nam kiwanuka
@namshine.bsky.social
“..finally diagnosed with Hypermobile Ehlers-Danlos syndrome (hEDS), which caused the ligaments connecting her skull and spine to loosen…a condition called craniocervical instability (CCI). Doctors told Brooks that any sudden movement could cause an internal decapitation”
people.com/internal-dec...
people.com/internal-dec...
Woman Nearly Suffers 'Internal Decapitation' After Being Dismissed by Doctors for 20 Years: ‘I Was Being Treated Like a Joke’
Katlyn Brooks’ debilitating symptoms were dismissed for years as anxiety and depression. She was finally diagnosed with Hypermobile Ehlers-Danlos syndrome (hEDS), but doctors discovered she was close ...
people.com
December 7, 2025 at 12:39 AM
“..finally diagnosed with Hypermobile Ehlers-Danlos syndrome (hEDS), which caused the ligaments connecting her skull and spine to loosen…a condition called craniocervical instability (CCI). Doctors told Brooks that any sudden movement could cause an internal decapitation”
people.com/internal-dec...
people.com/internal-dec...
Reposted by nam kiwanuka
I have some characteristics of EDS I have the hypermobility just not enough for a formal diagnosis of EDS.
If you haven’t heard of EDS give yourself the moment to become introduced to the condition.
If you haven’t heard of EDS give yourself the moment to become introduced to the condition.
Ehlers-Danlos Syndrome was first classified in 1968 with 5 types. Today there are 13 — and hypermobile EDS makes up 90% of cases. Women = 70%. Diagnosis can take 4–16 yrs. On (MIS)Treated, @namshine.bsky.social talks to Sydney Gesualdi about EDS & Craniocervical Instability.
December 5, 2025 at 9:39 PM
I have some characteristics of EDS I have the hypermobility just not enough for a formal diagnosis of EDS.
If you haven’t heard of EDS give yourself the moment to become introduced to the condition.
If you haven’t heard of EDS give yourself the moment to become introduced to the condition.
70% of those diagnosed with Ehlers-Danlos Syndrome are women & those with EDS are more likely to be diagnosed with Craniocervical Instability. It takes 4 to 16 years to be diagnosed with EDS. Because of how complicated both conditions are, we’re working on a miniseries on this. Look for early 2026.
Ehlers-Danlos Syndrome was first classified in 1968 with 5 types. Today there are 13 — and hypermobile EDS makes up 90% of cases. Women = 70%. Diagnosis can take 4–16 yrs. On (MIS)Treated, @namshine.bsky.social talks to Sydney Gesualdi about EDS & Craniocervical Instability.
December 5, 2025 at 10:27 PM
70% of those diagnosed with Ehlers-Danlos Syndrome are women & those with EDS are more likely to be diagnosed with Craniocervical Instability. It takes 4 to 16 years to be diagnosed with EDS. Because of how complicated both conditions are, we’re working on a miniseries on this. Look for early 2026.
Hysterectomies are the 2nd most common surgery for women behind C-Sections. They’re recommended for everything from uterine fibroids to endometriosis (which it doesn’t cure). It’s still a common surgery even though research shows that getting one too young can impact your brain health later in life.
"If you get a hysterectomy, you need to talk to your doctor about keeping your ovaries if possible." – @mnrajah.bsky.social (@torontomet.bsky.social)
On the next (MIS)Treated, she tells @namshine.bsky.social about how menopause impacts women’s brain and the risks of early hysterectomies.
On the next (MIS)Treated, she tells @namshine.bsky.social about how menopause impacts women’s brain and the risks of early hysterectomies.
December 4, 2025 at 8:37 PM
Hysterectomies are the 2nd most common surgery for women behind C-Sections. They’re recommended for everything from uterine fibroids to endometriosis (which it doesn’t cure). It’s still a common surgery even though research shows that getting one too young can impact your brain health later in life.
Reposted by nam kiwanuka
Why EDS is more than "just loose joints" podcasts.apple.com/ca/podcast/w... @namshine.bsky.social
Why EDS is more than
Podcast Episode · (MIS)Treated · 2025-12-02 · 38m
podcasts.apple.com
December 2, 2025 at 6:23 PM
Why EDS is more than "just loose joints" podcasts.apple.com/ca/podcast/w... @namshine.bsky.social
“A new report that says more than one million Ontario residents needed a food bank in the past year is "disheartening" but not surprising, says the CEO of Toronto's Daily Bread Food Bank.”
www.cbc.ca/news/canada/...
www.cbc.ca/news/canada/...
