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adhdpathfinding.org.uk
ADHD Pathfinding
@adhdpathfinding.org.uk
120 followers 7 following 25 posts
Working towards a society where ADHD is understood, supported, and never a barrier to thriving medium.com/adhd-pathfinding
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adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · Aug 11
ADHD care in the UK is a postcode lottery.

Different rules. Long waits. Services that don’t talk to each other.

We’re mapping all this, starting with lived experience.

If you’ve been through ADHD assessment, diagnosis or treatment, your story matters.

No personal info, just what happened.
Your ADHD assessment experience
The information collected will be used to understand and describe the experiences of people seeking ADHD assessment. There is no identifying information collected with the form unless it is typed into...
docs.google.com
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adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 21h
Many ADHD referrals still don’t use the NHS electronic referral system (eRS).

The system exists but isn’t required. That means missing data, lost referrals, and no clear picture of demand across regions.

📅 Part of ADHD Awareness Month. Day 8 of 31
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adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 1d
ADHD referrals are rarely triaged by severity. Everyone just goes into one long queue.

A person in crisis waits the same as someone stable. It’s unsafe and unfair, and it makes early help impossible.

📅 Part of ADHD Awareness Month. Day 7 of 31
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adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 1d
Timely reflections on the politics behind the delayed ADHD Taskforce report and what’s really at stake.

We’ve already set out what Part 2 must contain and how we’ll judge it when it lands.
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adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 2d
ADHD and autism often overlap but services treat them as totally separate.

Two referrals. Two assessments. Two costs. Two waiting lists.

It’s inefficient and unfair. A combined pathway would reflect reality, cut duplication, and speed up support.

📅 Part of ADHD Awareness Month. Day 6 of 31
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adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 3d
That must have been really tough to go through. The lack of joined up care is exactly what we’re trying to change by collecting stories and convening experts.
adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 3d
ADHD is lifelong, but CAMHS and adult neurodiversity services are run separately.

Families can’t be assessed together, and transitions between child and adult care often break down.

Disjointed care, stressful handoffs and missed support opportunities.

📅 Part of ADHD Awareness Month. Day 5 of 31
1 3 12
Reposted by ADHD Pathfinding
adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 13d
After writing about ADHD shared care and prescribing gaps, we’ve put together a ready to use template to write to your MP.

MPs respond to constituents. ICBs respond to pressure. Each message helps show these barriers aren’t isolated, they’re systemic.

This is about fixing what should already work.
How YOU Can Fight Back Against the ADHD Prescribing Gap
A step-by-step guide to writing to your MP and fixing what should already work
medium.com
2 4
Reposted by ADHD Pathfinding
adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 7d
The ADHD Taskforce promised its final report this summer.

Summer is over. No report. Every delay means more children waiting, adults cut off from treatment, families left managing bureaucracy instead of care.

We can’t wait. So we’ve drafted what’s missing.
ADHD Taskforce Report Part 2: Still Waiting
Summer has ended, but the final report still hasn’t appeared
medium.com
3 3
adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 4d
Adult neurodiversity funding hasn’t risen in 10+ years but ADHD referrals have surged with 550,000 people waiting in England.

The result: years-long waits, growing backlogs, and costs shifting to crisis care instead of prevention.

📅 Part of ADHD Awareness Month. Day 4 of 31
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adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 5d
Weeknote 12 is live!

Highlights:

- Tom Natt as our new Community Manager
- Comms Lead role advertised
- ADHD Taskforce report still missing, but we’ve published a benchmark
- Practitioner survey in progress
- Posting a systemic barrier a day for ADHD Awareness Month!
ADHD Pathfinding Weeknote #12
3 October 2025 — Carrying on professionalising, building momentum
medium.com
2 4
adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 5d
ADHD screeners like ASRS and AQ10 miss women, adults, and those with co-occurring autism.

People are turned away before they even reach assessment.

📅 Part of ADHD Awareness Month. Day 3 of 31
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adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 6d
NICE rules say ADHD diagnosis requires current functional impairment. But symptoms ebb and flow.

A child who is well supported at school may not get a diagnosis, even if their difficulties resurface later.

No support until crisis. Higher costs later.

📅 Part of ADHD Awareness Month. Day 2 of 31
2 9
adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 7d
The ADHD Taskforce promised its final report this summer.

Summer is over. No report. Every delay means more children waiting, adults cut off from treatment, families left managing bureaucracy instead of care.

We can’t wait. So we’ve drafted what’s missing.
ADHD Taskforce Report Part 2: Still Waiting
Summer has ended, but the final report still hasn’t appeared
medium.com
3 3
adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 7d
ADHD is more than a symptom checklist. Narrow criteria miss women, adults, and those with co-occurring autism. The result? Missed diagnoses, delayed support, and higher long-term costs.

📅 Part of ADHD Awareness Month — Day 1 of 31
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adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 8d
From waiting lists to contracts: ADHD care is full of barriers.

