pumpkin
pumpkinstars.bsky.social
pumpkin
@pumpkinstars.bsky.social
hi im pumpkin. she/her. 🧠🌶️. Asexual. Anti-racist. I like gardens and colors. ME/CFS, hEDS, MCAS, POTS, Fibro. bed tethered. i love people and also people scare me. 🇺🇸
Pinned
hi i’m pumpkin

i’m disabled and home bound, mostly bed bound. i write about my life and my experiences with #MECFS #MCAS #EDS #Fibro #POTS

oh! i also sometimes post nail art ☺️ my hobby

i used to do volunteer work in my community but i got too sick

now, i manage my illnesses and work from home
my socks do not match h

i had found christmas jammie’s before bc i wanted to change

but i couldn’t find a pair of christmas socks before and no way now bc i’m very sick still

so i have a christmas sock and an easter fuzzy sock hehe
pink yellow white

ah well
December 15, 2025 at 8:54 PM
too exhausted to be happy but i didn’t get surgery and they saved my central line and it was good

it was not a bad scary infection it was a one that they beat

i needing more medicines it is not over
and i crashing. and i will need recovering the tthis.

but it is not a danger!
December 15, 2025 at 8:53 PM
in my home bed from hospital and it’s crashing the feeling of finally safe finally home finally familiar things and my helps and my things

and i’m crashing and it’s not nice feeling and i am crashing

but now i can get it over with and then start recovering for the from the hospital trip the infect
December 15, 2025 at 8:43 PM
christmas jammies!

i always change out of hospital outfit and into new clothes
December 15, 2025 at 7:55 PM
capitalist hellscape

hey team sorry i miss the meeting i was hospitalized i might need additional time off but please message me any requests and i will handle upon my return!

(i got home and open laptop to submit my time card)

#NEISvoid
December 15, 2025 at 7:53 PM
nurse: are you in school?

me: i’m almost 40….

nurse: omg i didn’t see your birthday sorry
December 15, 2025 at 7:08 PM
i want to slide off my fall risk hospital bracelet to keep it

and i just remember being young not knowing i have #EDS, wondering how handcuffs could possibly be effective

because i could just dislocate my thumb and slide anything that fit my wrists off haha

not everyone can do that lol

#NEISvoid
December 15, 2025 at 6:09 PM
i needed so many doctors to sign off lol

central line infections are serious business

luckily mine was manageable
and by manageable i mean, i still spent 4 days in a hospital lol

but infections can be deadly, or ICU problems
December 15, 2025 at 5:33 PM
eee i get to go home today!!!
yay omg no more hospital!!

i can do the rest of the healing and oral meds now at home and some follow ups

but i get to go home and i am not oozing pus anymore and it is an Acceptable Red now!!

i get to keep my central line!!

eee yay!! #NEISvoid
December 15, 2025 at 5:14 PM
explaining MCAS to nurses is not fun lol there’s so many variables

the nurses are nice tho and helpful

it’s just a lot to explain why i might be safer taking no replacement med and i might need an epi pen without a replacement and i have no frickin clue until i try stuff

#NEISvoid #MCAS
December 15, 2025 at 4:39 PM
i am not tracking my meds well bc i am too sick and in the hospital

sigh
my health data is inaccurate now

#NEISvoid
December 15, 2025 at 4:35 PM
an interesting thing, they won’t do my blood pressure cuff stuff on my right side bc that’s where my infected central line is

they are supposed to do the left / opposite side

this wasn’t consistent but now i know. not why tho lol.

#NEISvoid
December 15, 2025 at 3:54 PM
thank you for being my friends it help

i got too tired to keep posting sharing

but also i feel the comfort and that is nice
December 15, 2025 at 3:43 PM
new hospital roommate is quiet

my nurse is great

got a magnesium drip bc i was low on it

i hope i can go home today and not have surgery. i think it will be possible. it’s been looking more and more likely.

i’m really glad it hasn’t been a bad awful infection. it could have been worse a lot
December 15, 2025 at 2:12 PM
i am tired. TIRED.

they keep waking me up and cannot sleep back
even with medicine not sleeping again the after blood draw

TIRED.
December 15, 2025 at 1:49 PM
nights are harder
December 15, 2025 at 9:08 AM
asked for sleep meds

exhausted and can’t sleep
December 15, 2025 at 9:06 AM
roommate. just came.

nurse silently hand me ear plugs and eye mask haha
🫶
December 15, 2025 at 7:53 AM
more meds
more pokes

more yogurt bc i ordered dinner and couldn’t eat it solid foods so i ask for a yogurt and now i have a yogurt

might get a new roomie bc they getting busy again but idk
December 15, 2025 at 6:26 AM
i am not do a good job tracking my meds in my app

i am too tired to do that all the time
yeah

i hope i can go home tomorrow

the IV air in line warning went off again it’s so loud. when i can, i silence it and just call a nurse. it hurts my ears.
December 15, 2025 at 4:25 AM
i felt more talkative with the extra time alone
and talked to my nurse about my old life
it was nice
December 15, 2025 at 3:56 AM
usually. i like that i don’t have friendship degregation. no matter how long i’ve been away from someone, it feels like i just saw them. that’s nice.

but sometimes. like with ex’s when i don’t have enough health to make new memories. it can suck a bit

yeahhh

but i’m here and got medical help.
December 15, 2025 at 3:01 AM
my hospital roomie was discharged and the quiet the relative quiet is so frickin nice

my appetite is way down and eating is hard and i’m not doing a great job
i’m hoping that doesn’t become a problem here.

because it’s an MECFS problem i can fix at home. i don’t want them to keep me

#NEISvoid
December 15, 2025 at 1:52 AM
it’s a new nurse first day here

not first day as a nurse first time here at this hospital

and we talk a little bit about
December 14, 2025 at 11:26 PM
a nurse was all, why is the back of your gown open again?!
as she tied it for me when i got up for bathroom trip

but the nurses keep checking my skin all over for signs of infection
even my toes and my back

so like
the nurses are why it’s always opened lol
December 14, 2025 at 10:27 PM