Sickle Cell Society
@sicklecelluk.bsky.social
Official account of the Sickle Cell Society in the UK. We support and represent people affected by sickle cell disorder to improve their overall quality of life.
Our Helpline hours will be limited over the Christmas and New Year period. Please check the image for full details on opening times.
Thank you for your patience during this time. For urgent support, contact us at [email protected]
#SickleCellSociety #SupportServices #CommunitySupport
Thank you for your patience during this time. For urgent support, contact us at [email protected]
#SickleCellSociety #SupportServices #CommunitySupport
December 24, 2025 at 11:55 AM
Our Helpline hours will be limited over the Christmas and New Year period. Please check the image for full details on opening times.
Thank you for your patience during this time. For urgent support, contact us at [email protected]
#SickleCellSociety #SupportServices #CommunitySupport
Thank you for your patience during this time. For urgent support, contact us at [email protected]
#SickleCellSociety #SupportServices #CommunitySupport
Happy Holidays from our CEO and the whole SCS team! ❤️
Thank you to all staff, volunteers & supporters for your hard work in 2025. We’re excited for everything coming in 2026… 👀
#SickleCellSociety #HappyHolidays
Thank you to all staff, volunteers & supporters for your hard work in 2025. We’re excited for everything coming in 2026… 👀
#SickleCellSociety #HappyHolidays
December 23, 2025 at 1:02 PM
Happy Holidays from our CEO and the whole SCS team! ❤️
Thank you to all staff, volunteers & supporters for your hard work in 2025. We’re excited for everything coming in 2026… 👀
#SickleCellSociety #HappyHolidays
Thank you to all staff, volunteers & supporters for your hard work in 2025. We’re excited for everything coming in 2026… 👀
#SickleCellSociety #HappyHolidays
Living with sickle cell?
Help us understand how social & environmental factors affect your health by taking our short survey.
📝 Quick to complete
🎁 Chance to win a £50 voucher
Your voice matters.
#SickleCell #SCDCommunity #PatientVoice #HealthEquity
Help us understand how social & environmental factors affect your health by taking our short survey.
📝 Quick to complete
🎁 Chance to win a £50 voucher
Your voice matters.
#SickleCell #SCDCommunity #PatientVoice #HealthEquity
December 19, 2025 at 5:07 PM
Living with sickle cell?
Help us understand how social & environmental factors affect your health by taking our short survey.
📝 Quick to complete
🎁 Chance to win a £50 voucher
Your voice matters.
#SickleCell #SCDCommunity #PatientVoice #HealthEquity
Help us understand how social & environmental factors affect your health by taking our short survey.
📝 Quick to complete
🎁 Chance to win a £50 voucher
Your voice matters.
#SickleCell #SCDCommunity #PatientVoice #HealthEquity
❄️ Winter Resource: Day Seven – Helpline Support
If you need help this winter — information, support, or someone to talk to — we’re here for you.
More resources: buff.ly/q5Y0H0m
#WinterResources #SickleCellSociety
If you need help this winter — information, support, or someone to talk to — we’re here for you.
More resources: buff.ly/q5Y0H0m
#WinterResources #SickleCellSociety
December 13, 2025 at 9:30 AM
❄️ Winter Resource: Day Seven – Helpline Support
If you need help this winter — information, support, or someone to talk to — we’re here for you.
More resources: buff.ly/q5Y0H0m
#WinterResources #SickleCellSociety
If you need help this winter — information, support, or someone to talk to — we’re here for you.
More resources: buff.ly/q5Y0H0m
#WinterResources #SickleCellSociety
❄️ Winter Resource Day 6: COVID-19 vaccine eligibility has changed. People with sickle cell are not eligible unless they have a weakened immune system. They are still eligible for the free flu vaccine. More info: buff.ly/q5Y0H0m & NHS guidance: buff.ly/pto8euf
December 12, 2025 at 9:30 AM
❄️ Winter Resource Day 6: COVID-19 vaccine eligibility has changed. People with sickle cell are not eligible unless they have a weakened immune system. They are still eligible for the free flu vaccine. More info: buff.ly/q5Y0H0m & NHS guidance: buff.ly/pto8euf
❄️Winter Resource Day 5:
The Priority Services Register offers extra support during power, gas or water outages — important for anyone living with sickle cell.
More info: www.sicklecellsociety.org/keepwarm/
#WinterResources #PSR #SickleCellSociety
The Priority Services Register offers extra support during power, gas or water outages — important for anyone living with sickle cell.
More info: www.sicklecellsociety.org/keepwarm/
#WinterResources #PSR #SickleCellSociety
December 11, 2025 at 9:30 AM
❄️Winter Resource Day 5:
The Priority Services Register offers extra support during power, gas or water outages — important for anyone living with sickle cell.
