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longcovidphysio.bsky.social
Long COVID Physio
@longcovidphysio.bsky.social
1.9K followers 110 following 160 posts
#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies

https://bio.site/longcovidphysio
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Reposted by Long COVID Physio
longcovidsos.bsky.social
We will bust these common myths and these Myth-busting assets will be shared across our social media throughout March for #LongCovidAwarenessMonth
Please share as widely as possible, we need to get the correct messaging out there. #LongCovidRuinsLives
February 3, 2026 at 2:25 PM
Reposted by Long COVID Physio
longcovidsos.bsky.social
Myth 1: Being young and fit protects you from #LongCovid
Fact: WRONG ! all ages & fitness levels can be affected including kids & athletes - often after mild or asymptomatic infection. There’s no way to predict who will be affected or how serious that it may be
Many are still ill after 6 years!
February 3, 2026 at 2:25 PM
Reposted by Long COVID Physio
longcovidsos.bsky.social
www.who.int/europe/event...

Myth-busting #LongCovid with WHO Europe

We’re proud to support WHO Europe on this vital project tackling myths and misinformation about Long Covid, 6 years on from COVID-19 being declared a Public Health Emergency of International Concern.
Myth-busters- debunking long COVID myths and misconceptions
Misconceptions about post COVID-19 condition, more commonly known as long COVID, continue to hinder diagnosis, prevention, care and rehabilitation. To debunk these myths and misconceptions, WHO/Europ...
www.who.int
February 3, 2026 at 2:25 PM
Reposted by Long COVID Physio
uoftcovidrehab.bsky.social
Register now! The Network is excited to host the MAPLC team to present a Special Rehab Grand Rounds. This is a hybrid (online and in-person) event on Thursday April 16, 2026 from 12-1pm EDT. For more info and registration details, visit tinyurl.com/3wn253d2. #COVIDRehab
February 3, 2026 at 4:12 PM
Reposted by Long COVID Physio
nisreenalwan.bsky.social
‘Self-report’ is mindlessly stigmatised in quantitative health research in the pursuit of ‘objectivity’ so I wrote a piece reflecting on our need to do better.

Interested to hear your views about this too.
journals.plos.org/globalpublic...
The Stigma of self-report in health research: Time to reconsider what counts as “Objective”
journals.plos.org
January 29, 2026 at 9:04 AM
Reposted by Long COVID Physio
uoftcovidrehab.bsky.social
Remember to submit an abstract for the poster presentations for the 2026 International Forum on COVID Rehabilitation Research. Submissions are due TOMORROW! Review the guidelines for submission and submit here tinyurl.com/2s3ubuuf @kellyobrien25.bsky.social @drjillcameron.bsky.social
January 29, 2026 at 6:55 PM
Reposted by Long COVID Physio
longcovidkids.bsky.social
Long Covid affects around 6 in every 100 people who get COVD-19.

People of any age and health status can get Long Covid.

www.who.int/europe/event...

#MythBusters #HealthSecurity #LongCovidKids #HealthInformationIntegrity #WHO #LongCovid
Long Covid affects around 6 in every 100 people who get COVD-19. People of any age and health status can get Long Covid. Red human body graphic and the WHO logo.
January 30, 2026 at 11:48 AM
Reposted by Long COVID Physio
longcovidkids.bsky.social
Believing that certain groups are immune relies on wishful thinking - it feels true because it's simple and comforting.

BUT this false sense of safety may lead people to underestimate risk and overlook those affected.

#MythBusters #HealthSecurity #LongCovidKids #HealthInformationIntegrity #WHO
Believing that certain groups are immune relies on wishful thinking - it feels true because it's simple and comforting. BUT this false sense of safety may lead people to underestimate risk and overlook those affected. A picture of symptoms written in different colours.
January 30, 2026 at 11:48 AM
Reposted by Long COVID Physio
longcovidkids.bsky.social
Long Covid can affect anyone who has had COVID-19, regardless of age or health.