Report on 'escalating' food bank use in Ontario not surprising, expert says | CBC News
A new report that says more than one million Ontario residents needed a food bank in the past year is "disheartening" but not surprising, says the CEO of Toronto's Daily Bread Food Bank.
www.cbc.ca
December 2, 2025 at 5:14 PM
“A new report that says more than one million Ontario residents needed a food bank in the past year is "disheartening" but not surprising, says the CEO of Toronto's Daily Bread Food Bank.”
www.cbc.ca/news/canada/...
www.cbc.ca/news/canada/...
Women make up 70% of diagnosed cases for Ehlers-Danlos Syndrome and it can take 4 to 16 years to get a diagnosis in Canada. To be diagnosed with Craniocervical Instability, Sydney had to crowdfund & travel to the states for care. Look for deeper investigation of this in 2026 on (MIS)Treated podcast.
"I believe that it's no coincidence that a condition that predominantly affects women has been so under-recognized and neglected both systemically and medically." On (MIS)Treated, @namshine.bsky.social talks to Sydney Gesualdi about EDS & Craniocervical Instability.
December 2, 2025 at 4:59 PM
Women make up 70% of diagnosed cases for Ehlers-Danlos Syndrome and it can take 4 to 16 years to get a diagnosis in Canada. To be diagnosed with Craniocervical Instability, Sydney had to crowdfund & travel to the states for care. Look for deeper investigation of this in 2026 on (MIS)Treated podcast.
Reposted by nam kiwanuka
"I believe that it's no coincidence that a condition that predominantly affects women has been so under-recognized and neglected both systemically and medically." On (MIS)Treated, @namshine.bsky.social talks to Sydney Gesualdi about EDS & Craniocervical Instability.
December 2, 2025 at 4:25 PM
"I believe that it's no coincidence that a condition that predominantly affects women has been so under-recognized and neglected both systemically and medically." On (MIS)Treated, @namshine.bsky.social talks to Sydney Gesualdi about EDS & Craniocervical Instability.
Reposted by nam kiwanuka
What is “lean PCOS”? Can you get pregnant with PCOS? Is it curable? PCOS affects millions, yet symptoms are often missed. @namshine.bsky.social talks with actor Andrea Lewis and researcher Kendall Soucie (@uwindsor.bsky.social) on (MIS)Treated about living with PCOS and the research shaping care.
November 27, 2025 at 9:08 PM
What is “lean PCOS”? Can you get pregnant with PCOS? Is it curable? PCOS affects millions, yet symptoms are often missed. @namshine.bsky.social talks with actor Andrea Lewis and researcher Kendall Soucie (@uwindsor.bsky.social) on (MIS)Treated about living with PCOS and the research shaping care.
“Ontario recorded the highest number of wait-list deaths: 10,634, including more than 9,100 diagnostic-scan deaths where patients died before reaching the point of receiving or being scheduled for surgery.”
www.ctvnews.ca/health/artic...
www.ctvnews.ca/health/artic...
Tens of thousands of Canadians died waiting for medical care in the past year: report
A new report is raising alarm over growing wait-list deaths in Canada.
www.ctvnews.ca
November 26, 2025 at 4:02 PM
“Ontario recorded the highest number of wait-list deaths: 10,634, including more than 9,100 diagnostic-scan deaths where patients died before reaching the point of receiving or being scheduled for surgery.”
www.ctvnews.ca/health/artic...
www.ctvnews.ca/health/artic...
Reposted by nam kiwanuka
"Most venture capital investors are men... And they don't want to talk about vaginas in a business setting." — Marina Gerner, author of "The Vagina Business," tells @namshine.bsky.social on (MIS)Treated. Is #femtech the answer to the underfunding of women's health and investor bias?
November 25, 2025 at 5:05 PM
"Most venture capital investors are men... And they don't want to talk about vaginas in a business setting." — Marina Gerner, author of "The Vagina Business," tells @namshine.bsky.social on (MIS)Treated. Is #femtech the answer to the underfunding of women's health and investor bias?
But how is this safe? Face recognition for children??
“The company had previously announced the age estimation tool, which is provided by a company called Persona, in July. It requires players to take a video selfie that will be used to estimate their age.“
www.cbc.ca/news/enterta...
