Shirley Ledlie
@aheadofourtime.bsky.social
Patient advocate. Raising awareness about permanent hair loss from chemotherapy for breast cancer.
Owner of www.aheadofourtime.org
Former Bella UK mag columnist, author and writer
Media🌟podcast🌟 interviews🌟
#breastcancer #cansky #author #writer #NFFC
Owner of www.aheadofourtime.org
Former Bella UK mag columnist, author and writer
Media🌟podcast🌟 interviews🌟
#breastcancer #cansky #author #writer #NFFC
Sanofi hired a company to silence social media posts about their chemo drug Taxotere causing permanent hair loss. They kept it off the product label until they were forced to include it so reps couldn't discuss it with oncologists.
Court doc
#pharma #sanofi #sanofius #taxotere #breastcancer
Court doc
#pharma #sanofi #sanofius #taxotere #breastcancer
January 2, 2025 at 6:00 AM
Sanofi hired a company to silence social media posts about their chemo drug Taxotere causing permanent hair loss. They kept it off the product label until they were forced to include it so reps couldn't discuss it with oncologists.
Court doc
#pharma #sanofi #sanofius #taxotere #breastcancer
Court doc
#pharma #sanofi #sanofius #taxotere #breastcancer
Many breast cancer patients that discover they're suffering from permanent hair loss after having Docetaxel/Taxotere are angry with themselves. They think had they turned to Google they'd have found out about this life changing side effect.
#breastcancer #cansky #docetaxel #taxotere #chemohair
#breastcancer #cansky #docetaxel #taxotere #chemohair
December 31, 2024 at 12:19 PM
Many breast cancer patients that discover they're suffering from permanent hair loss after having Docetaxel/Taxotere are angry with themselves. They think had they turned to Google they'd have found out about this life changing side effect.
#breastcancer #cansky #docetaxel #taxotere #chemohair
#breastcancer #cansky #docetaxel #taxotere #chemohair
In case you're interested...
December 22, 2024 at 5:21 PM
In case you're interested...
I've been bullied by one of the largest pharma companies in the world. They tried to break my strength. They tried to silence me. Their USA lawyers flew to France to drag me into a French courtroom.
www.amazon.com/dp/B0BDVYFX2H
#breastcancer #empowerment #pharma #reading #memoir #book
www.amazon.com/dp/B0BDVYFX2H
#breastcancer #empowerment #pharma #reading #memoir #book
December 22, 2024 at 11:10 AM
I've been bullied by one of the largest pharma companies in the world. They tried to break my strength. They tried to silence me. Their USA lawyers flew to France to drag me into a French courtroom.
www.amazon.com/dp/B0BDVYFX2H
#breastcancer #empowerment #pharma #reading #memoir #book
www.amazon.com/dp/B0BDVYFX2H
#breastcancer #empowerment #pharma #reading #memoir #book
Misinformation - call it out whenever you see it.
#breastcancer #docetaxel #taxotere #misinformation #pcia #chemohair #cansky
#breastcancer #docetaxel #taxotere #misinformation #pcia #chemohair #cansky
December 21, 2024 at 3:57 PM
Misinformation - call it out whenever you see it.
#breastcancer #docetaxel #taxotere #misinformation #pcia #chemohair #cansky
#breastcancer #docetaxel #taxotere #misinformation #pcia #chemohair #cansky
Before Docetaxel/Taxotere and 5 years later.
Permanent hair loss isn't 'rare' has never been a 'rare' stat according to the EMA & MHRA. Yet doctors still claim it is to their unsuspecting breast cancer patients.
What happened to Informed Consent?
#cansky #docetaxel #taxotere #oncology #pharma
Permanent hair loss isn't 'rare' has never been a 'rare' stat according to the EMA & MHRA. Yet doctors still claim it is to their unsuspecting breast cancer patients.
What happened to Informed Consent?
#cansky #docetaxel #taxotere #oncology #pharma
December 12, 2024 at 10:25 AM
Before Docetaxel/Taxotere and 5 years later.
Permanent hair loss isn't 'rare' has never been a 'rare' stat according to the EMA & MHRA. Yet doctors still claim it is to their unsuspecting breast cancer patients.
What happened to Informed Consent?
#cansky #docetaxel #taxotere #oncology #pharma
Permanent hair loss isn't 'rare' has never been a 'rare' stat according to the EMA & MHRA. Yet doctors still claim it is to their unsuspecting breast cancer patients.
What happened to Informed Consent?
