Angioedema News
@angioedemanews.bsky.social
Your source for angioedema news, support, & real stories from the community. Let’s raise AE & HAE awareness together!🎗️
Stay in the know—and never miss an update! https://bit.ly/3FHecMk
Sign up for the weekly newsletter, because knowledge is power, and you’re not alone!
#Angioedema #HAE #PatientSupport #Newsletter #RareDisease #AngioedemaNews #Bionews
Sign up for the weekly newsletter, because knowledge is power, and you’re not alone!
#Angioedema #HAE #PatientSupport #Newsletter #RareDisease #AngioedemaNews #Bionews
December 26, 2025 at 12:31 AM
Stay in the know—and never miss an update! https://bit.ly/3FHecMk
Sign up for the weekly newsletter, because knowledge is power, and you’re not alone!
#Angioedema #HAE #PatientSupport #Newsletter #RareDisease #AngioedemaNews #Bionews
Sign up for the weekly newsletter, because knowledge is power, and you’re not alone!
#Angioedema #HAE #PatientSupport #Newsletter #RareDisease #AngioedemaNews #Bionews
Take a moment today to recognize your progress: https://bit.ly/4kUuC33
It’s easy to get caught up in “what ifs” about the future, but don’t forget to celebrate how far you’ve come.
#Angioedema #HAE #ChronicIllness #CaregiverLife #ProgressNotPerfection #RareDisease #AngioedemaNews #Bionews
It’s easy to get caught up in “what ifs” about the future, but don’t forget to celebrate how far you’ve come.
#Angioedema #HAE #ChronicIllness #CaregiverLife #ProgressNotPerfection #RareDisease #AngioedemaNews #Bionews
December 25, 2025 at 7:46 PM
Take a moment today to recognize your progress: https://bit.ly/4kUuC33
It’s easy to get caught up in “what ifs” about the future, but don’t forget to celebrate how far you’ve come.
#Angioedema #HAE #ChronicIllness #CaregiverLife #ProgressNotPerfection #RareDisease #AngioedemaNews #Bionews
It’s easy to get caught up in “what ifs” about the future, but don’t forget to celebrate how far you’ve come.
#Angioedema #HAE #ChronicIllness #CaregiverLife #ProgressNotPerfection #RareDisease #AngioedemaNews #Bionews
Leave a 📝 in the comments if flares are pop quizzes nobody wants but everyone gets. #InvisibleIllness
December 25, 2025 at 7:46 PM
Leave a 📝 in the comments if flares are pop quizzes nobody wants but everyone gets. #InvisibleIllness
Discover the strength found in facing physical and mental health challenges: https://bit.ly/4hlMPpx
Dual battles of body and mind build resilience. Discover how strength comes from facing both head-on. #RareDisease
Dual battles of body and mind build resilience. Discover how strength comes from facing both head-on. #RareDisease
How I’m enduring my dual battles of body and mind
Columnist Hollie Amadio manages illnesses that affect her body (hereditary angioedema, multiple sclerosis) and mind (depression).
bit.ly
December 25, 2025 at 6:33 PM
Discover the strength found in facing physical and mental health challenges: https://bit.ly/4hlMPpx
Dual battles of body and mind build resilience. Discover how strength comes from facing both head-on. #RareDisease
Dual battles of body and mind build resilience. Discover how strength comes from facing both head-on. #RareDisease
Find practical steps and resources to take action after a hereditary angioedema diagnosis: https://bit.ly/3FD176u
#HAEJourney #PatientEmpowerment #RareDiseaseSupport #TakeAction #HealthResources #AngioedemaNews #Bionews
#HAEJourney #PatientEmpowerment #RareDiseaseSupport #TakeAction #HealthResources #AngioedemaNews #Bionews
December 25, 2025 at 12:31 AM
Find practical steps and resources to take action after a hereditary angioedema diagnosis: https://bit.ly/3FD176u
#HAEJourney #PatientEmpowerment #RareDiseaseSupport #TakeAction #HealthResources #AngioedemaNews #Bionews
#HAEJourney #PatientEmpowerment #RareDiseaseSupport #TakeAction #HealthResources #AngioedemaNews #Bionews
A single treatment that could end HAE attacks for good: https://bit.ly/3FHecMk
Gene therapy research is bringing us closer to that reality.
