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retinaint.bsky.social
@retinaint.bsky.social
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retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · 2d
For World Sight Day this year, our priority is to #KeepPatientsVoting.

We are proud to launch our campaign, Patient Voices: Deciding Our Futures.

Learn more: https://ow.ly/s3X250X7MoU

#WorldSightDay #PatientVoices #WSD2025
A social media graphic from Retina International’s “Patient Voices: Deciding our Futures” campaign. It features a black-and-white portrait of Leighton Boyd, Chair of Retina Australia, smiling and wearing a light shirt. Next to his image is a quote that reads: “When patients have a voice in establishing policy, programs and systems are better designed to meet real-world needs.” The Retina International logo appears in the top right corner, and at the bottom is the campaign hashtag #KeepPatientsVoting.
retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · 3d
- Russell Wheeler (Patient Advocate, LHON Society)
- Kirk Stephenson (Consultant Ophthalmic Surgeon & Retina Specialist, Mater Private Network, Children’s Health Ireland (CHI), Dublin)
Moderator: Avril Daly (CEO, Retina International)
retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · 3d
Panellists:
- Silvia Cerolini (Eyes on the Future, Coordinator RDH12 Alliance)
- Christina Fasser (Past President, Retina International)
- Ben Shaberman (VP, Science Communications, Foundation Fighting Blindness)
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retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · 3d
Have you registered for our free World Sight Day webinar, The Patient Voice and Innovation:

🗓️ Date: October 9
⏱️ Time: 1:30 PM UK | 2:30 PM CET | 8:30 AM EDT
⌛ Duration: 1 hour

us06web.zoom.us/meeting/regi...

#Webinar #WSD2025 #FreeEvent #Ophthalmology #PatientVoice
Welcome! You are invited to join a meeting: Retina International on World Sight Day: The Patient Voice and Innovation. After registering, you will receive a confirmation email about joining the meetin...
Welcome! You are invited to join a meeting: Retina International on World Sight Day: The Patient Voice and Innovation. After registering, you will receive a confirmation email about joining the meetin...
us06web.zoom.us
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eyedoctorsirl.bsky.social
Irish College of Ophthalmolgists @eyedoctorsirl.bsky.social · 25d
We're looking forward to a great day of #clinicaleducation & #eyecare service delivery discussion at #EyeCareinFocus25 View programme eyedoctors.ie/eyecareinfoc... #myopia #glaucoma #cataract #eyecareteam #optometrist #optometry #eyenurse #GP #orthoptist #orthoptics #eyedoctor #ophthalmology
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retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · Sep 9
Are you a young person living with a retinal condition? Register today for the Retina International Youth World Conference! Saturday, September 27 at 4pm CET> us06web.zoom.us/meeting/regi... #Conference #Science #Retina #RetinaYouth
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re-vanatx.bsky.social
Re-Vana Therapeutics @re-vanatx.bsky.social · Aug 30
Re-Vana is pleased to announce that our CEO, Michael O’Rourke, will present at Ophthalmology Futures Forums Retina 2025 (Panel 3: Neovascular AMD) and at the EURETINA Innovation Spotlight 2025 (Rapid Fire Panel Presentation and Discussion) on Wed, Sept 3 in Paris. #OFF2025 #EIS2025
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retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · Sep 3
Reach out if you're in attendance and would like to learn more about our work! Our CEO, Avril Daly and our Head of Research & Programmes, Dr Nabin Paudel and our Scientific Programme Manager, Dr Ellen Moran, will also be in attendance.
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retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · Sep 3
We're excited to attend @euretina.bsky.social!

➡️ Our abstract details:
“Can large language models improve the readability of online patient education materials on retinal diseases?”

📍 6th September 2025
🕤 10:00 – 10:06
📌Speakers' Corner 18

@avrilbdaly.bsky.social @nabinpaudel.bsky.social
A graphic of the RI team. There is text: Connect with us! Retina International at EURETINA '25. The EURETINA logo is placed underneath the text. There are three black and white headshots of staff- Dr Nabin Paudel, Avril Daly and Dr Ellen Moran. All three are looking directly to camera and smiling. The Retina International logo is placed underneath the image, bottom centre.
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retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · Aug 14
Join us at @euretina.bsky.social! We will be presenting our latest work, "Can large language models improve the readability of online patient education materials on retinal diseases?”

