oh yeah my shower is broken

i would need to fix it first

i’m going to refill my supplement boxes

and take my supplements

and maybe get some yogurt and have more probiotics

and enjoy this while it’s here

my other illnesses are pretty debilitating though

i still feel awful

i still want to rest

i want to run again

not just an idea of running
my body feels like running right now in a way i haven’t felt for years
like i could actually do it if i just had a space to run

what do i do with this miraculous gift

i don’t know

and also i still feel pretty miserable. my other illnesses finally feel clear to me, without the usual oppressive fog of MECFS

i still want to lay down and not do much
i still don’t feel fully mentally clear

i am not changing my routines.

it will end eventually and that will be all

i don’t want to risk a mega crash by acting normal, my pre sick life. i guess sick is my normal.

it is vastly opening my world just to think more clearly and move around in bed more and just

just

idk

it’s a lot

i had read about this possibility before

and @remissionbiome.bsky.social is studying it

i knew about it but i had been on antibiotics before and nothing happened.

this time i got So Many Antibiotics, IV and oral

and i don’t feel the PEM

my other illnesses hurt and make me tired and i’m sleeping more

but i don’t feel PEM

i don’t feel MECFS brain fog. i can talk well, i can move more, i can get up when i want to

it’s just not here anymore

and idk how to feel about that

i became nearly bedridden a few years ago. i can walk for bathroom breaks and, on good days, brief kitchen trips.

i haven’t been able to sit up to eat except rarely. best i can do is a slight incline in bed.

so i was severe ME

and now, this is just so weird
i’m taking it slow and resting still

it was such a whirlwind, i wish i could have done some tests before to help your research

but i wanted to share this anecdotal experience

i don’t know how long it will last

i don’t want it to go away

i have other chronic illnesses and many are flaring. i also have Fibromyalgia, EDS, POTS, MCAS.

but oh my goodness i don’t feel PEM, i didn’t crash how i usually do, i feel more energy than before (but i am taking it slow and sticking to my bed ridden routines)

the PT and OT she recommended would get me braces and stuff

if i could ever go back

they were all great i’ve just been too sick to go haha

so, maybe someone on that list can help you connect to more support, too!

i hope you find some good support 💛

i found a great EDS specialist in the directory and she had referrals to all kinds of support that helped EDS. she isn’t “officially” an EDS specialist but she knows it well and actually has it. found her from here

www.ehlers-danlos.com/healthcare-p...

so cute!! 🌸🌺🌼

you don’t have to be sorry or feel bad for needing rest 💛

you have such a sweet heart and do so much for others when you can

it is ok to rest, and focus on yourself and your needs 💛💛

i do RT posts from people i follow when they share their shops!

i just miss having a thread and boosting people up, and sharing what i like about their shop. and then they can share that and i hope it helps them too 💛

and then i can browse the thread hehe