Cindy
@txflygirl.bsky.social
Mama 👩👦 🐈 | Inquisitive 🧐
Neurodiverse ♾️ | LGBTQIA 🌈
Nature Photography 🌅 📷
Book Lover 📚 | Quilter 🧵
Covid Cautious 😷
Disabled by Long Covid 🦠
Former Rocket Scientist & Technology Strategist 🚀
Neurodiverse ♾️ | LGBTQIA 🌈
Nature Photography 🌅 📷
Book Lover 📚 | Quilter 🧵
Covid Cautious 😷
Disabled by Long Covid 🦠
Former Rocket Scientist & Technology Strategist 🚀
Pinned
Cindy
@txflygirl.bsky.social
· Sep 7
Long Covid / ME CFS Thread 👇
I put off getting a Cardiopulmonary exercise test (CPET) for 2 years because of logistics and cost. It was a $3k test out of pocket and required travel to Santa Clara, CA. The other recommended location was Ithaca, NY.
I put off getting a Cardiopulmonary exercise test (CPET) for 2 years because of logistics and cost. It was a $3k test out of pocket and required travel to Santa Clara, CA. The other recommended location was Ithaca, NY.
Reposted by Cindy
Parents of newborns/young kids: ask for these vaccines. They save lives and protect against serious diseases.
The hepatitis B vaccine had been recommended for all newborns since 1991.
From 1990-2019, acute hepatitis B infections reported among children and teens fell 99 percent. www.nytimes.com/2025/09/16/w...
From 1990-2019, acute hepatitis B infections reported among children and teens fell 99 percent. www.nytimes.com/2025/09/16/w...
Breaking: After contentious debates and three failed attempts at a vote, a federal vaccine committee decided on Friday to end the decades-long recommendation that all newborns be immunized at birth against hepatitis B.
www.nytimes.com/2025/12/05/h...
www.nytimes.com/2025/12/05/h...
December 5, 2025 at 3:57 PM
Parents of newborns/young kids: ask for these vaccines. They save lives and protect against serious diseases.
Reposted by Cindy
This is an incredible video about POTS / OI and encouraging doctors to learn more about it and believe their patients.
I hope you’ll take the time to watch it. 17 mins to learn and share with others.
youtu.be/mnwkEqQ6ics?...
I hope you’ll take the time to watch it. 17 mins to learn and share with others.
youtu.be/mnwkEqQ6ics?...
POTS : An Invisible Illness | Full Movie
YouTube video by PCARES
youtu.be
December 5, 2025 at 12:05 AM
This is an incredible video about POTS / OI and encouraging doctors to learn more about it and believe their patients.
I hope you’ll take the time to watch it. 17 mins to learn and share with others.
youtu.be/mnwkEqQ6ics?...
I hope you’ll take the time to watch it. 17 mins to learn and share with others.
youtu.be/mnwkEqQ6ics?...
Reposted by Cindy
"In a very short timeframe, AI has become the high-fructose corn syrup of the digital realm: It’s now in everything, even if you don’t want it there." www.sfgate.com/tech/article...
The time has come to declare war on AI
"It's now in everything, even if you don't want it there."
www.sfgate.com
December 4, 2025 at 2:39 PM
"In a very short timeframe, AI has become the high-fructose corn syrup of the digital realm: It’s now in everything, even if you don’t want it there." www.sfgate.com/tech/article...
Reposted by Cindy
More Health Workers Came in to Work With COVID as the Pandemic Wore On.
Presenteeism (working while sick) increased among healthcare workers with COVID. 7.9% worked while sick from Dec 2020–Apr 2024.
• 2020: 1.4%
• 2021: 6.2%
• 2022: 7.2%
• 2023: 10.5%
• 2024: 15.2%
Source: archive.md/UETph
Presenteeism (working while sick) increased among healthcare workers with COVID. 7.9% worked while sick from Dec 2020–Apr 2024.
