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Himal Mandalia @himal.bsky.social · 15h

ADHD is more than just a label.
But even a label can be important. Especially if all your old ones were “lazy”, “stupid”, “too much”, “naughty” or “no good.”

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Reposted by Himal Mandalia

ADHD Pathfinding @adhdpathfinding.org.uk · 22h

Many ADHD referrals still don’t use the NHS electronic referral system (eRS).

The system exists but isn’t required. That means missing data, lost referrals, and no clear picture of demand across regions.

📅 Part of ADHD Awareness Month. Day 8 of 31

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Himal Mandalia @himal.bsky.social · 1d

NHS England just published new guidance on ADHD service delivery: calling for reviews of waiting lists and better risk management.

Good to see formal recognition that untriaged, date order waiting lists are unsafe and inequitable. But it still lacks national ownership, accountability and standards.

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Reposted by Himal Mandalia

Adam @abrokenbattery.bsky.social · 2d

Simon Wessely — the controversial psychiatrist once dubbed “Britain’s most hated doctor” has been appointed vice chair of Labour’s review into overdiagnosis of mental health and neurodivergence.

www.benefitsandwork.co.uk/news/controv...

Controversial professor to investigate overdiagnosis of mental health and neurodivergence for Labour

Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments...

www.benefitsandwork.co.uk

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Himal Mandalia @himal.bsky.social · 1d

Thanks! It’s what prompted me to post this:

Himal Mandalia @himal.bsky.social · 1d

The timing of this with an overdue report from the ADHD Taskforce… Part 1 in June had solid recommendations.

Publish Part 2, commit to ownership, delivery and a national strategy. Not bury it under another review.

Looks like we’ve got our work cut out at @adhdpathfinding.org.uk

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Exclusive: Streeting orders probe of mental illness overdiagnosis

The health and social care secretary is to launch a review of the prevalence of mental illness and neurodivergence, with a particular focus on whether some conditions are being overdiagnosed, HSJ can ...

www.hsj.co.uk

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Himal Mandalia @himal.bsky.social · 1d

Hard facts are right here and need to feed into a more accurate narrative. Only 1 in 9 of those who have ADHD are diagnosed, or 0.32% from 9 million GP records. Other studies show rising demand is linked to greater awareness.

adhduk.co.uk/adhd-diagnos...

ADHD Diagnosis Rate - Research Statistics ADHD UK

ADHD is only diagnosed when it is having a debilitating impact on life. Over 2 million people with ADHD are undiagnosed and struggling. Find the Statistics here

adhduk.co.uk

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Himal Mandalia @himal.bsky.social · 1d

Not that it’s any consolation, but even moving areas within England results in the same cut off and reset. Why I’m doing what I’m doing.

We’re all going to get there with this.

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Himal Mandalia @himal.bsky.social · 1d

You’re a real fungi.

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Himal Mandalia @himal.bsky.social · 1d

I know. It’s really hard and you can’t just switch off the worry. He is going to be okay and I hope diagnosis has at least brought some certainty.

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Himal Mandalia @himal.bsky.social · 1d

Ministers come and go. I’m focused on the goal.

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Reposted by Himal Mandalia

ADHD Pathfinding @adhdpathfinding.org.uk · 1d

Timely reflections on the politics behind the delayed ADHD Taskforce report and what’s really at stake.

We’ve already set out what Part 2 must contain and how we’ll judge it when it lands.

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Reposted by Himal Mandalia

ADHD Pathfinding @adhdpathfinding.org.uk · 1d

ADHD referrals are rarely triaged by severity. Everyone just goes into one long queue.

A person in crisis waits the same as someone stable. It’s unsafe and unfair, and it makes early help impossible.

📅 Part of ADHD Awareness Month. Day 7 of 31

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Himal Mandalia @himal.bsky.social · 1d

There is a joined up strategy here.
Invest properly in needs-based support to reduce social harm, improve cohesion and strengthen the economy.

This is a Beveridge Report level opportunity on mental health. The research exists. What’s missing is political courage.

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Himal Mandalia @himal.bsky.social · 1d

The political under-acknowledgment of ADHD and similar conditions stems from fear: that recognising it means more sick notes and benefits.

But the cost of neglect is higher: homelessness, addiction, prisons, exclusion. “Economically inactive.” The system pays later for what it ignores now.