#HAE #HereditaryAngioedema #GeneTherapy #CRISPR #RareDisease #AngioedemaNews #Bionews
Gene therapy research is bringing us closer to that reality.
#HAE #HereditaryAngioedema #GeneTherapy #CRISPR #RareDisease #AngioedemaNews #Bionews
December 24, 2025 at 7:46 PM
A single treatment that could end HAE attacks for good: https://bit.ly/3FHecMk
Gene therapy research is bringing us closer to that reality.
#HAE #HereditaryAngioedema #GeneTherapy #CRISPR #RareDisease #AngioedemaNews #Bionews
Gene therapy research is bringing us closer to that reality.
#HAE #HereditaryAngioedema #GeneTherapy #CRISPR #RareDisease #AngioedemaNews #Bionews
Take pride in how far you’ve come: even if the road is still long. 🛤 #RareDisease
December 24, 2025 at 7:46 PM
Take pride in how far you’ve come: even if the road is still long. 🛤 #RareDisease
Focus on the gains and stay hopeful, even during uncertain times: https://bit.ly/4hinFYC
Worrying about what’s next can blind you to progress. Stay grounded and celebrate every step forward.#ChronicIllness
Worrying about what’s next can blind you to progress. Stay grounded and celebrate every step forward.#ChronicIllness
Fretting about the future can make us overlook our progress
Instead of fretting about the future needs of her daughter with HAE, columnist Danita LaShelle Jones focuses on what she's accomplished.
bit.ly
December 24, 2025 at 6:33 PM
Focus on the gains and stay hopeful, even during uncertain times: https://bit.ly/4hinFYC
Worrying about what’s next can blind you to progress. Stay grounded and celebrate every step forward.#ChronicIllness
Worrying about what’s next can blind you to progress. Stay grounded and celebrate every step forward.#ChronicIllness
Holding space this holiday season for everyone in the HAE community — whether you’re celebrating, resting, canceling plans, or just trying to get through the day. Your experiences, your boundaries, and your voice matter here, always. 💙
December 24, 2025 at 3:04 PM
Holding space this holiday season for everyone in the HAE community — whether you’re celebrating, resting, canceling plans, or just trying to get through the day. Your experiences, your boundaries, and your voice matter here, always. 💙
Leave a 🧙♀️ in the comments if you wish “just be happy” was a magic pill. #ChronicIllness
December 24, 2025 at 3:47 AM
Leave a 🧙♀️ in the comments if you wish “just be happy” was a magic pill. #ChronicIllness
Stay up to date on promising experimental treatments and clinical trials for hereditary angioedema: https://bit.ly/43PupIn
#ClinicalTrials #ExperimentalTherapies #HAEResearch #RareDiseaseResearch #FutureOfMedicine #AngioedemaNews #Bionews
#ClinicalTrials #ExperimentalTherapies #HAEResearch #RareDiseaseResearch #FutureOfMedicine #AngioedemaNews #Bionews
December 24, 2025 at 12:31 AM
Stay up to date on promising experimental treatments and clinical trials for hereditary angioedema: https://bit.ly/43PupIn
#ClinicalTrials #ExperimentalTherapies #HAEResearch #RareDiseaseResearch #FutureOfMedicine #AngioedemaNews #Bionews
#ClinicalTrials #ExperimentalTherapies #HAEResearch #RareDiseaseResearch #FutureOfMedicine #AngioedemaNews #Bionews
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
December 23, 2025 at 7:47 PM
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Sharing resources builds collective strength. What resource has been most helpful to you? #DisabilityAwareness
December 23, 2025 at 7:46 PM
Sharing resources builds collective strength. What resource has been most helpful to you? #DisabilityAwareness
Follow a family’s experience facing diagnosis and finding hope together: https://bit.ly/4o0N1wH
Facing diagnosis together creates powerful bonds. Follow a mother-daughter story filled with courage and hope. #Diagnosis
Facing diagnosis together creates powerful bonds. Follow a mother-daughter story filled with courage and hope. #Diagnosis
A mother and daughter with a hereditary angioedema diagnosis
Columnist Natalie Sirota tells of her long journey to a hereditary angioedema diagnosis, during which her daughter was also diagnosed.
