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Long Covid Kids @longcovidkids.bsky.social · 8d

The full video of LCK's evidence shared in yesterdays hearing for Module 8 is now available here:
Please share widely.
youtu.be/DFykYkqr5Z4
#Children #ChildrensCharity #LongCovidKids #Module8 #COVIDInquiry

Covid 19 Inquiry | Module 8 Oral Evidence of Sammie McFarland, Long Covid Kids, 01 10 2025

YouTube video by Long Covid Kids

youtu.be

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Long Covid Kids @longcovidkids.bsky.social · 6d

To read all our recommendations please head to the COVID Inquiry page of our website:
www.longcovidkids.org/uk-covid-inq...
Scroll down and select - Module 8, Witness statement, Sammie McFarland. Recommendations can be found at the end of the document.
#LongCovidKids

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Long Covid Kids @longcovidkids.bsky.social · 6d

In our recommendations to the UK COVID Inquiry
we call for a nationwide public awareness campaign to explain clearly that Long Covid in children is a debilitating and potentially disabling long-term condition.

From 2024 - Parents accused of making it up.

inews.co.uk/news/parents...

‘It’s destroyed us’: Parents of children with long Covid accused of making it up

Doctors and parents say children are being threatened with being taken into care as medics struggle to diagnose their conditions and families are placed under suspicion

inews.co.uk

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George Monbiot @georgemonbiot.bsky.social · 3d

This commission points to where the government is heading. If the problem is “overdiagnosis” – which appears to be its foregone conclusion – then large numbers of people with horrendous conditions will be put through an even more punishing regime of tests and obstacles to qualify for benefits.

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George Monbiot @georgemonbiot.bsky.social · 3d

Just as we are beginning to understand the biochemical basis of this horrendous condition, the government appoints the man perhaps most responsible for the mischaracterisation of ME/CFS – Simon Wesseley - to its *overdiagnosis* commission. www.benefitsandwork.co.uk/news/controv...

Controversial professor to investigate overdiagnosis of mental health and neurodivergence for Labour

Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments...

www.benefitsandwork.co.uk

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Kelly O'Brien @kellyobrien25.bsky.social · 2d

@sunsopeningband.bsky.social @uoftmedicine.bsky.social @longcovidphysio.bsky.social @apresj20.bsky.social @longcovidsupport.bsky.social @longcovidkids.bsky.social @breathewellphysio.bsky.social

Rehabilitation Science Research Network for COVID @uoftcovidrehab.bsky.social · 2d

New Event: Join us for the Fireside Chat: Deep dive into activity, movement, PESE and PEM in the context of Long COVID and Infection-Associated Chronic Conditions. Visit our website for more information and to register! tinyurl.com/33hd3r2a
@drjillcameron.bsky.social @kellyobrien25.bsky.social

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Prof Nisreen Alwan @nisreenalwan.bsky.social · 3d

We're inviting people who've engaged with the SLCC webtool (long-covid-care.org.uk) to take part in its evaluation to help us improve the tool &make it more relevant& helpful to pw #LongCovid. This involves a short survey(10-15m)& potentially interview(if interested)
For more info: shorturl.at/ADoh0

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Long Covid SOS @longcovidsos.bsky.social · 16d

A reminder for anyone reading that exercise is usually contraindicated for anyone with PEM/PESE; and screening for exertional intolerance should be undertaken with expert advice. We recommend resources from @longcovidphysio.bsky.social for finding out more…

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Tom Kindlon @tomkindlon.bsky.social · 21d

2 news releases
"Major report tackles Covid’s cardiovascular crisis head-on"
www.eurekalert.org/news-release...

www.eurekalert.org/news-release...

Paper
academic.oup.com/eurjpc/advan...

Very disappointing no mention of PEM or ME/CFS in paper. Rehab like this may harm some

#LongCovid #PASC

News Release 17-Sep-2025
Major new report sets out how to tackle the ‘profound and lasting impact’ of COVID-19 on cardiovascular health
Peer-Reviewed Publication
European Society of Cardiology

FacebookXLinkedInWeChatBlueskyMessageWhatsAppEmail
Key take-aways:

Covid infection and long Covid have serious effects on the heart and blood vessels, and the pandemic has had a widespread and lasting impact on cardiovascular health.

A set of expert recommendations explain how these conditions should be diagnosed, treated and prevented.

