PSC Support
@pscsupport.bsky.social
Improving the lives of people affected by primary sclerosing cholangitis (PSC) by | Providing Info & Support | Improving Patient Care | Shaping & Funding Research to find effective treatments and a cure | #LetsBeatPSC | www.pscsupport.org.uk
MORE Promising news for PSC research!
New SPRING trial data shows Nebokitug remains safe and continues to improve inflammation & scarring after 48 weeks.
Next step: Phase 3 trial 🙌
ℹ️ pscsupport.org.uk/spring-clini...
#LetsBeatPSC #PSCSupport #Nebokitug #LiverResearch #ClinicalTrials
New SPRING trial data shows Nebokitug remains safe and continues to improve inflammation & scarring after 48 weeks.
Next step: Phase 3 trial 🙌
ℹ️ pscsupport.org.uk/spring-clini...
#LetsBeatPSC #PSCSupport #Nebokitug #LiverResearch #ClinicalTrials
November 26, 2025 at 9:01 AM
MORE Promising news for PSC research!
New SPRING trial data shows Nebokitug remains safe and continues to improve inflammation & scarring after 48 weeks.
Next step: Phase 3 trial 🙌
ℹ️ pscsupport.org.uk/spring-clini...
#LetsBeatPSC #PSCSupport #Nebokitug #LiverResearch #ClinicalTrials
New SPRING trial data shows Nebokitug remains safe and continues to improve inflammation & scarring after 48 weeks.
Next step: Phase 3 trial 🙌
ℹ️ pscsupport.org.uk/spring-clini...
#LetsBeatPSC #PSCSupport #Nebokitug #LiverResearch #ClinicalTrials
⏰ Just one week until the @BigGive#ChristmasChallenge begins! From 2–9 December, your donations will be matched, helping us support more researchers to do more projects, sooner! Together we can accelerate research
🔗 pscsupport.org.uk/BigGive
#LetsBeatPSC #DoubleYourDonation
🔗 pscsupport.org.uk/BigGive
#LetsBeatPSC #DoubleYourDonation
November 25, 2025 at 11:02 AM
⏰ Just one week until the @BigGive#ChristmasChallenge begins! From 2–9 December, your donations will be matched, helping us support more researchers to do more projects, sooner! Together we can accelerate research
🔗 pscsupport.org.uk/BigGive
#LetsBeatPSC #DoubleYourDonation
🔗 pscsupport.org.uk/BigGive
#LetsBeatPSC #DoubleYourDonation
Some studies hint that coffee might be linked to slower PSC progression, though we still need more research to be sure (Sources in thread).
One thing we are sure of: we won’t rest until we find effective PSC treatments.
#PSCSupport #LetsBeatPSC #PSCResearch #PSCcommunity
One thing we are sure of: we won’t rest until we find effective PSC treatments.
#PSCSupport #LetsBeatPSC #PSCResearch #PSCcommunity
November 24, 2025 at 8:01 AM
Some studies hint that coffee might be linked to slower PSC progression, though we still need more research to be sure (Sources in thread).
One thing we are sure of: we won’t rest until we find effective PSC treatments.
#PSCSupport #LetsBeatPSC #PSCResearch #PSCcommunity
One thing we are sure of: we won’t rest until we find effective PSC treatments.
#PSCSupport #LetsBeatPSC #PSCResearch #PSCcommunity
There’s nothing like receiving a card through the door. 💌 Sending cards this year? Choose from 1,300+ designs, personalise yours, and send by post, email or text. 100% of your donation supports PSC Support (or 125% with Gift Aid 😊)
➡️ buff.ly/er2YlsQ #LetsBeatPSC
➡️ buff.ly/er2YlsQ #LetsBeatPSC
November 23, 2025 at 10:00 AM
There’s nothing like receiving a card through the door. 💌 Sending cards this year? Choose from 1,300+ designs, personalise yours, and send by post, email or text. 100% of your donation supports PSC Support (or 125% with Gift Aid 😊)
➡️ buff.ly/er2YlsQ #LetsBeatPSC
➡️ buff.ly/er2YlsQ #LetsBeatPSC
No one imagines managing a chronic illness while planning their wedding. But for many people with PSC - like Abigail - symptoms are part of everyday life, from errands to big milestones. buff.ly/yO5XkbF
Want to share your PSC story? 📩 [email protected] #LetsBeatPSC
Want to share your PSC story? 📩 [email protected] #LetsBeatPSC
November 22, 2025 at 10:01 AM
No one imagines managing a chronic illness while planning their wedding. But for many people with PSC - like Abigail - symptoms are part of everyday life, from errands to big milestones. buff.ly/yO5XkbF
Want to share your PSC story? 📩 [email protected] #LetsBeatPSC
Want to share your PSC story? 📩 [email protected] #LetsBeatPSC
It’s here! Our @BigGive #ChristmasChallenge video🎄Thank you to everyone who lent us their voice.
