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retinaint.bsky.social
@retinaint.bsky.social
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retinaint.bsky.social
For World Sight Day this year, our priority is to #KeepPatientsVoting.

We are proud to launch our campaign, Patient Voices: Deciding Our Futures.

Learn more: https://ow.ly/s3X250X7MoU

#WorldSightDay #PatientVoices #WSD2025
A social media graphic from Retina International’s “Patient Voices: Deciding our Futures” campaign. It features a black-and-white portrait of Leighton Boyd, Chair of Retina Australia, smiling and wearing a light shirt. Next to his image is a quote that reads: “When patients have a voice in establishing policy, programs and systems are better designed to meet real-world needs.” The Retina International logo appears in the top right corner, and at the bottom is the campaign hashtag #KeepPatientsVoting.
October 8, 2025 at 7:05 PM
retinaint.bsky.social
Have you registered for our free World Sight Day webinar, The Patient Voice and Innovation:

🗓️ Date: October 9
⏱️ Time: 1:30 PM UK | 2:30 PM CET | 8:30 AM EDT
⌛ Duration: 1 hour

us06web.zoom.us/meeting/regi...

#Webinar #WSD2025 #FreeEvent #Ophthalmology #PatientVoice
Welcome! You are invited to join a meeting: Retina International on World Sight Day: The Patient Voice and Innovation. After registering, you will receive a confirmation email about joining the meetin...
Welcome! You are invited to join a meeting: Retina International on World Sight Day: The Patient Voice and Innovation. After registering, you will receive a confirmation email about joining the meetin...
us06web.zoom.us
October 7, 2025 at 1:52 PM
Reposted
eyedoctorsirl.bsky.social
We're looking forward to a great day of #clinicaleducation & #eyecare service delivery discussion at #EyeCareinFocus25 View programme eyedoctors.ie/eyecareinfoc... #myopia #glaucoma #cataract #eyecareteam #optometrist #optometry #eyenurse #GP #orthoptist #orthoptics #eyedoctor #ophthalmology
September 16, 2025 at 1:10 PM
retinaint.bsky.social
Are you a young person living with a retinal condition? Register today for the Retina International Youth World Conference! Saturday, September 27 at 4pm CET> us06web.zoom.us/meeting/regi... #Conference #Science #Retina #RetinaYouth
September 9, 2025 at 8:08 AM
Reposted
re-vanatx.bsky.social
Re-Vana is pleased to announce that our CEO, Michael O’Rourke, will present at Ophthalmology Futures Forums Retina 2025 (Panel 3: Neovascular AMD) and at the EURETINA Innovation Spotlight 2025 (Rapid Fire Panel Presentation and Discussion) on Wed, Sept 3 in Paris. #OFF2025 #EIS2025
August 30, 2025 at 8:11 AM
retinaint.bsky.social
We're excited to attend @euretina.bsky.social!

➡️ Our abstract details:
“Can large language models improve the readability of online patient education materials on retinal diseases?”

📍 6th September 2025
🕤 10:00 – 10:06
📌Speakers' Corner 18

@avrilbdaly.bsky.social @nabinpaudel.bsky.social
A graphic of the RI team. There is text: Connect with us! Retina International at EURETINA '25. The EURETINA logo is placed underneath the text. There are three black and white headshots of staff- Dr Nabin Paudel, Avril Daly and Dr Ellen Moran. All three are looking directly to camera and smiling. The Retina International logo is placed underneath the image, bottom centre.
September 3, 2025 at 11:05 AM
retinaint.bsky.social
Join us at @euretina.bsky.social! We will be presenting our latest work, "Can large language models improve the readability of online patient education materials on retinal diseases?”

