L Brielmaier
lynnbr2.bsky.social
L Brielmaier
@lynnbr2.bsky.social
Electronics Engineer who has ALS. Member IEEE Brain, EMBS,iBCI-CC.org.
Designed & built a custom AAC eye gaze computer.
BCI candidate to drive my exoskeleton. Python & CoPilot noob.
Interested in EAPs. #MedSky

Pinned
For those wishing to slash government medical research spending:

"Just because our lives are finite, doesn’t mean that they’re worthless.”
Ben Strauss
The Beginning of the End for Big Corporate Medicine
open.substack.com/pub/mattstol...
Worth the read
The Beginning of the End for Big Corporate Medicine
Senators Elizabeth Warren and Josh Hawley introduced legislation to break up seven out of the Fortune 20, all of which are vertically integrated health care monsters. It's about time.
open.substack.com
February 11, 2026 at 2:35 AM
Trump voters, gun owners, and Republicans began publicly turning on ICE as the Second Amendment hypocrisy collapsed and people realized, “If this happened to him, it could happen to me.”
January 27, 2026 at 1:15 AM
White House Wobbles, Distancing Trump From Initial Response to Minnesota Killing www.nytimes.com/2026/01/26/u...
He was licensed to carry a gun in Minnesota, but video from several angles shows he never pulled one, and his hands were visible as he was shot in the back.
White House Wobbles, Distancing Trump From Initial Response to Minnesota Killing
www.nytimes.com
January 26, 2026 at 11:01 PM
Congress Pressed on NIH Neurology Leadership Change www.medpagetoday.com/neurology/ge...
Congress has not weighed in on HHS's plan to eliminate NINDS as a stand alone institution.
Congress Pressed on NIH Neurology Leadership Change
Losing NINDS director threatens research momentum, AAN says
www.medpagetoday.com
January 23, 2026 at 10:01 PM
Schrödinger’s cat just got bigger: quantum physicists create largest ever ‘superposition’ www.nature.com/articles/d41...
Schrödinger’s cat just got bigger: quantum physicists create largest ever ‘superposition’
Record-breaking experiment shows that a cluster of thousands of atoms can act like a wave as well as a particle.
www.nature.com
January 22, 2026 at 4:27 PM
“There is no such thing as foreigners transferring wealth to the U.S. in the form of tariffs,”
www.wsj.com/economy/trad...
gift article
Americans Are the Ones Paying for Tariffs, Study Finds
New research contradicts President Trump’s claim that foreigners are footing the bill.
www.wsj.com
January 20, 2026 at 1:15 AM
MLK Day
January 19, 2026 at 3:50 PM
Scientists are inventing treatments for devastating diseases. There’s just one problem.
wapo.st/3LoxgBS
Scientists are inventing treatments for devastating diseases. There’s just one problem.
Gene therapy treatments for rare diseases are being developed, but getting them out of the lab has proved challenging.
wapo.st
January 11, 2026 at 5:25 PM
This week, the Senate Appropriations Committee released a bipartisan package of bills that largely scraps Mr. Trump’s planned cuts.
www.nytimes.com/2026/01/10/s...
Congress Is Reversing Trump’s Steep Budget Cuts to Science
www.nytimes.com
January 11, 2026 at 3:27 AM
Artificial intelligence begins prescribing medications in Utah

