phaware®
@phaware.bsky.social
Help make the 🌎 #phaware. Pulmonary hypertension (PH) is a rare, life-threatening disease of the lungs that can lead to right heart failure. 💜💙💚🧡❤️ Phaware Global Association is a 501c3 [email protected] www.phaware.global. www.phawarepodcast.com
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phaware®
@phaware.bsky.social
· Jan 6
Thank you Feedspot for naming I'm Aware That I'm Rare: the @phaware.bsky.social podcast the #1 "Best Pulmonary Hypertension Podcast You Must Follow in 2025!" ranked by relevancy, authority, social media follows and freshness. Like, Follow, Subscribe: www.phawarepodcast.com
Scars and Survival: Rebuilding Life After a Devastating Diagnosis. After countless hospital stays, new medications, and near-breaking points, Sophia Esteves found the reason she wanted to live -- and it wasn’t just for herself. @phaware podcast ep 548 medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Sophia Esteves (548)
the phaware® interview
medium.com
November 25, 2025 at 3:08 PM
Scars and Survival: Rebuilding Life After a Devastating Diagnosis. After countless hospital stays, new medications, and near-breaking points, Sophia Esteves found the reason she wanted to live -- and it wasn’t just for herself. @phaware podcast ep 548 medium.com/p/im-aware-t...
phaware global association® presents a RooandKanga production: Aware I’m Rare. A BREATHTAKING SHORT FILM ABOUT PULMONARY HYPERTENSION.
Streaming this December exclusively on the Heart Works app. Learn More: phaware.global/heartworksapp
@phaware.bsky.social
Streaming this December exclusively on the Heart Works app. Learn More: phaware.global/heartworksapp
@phaware.bsky.social
November 19, 2025 at 3:37 PM
phaware global association® presents a RooandKanga production: Aware I’m Rare. A BREATHTAKING SHORT FILM ABOUT PULMONARY HYPERTENSION.
Streaming this December exclusively on the Heart Works app. Learn More: phaware.global/heartworksapp
@phaware.bsky.social
Streaming this December exclusively on the Heart Works app. Learn More: phaware.global/heartworksapp
@phaware.bsky.social
The Silent Rise of Chronic Pulmonary Embolism and the Tech That’s Changing Everything. Dr. Richard Channick discusses the cutting-edge interventions in the treatment of pulmonary embolism. @phaware.bsky.social podcast ep 547 #CTEPH @uclahealth.org @accpchest.bsky.social medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Richard Channick, MD (547)
the phaware® interview
medium.com
November 18, 2025 at 4:39 PM
The Silent Rise of Chronic Pulmonary Embolism and the Tech That’s Changing Everything. Dr. Richard Channick discusses the cutting-edge interventions in the treatment of pulmonary embolism. @phaware.bsky.social podcast ep 547 #CTEPH @uclahealth.org @accpchest.bsky.social medium.com/p/im-aware-t...
Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. Learn why ruling out #CTEPH should be step one for any PH diagnosis. @phaware.bsky.social podcast 546 @ucsdhealth.bsky.social #phawareMD medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Jenny Yang, MD (546)
the phaware® interview
medium.com
November 11, 2025 at 4:44 PM
Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. Learn why ruling out #CTEPH should be step one for any PH diagnosis. @phaware.bsky.social podcast 546 @ucsdhealth.bsky.social #phawareMD medium.com/p/im-aware-t...
Despite better tools and more awareness, people with pulmonary hypertension are still being diagnosed too late. Dr. Victor Test opens up about the biggest barrier in PH today @phaware.bsky.social podcast ep 545 #phawareMD @accpchest.bsky.social @redraiderpulmcc medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Victor Test, MD, FCCP (545)
the phaware® interview
medium.com
November 4, 2025 at 3:44 PM
Despite better tools and more awareness, people with pulmonary hypertension are still being diagnosed too late. Dr. Victor Test opens up about the biggest barrier in PH today @phaware.bsky.social podcast ep 545 #phawareMD @accpchest.bsky.social @redraiderpulmcc medium.com/p/im-aware-t...
How TBX4Life Is Fueling a Global Collaboration. LaRae Hacker never set out to become a rare disease advocate—but when her daughter’s TBX4 diagnosis left her feeling helpless, she found power in connection. @phaware.bsky.social podcast ep 544 @TBX4_Life phaware.medium.com/im-aware-tha...
I’m Aware That I’m Rare: LaRae Hacker (544)
the phaware® interview
phaware.medium.com
October 28, 2025 at 2:50 PM
How TBX4Life Is Fueling a Global Collaboration. LaRae Hacker never set out to become a rare disease advocate—but when her daughter’s TBX4 diagnosis left her feeling helpless, she found power in connection. @phaware.bsky.social podcast ep 544 @TBX4_Life phaware.medium.com/im-aware-tha...