From 2–9 December, every gift made to us through The Big Give will be doubled! Help us accelerate research and find effective treatments.
👉 buff.ly/qcN0cWC#Lets...
From 2–9 December, every gift made to us through The Big Give will be doubled! Help us accelerate research and find effective treatments.
👉 buff.ly/qcN0cWC#Lets...
November 21, 2025 at 8:37 AM
It’s here! Our @BigGive #ChristmasChallenge video🎄Thank you to everyone who lent us their voice.
From 2–9 December, every gift made to us through The Big Give will be doubled! Help us accelerate research and find effective treatments.
👉 buff.ly/qcN0cWC#Lets...
From 2–9 December, every gift made to us through The Big Give will be doubled! Help us accelerate research and find effective treatments.
👉 buff.ly/qcN0cWC#Lets...
Today marks the start of the @rarediseaseday campaign, the 100-day countdown to this global awareness event. 💬 Would you like to share your PSC story for #RareDiseaseDay?
Get in touch with us at [email protected]. #LetsBeatPSC #RareDiseases #PSCCommunity #PatientStories
Get in touch with us at [email protected]. #LetsBeatPSC #RareDiseases #PSCCommunity #PatientStories
November 20, 2025 at 8:17 AM
Today marks the start of the @rarediseaseday campaign, the 100-day countdown to this global awareness event. 💬 Would you like to share your PSC story for #RareDiseaseDay?
Get in touch with us at [email protected]. #LetsBeatPSC #RareDiseases #PSCCommunity #PatientStories
Get in touch with us at [email protected]. #LetsBeatPSC #RareDiseases #PSCCommunity #PatientStories
Many people in the PSC community tell us about the daily challenges & anxiety they face when trying to access toilets. 🌍🚽 On #WorldToiletDay, we want to hear from you.
Have you ever had an access issue? Have you used an #AccessCard?
👉 buff.ly/KBdSkAU #PSC #IBD
Have you ever had an access issue? Have you used an #AccessCard?
👉 buff.ly/KBdSkAU #PSC #IBD
November 19, 2025 at 2:00 PM
Many people in the PSC community tell us about the daily challenges & anxiety they face when trying to access toilets. 🌍🚽 On #WorldToiletDay, we want to hear from you.
Have you ever had an access issue? Have you used an #AccessCard?
👉 buff.ly/KBdSkAU #PSC #IBD
Have you ever had an access issue? Have you used an #AccessCard?
👉 buff.ly/KBdSkAU #PSC #IBD
The countdown is on 🎄 Just 2 weeks until our #ChristmasChallenge begins! From 2–9 Dec, your donation will be doubled! Together, we can accelerate PSC research.
Save the date, learn more and make your donation promise.
👉 pscsupport.org.uk/BigGive
#LetsBeatPSC #PSCResearch #GivingBack
Save the date, learn more and make your donation promise.
👉 pscsupport.org.uk/BigGive
#LetsBeatPSC #PSCResearch #GivingBack
November 18, 2025 at 10:01 AM
The countdown is on 🎄 Just 2 weeks until our #ChristmasChallenge begins! From 2–9 Dec, your donation will be doubled! Together, we can accelerate PSC research.
Save the date, learn more and make your donation promise.
👉 pscsupport.org.uk/BigGive
#LetsBeatPSC #PSCResearch #GivingBack
Save the date, learn more and make your donation promise.
👉 pscsupport.org.uk/BigGive
#LetsBeatPSC #PSCResearch #GivingBack
Positive interim data from the ELMWOOD trial update on elafibranor for PSC.