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Himal Mandalia @himal.bsky.social · 1d

The timing of this with an overdue report from the ADHD Taskforce… Part 1 in June had solid recommendations.

Publish Part 2, commit to ownership, delivery and a national strategy. Not bury it under another review.

Looks like we’ve got our work cut out at @adhdpathfinding.org.uk

1/2

Exclusive: Streeting orders probe of mental illness overdiagnosis

The health and social care secretary is to launch a review of the prevalence of mental illness and neurodivergence, with a particular focus on whether some conditions are being overdiagnosed, HSJ can ...

www.hsj.co.uk

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Himal Mandalia @himal.bsky.social · 2d

Thank you! 😊

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Himal Mandalia @himal.bsky.social · 2d

Always a pleasure @davidheath.org

Two men at outdoor restaurant table with Turkish meze spread. Man on far side doing a thumbs up.

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Reposted by Himal Mandalia

The Ineffable Horror of Joe Muggs @joemuggs.bsky.social · 2d

had a good rant about the absolute shambles I've had to go through over the past two years, anyone dealing with ADHD provision should do likewise

ADHD Pathfinding @adhdpathfinding.org.uk · Aug 11

ADHD care in the UK is a postcode lottery.

Different rules. Long waits. Services that don’t talk to each other.

We’re mapping all this, starting with lived experience.

If you’ve been through ADHD assessment, diagnosis or treatment, your story matters.

No personal info, just what happened.

Your ADHD assessment experience

The information collected will be used to understand and describe the experiences of people seeking ADHD assessment. There is no identifying information collected with the form unless it is typed into...

docs.google.com

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Reposted by Himal Mandalia

Jamie And Lion (aka, SpacedOutSmiles) @jamieandlion.bsky.social · 2d

The entire medical concept of both is pretty shaky.

I talked with one know the people involved with DSM5… he essentially confirmed ADHD / Autism are separate due to politics and history.

Not because splitting it that way represents a biological reality.

It’s a mess & services end up a mess too.

ADHD Pathfinding @adhdpathfinding.org.uk · 2d

ADHD and autism often overlap but services treat them as totally separate.

Two referrals. Two assessments. Two costs. Two waiting lists.

It’s inefficient and unfair. A combined pathway would reflect reality, cut duplication, and speed up support.

📅 Part of ADHD Awareness Month. Day 6 of 31

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Reposted by Himal Mandalia

ADHD Pathfinding @adhdpathfinding.org.uk · 2d

ADHD and autism often overlap but services treat them as totally separate.

Two referrals. Two assessments. Two costs. Two waiting lists.

It’s inefficient and unfair. A combined pathway would reflect reality, cut duplication, and speed up support.

📅 Part of ADHD Awareness Month. Day 6 of 31

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Himal Mandalia @himal.bsky.social · 3d

One week to go!

Himal Mandalia @himal.bsky.social · 17d

Three weeks to the Royal Parks Half Marathon! Running for The National Autistic Society. Sun 12 Oct.

It’s also around a week after my birthday, so I’ll be doing a thing for friends who want to hang out in Hyde Park. Weekend before is pub but don’t really drink anymore so telling people to… 👇💷💙

Himal's Royal Parks Half Marathon for the National Autistic Society

Help Himal Mandalia raise money to support National Autistic Society

www.justgiving.com

Reposted by Himal Mandalia

ADHD Pathfinding @adhdpathfinding.org.uk · 3d

ADHD is lifelong, but CAMHS and adult neurodiversity services are run separately.

Families can’t be assessed together, and transitions between child and adult care often break down.

Disjointed care, stressful handoffs and missed support opportunities.

📅 Part of ADHD Awareness Month. Day 5 of 31

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Himal Mandalia @himal.bsky.social · 3d

Last year it felt odd. Not used to celebrating my birthday. Or me. This year (left) not a a problem at all. There is absolutely no reason not to celebrate. Every moment of every day. Celebrate everything.

Bearded bespectacled selfie with group of people behind in pub garden. Some raising glasses.

Bearded bespectacled selfie in pub with people behind looking at camera and smiling.

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Himal Mandalia @himal.bsky.social · 3d

Thank you!

Himal Mandalia @himal.bsky.social · 3d

Thank you! 😊

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