PSC Support
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pscsupport.bsky.social
PSC Support
@pscsupport.bsky.social
Improving the lives of people affected by primary sclerosing cholangitis (PSC) by | Providing Info & Support | Improving Patient Care | Shaping & Funding Research to find effective treatments and a cure | #LetsBeatPSC | www.pscsupport.org.uk
Myth: Only older people get PSC. Fact: PSC can affect anyone at any age, even children.
It’s time to stop misconceptions. Let’s replace myths with facts to ensure no one faces this #RareDisease alone.
Learn more: www.pscsupport.org.uk
#PSCSupport #LetsBeatPSC #LiverDisease
February 2, 2026 at 2:40 PM
You're not alone. Whether you’ve been living with PSC for years, were diagnosed yesterday, or are supporting a loved one, our private FB group is a space where you can ask questions, share your highs (and lows), or simply be seen by people who “get it.” buff.ly/UM7NQGF
January 28, 2026 at 4:30 PM
Cycle from London to Paris for #TeamPSCSupport! 🚲
23-26 September 2026 this fully-supported 4-day ride covers 196 miles of scenic countryside, finishing at the Eiffel Tower! 🗼 Suitable for all abilities.
🔗 buff.ly/b3hJhjd
✉️ [email protected]
#LetsBeatPSC
January 24, 2026 at 8:35 AM
Why does PSC research matter? 🔬
Because Stewart matters. You matter. The PSC community matters.
Help us support more people like Stewart by becoming a monthly donor. Read his story and support our work today: pscsupport.org.uk/stewarts-sto...
#PSCSupport #OrganDonation #letsbeatpsc
January 23, 2026 at 10:01 AM
The unpredictability of living with PSC. ☕️💨

It’s hard for people to understand when they only see the "Perfect Pour" version of us, but the PSC fatigue and brain fog "spills" are just as real.

Learn more and connect with others: pscsupport.org.uk/connect-with...
#LetsBeatPSC #PSCSupport
January 20, 2026 at 9:02 PM
Peace of mind, even on the morning walk. Our PSC Cholangitis Alert Card is designed to go wherever you do. Fits in your pocket or on your phone, it’s there to help you and medical teams identify acute cholangitis symptoms quickly. And it's free!
➡️ pscsupport.org.uk/product/psc-... #LetsBeatPSC
January 15, 2026 at 6:02 PM