How He Survived Meth Addiction, Lung Failure, and Found Purpose. Anthony Carrasco was a meth addict by 15, and nearly dead by 35. But a double lung transplant and a deep surrender to recovery transformed everything. @phaware.bsky.social podcast ep 543 @JNJInnovMed medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Anthony Carrasco (543)
the phaware® interview
medium.com
October 21, 2025 at 1:14 PM
How He Survived Meth Addiction, Lung Failure, and Found Purpose. Anthony Carrasco was a meth addict by 15, and nearly dead by 35. But a double lung transplant and a deep surrender to recovery transformed everything. @phaware.bsky.social podcast ep 543 @JNJInnovMed medium.com/p/im-aware-t...
Treating Meth-Associated PAH Without Judgment. Dr. Brandon Jakubowski takes us into the under-recognized world of stimulant-induced pulmonary arterial hypertension. @phaware.bsky.social podcast ep 542 #Methamphetamine @JNJInnovMed #phawareMD @UTSWMedCenter medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Brandon Jakubowski, MD (542)
the phaware® interview
medium.com
October 14, 2025 at 4:20 PM
Treating Meth-Associated PAH Without Judgment. Dr. Brandon Jakubowski takes us into the under-recognized world of stimulant-induced pulmonary arterial hypertension. @phaware.bsky.social podcast ep 542 #Methamphetamine @JNJInnovMed #phawareMD @UTSWMedCenter medium.com/p/im-aware-t...
The Face of Addiction Isn’t Who You Think It Is. Dr. Nicholas Kolaitis reveals how building trust with meth associated-PAH patients can lead to incredible turnarounds. @phaware.bsky.social podcast ep 541 #phawareMD @JNJInnovMed @UCSFHospitals @LungTxptMD medium.com/@phaware/im-...
I’m Aware That I’m Rare: Nicholas Kolaitis, MD (541)
the phaware® interview
medium.com
October 7, 2025 at 3:06 PM
The Face of Addiction Isn’t Who You Think It Is. Dr. Nicholas Kolaitis reveals how building trust with meth associated-PAH patients can lead to incredible turnarounds. @phaware.bsky.social podcast ep 541 #phawareMD @JNJInnovMed @UCSFHospitals @LungTxptMD medium.com/@phaware/im-...
How Stigma Blocks Meth-PAH Treatment and How to Stop It. Dr. Peter Leary explains how a change in mindset, language, and compassion can transform outcomes for a neglected and growing patient population. @phaware.bsky.social podcast ep 540 #Meth @JNJInnovMed medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Peter Leary, MD (540)
the phaware® interview
medium.com
September 30, 2025 at 2:51 PM
How Stigma Blocks Meth-PAH Treatment and How to Stop It. Dr. Peter Leary explains how a change in mindset, language, and compassion can transform outcomes for a neglected and growing patient population. @phaware.bsky.social podcast ep 540 #Meth @JNJInnovMed medium.com/p/im-aware-t...
Dr. Vinicio de Jesus Perez discusses The Hidden Epidemic: Meth and PH and the need for compassionate, stigma-free screening. @phaware.bsky.social podcast ep 539 @PHatStanford @Viniciodjperez #MA-PAH #Methamphetamine @JNJInnovMed phaware.medium.com/im-aware-tha...
I’m Aware That I’m Rare: Vinicio de Jesus Perez, MD (539)
the phaware® interview
phaware.medium.com
September 23, 2025 at 3:09 PM
Dr. Vinicio de Jesus Perez discusses The Hidden Epidemic: Meth and PH and the need for compassionate, stigma-free screening. @phaware.bsky.social podcast ep 539 @PHatStanford @Viniciodjperez #MA-PAH #Methamphetamine @JNJInnovMed phaware.medium.com/im-aware-tha...
Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, challenging misconceptions and the need for compassion in treating both PAH and addiction. @phaware.bsky.social podcast ep 538 #phawareMD @teamphhope.bsky.social @JNJInnovMed oembed.libsyn.com/embed?item_i...
Episode 538 - John Kingrey, MD
Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, a condition spreading fast across the U.S. He challenges misconceptions, highlights urgent research, and stresses ...
oembed.libsyn.com
September 16, 2025 at 4:15 PM
Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, challenging misconceptions and the need for compassion in treating both PAH and addiction. @phaware.bsky.social podcast ep 538 #phawareMD @teamphhope.bsky.social @JNJInnovMed oembed.libsyn.com/embed?item_i...