🗓 Speakers’ Corner 18: Miscellaneous
⏰ 09:30–10:30 CEST | Dr. Nabin Paudel speaking 10:00–10:06

#EURETINA #RI
Can large language models improve the readability of online patient education materials on retinal diseases?’ Hashtags: #EURetina2025. Below: ‘Oral Presentation: Dr. Nabin Paudel, Head of Research & Programmes, Retina International. 6 September 2025, 09:30–10:30 CEST.’ Large text reads: ‘People living with retinal diseases often face complex, highly technical medical information.’ Text reads: ‘Our research explores how artificial intelligence (AI), specifically large language models, can make these materials clearer, simpler, and easier to understand, improving health literacy and empowering patients in their care decisions.’ Text reads: ‘Our pilot study tested whether AI tools like ChatGPT, Claude, and DeepSeek could rewrite online patient education materials (PEMs) to be: more readable, more accessible, and better suited for all educational backgrounds.’
August 14, 2025 at 10:27 AM
retinaint.bsky.social
Save the date! Our Head of Research, Dr. @nabinpaudel.bsky.social will speak at #EURETINA2025 on AI and clearer patient info for retinal diseases.
- Sept 6, 10:00 CEST.
#Ophthalmology #AI #EURETINA25 @euretina.bsky.social
A headshot of Dr Nabin Paudel. He is standing in a park and smiling to camera. The Retina International logo is placed bottom centre of the graphic. Text in black on a green background states: Can large language models improve the readability of online patient education materials on retinal diseases. The Retina International logo is placed bottom centre of the graphic. The hashtag #EURETINA25 is placed on the graphic above the RI logo.
July 2, 2025 at 9:41 AM
retinaint.bsky.social
Exciting news! Our colleague Dr. @nabinpaudel.bsky.social will present at @euretina.bsky.social #EURETINA25 on using AI to improve the readability of online patient education materials on retinal diseases. Save the date! Sept 6 at 10:00 CEST
#AIinHealthcare retina-international.org/ri-euretina-...
Retina International
retina-international.org
June 19, 2025 at 11:30 AM
retinaint.bsky.social
Congrats to Prof. José-Alain Sahel, Co-chair of our SMAB, on receiving the @arvoinfo.bsky.social Proctor Medal for his pioneering work in retinal research.

This is one of the highest honors bestowed by ARVO - and so well deserved.

#ProctorMedal #ARVO #Award #RetinalResearch #Retina #Research
An image of Jose Sahal on a pink background. The RI logo is centred in the image. Text states: Retina International warmly congratulates Professor José-Alain Sahel, Co-chair of our Scientific and Medical Advisory Board, on receiving the prestigious Proctor Medal - one of the highest honors bestowed by ARVO.
June 18, 2025 at 9:04 AM
retinaint.bsky.social
Thanks to all who joined our #ARVO #SIG on #GA trial endpoints yesterday - great insights from regulators, industry, academia & the patient community.

More multistakeholder conversations to come!
A blue image with dark grey text, with a screengrab of the special interest group meeting participants on Zoom. The text states: RI Special Interest Group (SIG). The Retina International logo is placed at the bottom centre of the image. Dark grey poster with blue text. Text states: Panelists: Avril Daly, Dr. Andrew Want,Dr. Maximilian Pfau, Dr. Jane Moseley. #ARVO. The Retina International logo is placed bottom centre of the graphic.
June 11, 2025 at 11:11 AM
retinaint.bsky.social
Our @arvoinfo.bsky.social #SIG on GA trial endpoints is today. Join global experts + patient voices to rethink what meaningful outcomes look like.
Last chance to register! www.arvo.org/education/sp...
@avrilbdaly.bsky.social @nabinpaudel.bsky.social #GeographicAtrophy #ClinicalTrials
June 10, 2025 at 9:40 AM
retinaint.bsky.social
Our @arvoinfo.bsky.social #SIG on #GeographicAtrophy endpoints is just 2 weeks away. Join us on June 10 to help shape more meaningful trial outcomes.
🔗 Register today! www.arvo.org/education/sp...
@avrilbdaly.bsky.social @nabinpaudel.bsky.social @ema.europa.eu #GeographicAtrophy #ClinicalTrials
A yellow poster with details of the SIG session: Special Interest Group (SIG). Harmonizing and Designing Novel Endpoints in Degenerative Retinal Diseases to Foster Innovation. June 10 - 9:00 - 10:30 am EDT
May 29, 2025 at 10:53 AM
retinaint.bsky.social
Retina International welcomes this step forward for our community. We thank @rarediseasesint.bsky.social for its leadership in bringing together patient reps from around the world and for ensuring that our voices are heard loud and clear at the global level. #Resolution4Rare #RareEyeDiseases #IRDs
rarediseasesint.bsky.social Rare Diseases International (RDI) @rarediseasesint.bsky.social · May 24
🎉 BREAKING NEWS FROM GENEVA! 🎉