🗓 Speakers’ Corner 18: Miscellaneous
⏰ 09:30–10:30 CEST | Dr. Nabin Paudel speaking 10:00–10:06

#EURETINA #RI
Can large language models improve the readability of online patient education materials on retinal diseases?’ Hashtags: #EURetina2025. Below: ‘Oral Presentation: Dr. Nabin Paudel, Head of Research & Programmes, Retina International. 6 September 2025, 09:30–10:30 CEST.’ Large text reads: ‘People living with retinal diseases often face complex, highly technical medical information.’ Text reads: ‘Our research explores how artificial intelligence (AI), specifically large language models, can make these materials clearer, simpler, and easier to understand, improving health literacy and empowering patients in their care decisions.’ Text reads: ‘Our pilot study tested whether AI tools like ChatGPT, Claude, and DeepSeek could rewrite online patient education materials (PEMs) to be: more readable, more accessible, and better suited for all educational backgrounds.’
retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · Jul 2
Save the date! Our Head of Research, Dr. @nabinpaudel.bsky.social will speak at #EURETINA2025 on AI and clearer patient info for retinal diseases.
- Sept 6, 10:00 CEST.
#Ophthalmology #AI #EURETINA25 @euretina.bsky.social
A headshot of Dr Nabin Paudel. He is standing in a park and smiling to camera. The Retina International logo is placed bottom centre of the graphic. Text in black on a green background states: Can large language models improve the readability of online patient education materials on retinal diseases. The Retina International logo is placed bottom centre of the graphic. The hashtag #EURETINA25 is placed on the graphic above the RI logo.
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retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · Jun 19
Exciting news! Our colleague Dr. @nabinpaudel.bsky.social will present at @euretina.bsky.social #EURETINA25 on using AI to improve the readability of online patient education materials on retinal diseases. Save the date! Sept 6 at 10:00 CEST
#AIinHealthcare retina-international.org/ri-euretina-...
Retina International
retina-international.org
retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · Jun 18
Congrats to Prof. José-Alain Sahel, Co-chair of our SMAB, on receiving the @arvoinfo.bsky.social Proctor Medal for his pioneering work in retinal research.

This is one of the highest honors bestowed by ARVO - and so well deserved.

#ProctorMedal #ARVO #Award #RetinalResearch #Retina #Research
An image of Jose Sahal on a pink background. The RI logo is centred in the image. Text states: Retina International warmly congratulates Professor José-Alain Sahel, Co-chair of our Scientific and Medical Advisory Board, on receiving the prestigious Proctor Medal - one of the highest honors bestowed by ARVO.
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retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · Jun 11
@avrilbdaly.bsky.social @nabinpaudel.bsky.social @unibonn.bsky.social @ema.europa.eu

#GeographicAtrophy #ClinicalTrials
retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · Jun 11
Thanks to all who joined our #ARVO #SIG on #GA trial endpoints yesterday - great insights from regulators, industry, academia & the patient community.

More multistakeholder conversations to come!
A blue image with dark grey text, with a screengrab of the special interest group meeting participants on Zoom. The text states: RI Special Interest Group (SIG). The Retina International logo is placed at the bottom centre of the image. Dark grey poster with blue text. Text states: Panelists: Avril Daly, Dr. Andrew Want,Dr. Maximilian Pfau, Dr. Jane Moseley. #ARVO. The Retina International logo is placed bottom centre of the graphic.
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retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · Jun 10
Our @arvoinfo.bsky.social #SIG on GA trial endpoints is today. Join global experts + patient voices to rethink what meaningful outcomes look like.
Last chance to register! www.arvo.org/education/sp...
@avrilbdaly.bsky.social @nabinpaudel.bsky.social #GeographicAtrophy #ClinicalTrials
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retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · May 29
Our @arvoinfo.bsky.social #SIG on #GeographicAtrophy endpoints is just 2 weeks away. Join us on June 10 to help shape more meaningful trial outcomes.
🔗 Register today! www.arvo.org/education/sp...
@avrilbdaly.bsky.social @nabinpaudel.bsky.social @ema.europa.eu #GeographicAtrophy #ClinicalTrials
A yellow poster with details of the SIG session: Special Interest Group (SIG). Harmonizing and Designing Novel Endpoints in Degenerative Retinal Diseases to Foster Innovation. June 10 - 9:00 - 10:30 am EDT
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retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · May 26
Retina International welcomes this step forward for our community. We thank @rarediseasesint.bsky.social for its leadership in bringing together patient reps from around the world and for ensuring that our voices are heard loud and clear at the global level. #Resolution4Rare #RareEyeDiseases #IRDs
rarediseasesint.bsky.social
Rare Diseases International (RDI) @rarediseasesint.bsky.social · May 24
🎉 BREAKING NEWS FROM GENEVA! 🎉