Dr. Kari Gillmeyer discussed PH care networks. She explores why so many patients experience delays, how geography and provider access play a role, and what can be done to improve timeliness of care. @phaware.bsky.social podcast ep 537 VABostonHC @The_BMC @JNJInnovMed medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Kari Gillmeyer, MD, MSC (537)
the phaware® interview
medium.com
September 9, 2025 at 4:51 PM
Dr. Kari Gillmeyer discussed PH care networks. She explores why so many patients experience delays, how geography and provider access play a role, and what can be done to improve timeliness of care. @phaware.bsky.social podcast ep 537 VABostonHC @The_BMC @JNJInnovMed medium.com/p/im-aware-t...
When Eric Borstein collapsed in 2020, doctors gave him just months to live. Now, he’s leading a movement, walking 200 miles down the California coast to prove hope has no limits. @phaware.bsky.social podcast ep 536 @teamphhope.bsky.social @DJLisaFoxx medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Eric Borstein (536)
the phaware® interview
medium.com
September 2, 2025 at 3:03 PM
When Eric Borstein collapsed in 2020, doctors gave him just months to live. Now, he’s leading a movement, walking 200 miles down the California coast to prove hope has no limits. @phaware.bsky.social podcast ep 536 @teamphhope.bsky.social @DJLisaFoxx medium.com/p/im-aware-t...
Akshay Muralidhar, MD discusses the importance of having specialized centers for pulmonary hypertension, underserved communities, meth use and PH, and the need for outreach programs for patients battling PH. @phaware.bsky.social podcast ep 535 #phawareMD @JNJInnovMed medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Akshay Muralidhar, MD (535)
the phaware® interview
medium.com
August 26, 2025 at 2:53 PM
Akshay Muralidhar, MD discusses the importance of having specialized centers for pulmonary hypertension, underserved communities, meth use and PH, and the need for outreach programs for patients battling PH. @phaware.bsky.social podcast ep 535 #phawareMD @JNJInnovMed medium.com/p/im-aware-t...
Dr. Raj Parikh discusses building on foundational pathways with treatment options for PAH patients, the value of clinical trials, and the importance of a good doctor/patient relationship. @phaware.bsky.social podcast ep 534 #phawareMD @HartfordHealthC @JNJInnovMed medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Raj, Parikh, MD (534)
the phaware® interview
medium.com
August 19, 2025 at 2:36 PM
Dr. Raj Parikh discusses building on foundational pathways with treatment options for PAH patients, the value of clinical trials, and the importance of a good doctor/patient relationship. @phaware.bsky.social podcast ep 534 #phawareMD @HartfordHealthC @JNJInnovMed medium.com/p/im-aware-t...
Dr. Robert Frantz breaks down the key metrics behind risk stratification: functional class, six-min walk distance, brain natriuretic peptide levels and how they shape treatment plans. @phaware.bsky.social podcast ep 533 @mayoclinic.org @teamphhope.bsky.social @JNJInnovMed medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Robert Frantz, MD (533)
the phaware® interview
medium.com
August 12, 2025 at 4:10 PM
Dr. Robert Frantz breaks down the key metrics behind risk stratification: functional class, six-min walk distance, brain natriuretic peptide levels and how they shape treatment plans. @phaware.bsky.social podcast ep 533 @mayoclinic.org @teamphhope.bsky.social @JNJInnovMed medium.com/p/im-aware-t...
ICU & You: What Happens When Pulmonary Hypertension Turns Critical? Dr. Jean Elwing breaks down what patients and families can expect when someone with PH ends up in the ICU. @phaware.bsky.social podcast ep 532 #phawareMD @uc_health @ElwingJean @accpchest.bsky.social medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Jean M. Elwing, MD (532)
the phaware® interview
medium.com
August 5, 2025 at 2:50 PM
ICU & You: What Happens When Pulmonary Hypertension Turns Critical? Dr. Jean Elwing breaks down what patients and families can expect when someone with PH ends up in the ICU. @phaware.bsky.social podcast ep 532 #phawareMD @uc_health @ElwingJean @accpchest.bsky.social medium.com/p/im-aware-t...
Dr. John Granton discusses the evolution of lung preservation methods, the challenges of chronic rejection, and the hope for longer-lasting transplants. @phaware.bsky.social podcast ep 531 @UHN @teamphhope.bsky.social #phawareMD #PHILD #transplant @phacanada #PAH medium.com/p/im-aware-t...
I’m Aware That I’m Rare: John Granton, MD (531)
the phaware® interview
medium.com
July 29, 2025 at 2:52 PM
Dr. John Granton discusses the evolution of lung preservation methods, the challenges of chronic rejection, and the hope for longer-lasting transplants. @phaware.bsky.social podcast ep 531 @UHN @teamphhope.bsky.social #phawareMD #PHILD #transplant @phacanada #PAH medium.com/p/im-aware-t...