Starting tomorrow for ADHD Awareness Month, we’ll be sharing 31 posts in 31 days: one barrier each day, and what that means for patients and the NHS.
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adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 11d
We’ve hit a new milestone at ADHD Pathfinding!

In 3 months we’ve launched a survey, built a coalition, published weeknotes/blogs and started growing a community.

Now we’re looking for a Comms, Content & Engagement Lead to help shape our voice.

Reply here or email:
[email protected]
Be the voice of ADHD Pathfinding: Comms, Content & Engagement Lead (volunteer)
A lived-experience-led role to shape how we show up in the world
medium.com
1 2
Reposted by ADHD Pathfinding
adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 12d
Weeknote 11 is live!

- Roles and professionalising: delivery coordinator and community manager in place, looking for comms and engagement lead soon!
- Building community (new collaborators in Slack)
- Practitioner survey in progress
- Preparing for ADHD Awareness Month
ADHD Pathfinding Weeknote #11
26 September 2025 — Building community, building sustainability
medium.com
2 1
adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 12d
Weeknote 11 is live!

- Roles and professionalising: delivery coordinator and community manager in place, looking for comms and engagement lead soon!
- Building community (new collaborators in Slack)
- Practitioner survey in progress
- Preparing for ADHD Awareness Month
ADHD Pathfinding Weeknote #11
26 September 2025 — Building community, building sustainability
medium.com
2 1
adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 13d
After writing about ADHD shared care and prescribing gaps, we’ve put together a ready to use template to write to your MP.

MPs respond to constituents. ICBs respond to pressure. Each message helps show these barriers aren’t isolated, they’re systemic.

This is about fixing what should already work.
How YOU Can Fight Back Against the ADHD Prescribing Gap
A step-by-step guide to writing to your MP and fixing what should already work
medium.com
2 4
adhdpathfinding.org.uk
ADHD Pathfinding @adhdpathfinding.org.uk · 19d
Weeknote 10 is live!

- Our first in-person workshop
- Clarifying purpose and vision
- Talking roles and governance
- New post on the ADHD prescribing gap
- Being featured in the @publicdigital.bsky.social newsletter

And more!
ADHD Pathfinding Weeknote #10
19 September 2025 — Our first workshop — clarifying purpose and next steps
medium.com
4 2
Reposted by ADHD Pathfinding
himal.bsky.social
Himal Mandalia @himal.bsky.social · 19d
This post is Part 3 of our trilogy on ADHD access:

1. Why diagnoses get rejected

medium.com/adhd-pathfin...

2. Why medication is so tightly controlled

medium.com/adhd-pathfin...

3. The prescribing gap

medium.com/adhd-pathfin...

8/8
The ADHD Prescribing Gap
Why GPs say yes, but patients still hear no
medium.com
1 1
Reposted by ADHD Pathfinding
himal.bsky.social
Himal Mandalia @himal.bsky.social · 19d
New @adhdpathfinding.org.uk piece on the prescribing gap. Why GPs say yes, but patients still hear no.

On paper prescribing support looks universal. In practice many people still can’t get medication.

1/8
The ADHD Prescribing Gap
Why GPs say yes, but patients still hear no
medium.com
1 3 3
Reposted by ADHD Pathfinding
publicdigital.bsky.social
Public Digital @publicdigital.bsky.social · 26d
It's a pleasure to be hosting ADHD Pathfinding at Public Digital HQ today, for their first ever in-person meeting.

Read more about their work on Medium medium.com/adhd-pathfin...
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Reposted by ADHD Pathfinding
daverog.bsky.social
Dave Rogers @daverog.bsky.social · 26d
This team was brilliant today. The time they gave to explain their mission and personal stories was generous, and incredibly insightful. Go @adhdpathfinding.org.uk 🙌🏻🙌🏻🙌🏻
himal.bsky.social
Himal Mandalia @himal.bsky.social · 26d
What an absolutely amazing day! Thanks again to @daverog.bsky.social and @publicdigital.bsky.social!

Connecting, workshopping, showing, telling… we’ll share more soon!

For now, our latest weeknote:

medium.com/adhd-pathfin...
Four people standing in front of a poster reading “optimism counts in an era where pessimism prevalent.” Left to right: Man in blue polo, man in shirt and red trousers, women in glasses and print dress, man in yellow t-shirt and glasses.
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Reposted by ADHD Pathfinding
himal.bsky.social
Himal Mandalia @himal.bsky.social · 26d
What an absolutely amazing day! Thanks again to @daverog.bsky.social and @publicdigital.bsky.social!

Connecting, workshopping, showing, telling… we’ll share more soon!

For now, our latest weeknote:

medium.com/adhd-pathfin...
Four people standing in front of a poster reading “optimism counts in an era where pessimism prevalent.” Left to right: Man in blue polo, man in shirt and red trousers, women in glasses and print dress, man in yellow t-shirt and glasses.
1 5