The Resolution on Rare Diseases has officially been adopted at the 78th World Health Assembly (WHA78)! 🌍✅

#WHA78 #RareDiseases #HealthForAll #Equity #UHC #Resolution4Rare
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avrilbdaly.bsky.social
Avril Daly @avrilbdaly.bsky.social · May 24
Huge achievement for all in the #global #raredisease community & an example that successful collaboration across borders, cultures, languages and systems, is absolutely possible if we listen & learn from each other. Well done to everyone involved! #HealthforaAll #Resolution4Rare #UHC #WHA78
rarediseasesint.bsky.social
Rare Diseases International (RDI) @rarediseasesint.bsky.social · May 24
🎉 BREAKING NEWS FROM GENEVA! 🎉

The Resolution on Rare Diseases has officially been adopted at the 78th World Health Assembly (WHA78)! 🌍✅

#WHA78 #RareDiseases #HealthForAll #Equity #UHC #Resolution4Rare
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rarediseasesint.bsky.social
Rare Diseases International (RDI) @rarediseasesint.bsky.social · May 24
🎉 BREAKING NEWS FROM GENEVA! 🎉

The Resolution on Rare Diseases has officially been adopted at the 78th World Health Assembly (WHA78)! 🌍✅

#WHA78 #RareDiseases #HealthForAll #Equity #UHC #Resolution4Rare
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retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · May 23
The #EMM2025 meeting highlights the importance of unified advocacy and inclusive dialogue at every level.

Together, we are building a stronger, more visible future for the rare disease community.
retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · May 23
Our CEO @avrilbdaly.bsky.social, in her role as President of @eurordis.bsky.social, opened the EURORDIS Membership Meeting 2025 in Riga 🇱🇻 #EMM2025

The theme: Maximising our impact - Strengthening the voice of the rare disease community in decision-making.

#RareDiseases #EURORDIS #PatientVoice
There is a photograph of Avril Daly on stage placed on a pink background. She is speaking into a microphone. Behind her on screen is a presentation slide. The Retina International logo is placed at the bottom centre of the graphic.
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retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · May 21
@avrilbdaly.bsky.social @nabinpaudel.bsky.social @ema.europa.eu @unibonn.bsky.social @arvoinfo.bsky.social
retinaint.bsky.social
retinaint.bsky.social @retinaint.bsky.social · May 21
How do we make GA clinical trials more patient-focused?
Join our virtual @arvoinfo.bsky.social SIG session:

June 10, 9-10:30am EDT.

Hosted by @retinaint.bsky.social - open discussion encouraged!

🔗 Register: www.arvo.org/education/sp...

#GeographicAtrophy #RetinaResearch #ClinicalTrials #AMD
Blue poster with dark grey text: Special Interest Group (SIG). Harmonizing and Designing Novel Endpoints in Degenerative Retinal Diseases to Foster Innovation. #ARVO2025. The Retina International logo is centred at the bottom of the graphic. Image 2: Dark grey poster with blue text. Panelists: Avril Daly, Dr. Andrew Want,Dr. Maximilian Pfau, Dr. Jane Moseley
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engagedroadmap.bsky.social
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social · May 12
ENGAGED is a joint project run between @tcddublin.bsky.social and @dublincityuni.bsky.social funded by the National Open Research Forum (NORF), a Government of Ireland initiative, funded by the Dept of Further and Higher Education, Research, Innovation and Science
#OpenResearch #PublicEngagement
ENGAGED is a joint project run between @tcddublin.bsky.social and @dublincityuni.bsky.social . It is funded by the National Open Research Forum (NORF), which is a Government of Ireland initiative, funded by the Department of Further and Higher Education, Research, Innovation and Science, through the Higher Education Authority. https://www.tcd.ie/civicengagement/engaged/ #OpenResearch #PublicEngagement #Scicomm
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