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Lumia @wearlumia.bsky.social · Jun 12

Replay of Lumia Lab LIVE, featuring guest experts Dr. Satish Raj & Dr. Amanda Miller, hosted by Lumia inventor Daniel Lee. #Dysautonomia #wearables #cardiology #pots #pwme #pwlc #medsky #citizenscience #bloodflow #neuroscience #posturalorthostatictachycardiasyndrome

www.youtube.com/live/KnUiP_v...

What is Preload? The Key to Boosting Your Blood Flow | Lumia Lab LIVE with Dr. Satish Raj

YouTube video by Lumia

www.youtube.com

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Lumia @wearlumia.bsky.social · Jun 11

We're LIVE

Lumia @wearlumia.bsky.social · Jun 9

Introducing Lumia Lab LIVE – our new livestream series! Watch a 5-minute science lesson & try a guided experiment with your Lumia wearable.
✨RSVP for June 11 at 7:30 PM ET with Dr. Satish Raj: evt.to/eidigoeiw

#LumiaLabLIVE #wearlumia #pots #pwme #pwlc #dysautonomia #wearables #syncope #fainting

Text reads Lumia Lab Live. A caucasian female with hypermobile EDS, POTS and Long Covid Dysautonomia rests on a white bed with her eyes closed, a Lumia wearable device is visible in her ear on close inspection. An iPhone is lying next to her running Live Mode data collection on the blood flow to her head as well as heart rate.

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Lumia @wearlumia.bsky.social · Jun 9

Lumia is now on Reddit! Check out our #wearlumia subreddit: reddit.com/r/wearlumia/

#wearables #pots #dysautonomia #longcovid #bloodflow #pwme #mecfs #spoonies #posturalorthostatictachycardiasyndrome

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Lumia @wearlumia.bsky.social · Jun 9

Introducing Lumia Lab LIVE – our new livestream series! Watch a 5-minute science lesson & try a guided experiment with your Lumia wearable.
✨RSVP for June 11 at 7:30 PM ET with Dr. Satish Raj: evt.to/eidigoeiw

#LumiaLabLIVE #wearlumia #pots #pwme #pwlc #dysautonomia #wearables #syncope #fainting

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Lumia @wearlumia.bsky.social · Jun 6

Our June newsletter is now available! Check your inbox or simple take a look here: In this one, we share Maya's story & announce the debut of Lumia Lab LIVE: mailchi.mp/lumiahealth....
You can subscribe for our monthly email at the www.lumiahealth.com site. #pots #wearables #dysautonomia #wearlumia

Lumia Health Newsletter

What you feel is real. Track blood flow to your head with Lumia.

mailchi.mp

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Lumia @wearlumia.bsky.social · Jun 6

Jill Brook, MA, host of the POTScast, is speaking at #dyscourse2025 right now on nutrition for people with Dysautonomia, #POTS and other chronic illnesses. Low blood volume, or hypovolemia, plays a big role! #Dyscourse #dysautonomia

Register and attend this free event today: t.co/LKKfrcKiqL

Image is a biography card for Jill Brook, MA, and has a small photo of her with the following bio: Jill Brook, MA
Jill is a long-time patient and nutritionist in California. She earned degrees from Princeton University and UCLA, then worked as a nutrition researcher before opening private practice and later serving as Nutrition Consultant to Dysautonomia Clinic. After her own 17-year diagnostic delay, Jill is passionate about improving awareness and research. She recently retired to focus on founding PatientsCount.org with her data scientist husband, so far resulting in over a dozen peer-reviewed research publications. She also serves as Research Liaison to Standing Up to POTS, host of The POTScast and aspiring comic via DoodleThru cartoons. She lives in northern California with her husband and 3 dogs.

Lumia @wearlumia.bsky.social · Jun 6

Excellent talks today at #dyscourse.
Registration will be open during the event, and replays will post to their website. Good info for healthcare providers as well as patients with Dysautonomia.
t.co/LKKfrcKiqL
#DysCourse2025 #Dysautonomia #POTS #pwme #pwlc #LongCovid #chronicillness #medsky

Image is a text graphic with today's agenda at DysCourse by The Dysautonomia Project.