The Resolution on Rare Diseases has officially been adopted at the 78th World Health Assembly (WHA78)! 🌍✅

#WHA78 #RareDiseases #HealthForAll #Equity #UHC #Resolution4Rare
May 26, 2025 at 10:33 AM
Reposted
avrilbdaly.bsky.social
Huge achievement for all in the #global #raredisease community & an example that successful collaboration across borders, cultures, languages and systems, is absolutely possible if we listen & learn from each other. Well done to everyone involved! #HealthforaAll #Resolution4Rare #UHC #WHA78
rarediseasesint.bsky.social Rare Diseases International (RDI) @rarediseasesint.bsky.social · May 24
🎉 BREAKING NEWS FROM GENEVA! 🎉

The Resolution on Rare Diseases has officially been adopted at the 78th World Health Assembly (WHA78)! 🌍✅

#WHA78 #RareDiseases #HealthForAll #Equity #UHC #Resolution4Rare
May 24, 2025 at 2:45 PM
Reposted
rarediseasesint.bsky.social
🎉 BREAKING NEWS FROM GENEVA! 🎉

The Resolution on Rare Diseases has officially been adopted at the 78th World Health Assembly (WHA78)! 🌍✅

#WHA78 #RareDiseases #HealthForAll #Equity #UHC #Resolution4Rare
May 24, 2025 at 10:03 AM
retinaint.bsky.social
Our CEO @avrilbdaly.bsky.social, in her role as President of @eurordis.bsky.social, opened the EURORDIS Membership Meeting 2025 in Riga 🇱🇻 #EMM2025

The theme: Maximising our impact - Strengthening the voice of the rare disease community in decision-making.

#RareDiseases #EURORDIS #PatientVoice
There is a photograph of Avril Daly on stage placed on a pink background. She is speaking into a microphone. Behind her on screen is a presentation slide. The Retina International logo is placed at the bottom centre of the graphic.
May 23, 2025 at 8:50 AM
retinaint.bsky.social
How do we make GA clinical trials more patient-focused?
Join our virtual @arvoinfo.bsky.social SIG session:

June 10, 9-10:30am EDT.

Hosted by @retinaint.bsky.social - open discussion encouraged!

🔗 Register: www.arvo.org/education/sp...

#GeographicAtrophy #RetinaResearch #ClinicalTrials #AMD
Blue poster with dark grey text: Special Interest Group (SIG). Harmonizing and Designing Novel Endpoints in Degenerative Retinal Diseases to Foster Innovation. #ARVO2025. The Retina International logo is centred at the bottom of the graphic. Image 2: Dark grey poster with blue text. Panelists: Avril Daly, Dr. Andrew Want,Dr. Maximilian Pfau, Dr. Jane Moseley
May 21, 2025 at 9:59 AM
Reposted
engagedroadmap.bsky.social
ENGAGED is a joint project run between @tcddublin.bsky.social and @dublincityuni.bsky.social funded by the National Open Research Forum (NORF), a Government of Ireland initiative, funded by the Dept of Further and Higher Education, Research, Innovation and Science
#OpenResearch #PublicEngagement
ENGAGED is a joint project run between @tcddublin.bsky.social and @dublincityuni.bsky.social . It is funded by the National Open Research Forum (NORF), which is a Government of Ireland initiative, funded by the Department of Further and Higher Education, Research, Innovation and Science, through the Higher Education Authority. https://www.tcd.ie/civicengagement/engaged/ #OpenResearch #PublicEngagement #Scicomm
May 12, 2025 at 9:09 PM
retinaint.bsky.social
We warmly welcome the @ema.europa.eu CHMP’s positive opinion on the first targeted therapy for Thyroid Eye Disease (TED).