Drs. Victor Test, Deborah Levine and Rodolfo Estrada discuss CHEST’s First 5 Minutes® program, which builds patient trust in the first 5 minutes of a visit. @phaware podcast ep 530 #phawareMD @accpchest.bsky.social @uthealthsa.bsky.social @PHatStanford @redraiderpulmcc medium.com/p/im-aware-t...
I’m Aware That I’m Rare: First 5 Minutes Care Team (530)
the phaware® interview
medium.com
July 22, 2025 at 3:22 PM
Drs. Victor Test, Deborah Levine and Rodolfo Estrada discuss CHEST’s First 5 Minutes® program, which builds patient trust in the first 5 minutes of a visit. @phaware podcast ep 530 #phawareMD @accpchest.bsky.social @uthealthsa.bsky.social @PHatStanford @redraiderpulmcc medium.com/p/im-aware-t...
University of Washington's Dr. Tijana Milinic and Lia Barros, DNP take a deep dive into the world of pulmonary arterial hypertension (PAH) clinical trials and discuss why diversity and inclusion matter. @phaware.bsky.social podcast ep 529 @uwepidemiology.bsky.social medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Tijana Milinic, MD & Lia Barros, DPN (529)
the phaware® interview
medium.com
July 15, 2025 at 2:49 PM
University of Washington's Dr. Tijana Milinic and Lia Barros, DNP take a deep dive into the world of pulmonary arterial hypertension (PAH) clinical trials and discuss why diversity and inclusion matter. @phaware.bsky.social podcast ep 529 @uwepidemiology.bsky.social medium.com/p/im-aware-t...
Lana Melendres-Groves dives into racial and ethnic disparities in PAH treatment. She explores how systemic barriers impact care and what steps can be taken to ensure equity and inclusivity in PAH management.
@phaware.bsky.social podcast ep 528
@unmhsc.bsky.social phaware.medium.com/im-aware-tha...
@phaware.bsky.social podcast ep 528
@unmhsc.bsky.social phaware.medium.com/im-aware-tha...
I’m Aware That I’m Rare: Lana Melendres-Groves, MD (528)
the phaware® interview
phaware.medium.com
July 8, 2025 at 2:28 PM
Lana Melendres-Groves dives into racial and ethnic disparities in PAH treatment. She explores how systemic barriers impact care and what steps can be taken to ensure equity and inclusivity in PAH management.
@phaware.bsky.social podcast ep 528
@unmhsc.bsky.social phaware.medium.com/im-aware-tha...
@phaware.bsky.social podcast ep 528
@unmhsc.bsky.social phaware.medium.com/im-aware-tha...
Roham Zamanian, MD discusses the concept of disease modification in the treatment of pulmonary hypertension and the potential for treatments to impact the underlying disease process. @phaware.bsky.social podcast ep 516 #phawareMD @PHatStanford @docroham @JNJInnovMed medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Roham Zamanian, MD, FCCP (527)
the phaware® interview
medium.com
July 1, 2025 at 2:18 PM
Roham Zamanian, MD discusses the concept of disease modification in the treatment of pulmonary hypertension and the potential for treatments to impact the underlying disease process. @phaware.bsky.social podcast ep 516 #phawareMD @PHatStanford @docroham @JNJInnovMed medium.com/p/im-aware-t...
When you introduce patients into committees and trials, you drive designs forward. You enable what patients regard as important to be at the forefront of all the work you do. PH patient, Hall Skaara @phaware.bsky.social podcast 526 @europePHA @Hall_Skaara @JNJInnovMed medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Hall Skaara (526)
the phaware® interview
medium.com
June 24, 2025 at 5:30 PM
When you introduce patients into committees and trials, you drive designs forward. You enable what patients regard as important to be at the forefront of all the work you do. PH patient, Hall Skaara @phaware.bsky.social podcast 526 @europePHA @Hall_Skaara @JNJInnovMed medium.com/p/im-aware-t...
Cardiologist Dr. Lisa Mielniczuk on one of the most common — yet misunderstood — forms of pulmonary hypertension: the kind caused by left heart disease. @phaware.bsky.social podcast ep 525 #phawareMD @MayoClinic @PHACanada @teamphhope.bsky.social medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Lisa Mielniczuk, MD (525)
the phaware® interview
medium.com
June 17, 2025 at 2:10 PM
Cardiologist Dr. Lisa Mielniczuk on one of the most common — yet misunderstood — forms of pulmonary hypertension: the kind caused by left heart disease. @phaware.bsky.social podcast ep 525 #phawareMD @MayoClinic @PHACanada @teamphhope.bsky.social medium.com/p/im-aware-t...