#MythBusters #HealthSecurity #LongCovidKids #HealthInformationIntegrity #WHO
Kitty, from the UK was a health, active 14-year-old who loved ballet and sport. After catching COVID-19 in early 2020, she developed Long Covid. Today at 19, she uses a wheelchair and still experiences fatigue, chronic pain, and episodes of passing out. The picture shows a photo of a teenage girl with long fair hair and glasses, she is smiling, standing in a garden with field and trees behind her. It is a sunny day with blue sky.
January 30, 2026 at 11:48 AM
Reposted by Long COVID Physio
longcovidkids.bsky.social
Today is the launch of the Myth-busters: debunking #LongCovid myths and misconceptions.

We are pleased to have supported the development of these resources with The World Health Organisation.

www.who.int/europe/event...

#MythBusters #HealthSecurity #LongCovidKids #HealthInformationIntegrity #WHO
Long Covid can affect anyone who has had COVID-19, regardless of age or health. WHO logo Despite this face, myths persist that 'being young and fit protects you from Long Covid'. This is false. The phot shows a teenage girl on her paddle board in the sea. She is standing up holding a paddle, a small dog is wearing a life jacket on the back of the board. The sky shows a sunset and is shining on the water.
January 30, 2026 at 11:48 AM
Reposted by Long COVID Physio
uoftcovidrehab.bsky.social
Don’t miss your chance to submit an abstract for the poster presentations at the 2026 International Forum on COVID Rehabilitation Research. Submissions are due Friday January 30, 2026! Review the guidelines for submission and submit here tinyurl.com/2s3ubuuf
2026 International Forum on COVID Rehabilitation Research
tinyurl.com
January 20, 2026 at 8:55 PM
Reposted by Long COVID Physio
ahandvanish.bsky.social
"We believe that internal tremors [in #LongCovid] represent... dysautonomia & small fiber neuropathy... caused by hypovolemia, cerebral hypoperfusion, hyperadrenergic state, mast cell hyperactivation, & neuropathic processes affecting small nerve fibers."

www.mdpi.com/2035-8377/17...
www.mdpi.com
January 8, 2026 at 10:04 PM
Reposted by Long COVID Physio
longcovidadvoc.com
The risk of neurological degeneration after Covid has been discussed and been a concern in the community for years.

It is not reassuring to see this research.

Covid is not mild.

@wesstreeting

🖇️👇
An infographic from Long Covid Advocacy titled "Long Covid & Alzheimer's Biomarkers." It features a side profile of a person with a glowing, digital representation of a neural network inside their brain, set against a background of soft bokeh lights. The text states that in essential workers with neurological Long Covid, plasma pTau-181 rose by approximately 59% after infection. It explains that pTau-181 is a core Alzheimer's biomarker, and its increase suggests the activation of neurodegenerative pathways without implying a clinical diagnosis of Alzheimer's disease. The source is cited as Yang et al, 2025, eBioMedicine - Lancet. Would you like me to find more information on the specific study mentioned in this graphic?
January 15, 2026 at 5:37 PM
Reposted by Long COVID Physio
longcovidsos.bsky.social
#LongCovid can break your heart; both physically and emotionally.

Not only through its impact on the cardiovascular system, but through the strain of living with an unpredictable, poorly understood illness, and the toll it takes on relationships, identity, and daily life.
An image of a broken painting of a red heart on a dark grey textured wall. On the heart it says in handwritten text “Long Covid can break your heart” and the Long Covid SOS logo in black Underneath white type says “It’s not just the physical impact a Covid infection can have on cardiovascular health - it’s the added emotional toll for those of us living with Long Covid, our families, and the people who care for us. ITS NOT JUST THE HEART ITS THE HEARTBREAK #LongCovidAwarenessDay 15/03/26”
January 15, 2026 at 9:03 PM
Reposted by Long COVID Physio
longcovidsupport.bsky.social
Today we’re launching #ForThoseWhoCant, our new fundraising campaign.

It’s about making fundraising more accessible, with ideas and guidance for friends, family, and loved ones who want to support our work.