#cansky #docetaxel #taxotere #oncology #pharma
Reposted by Shirley Ledlie
This is your occasional reminder - especially if under NHSE - to check if your “Doctors and anaesthetists” are actually doctors and anaesthetists. If they’re PAs & AAs ask who their supervisors are & why you’re seeing them & not a Dr.
December 9, 2024 at 3:04 PM
This is your occasional reminder - especially if under NHSE - to check if your “Doctors and anaesthetists” are actually doctors and anaesthetists. If they’re PAs & AAs ask who their supervisors are & why you’re seeing them & not a Dr.
Reposted by Shirley Ledlie
I’ll be speaking on this free webinar
Wednesday 18 Dec 7pm
Get your ticket here
www.eventbrite.co.uk/e/the-surgeo...
Wednesday 18 Dec 7pm
Get your ticket here
www.eventbrite.co.uk/e/the-surgeo...
December 9, 2024 at 3:34 PM
I’ll be speaking on this free webinar
Wednesday 18 Dec 7pm
Get your ticket here
www.eventbrite.co.uk/e/the-surgeo...
Wednesday 18 Dec 7pm
Get your ticket here
www.eventbrite.co.uk/e/the-surgeo...
worked for Iron Maiden for a few months when Nico first joined them. They were all great. Nico was expecting his firstborn and asked me if I'd babysit if he brought his partner and baby over. Years later he gave us and my son backstage tickets. Have a great retirement Nico xx
After 42 years, drummer Nicko McBrain will play his final show with Iron Maiden tonight
December 9, 2024 at 1:33 PM
worked for Iron Maiden for a few months when Nico first joined them. They were all great. Nico was expecting his firstborn and asked me if I'd babysit if he brought his partner and baby over. Years later he gave us and my son backstage tickets. Have a great retirement Nico xx
#breastcancer #cansky #mammogram
I've a new GP. He says after 19 years my 'bad' boob has healed and he doesn't want me to have yearly mammograms on it (continue with good side only). He says more damage/risk will be caused by annual mammos and only have them every other year on that side.
I've a new GP. He says after 19 years my 'bad' boob has healed and he doesn't want me to have yearly mammograms on it (continue with good side only). He says more damage/risk will be caused by annual mammos and only have them every other year on that side.
December 9, 2024 at 12:59 PM
#breastcancer #cansky #mammogram
I've a new GP. He says after 19 years my 'bad' boob has healed and he doesn't want me to have yearly mammograms on it (continue with good side only). He says more damage/risk will be caused by annual mammos and only have them every other year on that side.
I've a new GP. He says after 19 years my 'bad' boob has healed and he doesn't want me to have yearly mammograms on it (continue with good side only). He says more damage/risk will be caused by annual mammos and only have them every other year on that side.
It's never 'just' hair, never.
Permanent hair loss pCIA from Docetaxel is not rare.
Hair doesn't always grow back.
#breastcancer #taxotere #docetaxel
Permanent hair loss pCIA from Docetaxel is not rare.
Hair doesn't always grow back.
#breastcancer #taxotere #docetaxel
December 7, 2024 at 4:09 PM
It's never 'just' hair, never.
Permanent hair loss pCIA from Docetaxel is not rare.
Hair doesn't always grow back.
#breastcancer #taxotere #docetaxel
Permanent hair loss pCIA from Docetaxel is not rare.
Hair doesn't always grow back.
#breastcancer #taxotere #docetaxel
Reposted by Shirley Ledlie
Please remember this next time you tell a distraught loved one not to worry about losing her hair to chemo as it will grow back. You're helping to spread misinformation.
What to say instead? Point her in this direction ⬇️
www.aheadofourtime.org
#docetaxel #taxotere #chemohair #breastcancer #cansky
What to say instead? Point her in this direction ⬇️
www.aheadofourtime.org
#docetaxel #taxotere #chemohair #breastcancer #cansky
November 28, 2024 at 7:28 AM
Please remember this next time you tell a distraught loved one not to worry about losing her hair to chemo as it will grow back. You're helping to spread misinformation.
What to say instead? Point her in this direction ⬇️
www.aheadofourtime.org
#docetaxel #taxotere #chemohair #breastcancer #cansky
What to say instead? Point her in this direction ⬇️
www.aheadofourtime.org
#docetaxel #taxotere #chemohair #breastcancer #cansky
I'm new to Blue sky so just feeling my way around. Pretty much the same as X. It's kind of refreshing starting from the beginning 😁
Hi, everyone 👋
Hi, everyone 👋
November 27, 2024 at 1:12 PM
I'm new to Blue sky so just feeling my way around. Pretty much the same as X. It's kind of refreshing starting from the beginning 😁
Hi, everyone 👋
Hi, everyone 👋
Reposted by Shirley Ledlie
How would you end the cancer crisis?