🔗 Read more: retina-international.org/ted-press-re...

#RareDisease #TED #RetinaInternational #VisionHealth #InnovationInSight @amgen.bsky.social @avrilbdaly.bsky.social
Text on a pink background: Retina International Welcomes CHMP's Positive Opinion on First Targeted Therapy for Thyroid Eye DIsease. The Retina International logo is centered at the bottom of the graphic. Text on a pink background: This is a pivotal moment for the TED community. Avril Daly, CEO, Retina International. The Retina International logo is centered at the bottom of the graphic.
May 12, 2025 at 9:42 AM
retinaint.bsky.social
We're delighted to have had such a productive few days at #ARVO2025 @arvoinfo.bsky.social this year. Dr @nabinpaudel.bsky.social & @avrilbdaly.bsky.social presented work that demonstrates our commitment to patient-driven, evidence-based innovation. So many interesting discussions! More to follow!
A photograph of Dr Nabin Paudel, who is standing in front of his poster at ARVO. The poster is presented on a poster board. Nabin is wearing a suit and smiling to camera. Underneath the photograph is a blue block colour with the Retina International logo and the hastag #ARVO2025
May 7, 2025 at 11:29 AM
retinaint.bsky.social
Attending @arvoinfo.bsky.social #ARVO2025? Don't miss our Head of Research & Programmes Dr @nabinpaudel.bsky.social: Accuracy and readability of ChatGPT-4o responses to patient queries on AMD.

📌Large language models in Ophthalmology
📅 May 6, 2025 | 3:30PM - 5:15PM
📍 Posterboard Number: 3952 - B0489
Photograph of Nabin in front of his poster at ARVO
May 6, 2025 at 2:07 PM
retinaint.bsky.social
Productive day for us @arvoinfo.bsky.social - our CEO @avrilbdaly.bsky.social presented her work on #GA and Dr @nabinpaudel.bsky.social will present on Tuesday. At ARVO? Come find us to chat more about our work: ℹ️ www.linkedin.com/posts/retina... #ARVO2025 #ARVO #EyeResearch #Ophthalmology
Avril Daly presenting her work at ARVO 2025. Avril is standing in front of her poster, which is on a poster board. She is presenting her work to another person. Underneath the image is #ARVO2025 and the Retina International logo. Dr Nabin Paudel in front of his work at ARVO 2025. Nabin is standing in front of his poster, which is on a poster board. Underneath the image is #ARVO2025 and the Retina International logo
May 4, 2025 at 8:50 PM
retinaint.bsky.social
At Retina International, our newsletter isn’t just news, it’s a global connection. A place where patients, researchers, advocates, and allies come together to share, learn, and lead change in retinal health.
➡️ Read our April edition here: bit.ly/4cNCvUU.
➡️ Subscribe here: bit.ly/4cGXVmt
#RetinaIntl
April 23, 2025 at 11:19 AM
retinaint.bsky.social
Late-stage #AMD isn’t just a health issue, it’s an economic one.
New research led by Dr. @Nabin Paudel @retinaint.bsky.social, shows massive costs in 🇧🇬 🇩🇪 🇺🇸, with lost well-being & productivity driving the burden. Early action matters. Read more:
🔗 www.ophthalmologytimes.com/view/economi... #DMAE
English: "Title in English and Spanish: Economic burden of late-stage age-related macular degeneration." Spanish: "Título en inglés y español: Carga económica de la DMAE en etapa avanzada." "Text: Late-stage AMD causes significant economic burden, with reduced well-being and productivity loss." Spanish: "Texto: La DMAE en etapa avanzada causa una carga económica significativa, con pérdida de bienestar y productividad." Early detection, vision rehabilitation services, and access to therapies are essential to mitigating the economic impact of AMD.
April 16, 2025 at 12:10 PM