Rebel
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rebellionista.bsky.social
Rebel
@rebellionista.bsky.social
Single mum. Expert napper. Pet wrangler. Severe ME/CFS, mostly bedridden. Mr22 & I are AuDHD. Former gifted child. Reformed TV producer. Live for horror movies. Life is a roller coaster.
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This is a thread about leaving the house with #SevereME #MECFS #pwme

A few days ago I needed to get to the city for oral surgery

My alarm was set for 7:30am for an 8:30 ambulance pick up

They actually arrived at 7:45 😬
I had to try to rush around to get ready
Such a huge crash day. Dentist visit and hanging curtains last week is hitting really hard. Only 400 steps all day.

Haven’t crashed this hard for a while. It reminds me that leaving the house is still way too much. Damnit!
November 26, 2025 at 6:56 AM
Binge finally convinced me to take a month of premium for $2. Haven’t looked at it yet and I’m not rushing. $2 for a month is pretty sweet though.
November 26, 2025 at 5:50 AM
Lamb is cooked perfectly. Seems I don’t have gravy in the cupboard. Damnit. Rolls will wait till another day.
November 26, 2025 at 3:50 AM
Lamb roasting in the oven. Been craving roast lamb and gravy rolls for ages.
a cartoon of homer simpson with his mouth wide open
Alt: a cartoon of homer simpson with his mouth wide open, drooling
media.tenor.com
November 26, 2025 at 1:45 AM
Definitely a crash day. My little outing to the dentist last week is still having consequences. Extreme rest needed.
November 26, 2025 at 1:08 AM
Random memory of dusting glass shelves with expensive items on them. I used to work in a jewellery store. The dusting was the worst part by far.
November 26, 2025 at 12:15 AM
Actually feeling really grateful that there’s no cleaner coming today. It’s just so overwhelming. The communication, the noise, the general overstimulation is just too much. Very glad it’s not happening anymore.
November 25, 2025 at 11:05 PM
Having an awful pain day. The barometer has been low for days, seems to trigger dreadful pain. Painkillers not helping :(
a baby is crying while sitting on a couch with the words `` everything hurts '' written on the screen .
Alt: a baby is crying while sitting on a couch with the words `` everything hurts '' written on the screen .
media.tenor.com
November 25, 2025 at 11:00 PM
Well, antibiotics don’t seem to have helped my sinuses. Still have the smashing pressure headache. About to take the last Keflex. Think it’s a bit of a fail.
November 25, 2025 at 11:59 AM
Bad pain night. Emergency Tim Tam is called for.
November 25, 2025 at 11:31 AM
Coco has been sharing her dinner with the cat. She’s been very tolerant, but if she’s extra hungry she will squash the cat with her paw to get her to leave 😂
November 25, 2025 at 7:27 AM
One hour nap! Yay. I need more of those.
November 25, 2025 at 4:26 AM
Reposted by Rebel
The idea of the rapture is really appealing. Just think all those sanctimonious twats buggering off and leaving all the interesting people to themselves. Can't come too soon.
November 24, 2025 at 11:55 PM
6 hours sleep last night. Beats the previous two nights of 4 hours. Feeling slightly more human, for now.
November 24, 2025 at 11:32 PM
Baby apples!
November 24, 2025 at 10:42 PM
Oh. I have a myGov email at 1am :/
November 24, 2025 at 2:37 PM
Do you ever think it’s been an awful week, then realise it’s still Monday?
a little girl is laying on the floor in a playground with the words status written on the bottom
Alt: a little girl is laying on the floor hanging on to a carousel in a playground while asleep
media.tenor.com
November 24, 2025 at 10:32 AM
Mr22 just found out his friend died. Another young man lost to suicide. So sad :(
November 24, 2025 at 10:02 AM
Today’s activities. Absolutely wrecked now. Pain is awful. Pushed a bit too hard, but I’m stubborn. Wanted it done.
November 24, 2025 at 9:32 AM
This is super cute. Tiniest ouija board I’ve ever seen. It’s approximately 3cm x 2cm.
November 24, 2025 at 8:33 AM
Mika is chilling with the skeleton. Coco is inside and is quite upset I’m not letting her outside.
November 24, 2025 at 7:40 AM
Can’t believe spring is almost over. Feels like it only started a couple of weeks ago. Winter drags on, but spring whizzes by.

According to my camera roll, I’ve been decluttering, organising, and decorating since September. Consistently. I’m shocked. It’s been so long since I had any capacity.
November 24, 2025 at 7:23 AM
They say a change is as good as a holiday. Maybe not quite, but it is rather refreshing to have a change of scenery in the room I spend 24/7 in.

It does make a difference. Of course I do things as cheaply as possible. It’s really been essential for morale. Mood can go downhill when housebound.
November 24, 2025 at 6:56 AM
Both sets of curtains are up! I’m now lying down to balance things out. That kept me occupied for a few hours. Think I’ve worn myself out though. Time for a nice break.
November 24, 2025 at 6:04 AM
More rings and clips done. Almost finished. Just need to hang the other window…
November 24, 2025 at 4:22 AM