Pilot program will test how far patients and regulators are willing to trust AI in medicine.
January 7, 2026 at 5:00 PM
2026 Chevrolet Corvette C8 Stingray revamps cockpit, keeps its blue-collar supercar appeal www.msn.com/en-us/autos/...
The Roar before the Rolex is January 16th.
MSN
www.msn.com
January 4, 2026 at 7:47 PM
What we learned about microplastics in 2025 wapo.st/494jpcW
Microplastics are accumulating in the brain!
What we learned about microplastics in 2025
The year has been full of scary details about the tiny particles. Here’s what we know now.
wapo.st
January 4, 2026 at 1:28 PM
Explore this gift article from The New York Times. You can read it for free without a subscription. www.nytimes.com/2026/01/02/c...
This is a SCANDAL
A Study Is Retracted, Renewing Concerns About the Weedkiller Roundup
www.nytimes.com
January 3, 2026 at 12:18 AM
Eric Dane now in 24/7 hour care amid ALS diagnosis as estranged wife Rebecca Gayheart shares health update
www.yahoo.com/entertainmen...
via @@Yahoo
Eric Dane now in 24/7 hour care amid ALS diagnosis as estranged wife Rebecca Gayheart shares health update
Gayheart initially filed for divorce in 2018 from the ‘Grey’s Anatomy’ star, but later dismissed it to support him after his aggressive ALS diagnosis
www.yahoo.com
December 29, 2025 at 11:19 PM
Reposted by L Brielmaier
It was cold and rainy, yet it was a beautiful Christmas Day.
December 25, 2025 at 4:36 PM
Reposted by L Brielmaier
Try regifting your chronic illness.
December 25, 2025 at 4:47 PM
Long-Term Tofersen Use May Slow ALS Progression, 3-Year Data Suggest www.medpagetoday.com/neurology/ge...
"For people with the SOD1 genetic form of ALS, these results are incredibly hopeful, documenting a substantial effect on slowing this particular form of ALS," Miller told MedPage Today.
Long-Term Tofersen Use May Slow ALS Progression, 3-Year Data Suggest
Some SOD1-ALS patients showed trends toward improvements
www.medpagetoday.com
December 24, 2025 at 6:52 AM
Reposted by L Brielmaier
At Bridging Voice, we believe communication is a human right—not a luxury. We provide free, remote, personalized support so people living with ALS can stay connected and heard.

Thank you to everyone who made this impact possible in 2025 💙

Help us close out the year strong: tinyurl.com/bv-2025
December 24, 2025 at 1:37 AM
Do Parents Have Favorite Children? Of Course They Do.
And research shows the less favored children suffer for it.
www.nytimes.com/2025/12/23/w...
Do Parents Have Favorite Children? Of Course They Do.
www.nytimes.com
December 23, 2025 at 6:16 PM
Reposted by L Brielmaier
EEG waveforms (brain waves) from learningeeg.com
December 23, 2025 at 4:32 PM
Will NIH’s new director reform his agency—or destroy it?
| Science | AAAS
www.science.org/content/arti...
“We need some shaking up and we need that to happen rigorously. If we don’t, it will be done with political means.”
Will NIH’s new director reform his agency—or destroy it?
Jay Bhattacharya is struggling to make the case he’s in charge and has the agency’s best interests at heart
www.science.org
December 23, 2025 at 4:55 PM
www.propublica.org/article/rx-i...
ProPublica is launching Rx Inspector, a first-of-its-kind database that provides answers to what the FDA won’t tell us: where our generics are coming from and the track records of the factories that made them. The information is harder to find than you may think.
Rx Inspector: ProPublica’s New Tool Provides Drug Info the FDA Won’t
We’ve launched a first-of-its-kind app to help you find out where your generic drugs come from and see the track records of the factories that made them.
www.propublica.org
December 19, 2025 at 3:27 PM
The company’s NS-37 mission is targeting a launch date of December 18. It will send six people to the edge of space and back, including the first-ever wheelchair user to fly to space, aerospace engineer Michaela (Michi) Benthaus.
interestingengineering.com/space/blue-o...
Blue Origin to fly first-ever wheelchair user to space next week
Blue Origin's latest suborbital spaceflight will break new ground, furthering the company's mission to improve accessibility to space.
interestingengineering.com
December 13, 2025 at 2:49 PM
Blood test reveals clearer prognosis after cardiac arrest medicalxpress.com/news/2025-12... via @medical_xpress
"We saw that the biomarker neurofilament light, NfL, correctly identifies 92% of all patient outcomes at six months after the cardiac arrest,"
medicalxpress.com
December 13, 2025 at 2:40 AM
a charlie brown christmas 1965
(The sappy part of me emerges.)
Each year, Apple TV+ offers a window in which viewers can watch the show without a subscription.

This year's free-viewing window for “A Charlie Brown Christmas” is on Saturday, Dec. 13 and Sunday, Dec. 14.
tv.apple.com/us/movie/a-c...
Watch A Charlie Brown Christmas - Apple TV
Feeling down about the commercialism of Christmas, Charlie Brown becomes the director of the gang's holiday play. Can he overcome his friends’ prefere…
tv.apple.com
December 9, 2025 at 10:51 AM