• 2020: 1.4%
• 2021: 6.2%
• 2022: 7.2%
• 2023: 10.5%
• 2024: 15.2%
Source: archive.md/UETph
December 4, 2025 at 1:40 AM
More Health Workers Came in to Work With COVID as the Pandemic Wore On.
Presenteeism (working while sick) increased among healthcare workers with COVID. 7.9% worked while sick from Dec 2020–Apr 2024.
• 2020: 1.4%
• 2021: 6.2%
• 2022: 7.2%
• 2023: 10.5%
• 2024: 15.2%
Source: archive.md/UETph
Presenteeism (working while sick) increased among healthcare workers with COVID. 7.9% worked while sick from Dec 2020–Apr 2024.
• 2020: 1.4%
• 2021: 6.2%
• 2022: 7.2%
• 2023: 10.5%
• 2024: 15.2%
Source: archive.md/UETph
December 3, 2025 at 9:27 PM
Oof. At ER waiting to be seen because my symptoms have become emergent and the doctor still hasn’t looked at my CT scan results from last Saturday. This is ridiculous & expensive when a PCP doesn’t provide timely care.
December 3, 2025 at 8:33 PM
Oof. At ER waiting to be seen because my symptoms have become emergent and the doctor still hasn’t looked at my CT scan results from last Saturday. This is ridiculous & expensive when a PCP doesn’t provide timely care.
Reposted by Cindy
I ended up drafting an email that didn't really lean on research specific to grade school education, but expressed my concerns in the most basic terms.
I removed the personal details and have shared it as a template here for folks who might find it useful:
bit.ly/TeacherEmail...
I removed the personal details and have shared it as a template here for folks who might find it useful:
bit.ly/TeacherEmail...
![Dear [TEACHER],
I want to make sure we're on the same page for the rest of the year, because I was surprised and disappointed to hear that you uploaded student projects to ChatGPT.
We have always found [SCHOOL] to be a place that encourages students to express themselves creatively, to be responsible and aware of how their actions affect others, and to be intellectually honest – doing their own work, rather than copying from others.
I know ChatGPT has been heavily marketed as an educational tool, but everything about it is the opposite of those values. AI tools are built by training models on stolen work. They have huge and terrible environmental costs, because their data centers generate enormous amounts of pollution and are cooled with drinking water. They're also incredibly dangerous: tools like ChatGPT have taught children how to start fires and even encouraged them to commit suicide.
And in a classroom setting, it teaches students that a machine can express their ideas better than they can. I told [ CHILD ] I was interested in seeing what they had to draw, and my heart sank when they told me "but I can't draw that pretty." Children deserve to draw what they imagine.
These environmental, ethical, and pedagogical concerns are why I don't want [ CHILD ] to use AI tools (or for you to use them on their behalf). For the same reasons, I respectfully ask that you stop using them in your classroom.
If you do plan to use AI this year, please send home a permission slip requesting consent. There are important privacy concerns when you upload student work into a for-profit service like ChatGPT.
Thank you,
[ PARENT ]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:c2xl6zaxo623jzbjb43urymd/bafkreiesldew7oebm4hg2gymd4cftvwmrpbdw6m7eil2buiphw7db4ror4@jpeg)
December 2, 2025 at 4:39 PM
I ended up drafting an email that didn't really lean on research specific to grade school education, but expressed my concerns in the most basic terms.
I removed the personal details and have shared it as a template here for folks who might find it useful:
bit.ly/TeacherEmail...
I removed the personal details and have shared it as a template here for folks who might find it useful:
bit.ly/TeacherEmail...
December 2, 2025 at 3:03 PM
December 2, 2025 at 1:16 AM
My friend’s white plumerias blooming back in July. I got to check on them daily while she was away for a few weeks.
December 1, 2025 at 4:32 PM
My friend’s white plumerias blooming back in July. I got to check on them daily while she was away for a few weeks.