The 2-year Open Label Extension shows sustained improvements in critical liver health markers, including further reductions in liver scarring (Fibroscan).
Learn more: buff.ly/MqL1jE7 #LetsBeatPSC
The 2-year Open Label Extension shows sustained improvements in critical liver health markers, including further reductions in liver scarring (Fibroscan).
Learn more: buff.ly/MqL1jE7 #LetsBeatPSC
November 17, 2025 at 4:02 PM
Positive interim data from the ELMWOOD trial update on elafibranor for PSC.
The 2-year Open Label Extension shows sustained improvements in critical liver health markers, including further reductions in liver scarring (Fibroscan).
Learn more: buff.ly/MqL1jE7 #LetsBeatPSC
The 2-year Open Label Extension shows sustained improvements in critical liver health markers, including further reductions in liver scarring (Fibroscan).
Learn more: buff.ly/MqL1jE7 #LetsBeatPSC
PSC can be unpredictable. Some days you just can’t do it all, and that’s okay. 💚
Celebrate small wins, rest when you need to, and most importantly, be kind to yourself.
#PSCSupport #LetsBeatPSC #ChronicIllnessAwareness
Celebrate small wins, rest when you need to, and most importantly, be kind to yourself.
#PSCSupport #LetsBeatPSC #ChronicIllnessAwareness
November 16, 2025 at 11:00 AM
PSC can be unpredictable. Some days you just can’t do it all, and that’s okay. 💚
Celebrate small wins, rest when you need to, and most importantly, be kind to yourself.
#PSCSupport #LetsBeatPSC #ChronicIllnessAwareness
Celebrate small wins, rest when you need to, and most importantly, be kind to yourself.
#PSCSupport #LetsBeatPSC #ChronicIllnessAwareness
Matt & his family are walking 9 miles this weekend to raise awareness of PSC & funds for @PSCSupportUK. After attending our Leeds Information Day, they felt inspired - thank you, Matt & family! 👣
Support their walk 👉 www.justgiving.com/page/psc-for...
#LetsBeatPSC #TeamPSCSupport
Support their walk 👉 www.justgiving.com/page/psc-for...
#LetsBeatPSC #TeamPSCSupport
November 15, 2025 at 8:00 AM
Matt & his family are walking 9 miles this weekend to raise awareness of PSC & funds for @PSCSupportUK. After attending our Leeds Information Day, they felt inspired - thank you, Matt & family! 👣
Support their walk 👉 www.justgiving.com/page/psc-for...
#LetsBeatPSC #TeamPSCSupport
Support their walk 👉 www.justgiving.com/page/psc-for...
#LetsBeatPSC #TeamPSCSupport
9 years ago, an anonymous donor saved @G_Racecycling's life. Since then, he's cycled in British, European, and World Transplant Games, raising awareness of organ donation and inspiring other transplant recipients to get active. buff.ly/clBmNw9 @TActive_BTG #LetsBeatPSC
November 14, 2025 at 10:00 AM
9 years ago, an anonymous donor saved @G_Racecycling's life. Since then, he's cycled in British, European, and World Transplant Games, raising awareness of organ donation and inspiring other transplant recipients to get active. buff.ly/clBmNw9 @TActive_BTG #LetsBeatPSC
To every friend, family member, healthcare professional, fundraiser & supportive voice who helps someone affected by PSC, thank you. Your kindness makes a world of difference. 🌍 Happy #WorldKindnessDay #LetsBeatPSC #PSCSupport #KindnessMatters
November 13, 2025 at 8:47 AM
To every friend, family member, healthcare professional, fundraiser & supportive voice who helps someone affected by PSC, thank you. Your kindness makes a world of difference. 🌍 Happy #WorldKindnessDay #LetsBeatPSC #PSCSupport #KindnessMatters
Something BIG is coming 🎄From 2-9 December, every donation to PSC Support will be doubled! Learn more and make your donation promise today.
👉 pscsupport.org.uk/BigGive
#ChristmasChallenge #LetsBeatPSC
👉 pscsupport.org.uk/BigGive
#ChristmasChallenge #LetsBeatPSC
November 12, 2025 at 12:02 PM
Something BIG is coming 🎄From 2-9 December, every donation to PSC Support will be doubled! Learn more and make your donation promise today.