🕒 Here’s what’s coming up TODAY (all times in EST):
12–1PM – The Struggle is Real with Dr. Frye
1:05–2:05PM– Practical Nutrition Tips with Jill Brook, MA
2:10–3:10PM – Managing Medications with Dr. Snapper
3:15–4:15PM– Keynote: Practical Tips for POTS Patients with Dr. Raj
4:15–5:15PM – Resource Hall– Explore tools, products & partner orgs!

Let’s make today a powerful day of learning, community, and hope — all in honor of Christina Tournant. [Photo of Christina at bottom.]

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Lumia @wearlumia.bsky.social · Jun 4

RSVP for Lumia Lab LIVE! Science isn’t just for labs. Become the experiment!
✨ Short expert talk
✨ Live experiment w/ Lumia
Add event: evt.to/eidigoeiw
June 11 at 7:30 PM ET with Dr. Satish Raj.
#LumiaLabLIVE #wearlumia #citizenscience #pots #pwme #longcovid #longcovid #wearables #dysautonomia

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Lumia @wearlumia.bsky.social · Jun 4

Thank you, we will try to be more consistent with it going forward!

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Lumia @wearlumia.bsky.social · Jun 4

Here's a replay of the webinar with Lumia inventor Daniel Ewok Lee, Direct Sync & the Power of Live Mode. Direct to iPhone Sync is available for all Lumia Members. youtu.be/7_0AJyTq8io?... #wearlumia #lumiahealth #wearables #medsky #dysautonomia #chronicillness #longcovid #pwme #pots #neisvoid

Lumia Member Update: Direct Sync & the Power of Live Mode | Lumia Wearable Earpiece Tracker

YouTube video by Lumia

youtu.be

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Reposted by Lumia

Maya Lindemann @mayalongcovid.bsky.social · Jun 3

Such an honor & privilege to represent the chronic illness community ❤️🌺

Lumia @wearlumia.bsky.social · Jun 3

Meet Maya: After a 2020 COVID infection, @mayalongcovid.bsky.social went from diver & school nurse to bed-bound with ME/CFS, POTS & MCAS.
Now, she serves on Lumia’s PAC, bringing the chronic illness community’s voice forward. Read her story: tinyurl.com/wearlumia #longcovid #pots #wearlumia #pwME

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Lumia @wearlumia.bsky.social · Jun 3

Meet Maya: After a 2020 COVID infection, @mayalongcovid.bsky.social went from diver & school nurse to bed-bound with ME/CFS, POTS & MCAS.
Now, she serves on Lumia’s PAC, bringing the chronic illness community’s voice forward. Read her story: tinyurl.com/wearlumia #longcovid #pots #wearlumia #pwME

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Lumia @wearlumia.bsky.social · May 30

Visit to NASA to share Lumia wearable tech and test #bloodflowrestriction with Hydro BFR bands. Full blog post: lumiahealth.com/blogs/news/v... #dysautonomia #wearable #medtech #health #medsky #bfr #wearlumia #lumiahealth

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Lumia @wearlumia.bsky.social · May 29

Just updated our handle -- @wearlumia.bsky.social from lumiahealth.bsky.social to match our other social media handles! We have also completed the legal name update from STAT Health to Lumia Health. What you feel is real. #wearlumia #wearable #lumia #pots #pwme #longcovid #pwlc #dysautononmia.

Bluesky

lumiahealth.bsky.social

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Lumia @wearlumia.bsky.social · May 28

✨DIRECT SYNC!✨ The feature you’ve been waiting for is here!
Download the update. This lets Lumia sync directly from earpiece to iPhone. You can see you data and start a Live Mode while out. apps.apple.com/us/app/lumia... #wearlumia #pots #dysautonomia #pwme #pwlc #longcovid #syncope #lumiahealth

A female presenting person with hypermobility, syncope and orthostatic intolerace lies down reading a book while a kitten walks by. The person is wearing a Lumia ear wearable tracker that tracks blood flow to the head. Text reads: Lumia: Direct to iPhone Sync Now Available. Download app version 1.16.1 to get your Lumia data on the go.