Reposted by Cindy
Even 2 years after infection, around 40% of young people are still experiencing significant fatigue — indicating a major long-term health issue affecting a substantial proportion of youth who have had COVID-19.
Published: 20 November 2025
www.nature.com/articles/s41...
Published: 20 November 2025
www.nature.com/articles/s41...
Fatigue in children and young people up to 24 months after infection with SARS-CoV-2 - Scientific Reports
Scientific Reports - Fatigue in children and young people up to 24 months after infection with SARS-CoV-2
www.nature.com
November 30, 2025 at 11:18 PM
Even 2 years after infection, around 40% of young people are still experiencing significant fatigue — indicating a major long-term health issue affecting a substantial proportion of youth who have had COVID-19.
Published: 20 November 2025
www.nature.com/articles/s41...
Published: 20 November 2025
www.nature.com/articles/s41...
Reposted by Cindy
Scientists studied thousands of children born March 2020-May 2021.
Out of 800+ mothers diagnosed with COVID-19, 16.3% of their babies received a neurodevelopmental diagnosis by 3 years old, compared with 9.7% who weren’t exposed to COVID-19 in utero.
Out of 800+ mothers diagnosed with COVID-19, 16.3% of their babies received a neurodevelopmental diagnosis by 3 years old, compared with 9.7% who weren’t exposed to COVID-19 in utero.
Amid Confusing CDC Guidance About Vaccines, Study Highlights New Risk of COVID-19 During Pregnancy
A Harvard study found that the children of women who contracted COVID-19 while pregnant may be at an increased risk for autism and other diagnoses, raising new concerns about the CDC’s decision to sto...
www.propublica.org
November 30, 2025 at 7:20 PM
Scientists studied thousands of children born March 2020-May 2021.
Out of 800+ mothers diagnosed with COVID-19, 16.3% of their babies received a neurodevelopmental diagnosis by 3 years old, compared with 9.7% who weren’t exposed to COVID-19 in utero.
Out of 800+ mothers diagnosed with COVID-19, 16.3% of their babies received a neurodevelopmental diagnosis by 3 years old, compared with 9.7% who weren’t exposed to COVID-19 in utero.
Thought I would try again … still searching for a tested and loved recipe!
Does anyone have a favorite gluten free and sugar free apple pie recipe they love?
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
November 30, 2025 at 4:38 PM
Thought I would try again … still searching for a tested and loved recipe!
My favorite bouquet of Slaughter Pink plumeria blooms from this summer.
#Nature #NaturePhotography #Bloomscrolling #Plumeria
#Nature #NaturePhotography #Bloomscrolling #Plumeria
November 30, 2025 at 3:44 PM
My favorite bouquet of Slaughter Pink plumeria blooms from this summer.
#Nature #NaturePhotography #Bloomscrolling #Plumeria
#Nature #NaturePhotography #Bloomscrolling #Plumeria
Reposted by Cindy
I’m amazed by a thread going around here where people commenting are all blaming college students for being damaged by a society that sacrificed them for the economy during an ongoing pandemic in which 37% of the global population has long covid.
Society failed the next generation.
Society failed the next generation.
November 29, 2025 at 6:07 PM
I’m amazed by a thread going around here where people commenting are all blaming college students for being damaged by a society that sacrificed them for the economy during an ongoing pandemic in which 37% of the global population has long covid.
Society failed the next generation.
Society failed the next generation.
At the hospital to get a CT scan done and the check in person asks “why do you want the tech to wear a mask?”
I replied “I don’t have to give you a reason, the request is to wear a mask to interact with them.”
At a hospital. Masks should be mandatory given we are still living in a pandemic!
I replied “I don’t have to give you a reason, the request is to wear a mask to interact with them.”
At a hospital. Masks should be mandatory given we are still living in a pandemic!
November 29, 2025 at 3:13 PM
At the hospital to get a CT scan done and the check in person asks “why do you want the tech to wear a mask?”