bit.ly
December 23, 2025 at 6:33 PM
Follow a family’s experience facing diagnosis and finding hope together: https://bit.ly/4o0N1wH
Facing diagnosis together creates powerful bonds. Follow a mother-daughter story filled with courage and hope. #Diagnosis
Facing diagnosis together creates powerful bonds. Follow a mother-daughter story filled with courage and hope. #Diagnosis
Learn More: https://bit.ly/4sc09lf
For some of us, becoming a patient advocate was never optional — it was the only way to survive a system that didn’t see us, believe us, or protect us.
For some of us, becoming a patient advocate was never optional — it was the only way to survive a system that didn’t see us, believe us, or protect us.
December 23, 2025 at 3:04 PM
Learn More: https://bit.ly/4sc09lf
For some of us, becoming a patient advocate was never optional — it was the only way to survive a system that didn’t see us, believe us, or protect us.
For some of us, becoming a patient advocate was never optional — it was the only way to survive a system that didn’t see us, believe us, or protect us.
Faith in the journey is a light that guides you through the darkest moments. 🕯 #ChronicIllnessWarrior
December 23, 2025 at 3:47 AM
Faith in the journey is a light that guides you through the darkest moments. 🕯 #ChronicIllnessWarrior
December 23, 2025 at 12:31 AM
Discover on-demand options for managing swelling attacks: https://bit.ly/4mCCnvR
#Angioedema #HAE #RareDisease #TreatmentOptions #HealthCare #AngioedemaNews #Bionews
#Angioedema #HAE #RareDisease #TreatmentOptions #HealthCare #AngioedemaNews #Bionews
December 22, 2025 at 7:47 PM
Discover on-demand options for managing swelling attacks: https://bit.ly/4mCCnvR
#Angioedema #HAE #RareDisease #TreatmentOptions #HealthCare #AngioedemaNews #Bionews
#Angioedema #HAE #RareDisease #TreatmentOptions #HealthCare #AngioedemaNews #Bionews
Building a safe home environment aids comfort. What adjustments have you made at home? #InvisibleIllness
December 22, 2025 at 7:46 PM
Building a safe home environment aids comfort. What adjustments have you made at home? #InvisibleIllness
Learn why symptoms differ and how personalized care matters: https://bit.ly/4hwaaEX
Symptoms vary — even within families. Learn why personalized care is key to managing your unique HAE journey. #HAE
Symptoms vary — even within families. Learn why personalized care is key to managing your unique HAE journey. #HAE
Angioedema symptoms can vary widely — even within a family
Four people in columnist Natalie Sirota's family have angioedema, but each has a different type that presents with different symptoms.
bit.ly
December 22, 2025 at 6:33 PM
Learn why symptoms differ and how personalized care matters: https://bit.ly/4hwaaEX
Symptoms vary — even within families. Learn why personalized care is key to managing your unique HAE journey. #HAE
Symptoms vary — even within families. Learn why personalized care is key to managing your unique HAE journey. #HAE
December 22, 2025 at 3:04 PM
December 22, 2025 at 12:31 AM
Learn how to recognize and manage caregiver burnout—read more here: https://bit.ly/4dO76SU
#Angioedema #CaregiverSupport #AngioedemaNews #Bionews
#Angioedema #CaregiverSupport #AngioedemaNews #Bionews
December 21, 2025 at 7:47 PM
Learn how to recognize and manage caregiver burnout—read more here: https://bit.ly/4dO76SU
#Angioedema #CaregiverSupport #AngioedemaNews #Bionews
#Angioedema #CaregiverSupport #AngioedemaNews #Bionews