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Sickle Cell Society @sicklecelluk.bsky.social · 10h

On 10 Oct, we facilitated a visit to Hammersmith Hospital’s Renal & Haematology Triage Unit for Ben Coleman MP & Andy Slaughter MP, joined by our Chair Dr Matthew Sowemimo, to see the vital work supporting patients with sickle cell.

#SickleCellSociety #SickleCellAwareness

Sickle Cell Society @sicklecelluk.bsky.social · 1d

We’re recruiting! 💻 Join the Sickle Cell Society as our new GBSL Project Support Lead — helping deliver the national Give Blood, Spread Love campaign.
Passionate about community engagement & public health? Apply by 24th Oct 2025 🔗https://buff.ly/LeNkrgO .#SickleCellSociety #GBSL #Recruitment

Sickle Cell Society @sicklecelluk.bsky.social · 2d

Screening, testing & talking openly about sickle cell + thalassaemia matters. 🩸We’re asking healthcare professionals your questions — anonymously. Submit yours below and help us break stigma & share real answers.🔗 buff.ly/3XFbpUq #SickleCellSociety #ScreeningMatters

Sickle Cell Society @sicklecelluk.bsky.social · 2d

We were delighted to attend the 20th Annual Sickle Cell & Thalassaemia Conference (ASCAT 2025) — a great opportunity to connect with colleagues and start Black History Month with community, support & care.
#ASCAT2025 #SickleCellAwareness #BlackHistoryMonth

Sickle Cell Society @sicklecelluk.bsky.social · 3d

Our Family Retreat 2025 was full of joy, learning & connection.
As we celebrate Black History Month, we also celebrate the unity this event fosters. A big thank you to @miffy_uk for bringing smiles to the children! ❤️🐰
#FamilyRetreat #SickleCellSociety #BlackHistoryMonth #Miffy

Sickle Cell Society @sicklecelluk.bsky.social · 6d

🏃🏿 Last reminder!

Join Team Sickle Cell for the 2026 TCS London Marathon and help raise vital funds for people living with sickle cell.

🗓️ Applications close 31 Oct — don’t miss out!
🔗 www.sicklecellsociety.org/london-marat...

#LondonMarathon #TeamSickleCell #RunForACause

Sickle Cell Society @sicklecelluk.bsky.social · 9d

⏰ Final days to sign up!
North-East London sickle cell patients aged 14–21 — join our emotional wellbeing group session on 10 Oct, 5–6:30pm.
Share your experiences & help shape transition support.🔗 bit.ly/groupscyp
#SickleCell #YouthVoice #NELondon

Sickle Cell Society @sicklecelluk.bsky.social · 9d

A huge thank you to Amaka & Amina from Deutsche Bank for hosting our CEO John James and NCL Lead Mentor Temitope for a brilliant Sickle Cell Awareness event & panel discussion.

We appreciate Deutsche Bank’s continued support!

#SickleCellAwareness #SickleCellSociety

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Sickle Cell Society @sicklecelluk.bsky.social · 10d

Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters.

🗓️ Complete the survey by 31 Oct:
🔗 tinyurl.com/bdhzdmfz

#SickleCell #PIP #PatientVoices #SickleCellSociety

Sickle Cell Society @sicklecelluk.bsky.social · 14d

We’re delighted to welcome Dr Matthew Sowemimo as the new Chair of our Board of Trustees. With decades of experience in health & social justice, his leadership will help shape the next chapter for the Society. Excited for what 2026 will bring!

#SickleCellSociety

Sickle Cell Society @sicklecelluk.bsky.social · 15d

🩸 Last call to have your say! Help shape the Top 10 research priorities for sickle cell & genomics in our shortlisting survey.

⏳ Closes 14 Oct
📩 Link: www.surveymonkey.com/r/YVHCF5Q

#SickleCell #Genomics #HaveYourSay

Sickle Cell Society @sicklecelluk.bsky.social · 15d

Happy Black History Month!

This October we’re celebrating the many forms of support that strengthen the sickle cell community — and thanking everyone who makes our work possible. We’ll also be spotlighting events & programmes across the month.

#BlackHistoryMonth #SickleCellAwareness

Sickle Cell Society @sicklecelluk.bsky.social · 20d

📚✨ BOOK GIVEAWAY ✨📚
We’re giving away a copy of The Secret Diary of Joynina K. Jones by Antoinette Brooks for you and a friend 🎉 Perfect for 8–11 year olds. 🎉 Perfect for 8–11 year olds.