Answers on a postcard
Answers on a postcard
November 18, 2024 at 9:14 PM
How would you end the cancer crisis?
Answers on a postcard
Answers on a postcard
Have you written a memoir about your cancer journey? Some stories just have to be told...this was one of them.
#cansky #breastcancer #sanofi #pharma #taxotere #docetaxel #memoir #author #chemohair
#cansky #breastcancer #sanofi #pharma #taxotere #docetaxel #memoir #author #chemohair
November 27, 2024 at 12:59 PM
Have you written a memoir about your cancer journey? Some stories just have to be told...this was one of them.
#cansky #breastcancer #sanofi #pharma #taxotere #docetaxel #memoir #author #chemohair
#cansky #breastcancer #sanofi #pharma #taxotere #docetaxel #memoir #author #chemohair
I had Taxotere 19 years ago for early stage breast cancer. There was no generic version then so no Docetaxel as most people know it by today.
It caused me and THOUSANDS of women to suffer from permanent hair loss. We were not warned.
#taxotere #docetaxel #pharma #breastcancer #oncology
It caused me and THOUSANDS of women to suffer from permanent hair loss. We were not warned.
#taxotere #docetaxel #pharma #breastcancer #oncology
November 27, 2024 at 10:52 AM
I had Taxotere 19 years ago for early stage breast cancer. There was no generic version then so no Docetaxel as most people know it by today.
It caused me and THOUSANDS of women to suffer from permanent hair loss. We were not warned.
#taxotere #docetaxel #pharma #breastcancer #oncology
It caused me and THOUSANDS of women to suffer from permanent hair loss. We were not warned.
#taxotere #docetaxel #pharma #breastcancer #oncology
Reposted by Shirley Ledlie
Anyway here’s a cheerful piece about how the Sun will eventually destroy all life on Earth (but not by exploding, so, you know, there’s that)
Here’s how the Sun will end all life on Earth
Our home star won't go supernova, but the end of its life will be no less spectacular.
www.sciencefocus.com
November 27, 2024 at 2:38 AM
Anyway here’s a cheerful piece about how the Sun will eventually destroy all life on Earth (but not by exploding, so, you know, there’s that)
On Instagram? You can follow my account for raising awareness about pCIA ⬇️
November 26, 2024 at 8:05 AM
On Instagram? You can follow my account for raising awareness about pCIA ⬇️
Did you know hair doesn't always grow back after chemo for breast cancer?
There's no cure.
It's likely you'll not be fully informed about it. It's medical term is pCIA.
You'll look like a cancer patient forever.
Scalp cooling mitigates the risk protecting the follicles
#scalpcooling #docetaxel
There's no cure.
It's likely you'll not be fully informed about it. It's medical term is pCIA.
You'll look like a cancer patient forever.
Scalp cooling mitigates the risk protecting the follicles
#scalpcooling #docetaxel
November 25, 2024 at 8:23 AM
Did you know hair doesn't always grow back after chemo for breast cancer?
There's no cure.
It's likely you'll not be fully informed about it. It's medical term is pCIA.
You'll look like a cancer patient forever.
Scalp cooling mitigates the risk protecting the follicles
#scalpcooling #docetaxel
There's no cure.
It's likely you'll not be fully informed about it. It's medical term is pCIA.
You'll look like a cancer patient forever.
Scalp cooling mitigates the risk protecting the follicles
#scalpcooling #docetaxel
If you're about to start chemotherapy for breast cancer especially Docetaxel/Taxotere please check out the latest video to hear me talking about permanent hair loss #Docetaxel #breastcancer #chemohair
paxmanscalpcooling.com/living-with-...
paxmanscalpcooling.com/living-with-...
Living with PCIA: Spotlight on Shirley Ledlie - Paxman
Permanent chemotherapy-induced alopecia (PCIA) is a life-changing, often overlooked side effect of cancer treatment. Shirley Ledlie is a passionate advocate...
paxmanscalpcooling.com
November 22, 2024 at 5:59 PM
If you're about to start chemotherapy for breast cancer especially Docetaxel/Taxotere please check out the latest video to hear me talking about permanent hair loss #Docetaxel #breastcancer #chemohair
paxmanscalpcooling.com/living-with-...
paxmanscalpcooling.com/living-with-...