More info: www.sicklecellsociety.org/keepwarm/
#WinterResources #PSR #SickleCellSociety
The Priority Services Register offers extra support during power, gas or water outages — important for anyone living with sickle cell.
More info: www.sicklecellsociety.org/keepwarm/
#WinterResources #PSR #SickleCellSociety
❄️ Winter Resource: Day Four –
The Warm Home Discount gives £150 off electricity bills for those receiving certain means-tested benefits. The discount is applied directly to your bill. buff.ly/q5Y0H0m #SickleCellSociety #WinterResources #WarmHomeDiscount
The Warm Home Discount gives £150 off electricity bills for those receiving certain means-tested benefits. The discount is applied directly to your bill. buff.ly/q5Y0H0m #SickleCellSociety #WinterResources #WarmHomeDiscount
December 10, 2025 at 9:30 AM
❄️ Winter Resource: Day Four –
The Warm Home Discount gives £150 off electricity bills for those receiving certain means-tested benefits. The discount is applied directly to your bill. buff.ly/q5Y0H0m #SickleCellSociety #WinterResources #WarmHomeDiscount
The Warm Home Discount gives £150 off electricity bills for those receiving certain means-tested benefits. The discount is applied directly to your bill. buff.ly/q5Y0H0m #SickleCellSociety #WinterResources #WarmHomeDiscount
Our CEO, John James, is in Virginia attending the American Society of Haematology conference, where he has presented as a guest speaker and joined colleagues in the ASH 5K walk/run. A great opportunity for global learning and collaboration.
#ASH2026 #SickleCellSociety
#ASH2026 #SickleCellSociety
December 9, 2025 at 1:38 PM
Our CEO, John James, is in Virginia attending the American Society of Haematology conference, where he has presented as a guest speaker and joined colleagues in the ASH 5K walk/run. A great opportunity for global learning and collaboration.
#ASH2026 #SickleCellSociety
#ASH2026 #SickleCellSociety
❄️ Winter Resource Day 3:
The Cold Weather Payment offers £25 towards heating costs if temperatures stay at zero degrees or below for 7 days and you receive certain benefits.
#WinterResources #ColdWeatherPayment #SickleCellSociety www.sicklecellsociety.org/keepwarm/
The Cold Weather Payment offers £25 towards heating costs if temperatures stay at zero degrees or below for 7 days and you receive certain benefits.
#WinterResources #ColdWeatherPayment #SickleCellSociety www.sicklecellsociety.org/keepwarm/
December 9, 2025 at 9:30 AM
❄️ Winter Resource Day 3:
The Cold Weather Payment offers £25 towards heating costs if temperatures stay at zero degrees or below for 7 days and you receive certain benefits.
#WinterResources #ColdWeatherPayment #SickleCellSociety www.sicklecellsociety.org/keepwarm/
The Cold Weather Payment offers £25 towards heating costs if temperatures stay at zero degrees or below for 7 days and you receive certain benefits.
#WinterResources #ColdWeatherPayment #SickleCellSociety www.sicklecellsociety.org/keepwarm/
❄️ Winter Resource Day 2: The Winter Fuel Payment provides £100–£300 to help with heating costs, but is only available to people born before 25 Sept 1959. Sharing to help keep our community informed. buff.ly/q5Y0H0m #SickleCellSociety #WinterResources #CostOfLivingSupport
December 8, 2025 at 10:22 AM
❄️ Winter Resource Day 2: The Winter Fuel Payment provides £100–£300 to help with heating costs, but is only available to people born before 25 Sept 1959. Sharing to help keep our community informed. buff.ly/q5Y0H0m #SickleCellSociety #WinterResources #CostOfLivingSupport
❄️ Winter Resource: Day One – Flu Vaccination. We’re sharing info to help individuals with Sickle Cell make informed decisions about the flu vaccine this winter. For more details, visit our Winter page buff.ly/q5Y0H0m or see NHS guidance: buff.ly/pyWMEfW#Wint...
December 7, 2025 at 9:30 AM
❄️ Winter Resource: Day One – Flu Vaccination. We’re sharing info to help individuals with Sickle Cell make informed decisions about the flu vaccine this winter. For more details, visit our Winter page buff.ly/q5Y0H0m or see NHS guidance: buff.ly/pyWMEfW#Wint...
