I'm sorry to hear that! It is def an intense one / not to be taken lightly. unfortunately with my cancer situation I can't play around with things as much as I'd like

lots of immunomodulator trials these days e.g. low dose rapamycin, but hard to know what to try without better data!

yes, putting my detective hat on to try and discover how this is related because surely it is .. immune system can't kill ANYTHING

thanks for working with me on this, Rachel <3 happy this made it to publication!

pleasure working with @thesicktimes.org <3

interview in which I am called "quick-witted" 🤓 and a little about my experience with (mild/mod) me/cfs rosebwong.substack.com/p/the-life-c...

I am the commenter sparring on your behalf on the website - really enjoyed this as a fellow writer with LC - best wishes!

right, seems like a challenging feedback loop. thanks for answering!

lol, I submitted a question on this which was notably ignored

I was also on this call - one issue from my experience reading LC Reddit and other sites is that some people don't seem to know the difference between PEM and other types of fatigue (from POTS for instance). Wondering if the same is at play here/what screening questions were used