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Science for ME online forum

@scienceforme.bsky.social

1.8K followers 27 following 500 posts

We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. This account is maintained on a part-time basis by patients.

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Science for ME online forum @scienceforme.bsky.social · 4d

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 29-Oct 5.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

News in Brief - October 2025

This thread has a Science for ME 'News in Brief' post for each week in October 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Science for ME online forum @scienceforme.bsky.social · 4d

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 29-Oct 5.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

News in Brief - October 2025

This thread has a Science for ME 'News in Brief' post for each week in October 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Reposted by Science for ME online forum

Tom Kindlon @tomkindlon.bsky.social · 4d

Description from the Science for ME @scienceforme.bsky.social weekly update:

0A clear article explaining how a genome wide association study gives pointers to what may be causing ME/CFS, takes a closer look at some of the DecodeME findings and describes next steps.”
#MEcfs #PwME #CFS

ME/CFS Science @mecfsskeptic.bsky.social · 5d

1) We’ve written an article about the DecodeME results: what the study measured, what the results show, and why its findings are important.

Science for ME online forum @scienceforme.bsky.social · 11d

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 22-28.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

News in Brief - September 2025

This thread has a Science for ME 'News in Brief' post for each week in September 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Science for ME online forum @scienceforme.bsky.social · 18d

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 15 - 21.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

News in Brief - September 2025

This thread has a Science for ME 'News in Brief' post for each week in September 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Science for ME online forum @scienceforme.bsky.social · 25d

Sorry, I don't have any information on this topic. I'd suggest searching the Science for ME forum to see if any of the forum members have posted about this.
cc: @paulaknight.bsky.social

Science for ME online forum @scienceforme.bsky.social · 25d

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 8-14.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

News in Brief - September 2025

This thread has a Science for ME 'News in Brief' post for each week in September 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Science for ME online forum @scienceforme.bsky.social · Sep 7

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 1 - 7.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

News in Brief - September 2025

This thread has a Science for ME 'News in Brief' post for each week in September 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Reposted by Science for ME online forum

ME Association @meassociation.org.uk · Aug 29

The ME Association are pleased to announce that we have awarded Decode ME the Howes-Goudsmit Award 2025 for their extensive work and commitment to their genome-wide association study.

Find out more: https://meassociation.org.uk/ir3e

#MECFS #pwME #SevereME #MyalgicE #DecodeME #HowesGoudsmitAward

The ME Association awards Decode ME the Howes Goudsmit Award 2025 - The ME Association

The ME Association are pleased to announce that we have […]

meassociation.org.uk

Reposted by Science for ME online forum

DecodeME @decodemestudy.bsky.social · Aug 29

As we move into the next phase of our study, we would like to say a huge thank you. Going forwards, we will no longer be able to respond to emails & check social media.

Stay up to date through our email list - sign up at the bottom of our new homepage: shorturl.at/46QSk

DecodeME graphic. In the centre it says 'Thank you' in white cursive writing and beneath it 'from DecodeME'.

Science for ME online forum @scienceforme.bsky.social · Aug 31

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Aug. 25 - 31.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

News in Brief - August 2025

This thread has a Science for ME 'News in Brief' post for each week in August 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Science for ME online forum @scienceforme.bsky.social · Aug 24

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Aug. 18 - 24.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

News in Brief - August 2025

This thread has a Science for ME 'News in Brief' post for each week in August 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Science for ME online forum @scienceforme.bsky.social · Aug 17

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Aug. 11 - 17.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

News in Brief - August 2025

This thread has a Science for ME 'News in Brief' post for each week in August 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Science for ME online forum @scienceforme.bsky.social · Aug 10

Our latest News in Brief post has headlines & links to further reading for #MECFS & #LongCovid news, advocacy, and research for the week of Aug 4 - 10.

Don't miss the news about the #DecodeME initial DNA results!

There's also news about #SevereME Day, Aug 8.

www.s4me.info/threads/news...

News in Brief - August 2025

This thread has a Science for ME 'News in Brief' post for each week in August 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Reposted by Science for ME online forum

Tom Kindlon @tomkindlon.bsky.social · Aug 6

For anyone scientifically-minded, an in-depth discussion on @scienceforme.bsky.social of the new #DecodeME paper, including discussion of how it does/doesn’t fit into other evidence from the field:

www.s4me.info/threads/init...

#MEcfs #PwME

Preprint - Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Boutin et al

[Additional line breaks added] ABSTRACT Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a common, poorly understood disease that has no effective treatments, and has long been under...

Reposted by Science for ME online forum

Tom Kindlon @tomkindlon.bsky.social · Jul 30

5-page @scienceforme.bsky.social post-exertional malaise ( #PEM ) fact sheet
www.s4me.info/docs/PEM_Fac...

Headings:
-Characteristics of PEM
-Symptoms of PEM
-Exertion and other PEM triggers
-Effects of exertion that are not PEM
-Living with PEM
-Examples of PEM
-Research on PEM

#MEcfs #CFS #PwME

Reposted by Science for ME online forum

valebodi.bsky.social @valebodi.bsky.social · Jul 30

A 5 pages fact sheet on #PEM, the cardinal and core symptom complex of #ME/CFS www.s4me.info/docs/PEM_Fac...
By @scienceforme.bsky.social

Science for ME online forum @scienceforme.bsky.social · Aug 3

Our latest News in Brief post has headlines & links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of July 28 - Aug 3.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

News in Brief - July 2025

This thread has a Science for ME 'News in Brief' post for each week in July 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Science for ME online forum @scienceforme.bsky.social · Jul 13

Thanks to @valebodi.bsky.social for tagging us.

Science for ME is an international, moderated forum for discussion of #MEcfs, #LongCovid & related illnesses. It also has subforums for support, chit-chat, etc.

Home page: www.s4me.info

Welcome page: www.s4me.info/threads/welc...

Hope this helps!

A forum where Science and the ME/CFS Community Meet

Science for ME online forum @scienceforme.bsky.social · Jul 13

Our latest News in Brief post has headlines & links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of July 7 - 13.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

News in Brief - July 2025

This thread has a Science for ME 'News in Brief' post for each week in July 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Science for ME online forum @scienceforme.bsky.social · Jul 6

Our latest News in Brief post has headlines & links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of June 30 - July 6

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

News in Brief - July 2025

This thread has a Science for ME 'News in Brief' post for each week in July 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Science for ME online forum @scienceforme.bsky.social · Jun 22

‪Our latest News in Brief post has headlines and links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of June 16 - 22.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

News in Brief - June 2025

This thread has a Science for ME 'News in Brief' post for each week in June 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Reposted by Science for ME online forum

Tom Kindlon @tomkindlon.bsky.social · Jun 17

"What is ME/CFS?": 4-page factsheet created by members of the Science for ME Forum @scienceforme.bsky.social (February 2025)

s4me.info/docs/WhatIsM...

Takes a conservative approach e.g. with regard to prevalence.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Science for ME online forum @scienceforme.bsky.social · Jun 15

Note: Due to a software upgrade the forum has a slightly different look.

Science for ME online forum @scienceforme.bsky.social · Jun 15

Our latest News in Brief post has headlines and links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of June 9 - 15.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

News in Brief - June 2025

This thread has a Science for ME 'News in Brief' post for each week in June 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Science for ME online forum @scienceforme.bsky.social · Jun 9

Our latest News in Brief post has headlines and links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of June 2 - 8.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

News in Brief - June 2025

This thread has a Science for ME 'News in Brief' post for each week in June 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.