“The company had previously announced the age estimation tool, which is provided by a company called Persona, in July. It requires players to take a video selfie that will be used to estimate their age.“
www.cbc.ca/news/enterta...
Roblox introduces new safety guidelines to verify user's ages, group users into age-based chats | CBC News
The rules will make it so kids and teens can only message people within a similar age group to their own. The moves come as the popular gaming platform continues to face criticism and lawsuits over ch...
www.cbc.ca
November 22, 2025 at 4:35 AM
But how is this safe? Face recognition for children??
“The company had previously announced the age estimation tool, which is provided by a company called Persona, in July. It requires players to take a video selfie that will be used to estimate their age.“
www.cbc.ca/news/enterta...
“The company had previously announced the age estimation tool, which is provided by a company called Persona, in July. It requires players to take a video selfie that will be used to estimate their age.“
www.cbc.ca/news/enterta...
Reposted by nam kiwanuka
Women in Canada spend 24% more time in ill health than men. That’s from McKinsey Health Institute’s report “Closing the women’s health gap: Canada’s $37B opportunity.” @namshine.bsky.social talks with Marie-Renée B-Lajoie about why this matters, on (MIS)Treated: podcasts.apple.com/ca/podcast/t...
November 21, 2025 at 5:54 PM
Women in Canada spend 24% more time in ill health than men. That’s from McKinsey Health Institute’s report “Closing the women’s health gap: Canada’s $37B opportunity.” @namshine.bsky.social talks with Marie-Renée B-Lajoie about why this matters, on (MIS)Treated: podcasts.apple.com/ca/podcast/t...
Reposted by nam kiwanuka
“I was desperate.” @evelynscott.bsky.social lived with severe pain for 15 years from endometriosis, her symptoms dismissed as "just period" pain, before having a hysterectomy — then the symptoms returned. Hear her story on (MIS)Treated with @namshine.bsky.social podcasts.apple.com/ca/podcast/m...
November 18, 2025 at 3:25 PM
“I was desperate.” @evelynscott.bsky.social lived with severe pain for 15 years from endometriosis, her symptoms dismissed as "just period" pain, before having a hysterectomy — then the symptoms returned. Hear her story on (MIS)Treated with @namshine.bsky.social podcasts.apple.com/ca/podcast/m...
Reposted by nam kiwanuka
Double your impact this #GivingTuesday! Until Dec. 2, every dollar to @wearetvo.bsky.social is matched up to $250K. Join @namshine.bsky.social in keeping media literacy in focus with journalism, documentaries and podcasts like [MIS]Treated. Give today: givingtuesday.tvo.me
November 17, 2025 at 5:27 PM
Double your impact this #GivingTuesday! Until Dec. 2, every dollar to @wearetvo.bsky.social is matched up to $250K. Join @namshine.bsky.social in keeping media literacy in focus with journalism, documentaries and podcasts like [MIS]Treated. Give today: givingtuesday.tvo.me
Reposted by nam kiwanuka
Wrapped my day with my Author Talk at Pickering Library, hosted by the incomparable @namshine.bsky.social. My heart is so full!
November 15, 2025 at 10:54 PM
Wrapped my day with my Author Talk at Pickering Library, hosted by the incomparable @namshine.bsky.social. My heart is so full!
Reposted by nam kiwanuka
We don't know what causes endometriosis, there's no cure and no one medication to treat it. On the next (MIS)Treated, @namshine.bsky.social speaks to @evelynscott.bsky.social about her 15-year struggle to be diagnosed, after her symptoms were repeatedly dismissed. podcasts.apple.com/ca/podcast/m...
November 13, 2025 at 9:37 PM
We don't know what causes endometriosis, there's no cure and no one medication to treat it. On the next (MIS)Treated, @namshine.bsky.social speaks to @evelynscott.bsky.social about her 15-year struggle to be diagnosed, after her symptoms were repeatedly dismissed. podcasts.apple.com/ca/podcast/m...
Reposted by nam kiwanuka
@namshine.bsky.social is doing such critical work with (MIS)Treated.
Women were excluded from clinical trails until 1993 in the U.S. and 1997 in Canada. @namshine.bsky.social talks with @docmcohen.medsky.social (@queensuhealth.bsky.social) about excluding women has shaped medicine and harmed women’s health, on (MIS)Treated: podcasts.apple.com/ca/podcast/w...
November 12, 2025 at 4:59 PM
@namshine.bsky.social is doing such critical work with (MIS)Treated.
