Thanks to Jan for her years (decades!) of commitment to people with ME in Wales - whilst living with ME herself. WAMES has consistently pushed the Welsh Gov and Health Boards to take seriously the needs of pwme - a thankless task at times, but Jan has never given up!

…but we're grateful that we have a new date for which we can prepare.

Adam stresses that personal stories carry great weight in such events - they are the lived experiences which help politicians connect with the lives of their constituents, their voters. 3/4

A BIG THANKS to all who’ve supported this effort. And there is still time to contact your MS & urge them to attend & participate in the debate.
Find your local MSs: tinyurl.com/3dea9my3
Personalise a template: www.500milesfor.me
Tell us: [email protected] 2/2

We know that it has a good chance of being selected. Can you help to push it over the line?
 
1. Find your local Constituency/Regional MSs: senedd.wales/find-a-member-… 
 
2. Personalise a template: (500milesfor.me) 
 
3. Tell us: [email protected] 
 
Diolch /Thank you 2/2

We need as many people as possible to contact all of their MSs to ensure we get this debate! Please visit our website to get all the info you need on how to help us - tinyurl.com/mxd3w28z

Diolch 💙 Thank You

4/4

@wamesmecfs.bsky.social @actionforme.bsky.social @meassociation.org.uk

Y Farchnad was a fantastic start. But now, WE NEED YOU!

If you live in #Wales and would like to see this debate happen in the Senedd, then now is the time to help us. Every person in Wales is represented by one Constituency MS and several Regional MSs… 3/4

Primarily for physios, but actually a great, really well researched, readable book for anyone - people with ME, carers/family/friends, and medics/professionals of all sorts. We have purchased and given away about 10 of these to health professionals. uk.jkp.com/products/a-p...

And we have some £ to carry over and plan ahead for next year!

This has been made possible by YOUR generosity.

Diolch o galon / Thank you 💙

4/4

@investinmeresearch.bsky.social #pwME #longcovid #myalgicE #MECFS

www.justgiving.com/fundraising/...

…where they will get the chance to hear about the latest biomedical research in #ME and #LongCovid, meet clinicians and researchers from around the world, and, we hope, make links which will provide on-going opportunities for collaboration. 3/4

We have been able to provide fully funded bursaries for 2 Welsh NHS professionals to attend the 17th International Invest in ME Research Conference at the Genome Campus near Cambridge on May 30th… 2/4

Biomedical research is the key to unlocking answers and improving lives—and every voice and every effort brings us closer to a cure.”

- Linda Tannenbaum, Founder & CEO/President, Open Medicine Foundation, USA-Canada-Australia

2/2

@openmedf.bsky.social @investinmeresearch.bsky.social #pwme #mecfs

It's the same thing repeated at different times to give you an option: next Tue May 13th 11.30-1.00 and Fri 16th May 6.00-7.20pm. Looking forward to seeing you there!! 2/2 tinyurl.com/5dw4z5yf #MECFS #MEawareness #MyalgicEncephalomyelitis @wamesmecfs.bsky.social

Diolch yn fawr / Thank you so much for supporting me & @investinmeresearch.bsky.social! 💙

There’s still time to donate if you would like to: www.justgiving.com/fundraising/...

@vancityreynolds.bsky.social
@robmcelhenny.bsky.social
@wrexhamafc.co.uk
#meresearch #pwme #severeME #LongCovid #MECFS