Email [email protected] or click here for more: www.longcovid.org/get-involved...
January 16, 2026 at 11:01 AM
longcovidphysio.bsky.social
Baru hari ini 🚨🔔🚨🔔

Seri video #LongCOVID lengkap dalam Bahasa Indonesia 🇮🇩

longcovid.physio/bahasa-indon...
Serial Video Long COVID (Bahasa Indonesia) — Long COVID Physio
Long COVID Physio telah bermitra dengan FisioCamera untuk menghadirkan serangkaian video edukasi tentang Long COVID.
longcovid.physio
January 10, 2026 at 2:44 PM
Reposted by Long COVID Physio
uoftcovidrehab.bsky.social
Abstract submissions for poster presentations at the 2026 International Forum on COVID Rehabilitation Research is NOW OPEN! The deadline to submit is Friday January 30! Share your #COVIDRehab research! Review the guidelines for submission and submit here tinyurl.com/2s3ubuuf
January 6, 2026 at 6:50 PM
Reposted by Long COVID Physio
tomkindlon.bsky.social
Co-creating a social science research agenda for Long Covid by @oonaghcousins.bsky.social @nisreenalwan.bsky.social @joda.bsky.social @gailfdavies.bsky.social @profmarkfaghy.bsky.social et al.

www.frontiersin.org/journals/pub...

Screenshot from Science for ME weekly update

#LongCovid #PASC
Co-creating a social science research agenda for Long Covid — Cousins et al. "existing research points to patient experiences, public health impacts, a lack of standardized diagnostic and treatment protocols and pathways and the need for patient involvement as key areas of concern. What is not as clear is the extent to which these priorities are mirrored in the concerns expressed by those researching and living with Long Covid. Our agenda-setting exercise aims to address this gap."
December 6, 2025 at 12:53 AM
Reposted by Long COVID Physio
a-dobbie11.bsky.social
Happening just like this in Canada too.
Same recommendations are sorely needed here.
longcovidphysio.bsky.social Long COVID Physio @longcovidphysio.bsky.social · Dec 4
Please see the attached images for a press release from @longcovidphysio.bsky.social urging immediate action on the U.K. Covid-19 Public Inquiry findings from Module 2.
December 4, 2025 at 10:46 PM
longcovidphysio.bsky.social
Please see the attached images for a press release from @longcovidphysio.bsky.social urging immediate action on the U.K. Covid-19 Public Inquiry findings from Module 2.
December 4, 2025 at 9:52 PM
Reposted by Long COVID Physio
longcovidkids.bsky.social
On 28 November 2025, @bhattmurphy.bsky.social wrote to the Cabinet Office and the DHSC on behalf of the Long Covid Groups.

Find out what asked of @10dowingstreet.bsky.social here:

www.longcovidkids.org/post/letter-...

#LongCovid #CovidInquiry #LongCovidKids #Christmas
Letter to the Cabinet Office & DHSC | 28th November 2025 | Long Covid Groups
On 28 November 2025, Bhatt Murphy wrote to the Cabinet Office and the Department of Health and Social Care (DHSC). In our letter, we invite the Prime Minister to make a statement in the House of Commo...
www.longcovidkids.org
December 3, 2025 at 8:19 PM
Reposted by Long COVID Physio
martinmckee.bsky.social
8/ Obviously it's easy to be wise after the event, but everything we said at the time is on our web site for others to judge
independentsage.org
Independent SAGE – Independent scientific advice on the COVID-19 crisis, for the UK government and public.
Independent SAGE: Independent scientific advice on the COVID-19 crisis, for the UK government and public.
independentsage.org
November 20, 2025 at 4:53 PM
Reposted by Long COVID Physio
martinmckee.bsky.social
7/Data and Preparedness
Inquiry: Improve real-time, equality-disaggregated data; strengthen modelling capacity; pre-design dashboards and taskforce structures.
IS: Repeatedly highlighted data gaps (ethnicity, disability); called for transparent modelling and scenario planning.
November 20, 2025 at 4:43 PM
Reposted by Long COVID Physio
martinmckee.bsky.social
6/Governance
Inquiry: Recommends standing 4-nations forum; clear transition from COBR to long-term structures; inclusive, accountable decision-making; address toxic culture in govt.
IS: Called for collaborative, respectful four-nations approach; criticised politicisation and lack of coordination.
November 20, 2025 at 4:43 PM
Reposted by Long COVID Physio
martinmckee.bsky.social
5/Social & Economic Harms
Inquiry: Critiques unclear messaging (Stay Alert); recommends transparent, accessible campaigns; integrate behavioural science.
IS: Advocated clear, consistent messaging; criticised confusing slogans; promoted behavioural insights and ventilation messaging early.
November 20, 2025 at 4:43 PM