Reposted by nam kiwanuka
Women were excluded from clinical trials until 1997?!?
Women were excluded from clinical trails until 1993 in the U.S. and 1997 in Canada. @namshine.bsky.social talks with @docmcohen.medsky.social (@queensuhealth.bsky.social) about excluding women has shaped medicine and harmed women’s health, on (MIS)Treated: podcasts.apple.com/ca/podcast/w...
November 12, 2025 at 12:49 PM
Women were excluded from clinical trials until 1997?!?
Reposted by nam kiwanuka
I spoke with @namshine.bsky.social on her TVO podcast (Mis)Treated about the historical lack of medical research on women and why that matters.
www.tvo.org/video/why-we...
www.tvo.org/video/why-we...
November 12, 2025 at 3:11 PM
I spoke with @namshine.bsky.social on her TVO podcast (Mis)Treated about the historical lack of medical research on women and why that matters.
www.tvo.org/video/why-we...
www.tvo.org/video/why-we...
Reposted by nam kiwanuka
Most white colleges wouldn’t accept Black students, and Black colleges didn’t have the capacity to handle the post-war demand—by 1947, as many as 50,000 qualified Black veterans had been turned away.
How a hostile America undermined its Black WWII veterans
Servicemembers were attacked, discredited, and shortchanged on GI benefits—with lasting implications.
www.motherjones.com
November 11, 2025 at 11:04 PM
Most white colleges wouldn’t accept Black students, and Black colleges didn’t have the capacity to handle the post-war demand—by 1947, as many as 50,000 qualified Black veterans had been turned away.
Reposted by nam kiwanuka
This is such an important episode. It explains a lot of experiences we have living in women’s bodies.
Women were excluded from clinical trails until 1993 in the U.S. and 1997 in Canada. @namshine.bsky.social talks with @docmcohen.medsky.social (@queensuhealth.bsky.social) about excluding women has shaped medicine and harmed women’s health, on (MIS)Treated: podcasts.apple.com/ca/podcast/w...
November 11, 2025 at 6:25 PM
This is such an important episode. It explains a lot of experiences we have living in women’s bodies.
Reposted by nam kiwanuka
Women were excluded from clinical trails until 1993 in the U.S. and 1997 in Canada. @namshine.bsky.social talks with @docmcohen.medsky.social (@queensuhealth.bsky.social) about excluding women has shaped medicine and harmed women’s health, on (MIS)Treated: podcasts.apple.com/ca/podcast/w...
November 11, 2025 at 5:33 PM
Women were excluded from clinical trails until 1993 in the U.S. and 1997 in Canada. @namshine.bsky.social talks with @docmcohen.medsky.social (@queensuhealth.bsky.social) about excluding women has shaped medicine and harmed women’s health, on (MIS)Treated: podcasts.apple.com/ca/podcast/w...
Reposted by nam kiwanuka
"My health concerns were dismissed," said Dieulita Datus at a panel hosted by @namshine.bsky.social. Nam speaks with @keariedaniel.bsky.social (Black Women's Institute for Health) about Canada’s first national health survey of Black women and girls on (MIS)Treated: podcasts.apple.com/ca/podcast/t...
November 7, 2025 at 6:36 PM
"My health concerns were dismissed," said Dieulita Datus at a panel hosted by @namshine.bsky.social. Nam speaks with @keariedaniel.bsky.social (Black Women's Institute for Health) about Canada’s first national health survey of Black women and girls on (MIS)Treated: podcasts.apple.com/ca/podcast/t...
“A CNN review of nearly 70 pages of chats between Shamblin and the AI tool… found that the chatbot repeatedly encouraged the young man as he discussed ending his life – right up to his last moments.”
www.ctvnews.ca/sci-tech/art...
www.ctvnews.ca/sci-tech/art...
‘You’re not rushing. You’re just ready:’ Parents say ChatGPT encouraged son to kill himself
A 23-year-old man killed himself in Texas after ChatGPT ‘goaded’ him to commit suicide, his family says in a lawsuit.
www.ctvnews.ca
November 7, 2025 at 3:43 PM
“A CNN review of nearly 70 pages of chats between Shamblin and the AI tool… found that the chatbot repeatedly encouraged the young man as he discussed ending his life – right up to his last moments.”
www.ctvnews.ca/sci-tech/art...
www.ctvnews.ca/sci-tech/art...