👉 Head to our Instagram @SickleCellUK to enter! Closes 10 Oct.

#BookGiveaway #JoyninaKJones

Sickle Cell Society @sicklecelluk.bsky.social · 22d

✏️ Author Antoinette Brooks has shared 10 top tips for teachers supporting children returning to school — especially those navigating health challenges.

Read her advice in the article linked here: buff.ly/GB4wCt0 📖✨

#JoyninaKJones #TeacherTips #BackToSchool #SickleCellSociety #EmotionalGrowth

Sickle Cell Society @sicklecelluk.bsky.social · 24d

🎓✨ North East London sickle cell patients (15–18): Join our online Transition Workshop!
📅 Thu 25 Sep, 5–6:30PM
Topics: rights, uni/career next steps, patient stories & managing anxieties.

👉 Sign up: bit.ly/sicklefuture

#SickleCellSociety

Sickle Cell Society @sicklecelluk.bsky.social · 24d

✨ Get to Know the Author ✨
We spoke with Antoinette Brooks about her life and the journey of writing The Secret Diary of Joynina K. Jones—from inspiration to the importance of talking about sickle cell. 📖❤️

#JoyninaKJones #AuthorSpotlight

Sickle Cell Society @sicklecelluk.bsky.social · 25d

📢 Last chance to apply!

We’re hiring a Mentoring Programme Coordinator to support mentors & young people living with sickle cell.

🗓 Applications close 29 Sept
🔗 Apply via link in bio

#Hiring #JobOpportunity #SickleCell #CharityJobs #Mentoring

Sickle Cell Society @sicklecelluk.bsky.social · 27d

🩸 Martha’s Rule lets patients & families request an urgent review if concerns aren’t being heard.

A short survey has been developed to capture awareness among people with sickle cell.

📩 Take part: forms.cloud.microsoft/r/NTpySfPxVN

#SickleCell #MarthasRule

Sickle Cell Society @sicklecelluk.bsky.social · Sep 16

On 4 Sept, we held a parliamentary meeting with patients & medical professionals to discuss updates in sickle cell care.

Thank you to Bell Ribeiro-Addy MP & all who joined. We aim to host these more regularly.

#SickleCell #HealthEquity #Parliament

Sickle Cell Society @sicklecelluk.bsky.social · Sep 11

🩸 Have your say! Help shape the Top 10 research priorities for sickle cell & genomics in our new Shortlisting Survey.

📩 Take part: www.surveymonkey.com/r/YVHCF5Q

⏳ Closes: 14 Oct 2025

#SickleCell #Genomics #ResearchPriorities #PatientVoices

Sickle Cell Society @sicklecelluk.bsky.social · Sep 9

🩸 Join us on 17 Sept, 11:45am–12:45pm for a Sickle Cell Awareness Month webinar hosted by LGT MIN. Speakers include John James OBE (@SickleCellUK), LGT clinicians & mental health staff.📍 Online (Teams) buff.ly/EWxg5h1 #SickleCellAwareness #SickleCell

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Sickle Cell Society @sicklecelluk.bsky.social · Sep 9

🩸 Last call! We’re looking for two Barts NHS patients with sickle cell to join a Patient Committee for Our Journey, Our Story, soon at Royal London Hospital.

📩 Apply by 11 Sept: [email protected]

(Please note: Barts patients only)

#SickleCell #BartsNHS

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Sickle Cell Society @sicklecelluk.bsky.social · Sep 8

🚨 Group blood donation bookings are now nationwide! 🩸

Black donors are urgently needed to support people with sickle cell. Join friends, colleagues or community groups at upcoming sessions.

🔗 Book: www.blood.co.uk

#GiveBloodSpreadLove #SickleCell

Sickle Cell Society @sicklecelluk.bsky.social · Sep 2

📢 We’re hiring! Join us as Mentoring Programme Coordinator and help support young people living with sickle cell. Apply today 👉 www.sicklecellsociety.org/paid-vacancy...

#Hiring #CharityJobs #SickleCell

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Sickle Cell Society @sicklecelluk.bsky.social · Sep 1

🏃🏿The countdown is on! Join Team Sickle Cell at the 2026 TCS London Marathon and make every mile matter. Run for a cause. Run for sickle cell.

👉🏿 Register today: www.sicklecellsociety.org/london-marat...

#LondonMarathon #TeamSickleCell #CharityRun #RunForACause #SickleCellAwareness