👉 pscsupport.org.uk/BigGive
#ChristmasChallenge #LetsBeatPSC
👉 pscsupport.org.uk/BigGive
#ChristmasChallenge #LetsBeatPSC
PSC research is challenging, but progress is happening faster than ever. There are now more clinical trials testing potential treatments than ever. Every study brings us closer to better care and, one day, a cure.
👉 buff.ly/33bSrx4 #LetsBeatPSC #PSCResearch
👉 buff.ly/33bSrx4 #LetsBeatPSC #PSCResearch
November 11, 2025 at 6:03 PM
PSC research is challenging, but progress is happening faster than ever. There are now more clinical trials testing potential treatments than ever. Every study brings us closer to better care and, one day, a cure.
👉 buff.ly/33bSrx4 #LetsBeatPSC #PSCResearch
👉 buff.ly/33bSrx4 #LetsBeatPSC #PSCResearch
Living with PSC can feel isolating, but you’re not alone.
🧑🤝🧑 Connect with others by joining our private FB group.
📧 Sign up for our newsletter to get the latest PSC news, webinars, and in-person Info Days.
ℹ️ pscsupport.org.uk/connect-with...
#LetsBeatPSC #PSCSupport #PSCCommunity
🧑🤝🧑 Connect with others by joining our private FB group.
📧 Sign up for our newsletter to get the latest PSC news, webinars, and in-person Info Days.
ℹ️ pscsupport.org.uk/connect-with...
#LetsBeatPSC #PSCSupport #PSCCommunity
November 10, 2025 at 9:01 AM
Living with PSC can feel isolating, but you’re not alone.
🧑🤝🧑 Connect with others by joining our private FB group.
📧 Sign up for our newsletter to get the latest PSC news, webinars, and in-person Info Days.
ℹ️ pscsupport.org.uk/connect-with...
#LetsBeatPSC #PSCSupport #PSCCommunity
🧑🤝🧑 Connect with others by joining our private FB group.
📧 Sign up for our newsletter to get the latest PSC news, webinars, and in-person Info Days.
ℹ️ pscsupport.org.uk/connect-with...
#LetsBeatPSC #PSCSupport #PSCCommunity
November 9, 2025 at 8:00 AM
“Be prepared.” A motto not just for Scouts, but PSC-ers too! Keep your #PSCAlertCard handy (it’s credit-card sized or a digital download) to help your medical team act fast if acute cholangitis strikes.
Get yours free: buff.ly/6xAhRpd
#PSCSupport #PSCfamily #LetsBeatPSC
Get yours free: buff.ly/6xAhRpd
#PSCSupport #PSCfamily #LetsBeatPSC
November 8, 2025 at 8:43 AM
“Be prepared.” A motto not just for Scouts, but PSC-ers too! Keep your #PSCAlertCard handy (it’s credit-card sized or a digital download) to help your medical team act fast if acute cholangitis strikes.
Get yours free: buff.ly/6xAhRpd
#PSCSupport #PSCfamily #LetsBeatPSC
Get yours free: buff.ly/6xAhRpd
#PSCSupport #PSCfamily #LetsBeatPSC
What do we get up to when we attend big events like @basl_events conference? 🤔 Simply put, we fly the PSC flag: raising awareness, building relationships and making sure the patient voice is heard 👉 pscsupport.org.uk/oct-2025-res... #LetsBeatPSC #LiverHealth
November 7, 2025 at 9:01 AM
What do we get up to when we attend big events like @basl_events conference? 🤔 Simply put, we fly the PSC flag: raising awareness, building relationships and making sure the patient voice is heard 👉 pscsupport.org.uk/oct-2025-res... #LetsBeatPSC #LiverHealth
As we head into comfort food season, many in our community are thinking about how to balance enjoyment with managing PSC. What are your go-to meals? Do you have a favourite recipe that brings comfort without compromising your wellbeing?
👉 buff.ly/f640aEf #PSCDiet
👉 buff.ly/f640aEf #PSCDiet
November 6, 2025 at 6:21 PM
As we head into comfort food season, many in our community are thinking about how to balance enjoyment with managing PSC. What are your go-to meals? Do you have a favourite recipe that brings comfort without compromising your wellbeing?