Cardiac rehabilitation is vital for Covid and long Covid patients, but many do not have access to rehabilitation programmes.

Vaccination reduces the cardiac risks of Covid, so vaccination programmes must continue.

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Dr Rachel Clarke @drrachelclarke.com · 20d

Proud to contribute frontline testimony to tonight's enraging @itvx.com documentary "The Covid Contracts: Follow the Money".

Boris Johnson's govt squandered £8.7 billion on unusable PPE, while grifters like Michelle Mone made millions.

Tonight, 10.15pm, ITV1.

www.theguardian.com/tv-and-radio...

TV tonight: an essential record of the Covid contracts scandal

An investigation into the extent of greed and deception in PPE provision. Plus: weird drama Coldwater goes off the rails. Here’s what to watch this evening

www.theguardian.com

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Long COVID Justice @longcovidjustice.org · 23d

Yes we'd love to translate Long COVID Essentials into more languages! In the meantime we're collecting links to resources in various languages for a new webpage

@longcovidphysio.bsky.social has great videos in many languages - here is the Arabic page: longcovid.physio/arabic-long-covid-video-series

(Arabic) سلسلة فيديوهات كوفيد طويل الأمد — Long COVID Physio

لقد شرعت لونغ كوفيد فيزيو في شراكة مع فيزيوكاميرا لتقديم سلسلة من الفيديوهات التعليمية حول كوفيد طويل المدى

longcovid.physio

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Open Medicine Foundation (OMF) @openmedf.bsky.social · Aug 28

OMF's Melbourne ME/CFS Collaboration published a paper on the results of a systematic review looking at cerebral blood flow in #MECFS and #orthostaticintolerance (OI). 118 studies, including over 9000 participants, were incorporated in the systematic review.

ow.ly/QZjw50WNfjt

Mapping cerebral blood flow in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and orthostatic intolerance: insights from a systematic review - Journal of Translational Medicine

Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and debilitating condition with a large proportion of patients that experience orthostatic intolerance (OI). This sy...

ow.ly

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Long Covid Kids @longcovidkids.bsky.social · Aug 28

🧡 Returning to the classroom & looking for information on how to manage with Long Covid or a realated condition?

We’ve got you covered.

Our website is full of resources - all created with lived experience and expert input at the heart.
💻 www.longcovidkids.org

#BackToSchool #Support #University

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David Osborn @safedavid3.bsky.social · Aug 22

More information can be obtained by viewing a 20 minute presentation given to the Safer Healthcare Biosafety Network on the Patient Safety Learning website. (The presentation can be downloaded as a pdf)

www.pslhub.org/learn/invest...

Presentation by David Osborn to the Safer Healthcare Biosafety Network (1 August 2025)

David Osborn presentation to the Safety Healthcare Biosafety Network

www.pslhub.org

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David Osborn @safedavid3.bsky.social · Aug 22

The document has been prepared in consultation with the HSE, British Standards Institute and stakeholders. This gives it the credibility legal persuasiveness that an issue of this importance deserves.

The guidance document itself can be downloaded here: www.bohs.org/app/uploads/....

www.bohs.org

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David Osborn @safedavid3.bsky.social · Aug 22

This definitive document fills a massive void and casts aside all the ambiguity and misinformation perpetuated within current IPC manuals (and the former ‘4-nations IPC guidance’).

See Press release here:
www.bohs.org/media-resour...

Healthcare Workers Still Exposed. Experts demand action to keep healthcare workers and patients safe. - British Occupational Hygiene Society (BOHS)

Aside from the huge loss of life and legacy of illness among healthcare workers as a result of the COVID-19 pandemic, healthcare workers are at particular risk from exposure to airborne diseases. Many...

www.bohs.org

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David Osborn @safedavid3.bsky.social · Aug 22

This has been prepared by BOHS, acknowledged experts in all matters relating to PPE and health risks at work (including microbiological risks).

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David Osborn @safedavid3.bsky.social · Aug 22

🚨😷🚨😷🚨😷🚨😷

BREAKING NEWS

At last, in the UK, we now have official guidance on the use of respirators (FFP3) vs Fluid Resistant Surgical Masks (FRSM) which has been prepared SPECIFICALLY FOR THE HEALTHCARE SECTOR.

🚨😷🚨😷🚨😷🚨😷