I replied “I don’t have to give you a reason, the request is to wear a mask to interact with them.”
At a hospital. Masks should be mandatory given we are still living in a pandemic!
I replied “I don’t have to give you a reason, the request is to wear a mask to interact with them.”
At a hospital. Masks should be mandatory given we are still living in a pandemic!
November 29, 2025 at 2:00 AM
Reposted by Cindy
Does anyone have a favorite gluten free and sugar free apple pie recipe they love?
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
November 27, 2025 at 10:57 PM
Does anyone have a favorite gluten free and sugar free apple pie recipe they love?
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
November 28, 2025 at 2:25 AM
…GenAI risks contributing to the erasure of systems of understanding that have evolved over centuries, disconnecting future generations from vast bodies of insight and wisdom that were never encoded yet remain essential, human ways of knowing.
What AI doesn’t know: we could be creating a global ‘knowledge collapse’ | Deepak Varuvel Dennison
The long read: As GenAI becomes the primary way to find information, local and traditional wisdom is being lost. And we are only beginning to realise what we’re missing
www.theguardian.com
November 28, 2025 at 2:18 AM
…GenAI risks contributing to the erasure of systems of understanding that have evolved over centuries, disconnecting future generations from vast bodies of insight and wisdom that were never encoded yet remain essential, human ways of knowing.
Reposted by Cindy
Few patients appeal a health insurance denial, but a little-known process that requires insurers and plans to seek an independent opinion can force insurers to pay for what can be lifesaving treatment.
Here’s what experts say you need to know.
Here’s what experts say you need to know.
This Little-Known Appeal Could Force Your Insurer to Pay for Lifesaving Care. Here’s How to File It.
When a health insurer refuses to pay for your treatment, you may have the right to have the denial reviewed — and potentially overturned — by an independent provider. Here are six steps experts sugges...
www.propublica.org
November 28, 2025 at 12:00 AM
Few patients appeal a health insurance denial, but a little-known process that requires insurers and plans to seek an independent opinion can force insurers to pay for what can be lifesaving treatment.
Here’s what experts say you need to know.
Here’s what experts say you need to know.
Does anyone have a favorite gluten free and sugar free apple pie recipe they love?
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
November 27, 2025 at 10:57 PM
Does anyone have a favorite gluten free and sugar free apple pie recipe they love?
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
Homemade gluten free waffles with cranberry “sauce” on top. Why, yes I am proud of myself for coming up with this amazing meal that works for my long covid food intolerances.
November 27, 2025 at 3:12 PM
Homemade gluten free waffles with cranberry “sauce” on top. Why, yes I am proud of myself for coming up with this amazing meal that works for my long covid food intolerances.
Reposted by Cindy
I mean I have been enraged about this topic for a while, but I had also never actually figured out how they calculate the poverty line.
I am legitimately speechless.
I am legitimately speechless.
We have a “poverty trap” and it’s driving the destruction of social cohesion.
The “poverty line” is’t 35,000, it’s $150,000, and making more than one, and less than the other is worse than being “poor”.
Which is why the rage.
www.yesigiveafig.com/p/part-1-my-...
The “poverty line” is’t 35,000, it’s $150,000, and making more than one, and less than the other is worse than being “poor”.
Which is why the rage.
www.yesigiveafig.com/p/part-1-my-...
Part 1: My Life Is a Lie
How a Broken Benchmark Quietly Broke America
www.yesigiveafig.com
November 26, 2025 at 7:28 PM
I mean I have been enraged about this topic for a while, but I had also never actually figured out how they calculate the poverty line.
I am legitimately speechless.
I am legitimately speechless.
Given Houston hasn’t learned yet that it is almost December I present you a beautiful red rose.
November 26, 2025 at 10:23 PM
Given Houston hasn’t learned yet that it is almost December I present you a beautiful red rose.