinar on November 20: us02web.zoom.us/webinar/regi...
For the Rooney and Creen families, ALS is personal — affecting both sides of their family. Still, they “choose to rally around hope…and live life with joy and love.”
Read more: www.chicagotribune.com/2025/11/07/v...
Read more: www.chicagotribune.com/2025/11/07/v...
November 14, 2025 at 6:02 PM
For the Rooney and Creen families, ALS is personal — affecting both sides of their family. Still, they “choose to rally around hope…and live life with joy and love.”
Read more: www.chicagotribune.com/2025/11/07/v...
Read more: www.chicagotribune.com/2025/11/07/v...
Join our no-cost webinar on Thursday, November 20 at 12:00 pm CT about managing constipation in ALS. Learn about fiber, hydration, and strategies to improve bowel health.
Register: us02web.zoom.us/webinar/regi...
#ALS #DigestiveHealth #LesTurnerALS
Register: us02web.zoom.us/webinar/regi...
#ALS #DigestiveHealth #LesTurnerALS
November 13, 2025 at 8:01 PM
Join our no-cost webinar on Thursday, November 20 at 12:00 pm CT about managing constipation in ALS. Learn about fiber, hydration, and strategies to improve bowel health.
Register: us02web.zoom.us/webinar/regi...
#ALS #DigestiveHealth #LesTurnerALS
Register: us02web.zoom.us/webinar/regi...
#ALS #DigestiveHealth #LesTurnerALS
Honoring Sharon Miller, who loved the ocean deeply. Her daughter brought her to the beach one last time — toes in the sand, joy in her smile.
#Celebrationoflife #LesTurner #HonorAndRemember
#Celebrationoflife #LesTurner #HonorAndRemember
November 12, 2025 at 6:03 PM
Honoring Sharon Miller, who loved the ocean deeply. Her daughter brought her to the beach one last time — toes in the sand, joy in her smile.
#Celebrationoflife #LesTurner #HonorAndRemember
#Celebrationoflife #LesTurner #HonorAndRemember