❄️ Winter Support Series ❄️This week we’re sharing 7 winter resources to help individuals and families living with sickle cell stay informed about the support available during the colder months. Anything you’d like us to cover? comment and let us know. 💛#WinterResources
December 6, 2025 at 9:30 AM
❄️ Winter Support Series ❄️This week we’re sharing 7 winter resources to help individuals and families living with sickle cell stay informed about the support available during the colder months. Anything you’d like us to cover? comment and let us know. 💛#WinterResources
Thanks to NTCG Brixton for hosting us on November 23rd to share the Sickle Cell Society's work and raise SCD awareness. Grateful to Bishop Mullings, Doreen Dias, Rev Sheila Bernard, and NHSBT for running the blood drive. ❤️🩸 #SickleCellSociety #NHSBT #NTCG #BloodDonation
December 2, 2025 at 9:00 AM
Thanks to NTCG Brixton for hosting us on November 23rd to share the Sickle Cell Society's work and raise SCD awareness. Grateful to Bishop Mullings, Doreen Dias, Rev Sheila Bernard, and NHSBT for running the blood drive. ❤️🩸 #SickleCellSociety #NHSBT #NTCG #BloodDonation
✨ New resource: We’ve launched a series of nutritional advice videos to support recovery, wellbeing and staying well with sickle cell. Created with the North East & Yorkshire Haemoglobinopathy Network & Claudine Matthews.🔗 www.sicklecellsociety.org/resource/foo... #SickleCellSociety #FoodForMedicine
November 26, 2025 at 9:00 AM
✨ New resource: We’ve launched a series of nutritional advice videos to support recovery, wellbeing and staying well with sickle cell. Created with the North East & Yorkshire Haemoglobinopathy Network & Claudine Matthews.🔗 www.sicklecellsociety.org/resource/foo... #SickleCellSociety #FoodForMedicine
Thank you to Titi and the Hope for Sickle Cell team for hosting our Family Retreat Coordinator, Samantha, at your Autumn Gala.
We’re grateful for the networking, the warm welcome, and the fundraising in support of our work. ❤️🩸
#SickleCellSociety #HopeForSickleCell
We’re grateful for the networking, the warm welcome, and the fundraising in support of our work. ❤️🩸
#SickleCellSociety #HopeForSickleCell
November 25, 2025 at 4:18 PM
Thank you to Titi and the Hope for Sickle Cell team for hosting our Family Retreat Coordinator, Samantha, at your Autumn Gala.
We’re grateful for the networking, the warm welcome, and the fundraising in support of our work. ❤️🩸
#SickleCellSociety #HopeForSickleCell
We’re grateful for the networking, the warm welcome, and the fundraising in support of our work. ❤️🩸
#SickleCellSociety #HopeForSickleCell
Our CEO John James will speak at the @Public Policy Projects Genomics Conference.The 4th Annual PPP Genomics conference will explore using genomics research to drive economic growth and achieve equity in healthcare. Join in-person or online. Register now👉 buff.ly/furyPXG
November 25, 2025 at 1:35 PM
Our CEO John James will speak at the @Public Policy Projects Genomics Conference.The 4th Annual PPP Genomics conference will explore using genomics research to drive economic growth and achieve equity in healthcare. Join in-person or online. Register now👉 buff.ly/furyPXG
Last chance! Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters.
🗓️ Closes 28 Nov
🔗 buff.ly/dKvHzGz
#SickleCell #PIP #PatientVoices
🗓️ Closes 28 Nov
🔗 buff.ly/dKvHzGz
#SickleCell #PIP #PatientVoices
November 24, 2025 at 1:17 PM
Last chance! Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters.
🗓️ Closes 28 Nov
🔗 buff.ly/dKvHzGz
#SickleCell #PIP #PatientVoices
🗓️ Closes 28 Nov
🔗 buff.ly/dKvHzGz
#SickleCell #PIP #PatientVoices
Join our supportive online session for parents & carers of children with sickle cell.
Learn tips, ask questions & connect with other families.
🗓️ 29 Nov | 10:30–12:00 | Zoom
Scan the QR code to register.
#SickleCellSociety #SickleCell #ParentSupport
Learn tips, ask questions & connect with other families.
🗓️ 29 Nov | 10:30–12:00 | Zoom
Scan the QR code to register.
#SickleCellSociety #SickleCell #ParentSupport
November 20, 2025 at 9:00 AM
Join our supportive online session for parents & carers of children with sickle cell.
Learn tips, ask questions & connect with other families.
🗓️ 29 Nov | 10:30–12:00 | Zoom
Scan the QR code to register.
#SickleCellSociety #SickleCell #ParentSupport
Learn tips, ask questions & connect with other families.
🗓️ 29 Nov | 10:30–12:00 | Zoom
Scan the QR code to register.