👉 buff.ly/f640aEf #PSCDiet
👉 buff.ly/f640aEf #PSCDiet
PSC can bring uncertainty, fatigue and stress. It’s okay not to feel okay. Here's a reminder to:
🐌 Slow down and breathe
😔 Acknowledge your emotions
🙋♀️ Reach out for support (𝘺𝘰𝘶'𝘳𝘦 𝘯𝘰𝘵 𝘢𝘭𝘰𝘯𝘦!)
pscsupport.org.uk/the-challeng...
#NationalStressAwarenessDay #LetsBeatPSC
🐌 Slow down and breathe
😔 Acknowledge your emotions
🙋♀️ Reach out for support (𝘺𝘰𝘶'𝘳𝘦 𝘯𝘰𝘵 𝘢𝘭𝘰𝘯𝘦!)
pscsupport.org.uk/the-challeng...
#NationalStressAwarenessDay #LetsBeatPSC
November 5, 2025 at 8:47 AM
PSC can bring uncertainty, fatigue and stress. It’s okay not to feel okay. Here's a reminder to:
🐌 Slow down and breathe
😔 Acknowledge your emotions
🙋♀️ Reach out for support (𝘺𝘰𝘶'𝘳𝘦 𝘯𝘰𝘵 𝘢𝘭𝘰𝘯𝘦!)
pscsupport.org.uk/the-challeng...
#NationalStressAwarenessDay #LetsBeatPSC
🐌 Slow down and breathe
😔 Acknowledge your emotions
🙋♀️ Reach out for support (𝘺𝘰𝘶'𝘳𝘦 𝘯𝘰𝘵 𝘢𝘭𝘰𝘯𝘦!)
pscsupport.org.uk/the-challeng...
#NationalStressAwarenessDay #LetsBeatPSC
🎁 Save the Date! We’re joining #TheBigGive #ChristmasChallenge 💚
From 2–9 Dec, your donation will be doubled:
£5→£10, £20→£40, £100→£200! You get the idea 😊
Together we can double the impact for people with PSC.
🔗 pscsupport.org.uk/biggive
#PSCSupport #LetsBeatPSC
From 2–9 Dec, your donation will be doubled:
£5→£10, £20→£40, £100→£200! You get the idea 😊
Together we can double the impact for people with PSC.
🔗 pscsupport.org.uk/biggive
#PSCSupport #LetsBeatPSC
November 4, 2025 at 2:29 PM
🎁 Save the Date! We’re joining #TheBigGive #ChristmasChallenge 💚
From 2–9 Dec, your donation will be doubled:
£5→£10, £20→£40, £100→£200! You get the idea 😊
Together we can double the impact for people with PSC.
🔗 pscsupport.org.uk/biggive
#PSCSupport #LetsBeatPSC
From 2–9 Dec, your donation will be doubled:
£5→£10, £20→£40, £100→£200! You get the idea 😊
Together we can double the impact for people with PSC.
🔗 pscsupport.org.uk/biggive
#PSCSupport #LetsBeatPSC
It’s #TrusteesWeek! 💙 We’re celebrating our 8 incredible trustees, 6 of whom are directly affected by PSC. Their lived experience ensures every decision is guided by real understanding & expertise. Interested in volunteering? Contact [email protected]
#LetsBeatPSC
#LetsBeatPSC
November 3, 2025 at 2:00 PM
It’s #TrusteesWeek! 💙 We’re celebrating our 8 incredible trustees, 6 of whom are directly affected by PSC. Their lived experience ensures every decision is guided by real understanding & expertise. Interested in volunteering? Contact [email protected]
#LetsBeatPSC
#LetsBeatPSC
Confused about mortgages, insurance or finance when living with PSC? You’re not alone. We were joined by Pam, Nina and Joe Brown - mortgage, insurance & finance specialists - who know first-hand the challenges you face and how to navigate them.
👉 buff.ly/gGlMDLf #LetsBeatPSC
👉 buff.ly/gGlMDLf #LetsBeatPSC
November 2, 2025 at 4:00 PM
Confused about mortgages, insurance or finance when living with PSC? You’re not alone. We were joined by Pam, Nina and Joe Brown - mortgage, insurance & finance specialists - who know first-hand the challenges you face and how to navigate them.
👉 buff.ly/gGlMDLf #LetsBeatPSC
👉 buff.ly/gGlMDLf #LetsBeatPSC