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Renegade Research

@renegaderesearch.bsky.social

1.8K followers 4K following 280 posts

Patient/Caregiver-led non-profit 501c3 focused on #MECFS and #LongCovid • https://Renegade-Research.org 💙 Runs project @remissionbiome.bsky.social • Donate now ▶️ https://tinyurl.com/44azdsxm

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Renegade Research @renegaderesearch.bsky.social · May 18

✅️ Accelerate research and care for ME/CFS and Long COVID

Our work has already made an impact on the lives of our participants, both in terms of quality of life improvements and developing a community where patients and their caregivers are listened to and empowered.

www.zeffy.com/en-US/fundra...

Accelerate research and care for ME/CFS & Long COVID

Renegade Research (RR) is a non-profit, 501c3 decentralized organization pioneering patient and caregiver-led research with a focus on ME/CFS, Long COVID (LC) and other infection associated chronic il...

www.zeffy.com

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Renegade Research @renegaderesearch.bsky.social · Sep 1

With the Labor Day sales today, please remember to help us fund research by using our affiliate links if there are products you already use
www.renegade-research.org/discounts-an...

Discounts & Affiliate Links | Renegade Research

Tests and supplements available at a discount using either a code or special link. Affiliate links to help us fund our mission.

www.renegade-research.org

Reposted by Renegade Research

Isabel Ramirez-Burnett @isabelrb.bsky.social · Aug 22

1. Have you seen our
New Medical Coaching and Consulting for patients with MECFS and long covid started by @renegaderesearch.bsky.social

Links in
comment

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Renegade Research @renegaderesearch.bsky.social · Jul 22

11. Clients are required to have their own qualified, licensed clinician to make diagnosis and/or change treatments.
For additional questions, email us at [email protected]

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Renegade Research @renegaderesearch.bsky.social · Jul 22

10. Coaching services are not intended for diagnosis and treatment and do not constitute a doctor-patient relationship. All information is for educational purposes only, and any changes you make should be done in consultation with your own Health Care Provider.

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Renegade Research @renegaderesearch.bsky.social · Jul 22

9. If you are interested in any of the options, please fill out this interest form forms.gle/EXGMnCAEn4AiSC…. To get on the waiting list for either of the options. You will be invited to apply based on position on this list and capacity.

https://forms.gle/EXGMnCAEn4AiSC…

Renegade Research @renegaderesearch.bsky.social · Jul 22

8. Phase 3 (January 2026): A scaled model with personalized and automated processes with an affordable membership option. We are currently building the infrastructure to make this a reality.

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Renegade Research @renegaderesearch.bsky.social · Jul 22

7. Phase 2 (October): Group sessions with a streamlined analysis and guidance. This format will stratify clients who fit similar profiles based on presentation and test results, and will meet as a group to make this option more affordable than the one on one full service.

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Renegade Research @renegaderesearch.bsky.social · Jul 22

6. We will add 1-2 spaces weekly as capacity allows. Fill out this interest form forms.gle/EXGMnCAEn4AiSC… to join the waitlist and join us on this webinar tinyurl.com/3ezbcwbc, Friday Jul 25, 2025 to hear more details on how the program will function

https://forms.gle/EXGMnCAEn4AiSC…

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Renegade Research @renegaderesearch.bsky.social · Jul 22

5. Also, comprehensive reports and ongoing guidance related to your individual situation, based on the biochemical pathways and identified functional needs.

We are accepting 10 clients!

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Renegade Research @renegaderesearch.bsky.social · Jul 22

4. We are launching in 3 phases:

Phase 1 (Now): A full medical coaching service program for patients. This includes one on one sessions with the team, review of history and tests, meeting with your provider(s).

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Renegade Research @renegaderesearch.bsky.social · Jul 22

3. Our Model:
Restoring and Optimizing function while helping you uncover YOUR underlying molecular and/or mechanical +dysfunction!!!!!!

Guided by our expert team, John Haughton, MD, MS; Isabel Burnett, NBC-HWC & our Science Communicator Kat Boniface.

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Renegade Research @renegaderesearch.bsky.social · Jul 22

2. This medical coaching & consulting program will address a needs gap for patients with Complex, Multi-system, Chronic Conditions (CMCCs) like ME/CFS, Long Covid, Chronic Tick Borne conditions, and associated comorbidities.

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Renegade Research @renegaderesearch.bsky.social · Jul 22

Announcement!!

1. Clinics are shutting down, but patients w/ MECFS & Long Covid need to regain function. Resources are decreasing, while the need grows!

We are thrilled to announce the launch of a full-service coaching and consulting program tailored for patients with ME/LC

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Reposted by Renegade Research

Maya Lindemann @mayalongcovid.bsky.social · Jul 14

@renegaderesearch.bsky.social
@remissionbiome.bsky.social @tessfalor.bsky.social @isabelrb.bsky.social

Maya Lindemann @mayalongcovid.bsky.social · Jul 14

📣PwME(preCovid): I need your input on a study design. Please fill out this quick survey

gformsapp.com/f/1elUnYTbc-...