#SickleCellSociety #SickleCell #ParentSupport
Our CEO, John James OBE, joined Baker McKenzie's Black History Month event to support the Sickle Cell Society. The event aimed to raise awareness about Sickle Cell Disorder and Trait under the theme “Standing Firm in Power and Pride.” #SickleCellSociety
November 19, 2025 at 9:00 AM
Our CEO, John James OBE, joined Baker McKenzie's Black History Month event to support the Sickle Cell Society. The event aimed to raise awareness about Sickle Cell Disorder and Trait under the theme “Standing Firm in Power and Pride.” #SickleCellSociety
Young people with Sickle Cell in North-East London are invited to join a group to create resources for transitioning from children's to adult services. The first meeting is on 22nd November1-3pm at Stratford Library, with online follow-ups. Sign up at buff.ly/0OSmFn1
November 18, 2025 at 2:22 PM
Young people with Sickle Cell in North-East London are invited to join a group to create resources for transitioning from children's to adult services. The first meeting is on 22nd November1-3pm at Stratford Library, with online follow-ups. Sign up at buff.ly/0OSmFn1
📢 Deadline Extended! Join the Sickle Cell Society as our new Assistant Finance Officer (Part-Time). Support our finance team & help make a difference for people living with sickle cell.📅 Apply by 12 Dec 2025 📧 [email protected] #SickleCellSociety #FinanceJobs
November 17, 2025 at 2:11 PM
📢 Deadline Extended! Join the Sickle Cell Society as our new Assistant Finance Officer (Part-Time). Support our finance team & help make a difference for people living with sickle cell.📅 Apply by 12 Dec 2025 📧 [email protected] #SickleCellSociety #FinanceJobs
🧬 The Top 10 research priorities for sickle cell & genomics are now live — shaped by patients, carers and clinicians to guide future research and treatment.
🔗 www.sicklecellsociety.org/sickle-cell-...
#SickleCell #Genomics
🔗 www.sicklecellsociety.org/sickle-cell-...
#SickleCell #Genomics
November 14, 2025 at 3:25 PM
🧬 The Top 10 research priorities for sickle cell & genomics are now live — shaped by patients, carers and clinicians to guide future research and treatment.
🔗 www.sicklecellsociety.org/sickle-cell-...
#SickleCell #Genomics
🔗 www.sicklecellsociety.org/sickle-cell-...
#SickleCell #Genomics
🩸 Extended deadline!
Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters.
🗓️ Closes 28 Nov
🔗 buff.ly/dKvHzGz
#SickleCell #PIP #PatientVoices
Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters.
🗓️ Closes 28 Nov
🔗 buff.ly/dKvHzGz
#SickleCell #PIP #PatientVoices
November 10, 2025 at 12:30 PM
🩸 Extended deadline!
Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters.
🗓️ Closes 28 Nov
🔗 buff.ly/dKvHzGz
#SickleCell #PIP #PatientVoices
Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters.
🗓️ Closes 28 Nov
🔗 buff.ly/dKvHzGz
#SickleCell #PIP #PatientVoices
✨ Trustees’ Week ✨
A huge thank you to our incredible Board of Trustees. Their backgrounds span healthcare, finance and more, and they volunteer their time and expertise to help drive real change for the sickle cell community.
We appreciate you!
#TrusteesWeek #SickleCellSociety
A huge thank you to our incredible Board of Trustees. Their backgrounds span healthcare, finance and more, and they volunteer their time and expertise to help drive real change for the sickle cell community.
We appreciate you!
#TrusteesWeek #SickleCellSociety
November 7, 2025 at 1:54 PM
✨ Trustees’ Week ✨
A huge thank you to our incredible Board of Trustees. Their backgrounds span healthcare, finance and more, and they volunteer their time and expertise to help drive real change for the sickle cell community.
We appreciate you!
#TrusteesWeek #SickleCellSociety
A huge thank you to our incredible Board of Trustees. Their backgrounds span healthcare, finance and more, and they volunteer their time and expertise to help drive real change for the sickle cell community.
We appreciate you!
#TrusteesWeek #SickleCellSociety
✨ Meet Your Mentors ✨
Next up, meet three of our #Manchester team!
This Black History Month, we’re celebrating community — reminding each other that we’re stronger together and never alone.
Find out more by scanning the QR code.#SickleCellSociety #BlackHistoryMonth #Mentoring
Next up, meet three of our #Manchester team!
This Black History Month, we’re celebrating community — reminding each other that we’re stronger together and never alone.
Find out more by scanning the QR code.#SickleCellSociety #BlackHistoryMonth #Mentoring
October 30, 2025 at 9:02 AM
✨ Meet Your Mentors ✨
Next up, meet three of our #Manchester team!
This Black History Month, we’re celebrating community — reminding each other that we’re stronger together and never alone.
Find out more by scanning the QR code.#SickleCellSociety #BlackHistoryMonth #Mentoring
Next up, meet three of our #Manchester team!
This Black History Month, we’re celebrating community — reminding each other that we’re stronger together and never alone.
Find out more by scanning the QR code.#SickleCellSociety #BlackHistoryMonth #Mentoring