#PIK3R1 and PIK3CA mutations with Capillary Malformation with #DilatedVeins (CMDV) lnkd.in/e2UAUKJr JID cover video lnkd.in/eUSWXYFN features #MRI with #hyperintense slow-flowing blood in dilated veins. A great collaboration within our #VACure and #Leducq networks. #VASCAPA #HEVAS #CMTC #VASCERN
January 22, 2026 at 5:29 PM
#PIK3R1 and PIK3CA mutations with Capillary Malformation with #DilatedVeins (CMDV) lnkd.in/e2UAUKJr JID cover video lnkd.in/eUSWXYFN features #MRI with #hyperintense slow-flowing blood in dilated veins. A great collaboration within our #VACure and #Leducq networks. #VASCAPA #HEVAS #CMTC #VASCERN
Congratulations Emmanuel on showing how #sirolimus treatment can be adapted. #patients with #slow-#flow #vascular #malformations have #symptom reduction even with #intermittent dosing. A big step forward in the #multimodal management of VAs. #VASCERN #VASCAPA #CMTC #HEVAS #ISSVA #EVDays #Lymph
December 17, 2025 at 7:25 AM
Congratulations Emmanuel on showing how #sirolimus treatment can be adapted. #patients with #slow-#flow #vascular #malformations have #symptom reduction even with #intermittent dosing. A big step forward in the #multimodal management of VAs. #VASCERN #VASCAPA #CMTC #HEVAS #ISSVA #EVDays #Lymph
The virtual #European #Angiology Days (EADays) 2025 are just over. Great presentations and discussions. And easy access - no travel !! Stay tuned for the #EADays – VAS-INT 2026 meeting, which will take place virtually from 27 to 29 November, 2026. #VASCERN #VASCAPA #HEVAS #CMTC #ISSVA #NAVBO #EVBO
December 15, 2025 at 1:41 PM
Congratulations to all 3 young investigators who received the 1st International Joint Young Investigator/Clinician Awards in #Vascular #Medicine during the virtual #European #Angiology Days 2025 Dr #Annegret Holm, Dr J Mangulabnan, and Dr Anne Miralles-Amora. #VASCERN #VASCA #VASCAPA #HEVAS #CMTC
December 15, 2025 at 1:38 PM
Congratulations Peyman for the identification of associations between #variants in #spliceosomal genes and the occurrence of #cleft #lip and #palate. A #complex disease and #heterogeneous underlying pathophysiology. #Radiorg #eurordis #CLP #WELRI onlinelibrary.wiley.com/journal/humu/
December 15, 2025 at 12:33 PM
Congratulations Peyman for the identification of associations between #variants in #spliceosomal genes and the occurrence of #cleft #lip and #palate. A #complex disease and #heterogeneous underlying pathophysiology. #Radiorg #eurordis #CLP #WELRI onlinelibrary.wiley.com/journal/humu/
Great 2 days at #French Society of #Lymphology in Toulouse on lymphatic malformations, lymphoedema and lipedema. Illustrative presentations, pertinent questions and collegial discussions. Humbling to be part of the faculty. #vascapa #hevas #CMTC #Welbio #eshg #revamp #VASCERN #eurordis #lymph #LM
December 5, 2025 at 5:17 PM
Great two sessions this morning at the mammouth size 2025 #AHA on various aspects of lymphatic and vascular situations of interest to cardiologists. Naturally I was addressing the #genetic basis and pathophysiology of #primary #lymphedema. #vascern #eshg #hevas #cmtc #welbio #theralymp #lymph
November 7, 2025 at 6:08 PM
So happy to have been able to teach about genetics and theragnostics on vascular anomalies at the 18th European Course in Neuroradiology. An extensive, high level course for all those interested in specialising in the field. Humbling to be part of the faculty.
November 2, 2025 at 6:19 PM
So happy to have been able to teach about genetics and theragnostics on vascular anomalies at the 18th European Course in Neuroradiology. An extensive, high level course for all those interested in specialising in the field. Humbling to be part of the faculty.
Learning of complex regulatory affairs in rare disease field at World Orphan Drug Congress Amsterdam. Great to see #EMA discussing with clinicians, patients and industry. But a lot to be done to accelerate development of drugs for orphan diseases. #vascapa #welbio #hevas #cmtc #eshg #vascern #esl
October 29, 2025 at 9:46 AM
It was a great International Society of Lymphology conference in Antalya. Thank you for the great organisation Pinar. Lots of news ideas and new collaborations 🤩
October 19, 2025 at 6:00 PM
It was a great International Society of Lymphology conference in Antalya. Thank you for the great organisation Pinar. Lots of news ideas and new collaborations 🤩
What a Great visit to the Mendel museum this afternoon. Atbthe the roots of Mendelian genetics.
October 3, 2025 at 9:49 PM
What a Great visit to the Mendel museum this afternoon. Atbthe the roots of Mendelian genetics.