I’ve been working on this project for over a year and am so excited to share it with you @remissionbiome.bsky.social

Study Design Input
Renegade Research is planning a study on people with ME using Vielight Gamma (red light with intranasal applicator)
We currently have preliminary funds from Kanro to develop a study, but no funds for participant compensation. As a patient led research project, we need YOUR input to determine how we can complete this study or how much more we'd need to fundraise for compensation & international shipping.
Eligibility:
-ME prior to 2020 (not from COVID)
-Fluent English
-Cognitive impairment/Brainfog
Participant Requirements:
-Use device per protocol (3-6x a week)
-Complete daily survey (~2min)
-Complete bi/weekly surveys including FUNCAP
& Cognitive Assessment (5-15min)
-Maintain email communication with study staff

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Reposted by Renegade Research

Elly Brosius, MS @ellybrosius.bsky.social · Jul 22

Sign up! Free webinar Fri 7/25 1pET
Community Briefing: Coaching & Consulting Medical Program by @renegaderesearch.bsky.social
10 patients accepted to start. Need your own clinician as well, not all can afford it.
By learning what it is, all may pick up tips. Link:
us06web.zoom.us/webinar/regi...

Square graphic with yellow and orange spheres floating on white and orange background. Text about July 25 Community Briefing by Renegade Research about their New Coaching and Consulting Program for people with ME/CFS and/or Long Covid. Speakers are John Haughton, MD, Isabel Burnett, NBC-HWC, and Kat Boniface, Science Communicator. Time is 1 P Eastern US, 10 AM Pacific US, 6 PM GMT. Text also says it is free and all are welcome. An email address is provided: event@renegade-research.org.

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Renegade Research @renegaderesearch.bsky.social · Jul 2

Don’t miss our next clinician’s roundtable where our medical director, John Haughton, MD, and Joshua Leisk from the Born Free protocol will discuss biochemical dysfunction and clinical approaches in MECFS and Long Covid.

Registration link: us06web.zoom.us/webinar/regi...

Welcome! You are invited to join a webinar: Biochemical Pathways & Clinical Applications for ME/CFS with Joshua Leisk & John Haughton, MD. After registering, you will receive a confirmation email abou...

A Renegade Research Clinical Roundtable with Joshua Leisk Theoretical Biochemist, Independent Sydney, Australia Known for The Born Free Protocol https://bornfree.life/2024/ John Haughton, MD, is the...

us06web.zoom.us

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Reposted by Renegade Research

Isabel Ramirez-Burnett @isabelrb.bsky.social · Jul 1

Helps us work to advance MECFS and Long Covid research and care.

My birthday is tomorrow and I am 5% to the goal. If everyone who can, donates just $5 & shares so others can do the same, I’m sure we can raise this by the end of the day.

www.zeffy.com/en-US/fundra...

Isabel Ramírez-Burnett

Remission Biome is a community science, patient and caregiver-led project of the non-profit, decentralized research organization, Renegade Research. We work in collaboration with researchers and clini...

www.zeffy.com

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Reposted by Renegade Research

Isabel Ramirez-Burnett @isabelrb.bsky.social · Jun 30

My birthday is in 2 days. Help me celebrate by helping me do the work to advance research and care of MECFS and Long Covid at @renegaderesearch.bsky.social

Donate to my birthday fundraiser if you are able. Any amount helps

tinyurl.com/Renegage-Res...

Isabel Ramírez-Burnett

tinyurl.com

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Reposted by Renegade Research

Isabel Ramirez-Burnett @isabelrb.bsky.social · Jun 27

Help me celebrate my birthday next week by donating to @renegaderesearch.bsky.social and help us do this much needed work

www.zeffy.com/en-US/fundra...

Isabel Ramírez-Burnett

www.zeffy.com

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Renegade Research @renegaderesearch.bsky.social · Jun 24

We have many exciting projects underway! Any amount of donation helps, no matter how small. Thanks, we appreciate you! 🙏

🔗 www.zeffy
.com/en-US/fundraising/9888892c-f8dc-4dca-b1c2-3603f6f3c755

www.zeffy

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Renegade Research @renegaderesearch.bsky.social · Jun 24

✅️ Accelerate Research + Care! 🔬 #MECFS #longCOVID

Our work impacts the lives of many! Patients + caregivers are listened to and empowered. (campaign link below)

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Renegade Research @renegaderesearch.bsky.social · Jun 22

Next time you shop on #Amazon, use our affiliate link below to help support Renegade Research “at no additional cost to you” by shopping as you usually do. Our non-profit organization will receive a small percentage from Amazon. This helps our NPO operate. 💙 Thank you!

🔗 amzn.to/3DKgOaX

Today's Deals

amzn.to

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Reposted by Renegade Research

European Centre for Disease Prevention and Control @ecdc.europa.eu · Jun 19

#JustPublished!

Rapid Risk Assessment: Multi-country outbreak of #hepatitisA in the EU/EEA.

The spike in cases has been reported across Austria, Czechia, Hungary & Slovakia

Read full report here: bit.ly/3HOlL4E
and our press release here: bit.ly/4kNULAQ

#IDsky #EpiSky #MedSky

ECDC releases risk assessment with actions needed to address spike in hepatitis A cases

ECDC has issued a Rapid Risk Assessment in response to a multi-country outbreak of hepatitis A in the EU/EEA.

bit.ly

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Reposted by Renegade Research

Sean Mullen, Ph.D. @drseanmullen.bsky.social · Jun 21

If 4.9 million kids with asthma is a national health priority, what does it mean when 5.8 million have Long Covid?

Why is the #1 chronic condition in children being ignored?

82 630 2.2K

Reposted by Renegade Research

The Daily Edge @thedailyedge.bsky.social · Jun 20

New study shows that it takes many people up to three months to return to good physical health after a COVID-19 infection, and nine months to recover good mental well-being. For up to 20% of infected people, this mental-health recovery took even longer: up to a year or more. time.com/7292910/covi...

Still Not Feeling the Same After COVID-19? You’re Not Alone

The physical and mental effects of COVID-19 can linger for months and even years.

time.com

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