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Lumia @wearlumia.bsky.social · May 18

Register for a zoom May 21 for #wearlumia Members & the curious public! Direct Sync & the Power of Live Mode! lumiahealth.com/blogs/news/s... Find out upcoming features & ideas for self discovery w/ Lumia Live Mode. The Lumia wearable earpiece and app are designed for #pwme #pots #pwlc #dysautonomia

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Lumia @wearlumia.bsky.social · May 8

It’s going to be rolling out over the next couple days for those using our Pre-Release app!

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Lumia @wearlumia.bsky.social · May 7

Our May Newsletter is out with news about NASA, Direct Sync for Lumia, DysCourse, & more!
mailchi.mp/lumiahealth....
#wearlumia #lumiawearable #bloodflow #NASA #bloodflowrestrictionbands #Hytro #lumia #pots #orthostaticintolerance #LongCOVID #pwme #mecfsawareness #dysautonomia

A female presenting person reclines in bed with the legs raised, and is checking the Lumia app to explore blood flow changes in this posture. Lumia tracks blood flow to the head with an in-ear wearable.

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Reposted by Lumia

Kelly @broadwaybabyto.bsky.social · Dec 7

MCAS - When You’re Allergic to Everything and Nothing All at Once

An introduction to mast cell disease that examines what these cells do, why they misbehave and common symptoms, treatments and steps to diagnosis.

It also explains the unique type of idiopathic anaphylaxis we often deal with: /8

When You're Allergic to Everything and Nothing... That's MCAS

An intro guide to Mast Cell Activation Syndrome and how it has fundamentally changed my life. Living under the constant threat of anaphylaxis is hard - but there are ways to make it easier.

www.disabledginger.com

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Lumia @wearlumia.bsky.social · Apr 15

Recipients selected by the Patient Advisor Council for the Lumia Health Financial Assistance Program are onboarding. We emailed all other applicants. To hear about future opportunities, subscribe:
mailchi.mp/lumiahealth....
#longcovid #wearables #wearlumia #pots #pwme #chronicillness #dysautonomia

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Lumia @wearlumia.bsky.social · Apr 3

And meanwhile, if we can help with fitting, please message Lumia Member Support at [email protected] if you aren’t already in dialogue with the team.

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Lumia @wearlumia.bsky.social · Apr 3

Hi Kate! Lumia Clip is being made as quickly as possible. We will be shipping the clear plastic style for free to everyone who is an active #wearlumia Member in about 2 months. Then our premium finishes like the metallic options should be available on our site to order shortly thereafter.

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Reposted by Lumia

Kelly @broadwaybabyto.bsky.social · Dec 7

If you’re dealing with Long Covid - there’s a chance you’re also dealing with MCAS and/or POTS/Dysautonomia.

They’re two of the most common comorbids - and can have a devastating impact on quality of life.

New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?

A mega 🧵 of resources

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Reposted by Lumia

Ziyad Al-Aly MD @zalaly.bsky.social · Oct 19

My first post has to be about #LongCOVID

🔹 400 million individuals affected worldwide
🔹 $1 trillion in annual economic costs
🔹 Countless lives & communities shattered

The time for a comprehensive policy and research response is now!

Details in our review here www.nature.com/articles/s41...

Long COVID science, research and policy - Nature Medicine

This Review outlines the current state of scientific evidence on long COVID, discusses its impacts on patients, health systems, economies and global health metrics, and proposes a forward-looking rese...

www.nature.com

110 700 1.6K

Reposted by Lumia

Long COVID Justice @longcovidjustice.org · Apr 3

Long COVID can include many health issues. Ask doctors about:

- #Dysautonomia (including postural orthostatic tachycardia syndrome, #POTS)

- Myalgic encephalomyelitis (ME), which overlaps with chronic fatigue syndrome. Together, they’re often called ‘#ME/CFS.’

- #Hypermobility

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