So happy to be part of the Annual Pediatric Hématome -Oncology meeting of Czechia and Slovakia in Brno, the birth place of Mendelian Genetics 🤩
October 3, 2025 at 10:25 AM
So happy to be part of the Annual Pediatric Hématome -Oncology meeting of Czechia and Slovakia in Brno, the birth place of Mendelian Genetics 🤩
It was indeed a great ReVAMP LEDUCQ meeting in Orford. We have a great network.
Another successful #leducq #ReVAMP meeting held at Orford, Canada! Great science, food and friendship... Thanks @ondinecleaver.bsky.social for hosting us and showing us the way up the mountain! A la prochaine!
September 10, 2025 at 6:59 AM
It was indeed a great ReVAMP LEDUCQ meeting in Orford. We have a great network.
Reposted by Miikka Vikkula
Are you working to advance research in rare diseases or rare cancers? This is for you! Apply to ERDERA’s Networking Support Scheme by 7 Oct 2025 ⏰ 🔗 Find more information on applying here: https://loom.ly/CwIvcvM
#ERDERA #ResearchFunding
#ERDERA #ResearchFunding
September 10, 2025 at 6:05 AM
Are you working to advance research in rare diseases or rare cancers? This is for you! Apply to ERDERA’s Networking Support Scheme by 7 Oct 2025 ⏰ 🔗 Find more information on applying here: https://loom.ly/CwIvcvM
#ERDERA #ResearchFunding
#ERDERA #ResearchFunding
Reposted by Miikka Vikkula
Thank you to everyone who joined the #WRISymposium for a day of exciting #VascularBiology research and great discussions—see you next year!
June 11, 2025 at 4:02 AM
Thank you to everyone who joined the #WRISymposium for a day of exciting #VascularBiology research and great discussions—see you next year!
It was again a great Lymphatic Forum, this time in Chicago. From basic lymphatic endothelial cell biology to clinical trials on lymphatic diseases. Looking forward to the 2027 one.
June 15, 2025 at 8:07 PM
It was again a great Lymphatic Forum, this time in Chicago. From basic lymphatic endothelial cell biology to clinical trials on lymphatic diseases. Looking forward to the 2027 one.
It was great to be able to add a small human bit to the story. # VASCAPA #vascern #cmtc #Hevas #vascapa #evbo #navbo
We hope these findings bring us closer to better treatments for this challenging condition. #vascularbiology #PIK3CA #venousmalformation
Huge thanks to our fantastic collaborators Michael Potente, René Hägerling, Friedrich Kapp, @mvikkula.bsky.social, Laurence Boon, @ruibenedito.bsky.social
Huge thanks to our fantastic collaborators Michael Potente, René Hägerling, Friedrich Kapp, @mvikkula.bsky.social, Laurence Boon, @ruibenedito.bsky.social
May 25, 2025 at 6:01 PM
If you are interested in the clinical aspects of lymphatic diseases, don't miss the 30th ISL World Congress of Lymphology. #lymph @vascern.bsky.social
#issva #theralymph
#issva #theralymph
May 9, 2025 at 12:00 PM
If you are interested in the clinical aspects of lymphatic diseases, don't miss the 30th ISL World Congress of Lymphology. #lymph @vascern.bsky.social
#issva #theralymph
#issva #theralymph
Reposted by Miikka Vikkula
Join us! Abstract submissions due in one week
March 10, 2025 at 8:54 PM
Join us! Abstract submissions due in one week
Reposted by Miikka Vikkula
It was absolutely fantastic Li-Kun. Great organisation. And thought provoking discussions. Thank you for all.
Had the absolute pleasure of hosting the Leducq ReVAMP biannual meeting @riken-bdr.bsky.social in Kobe this spring! #endothelial #mechanobiology #vascularmalformations See you all again in Fall @ondinecleaver.bsky.social @mvikkula.bsky.social
April 22, 2025 at 10:02 AM
It was absolutely fantastic Li-Kun. Great organisation. And thought provoking discussions. Thank you for all.
Reposted by Miikka Vikkula
Great WCPD with several sessions on vascular anomalies. Launch of the Vascular Anomaly book with M. Cordisco, D. Teplisky and N. Torres as Editors. Happy to meet again the Garrahan Hospital VA-team and many other colleagues, to make progress the care of VAs. #VASCAPA, #HEVAS, #CMTC, #VASCERN, #LE&RN
April 10, 2025 at 6:19 PM
Great WCPD with several sessions on vascular anomalies. Launch of the Vascular Anomaly book with M. Cordisco, D. Teplisky and N. Torres as Editors. Happy to meet again the Garrahan Hospital VA-team and many other colleagues, to make progress the care of VAs. #VASCAPA, #HEVAS, #CMTC, #VASCERN, #LE&RN
